BRIEF COMMUNICATIONS Female Genital Mutilation and Ethical Issues Female Genital Mutilation and Ethical Issues Dya Eldin M. Elsayed1, Rabaa M. Elamin2, Suad M. Sulaiman3 1) Associate Professor, Faculty of Medicine, Alzaiem Alazhari University, Sudan 2) Omdurman Teaching hospital, 3) Alnil College, Omdurman, Sudan Correspondence: Dya Eldin M. Elsayed, E-mail: delsayed2@gmail.com mobile : +249 918 113 930 Abstract Female Genital Mutilation/Cutting (FGM) is practiced in so many countries in Africa and Asia. FGM is a deeply rooted social and cultural requirement for girls before marriage. Supporters of the practice rely on religion and tradition to defend their belief. Nowadays it is considered as an important problem, from both public health and ethical aspects in the countries where it still exists. It violates the essential principles of medical ethics and human rights. The main ethical drawback of FGM is that; it is a senseless practice which provides no direct benefit to girls on whom it is performed. It also inflicts undue harm on the little girls (who are the primary victims). It is performed without consent. So the essential principles of medial ethics are violated. Undefined medical indications for FGM and possible risks to females make it ethically unacceptable. Key words: Female Genital Mutilation Ethics. Introduction The term Female Genital Mutilation and Cutting (FGM/C) (female circumcision) applies to any procedure involving the removal of all or part of the vulva and/or clitoris. It exists and is practiced in some parts of Asia and in so many countries in North and Sub-Saharan Africa including the Sudan. The most frequent type of FGM that occurs throughout Africa involves the removal of the entire clitoris, usually with the labia minora, and in some instances, the labia majora(1). The justification for FGM appears to be grounded in the social desire in terminating or reducing feelings of sexual arousal in women so that they will be much less likely to engage in pre-marital sexual relationship or adultery. Nevertheless, it is now considered a major social and health problem in the countries where it is practiced. It has also become of public health concern in North America and West Europe due to emigration from countries where it is still practiced. It is not surprising to notice that FGM seen in some emigrants was not performed in their home country. Evidence shows that the practice was introduced to new countries(2). It has, arguably, gained most attention among the governments, religious leaders, health professionals, individuals, families and community in Sudan as well as worldwide. The dangers of FGM/C have been recognized by scientific as well as nonscientific social societies. Anti- FGM/C movements started 63 in the Sudan with the rise of awareness about the hazards and evil consequences of FGM. Also the rising civil movements for women’s rights pushed the topic to the forefront. These movements include physicians and other health workers, scientists and social activists, males and females. Anti- FGM/C movements played, and still play, a crucial role to draw off this social habit. They have succeeded to draw the attention of international organizations such as United Nations (UN) and the World Health Organization (WHO) to the health consequences of FGM. The latter had organized the first international seminar on this issue in Khartoum in 1979(3). The WHO, UN International Children’s Fund (UNICEF), and the UN Population Fund (UNFPA) stated that FGM causes unacceptable harm and have called for its complete elimination. In 1984, the African Women’s Organization met in Dakar, Senegal, to discuss the health consequences of female circumcision. The group formed the Inter African Committee against Harmful Traditional Practices (IAC) with national committees in more than 20 African countries in that meeting. IAC was able to bring the harmful consequences of female circumcision to the attention of most African Governments(4). Anti- FGM/C movements focus, among many other arguments, on lack of religious evidence supporting FGM. The main accusation against FGM is the enormous health hazards, both physical and psychological on girls (the primary victims), is BRIEF COMMUNICATIONS Female Genital Mutilation and Ethical Issues the main accusation against it. Numerous studies and case reports have been published on health complications of FGM(5). Yet, several efforts are still needed to eradicate the phenomenon. The FGM supporters (campaign) are not silent. They rigorously fight against anti- FGM/C movements and disgracefully describe any achievements to prohibit the process as unrealistic. They consider it as an essential part of their cultural, ethnic and religious identity and even religious legislations. So we think it is very essential for anti- FGM movements to understand these issues if they ever want to eradicate it. This article is somewhat different from what other authors wrote about this problem. The authors will discuss the ethics of the FGM/C and tackle this side of the problem bearing in mind three different limitations. Firstly, we would not be able to touch the religious laws or codes because this debate has not been settled yet. Secondly, we do not want to talk about the health effects and the problems FGM/C may cause. Highlighting health risks, albeit very important, presents credibility problems, because many women do not suffer from them or are not aware of them. Thirdly, to our knowledge not one article available in the published literature in the Sudan has tackled the problem from an ethical point of view. This