Evaluation of a SelfManagement Course Using the Health Education Impact Questionnaire Tiffany Gill Jing Wu Anne Taylor Report by Population Research and Outcome Studies, University of Adelaide for Arthritis SA © 2011 This work is copyright. It may be reproduced and PROS, the School of Medicine at The University of Adelaide welcomes requests for permission to reproduce in the whole or in part for, study or training purposes subject to the inclusion of an acknowledgment of the source and no commercial use or sale. National Library of Australia Cataloguing-in-Publication entry Author: Title: Gill, Tiffany. Evaluation of self-management course using the Health education impact questionnaire / Tiffany Gill ; Jing Wu ; Anne Taylor. ISBN: 9780987207944 (pbk.) Subjects: Arthritis--Patients. Patient self-monitoring. Self-care, Health. Other Authors/Contributors: Wu, Jing. Taylor, Anne, 1950Dewey Number: 616.722 --------------------------------------------------------------------------------------------------------------------------National Library of Australia Cataloguing-in-Publication entry Author: Title: Gill, Tiffany. Evaluation of self-management course using the Health education impact questionnaire [electronic resource] / Tiffany Gill ; Jing Wu ; Anne Taylor. ISBN: 9780987207951 (eBook) Subjects: Arthritis--Patients. Patient self-monitoring. Self-care, Health. Other Authors/Contributors: Wu, Jing. Taylor, Anne, 1950Dewey Number: 616.722 Suggested citation: Gill T, Wu J, Taylor A. Evaluation of a Self-management course using the Health education impact questionnaire. School of Medicine, University of Adelaide, 2011. Evaluation of Self Management Course Page 2 TABLE OF CONTENTS CHAPTER 1: INTRODUCTION AND METHODOLOGY ..................................................... 7 Introduction................................................................................................................................................ 8 Aim ............................................................................................................................................................. 8 Methodology .............................................................................................................................................. 8 Questionnaires ........................................................................................................................................ 8 Sample selection...................................................................................................................................... 9 Response rates ........................................................................................................................................ 9 CHAPTER 2: DEMOGRAPHIC PROFILE AND TYPE OF ARTHRITIS ...........................11 Introduction.............................................................................................................................................. 12 Age and sex of respondents ...................................................................................................................... 12 Health conditions...................................................................................................................................... 12 How long ago participated in the MTW course ......................................................................................... 14 Severity of condition ................................................................................................................................. 14 Summary .................................................................................................................................................. 16 CHAPTER 3: HEALTH EDUCATION IMPACT QUESTIONNAIRE (HEIQ™) .................17 Health Education Impact questionnaire (heiQ™) ...................................................................................... 18 Positive engagement with life ................................................................................................................... 19 Health directed behaviour ........................................................................................................................ 21 Skill and technique acquisition ................................................................................................................. 24 Constructive attitudes and approaches ..................................................................................................... 26 Self-monitoring and insight....................................................................................................................... 28 Health service navigation.......................................................................................................................... 30 Social integration and support .................................................................................................................. 32 Emotional wellbeing – negative effect ...................................................................................................... 34 Summary .................................................................................................................................................. 35 Evaluation of Self Management Course Page 3 Evaluation of Self Management Course Page 4 EXECUTIVE SUMMARY Executive Summary Arthritis SA is a leader in conducting self-management courses in South Australia. Known as the “Moving Towards Wellness” Course (MTW), sessions are conducted throughout the year with approximately 200 attendees annually. The aim of this study was to examine whether participants in self-management courses still used the skills they had learnt and to determine their perception of their current quality of life. The TM Health Education Impact Questionnaire (heiQ ) was then used to evaluate the impact of the MTW course in conjunction with these other factors. The heiQ™ was developed in order to provide a relevant and valid evaluation and data management system for health education and selfmanagement programs. Demographic characteristics Generally females and those aged over 65 years attended MTW courses. While those with arthritis were those who most commonly attended the courses, there were also participants with a wide range of other conditions. Older people (those who were more likely to attend the course) and recent attendees were also more likely to say that their condition was not severe at the time of attending the course. Results Demographic factors impact on the quality of life following a self management course, as measured by the heiQTM, with age and severity of the condition generally the most significant factors. Generally, it can be seen that for the eight evaluation domains, as measured by the heiQ TM, those who were able to do things that they could not do before, were able to exercise, deal with problems differently, had improve interactions with health care providers, improved quality of life and life had improved a lot, generally had higher scores. This indicates improvements in functioning as a result of the self-management course. Thus, the MTW course does have some benefits as measured by the heiQTM. Evaluation of Self Management Course Page 6 CHAPTER 1: INTRODUCTION AND METHODOLOGY Introduction and methodology Introduction Arthritis SA is a leader in conducting self-management courses in South Australia. Known as the “Moving Towards Wellness” Course (MTW), sessions are conducted throughout the year with approximately 200 attendees annually. However the impact of the course has not been assessed since its implementation. Aim The aim of this study was to examine whether participants in self-management courses still used the skills they had learnt and to determine their perception of their current quality of life. The Health Education Impact Questionnaire (heiQTM) was then used to evaluate the impact of the MTW course in conjunction with these other factors. Methodology Questionnaires A short questionnaire was designed by the Education and Research Committee of the Board of Arthritis SA. The questionnaire examined disease severity, skills learnt during the course and whether these skills were still utilised. A separate report focuses specifically on the responses to TM these questions. The Health Education Impact Questionnaire (heiQ ) was chosen to evaluate the self-management program and examines these responses in conjunction with those obtained from the questionnaire designed by the Education and Research Committee. The questions used in TM conjunction with the heiQ were: Sex. Age. On a scale of 1 to 10 with 1 being not severe at all and 10 being the most severe imaginable, how would you rate the severity of your condition when you started the “Moving Towards Wellness” course? On