fact gives us enthusiasm to open up new areas in support against FGM/C. In this article we will discuss the FGM/C in respect to medical ethics. FGM in SMC laws and regulations Observers may notice that the Sudanese law has fallen following the lead of the first progress. After considering infibulations as a crime punishable by law in 1946 and despite the lack of application, the prohibition law was amended in 1974 to include all types of circumcision, except the Sunnah. But an amendment to the Criminal Code in 1983 dropped the whole subject of female circumcision. The issue has also been ignored in the last amendment which was done in 1991. In May 2005 the Islamic Figh Academy of the Presidency of the Republic issued a fatwa saying that “Sunnah circumcision is a duty for all Muslims, and there is even a payment to do it”. In February 2009 the Sudanese Council of Ministers approved the draft of the “2009-Child Act” in which article 13 on the protection of children from female circumcision was dropped. By support from the WHO and the United Nation Commission on Human Rights, FGM is prohibited 64 by the law in several African, Asian and European countries(6). Medical practice in our country is one of the few professions that have legal power supported by law. The Medico-Legal and Ethical Guidelines adopted by the Sudan Medical Council (SMC) in 1969 are considered the guide for physicians and dentists in their daily work. The main purpose of the document was to ensure the provision of medical care in adherence to the highest possible ethical standards(7). It is not surprising that there is no clear specific clause in the SMC regulations about FGM. We could refer this limitation in this important document to the fact that it was adopted in 1969. At that time FGM was untouchable taboo, even among Sudanese intellectuals. But now we believe that approximately all physicians in our country refuse to do FGM. They just follow universal ethical rules. They leap forward while the regulations are still lagging behind. However, many other medical workers adhere to conventional social norms and violate ethical “professional” rules. Unfortunately they do not consider performing FGM an unethical issue because, most probably, they rely on SMC laws and regulations which have not mentioned FGM at all. Silence of SMC about this problem however gives some professionals insinuation to do it. It doesn’t justify FGM anyway. Since the establishment of SMC medico-legal and ethical guidelines in 1969, they were only reviewed and modified once which was done in 1979(8). We think many newly emerged health problems including FGM deserve to be discussed and included in the SMC laws and regulations. Lisbon Declaration 1988 states that: “a physician should always act according to his/her conscience, and always in the best interests of the patient”(9). The patient’s welfare shall be the doctor’s first consideration. In the case of FGM, medical professionals generally tend to ignore this rule, while parents (families) falsely believe they are following it and request them to do it for their children. Neither attitude is ethically accepted because both are not in the best interest of the little girls. Medical professionals have a duty to provide only medically indicated and appropriate services; not those requested by others(10). Here, the natures of the physician-patient relationship, and the ethical duties of the medical profession, come into play. Here we refer to the financial benefits from the whole performance. Despite the technical issues and potential harm, parents/families insist to do it and medical professionals respond to that BRIEF COMMUNICATIONS Female Genital Mutilation and Ethical Issues pressure. Is it respect to social norms and tradition, the deep rooted culture or fear from detachment from the profession? In our own perspective a third issue strongly exists. This is the financial gain. Families are willing to pay for the operation. Medical professionals eagerly wait for them to pay and gladly accept the payment. This means a lot. Financial conflict of interest is, among other issues, responsible for the continuation of FGM. It is also unethical to put personal benefit over the harm of others – poor little girls. Cultural Justifications of Female Genital Mutilation In societies where FGM is still practiced, including ours, let us call it, at least in this section, circumcision just to distinguish the social practice from FGM; which is generally not considered as mutilation. It is rather recommended and often highly valued. They call it tahara which means purity, purification etc. However, the most commonly used English equivalent expression is chastity. According to Oxford Dictionary chastity means “has never had sex” or “not involving thought and feeling about sex”. Chastity, from which, it takes its name is the main and exceptionally solid base. Other social bases of the practice include religion, cultural myths; and tradition. In whichever society there are certain behaviours or standards in which members of a society are expected to practice in order to successfully deal with one another such as female circumcision. From a social point of view the practice is right because each individual person in the society would like his/her girl to undergo circumcision for purification (tahara). In this context circumcision is morally right. Morals are principles of right and wrong conduct. At the same time we cannot call the person who opposes circumcision as immoral because morals define personal character rather than collective(2, 10). If he/she does not want to circumcise his/her daughter he/she will not be subject to punishment. Morals are different from ethics, which is a set of standards or codes of conduct set by people in a specific profession(11). Ethical Issues in Female Genital Mutilation Ethics is defined as “a moral reasoning of action” which is based on standards or codes of conduct set by people in a specific profession. The code of ethics determines the behaviour of people involved 65 in certain professions. People in professions do not want to commit bad, dishonest or irresponsible actions. Ethics are governed by a set of principles. The essential principles of medical ethics are respect for autonomy, beneficence, nonmaleficence and justice. Medical ethics is application of principles of ethics into medicine and medical practices(12). Medical Ethics is at the heart of the FGM issue in Sudan and elsewhere primarily because it is considered as a medical/surgical intervention performed by some doctors and other medical workers e.g. midwives who are the most frequent medical workers performing genital cutting(1). Usually, physicians or other medical professionals are asked to perform FGM which has no recognized medical value; but on the contrary, it harms the victims. A very important question comes forward: should the medical professional refuse to perform FGM? It is not easy to answer this question. FMG is a social custom that is practiced in our country for millennia. We think medical professionals are often confronted with ethical dilemmas when they are asked to perform FGM. The society accepts it and people expect them to do it better than the non-medical or less-trained health workers, who used to perform it in the past e.g. local midwives. But the more recent rules and regulations of the profession inhibit them from to doing it. “Ethics also refer to the moral reasoning which underlie human relationships and the ways in which they treat each other”(13). The ethical dilemma with performing FGM comes from the deeply held social and religious beliefs about the practice and the moral beliefs that are used by the people who support and continue the practice. In this case if the medical professional performs FGM, he/she does not need any reasoning for his/her action. On the other hand refusal may be considered as a resistance or violation to social norms (morality) which is a very serious insult to cultural identity. Violating social tradition [morals] is considered as disrespect to them. The medical professional may lose his/her credibility and respect as a community oriented health worker. Alternatively, performing medically meaningless and harmful procedures by medical professionals is not only unethical; but it is equally illegal. FGM is considered as a surgical procedure that requires notable medical skills and expertise. So it is an obvious violation of the principle of nonmaleficence i.e. does no harm. Now let us raise another question: who performs it? Most probably, it is done by midwives, nurse midwives as well as village midwives (birth attendants) that BRIEF COMMUNICATIONS Female Genital Mutilation and Ethical Issues and perspectives to harm any other person, even if this person is her own child. FGM is an irreversible and senseless intervention, so we think it can be postponed until these little girls reach eighteen, the age of legal responsibility in the Sudan. Then, they will be able to make an autonomous decision pertaining to their own bodies. This is not a confession from our side of the importance of the practice; it is rather to acknowledge the right of these victims, the potential responsible people of the future. are not trained or qualified to perform surgical interventions. They are also not allowed “by law” to perform such surgical interventions (Sudan National Code 1991; Chapter 14, Article (1) - 139) (14) . They may not be aware or able to treat immediate complications when they occur such as bleeding and/or shock. So they carry out others’ job which is by all means unethical and also illegal. It is unethical because they inflict unnecessary harm and hazard on little girls for nothing, which other wise, could be preventable. The principles of beneficence and nonmaleficence are violated. The logical and ethical answer to our above noted question is yes “medical professional” has to refuse performing such harmful and unneeded maneuvers, because violating social norms for the sake of society members is more valuable and morally and ethically acceptable. This is not a matter of personal values; but of basic, universal and fundamental ethical principles that apply to all people. We believe that negative response towards performing FGM is a positive means to the benefit females. FGM and human rights There is misinformation and strongly held beliefs that FGM improves moral behaviour of females by reducing their sexual arousal. It is also believed that FGM preserves girls’ chastity. The supporters are not aware [or do not want to be aware] that sexual arousal is regulated by a complex hormonal mechanism and directed by the nervous system. On the other hand, human behaviour is based on reasoning and the individual personal value system not physical features. So both, behaviour improvement and sexual control of women through FGM are ethically not accepted. Then why do we reduce their sexual activity and want them to get married and take their social responsibility as wives and mothers at the same time? It is a direct and obvious violation of human rights; it is a violation of women’s rights as human beings. FGM hinders the women’s right to maintain