a scale of 1 to 10 with 1 being not severe at all and 10 being the most severe imaginable, how would you rate the severity of your condition now? How long ago did you participate in a “Moving Towards Wellness” course? Are you still using the skills you learnt? As a result of the course, have you been able to do things that you weren’t able to do before? As a result of the course do you do more exercise? As a result of the course do you deal with problems differently? As a result of the course have your interactions with health care providers (including medical practitioners) improved? As a result of the course has your quality of life improved? On a scale of 1 to 10 with 1 being not at all, how has your life improved following the “Moving Towards Wellness” course As a result of the “Moving Towards Wellness Course have you used any of the other services offered by Arthritis SA? Evaluation of Self Management Course Page 8 Introduction and methodology Sample selection All respondents who had attended a MTW course in the last ten years and whose contact details were recorded by Arthritis SA were eligible to participate. All were sent a copy of the two questionnaires with an accompanying letter explaining the purpose of the survey. A reply paid envelope was included. All questionnaires had a number which was linked to the address database at Arthritis SA. Arthritis SA maintained a list of returned questionnaires and then provided all deidentified questionnaires for data entry. Response rates The response rate has been calculated as shown in Table 1.1. Overall, 701 questionnaires were sent with six people reporting that they had not done the course, six were deceased and 26 returned to sender, leaving 663 questionnaires in the eligible sample. There was no follow up for unreturned questionnaires. Overall 244 questionnaires were returned (response rate 36.8%). Table 1.1: Response rate n Eligible sample Declined % 663 18 2.7 Not returned 401 60.5 Returned questionnaires 244 36.8 Evaluation of Self Management Course Page 9 Introduction and methodology Evaluation of Self Management Course Page 10 CHAPTER 2: DEMOGRAPHIC PROFILE AND TYPE OF ARTHRITIS Demographics Introduction This section presents the general information collected from all of the respondents (n=244) in regards to their demographic profile (age, sex and time since course), the type of arthritis and/or other health conditions respondents had, and a rating of the severity of their condition. Age and sex of respondents Information about age and sex was collected from all respondents (n=244). Results are shown in Table 2.1. The mean age was 65.33 years (SD 11.274, Range 22-90). Table 2.1: Sex and age group of respondents n % 36 14.8 Females 201 82.4 Refused 7 2.9 Sex Males Age group 22 to 44 years 6 2.5 45 to 64 years 102 41.8 65 years or over 135 55.3 Refused Total 1 0.4 244 100.0 Health conditions The following table presents the types of arthritis and other health conditions reported by all of the respondents (n=244) (Table 2.2). Table 2.2: Arthritis and other health conditions of respondents* n % 95% CI Arthritis and other health conditions* Osteoarthritis 160 67.2 (60.9 - 73.2) Fibromyalgia 59 24.8 (19.4 - 30.8) Rheumatoid arthritis 50 21.0 (16.0 - 26.7) Osteoporosis 14 5.9 (3.3 - 9.7) Psoriatic arthritis 11 4.6 (2.3 - 8.1) Lupus 6 2.5 (0.9 - 5.4) Sjögren’s syndrome 6 2.5 (0.9 - 5.4) 61 25.6 (20.2 - 31.7) Other * Multiple response Evaluation of Self Management Course Page 12 Demographics “Other” arthritis and musculoskeletal conditions that the course participants had are listed below: Paget’s disease (3) Connective tissue disorder (2) Scleroderma, Crest (3) Seronegative synovitis (1) Scoliosis (3) Scheuermann's (1) Unknown type of arthritis (3) Sciatica (1) Polymyalgia rheumatica (2) Bursitis (1) Inflammatory spondyloarthropathy (2) Osteopenia (1) Calcification of the spine (1) Disc bulges (2) Back injury (1) “Other” health conditions that the course participants had are listed below: Cardiovascular disease (stroke, high blood pressure, angina, atrial fibrillation) (8) Depression, chronic fatigue syndrome and bipolar disease (7) Chronic airway or lung disease (COPD, COAD, bronchiectasis) (6) Asthma (4) Colitis (1) Neuropathic disorder, multiple sclerosis (3) Methicillin-resistant Staphyococcus aureus (MRSA) (1) Diabetes (2) Insulinemia (1) Auto-immune disease (2) Poliomyelitis (1) Allergies (1) Urticaria (1) Coeliac (1) Hearing or eye problem (2) Evaluation of Self Management Course Page 13 Demographics How long ago participated in the MTW course All respondents (n=244) were asked how long ago they participated in the MTW course. The results are in Table 2.3. The majority of respondents had participated in the course within the last three years. Table 2.3: Time since participating the MTW course Less than one month to three years n % 95% CI 131 53.7 (47.2 - 60.1) More than three years 94 38.5 (32.4 - 44.9) Don’t know 19 7.8 (4.7 - 11.9) 244 100.0 Total Severity of condition All respondents (n=244) were asked to rate, on a scale of 1 to 10, the severity of their condition when they started the MTW course and the severity of their condition at the time of the survey. All participants who gave a score for both before the course and now were compared (n=239). The severity score now was statistically significantly lower compared to at the time of the course (p<0.01) (Table 2.5). Table 2.4: Comparison of severity score before MTW course and now Mean (SD) When started MTW course 6.2 (2.1) Now 4.9 (2.5) p <0.01 The severity, on a 1-10 scale, was classified into “not severe” (score of 1 to 5) and “severe” (score of 6 to10). A higher proportion of respondents rated their condition more severe before the MTW course compared to the now, at the time of the survey (Table 2.5). Table 2.5: Severity of condition n % 95% CI When started MTW course Not severe 88 36.5 (30.4 - 42.9) Severe 153 63.5 (57.1 - 69.6) Total 241 100.0 142 59.4 (52.9 - 65.7) 97 40.6 (34.3 - 47.1) 239 100.0 Now Not severe Severe Total Evaluation of Self Management Course Page 14 Demographics When examining severity at the time of the MTW course, respondents aged 65 years and over, were less likely to report that their condition was severe and those who had attended the course more than three years ago were more likely to report that their condition was severe at the time of the course (Table 2.6). Table 2.6: Severity of condition when started MTW course by age, sex and when participated in the MTW course Not severe n Severe % (95% CI) n % (95% CI) Sex Males 14 16.3 (9.2 - 25.8) 22 14.8 (9.5 - 21.5) Females 72 83.7 (74.2 - 90.8) 127 85.2 (78.5 - 90.5) Total 86 100.0 149 100.0 Age 18 to 44 years - 6 3.9 (1.5 - 8.3) 45 to 64 years 31 35.2 (25.3 - 46.1) - 70 45.8 (37.7 - 54.0) 65 years or over 57 64.8 (53.9 - 74.7) ↑ 77 50.3 (42.1 - 58.5) ↓ Less than one month to three years ago 58 65.9 (55.0 - 75.7) ↑ 72 47.1 (38.9 - 55.3) ↓ More than three years ago 21 23.9 (15.4 - 34.1) ↓ 72 47.1 (38.9 - 55.3) ↑ Time since participation Don’t know Total 9 88 10.2 (4.8 - 18.5) 100.0 9 153 5.9 (2.7 - 10.9) 100.0 ↓↑ Statistically significantly higher or lower (p<0.05) compared between categories of severity Evaluation of Self Management Course Page 15 Demographics There were no significant differences between sex, age group and the time since participating in the MTW course in terms of the rating of severity at the time of the survey (Table 2.7). Table 2.7: Severity of condition now by age, sex and when participated in the MTW course Not severe n Severe % (95% CI) n % (95% CI) Sex Males 25 18.1 (12.1 - 25.6) 11 11.6 (5.9 - 19.8) Females 113 81.9 (74.4 - 87.9) 84 88.4 (80.2 - 94.1) Total 138 95 100.0 100.0 Age 18 to 44 years 3 45 to 64 years 54 38.0 (30.0 - 46.5) 2.1 - 45 3 46.4 (36.2 - 56.8) 3.1 - 65 years or over 85 59.9 (51.3 - 68.0) 49 50.5 (40.2 - 60.8) Less than one month to three years ago 76 53.5 (45.0 - 61.9) 53 54.6 (44.2 - 64.8) More than three years ago 56 39.4 (31.3 - 48.0) 37 38.1 (28.5 - 48.6) Don’t know 10 7.0 (3.4 - 12.6) 7 7.2 (3.0 - 14.3) Time since participation Total 142 100.0 97 100.0 Summary Generally females and those 65 years and over attended MTW courses, thus the course is not targeting males or the younger population. While those with arthritis were those who most commonly attended the courses, there were also participants with a wide range of other conditions, which raises questions of who the course is being targeted at. Older people (those who were more likely to attend the course) and recent attendees were also more likely to say that their condition was not severe at the time of attending the course. Evaluation of Self Management Course Page 16 CHAPTER 3: HEALTH EDUCATION IMPACT QUESTIONNAIRE (HEIQ™) TM heiQ Health Education Impact questionnaire (heiQ™) The Health Education Impact