both their social role and normal and healthy sexual life. They have the absolute right to enjoy their sexual life and it is the society’s duty to protect this right. We cannot speak about human rights in a society that cannot protect its girls where FGM becomes a normal practice. This society does not respect human rights. Informed consent and FMG/C As we described earlier, FMG/C is considered a surgical intervention which requires obtaining prior informed consent from the person on whom the surgery will be performed. Informed consent is a procedure that should be assigned without any questions or counter arguments. It is justified to show respect for autonomy, to ensure justice and to minimize risk(15). Informed consent is usually obtained from a competent person i.e. an adult person with a sound mind. In the case of children, informed consent is sought from their parents or any other legal guardian. This is the practice in daily scheduled medical and health care. The only exception is permissible in emergency situations where urgent interventions are to be performed. FGM is neither a medical emergency nor is it important from a medical point of view. To our knowledge, in the case of FGM, informed consent is usually not sought in our country. Nevertheless, medical professionals are often asked to perform FGM by the mother (sometimes by other family members), not for herself; but for another person – her little daughter. Here, the mother is acting as a proxy decision-maker. The proxy decision-maker does not have the right to make her values and perspectives; instead she must do what is in the best interest of her little incompetent daughter. Also, she does not have the right to make her values Conclusion 66 We see that there are so many individuals, people, as well as entire societies, who still believe in the usefulness of female circumcision. They still consider it a normal process that merits support and continuality. We appreciate and respect culture, traditions and social norms. We think they are of paramount importance to everyone in the society. For those people FGM is circumcision. FGM is no longer seen as a traditional custom and has become a health problem of public concern in many countries where it is still practiced. Culture alone cannot justify serious damage to female BRIEF COMMUNICATIONS Female Genital Mutilation and Ethical Issues Guidelines. Khartoum: SMC. 1969. 9. World Medical Association. World Medical Association declaration of Lisbon on the rights of the patient [online]. Available from: http://www. wma.net/en/30publications/10policies/l4/index. html.pdf. [Accessed on 08 August 2010]. 10. Mangan R. Rights and wrongs: intercultural ethics and female genital mutilation. Melbourne Journal of Politics. 2006; 31: 56-74. 11. Singer P, editor. Ethics . Oxford: Oxford University Press; 1994. 12. Beauchamp TL and Childress JF. Principles of Biomedical Ethics. 5th ed. New York: Oxford University Press; 2001. 13. Kluge EH. Female circumcision: when medical ethics confronts cultural values. CMAJ. 1993; 148(2): 288-289. 14. Abdel Aziz MI. Changing policy for female genital mutilation and the case of change: A consensus statement. Sudanese Journal of Public Health. 2009; 4 (2): 236-240. 15. Bottrell MM, Alpert H, Fischbach RL, Emanuel LL. Hospital informed consent for procedure forms: facilitating quality patient-physician interaction. Arch Surg. 2000; 135(1): 26-33. genital organs and no wise defense could be made to preserving such a practice. It is important, however, that for those who are adherent to the culture to have a backward glance to see how many malpractices, which were considered social norms, were thrown out of the social memory. FGM obviously violates the fundamental ethical principles of bodily integrity, autonomy and self determination without the full informed consent of the victim. Therefore, it violates the same social norms and social integrity. The essence of our argument is the following: except for unquestionably curative therapeutic reasons, any procedure made on the body is considered unethical. The drastic nature of FGM; its irreversibility and lack of urgency without consent, or at least by parent consent make it an even more illegal action. Acknowledgement We would like to express our gratitude to Dr. Nancy Kass and Margaret Murphy from Berman Institute of Bioethics at Johns Hopkins University for helping us in preparing the early draft of this paper and precious advice and recommending useful literature. Our gratitude extends to Dr. Awadakareem Elhassan from Alzaiem Alazhari University for editing the early draft of this paper. References 1. Burson I. Social work and female genital cutting: an ethical dilemma. J Soc Work Values Ethics. 2007; 4(1): Online publication. 2. Gibeau AM. Female genital mutilation: when a cultural practice generates clinical and ethical dilemmas. J Obstet Gynecol Neonatal Nurs. 1998; 27(1): 85-91. 3. World Health Organization. Khartoum seminar on Traditional practices affecting the health of women and children, Khartoum, Sudan held on 10-15 February 1979. 1979. 4. Althaus FA. Female Circumcision: Rite of Passage or Violation of Rights? Int Fam Plan Perspect. 1997; 23(3): 130-133. 5. Toubia N. Female circumcision as a public health issue. N Engl J Med. 1994; 331(11): 712-716. 6. Little CM. Female genital circumcision: medical and cultural considerations. J Cult Divers. 2003; 10(1): 30-34. 7. Elsayed DM, Elamin RM. Medical Ethics: What is it? Why is it important? Sudanese Journal of Public Health. 2009; 4(2): 284-287. 8. Sudan Medical Council. Medico-Legal and Ethical 67