Questionnaire (heiQ™) was developed in order to provide a relevant and valid evaluation and data management system for health education and self-management programs. The questionnaire is composed of eight domains and 40 questions1. All respondents (n=244) were asked to complete the heiQ™ Version 3 follow up questionnaire. The mean scores for each of the eight domains are presented in Table 3.1. Table 3.1: Eight domains of heiQ™ heiQ Domain 1 Mean (SD, range) Positive and active engagement in life 2.99 (0.38, 1.00 – 4.00) Health directed behaviour 3.19 (0.51, 1.00 – 4.00) Skill and technique acquisition 2.87 (0.33, 2.00 – 3.80) Constructive attitudes and approaches 2.86 (0.40, 1.75 – 3.80) Self-monitoring and insight 2.74 (0.37, 1.83 – 3.83) Health service navigation 2.92 (0.35, 1.50 – 4.00) Social integration and support 2.98 (0.46, 1.40 – 4.00) Emotional wellbeing 3.97 (0.51, 3.00 – 6.00) http://www.crd.unimelb.edu.au/heiq/ Evaluation of Self Management Course Page 18 TM heiQ Positive engagement with life This construct covers the motivation to be active and assesses whether participants in selfmanagement/health education programs have engaged or re-engaged in life-fulfilling activities as a result of the program. The items measure the individuals’ activities to convert intentions into 2 positive outcomes, and imply a change of lifestyle and life activities . The questions used to measure this construct are: I am doing interesting things in my life. Most days I am doing some of the things I really enjoy. I try to make the most of my life. I have plans to do enjoyable thing for myself during the next few days. I feel like I am actively involved in life2. There was a significant difference between age groups in the mean score for positive and active engagement in life, with older age groups reporting a lower score compared to the youngest age group (p=0.02) (Table 3.2). Table 3.2: Positive and active engagement in life by sex, age group, when participated in the MTW course, severity of condition, still use skills learnt Positive and active engagement in life n Mean (SD) p-value Sex Male 36 2.89 (0.33) 195 3.02 (0.36) 18 to 44 years 6 3.24 (0.20) 45 to 64 years 100 3.05 (0.31) 65 years or over 131 2.93 (0.42) Female 0.06 Age group 0.02 Time since participation Less than one month to three years ago 128 2.99 (0.43) More than three years ago 92 3.00 (0.32) Don’t know 18 2.92 (0.25) 88 2.98 (0.35) 149 2.99 (0.40) 141 2.96 (0.36) 94 3.02 (0.41) Yes 206 2.98 (0.38) No 16 2.95 (0.31) 0.73 Severity of condition when started the MTW course Not severe Severe 0.75 Severity of condition now Not severe Severe 0.25 Still use the skills learnt Differences between means tested by one-way ANOVA or independent samples t-test. Significance p<0.05 2 http://www.crd.unimelb.edu.au/heiq/ heiQ™ items Version 3 Evaluation of Self Management Course Page 19 0.78 TM heiQ There were no significant differences between mean scores for positive and active engagement in life for: able to do things that weren’t able to before; able to do more exercise; dealing with problems differently; having improved interaction with health care providers; having improved quality of life; life had improved somewhat or a lot; and having used other services offered by Arthritis SA (Table 3.3). Table 3.3: Positive and active engagement in life as a result of the MTW course Positive and active engagement in life n Mean (SD) Yes 112 2.99 (0.43) No 118 2.99 (0.34) Yes 149 2.98 (0.41) No 84 3.00 (0.32) Yes 168 3.00 (0.39) No 66 2.95 (0.36) Yes 152 3.01 (0.41) No 77 2.93 (0.31) Yes 152 3.01 (0.39) No 75 2.98 (0.34) 137 2.96 (0.33) 97 3.03 (0.43) Yes 100 3.00 (0.39) No 132 3.00 (0.33) p-value Able to do things that weren’t able to 0.95 Do more exercise 0.69 Deal with problems differently 0.32 Improved interaction with health care providers 0.14 Improved quality of life 0.66 How has life improved Improved somewhat Improved a lot 0.17 Have used other services offered by Arthritis SA Differences between means tested by one-way ANOVA or independent samples t-test. Significance p<0.05 Evaluation of Self Management Course Page 20 0.94 TM heiQ Health directed behaviour This scale is similar to the first in that it relates to a change in lifestyle, however in this case the change is tangible and specifically related to healthy behaviours. The activities may include changes in exercise, relaxation routines and diet which are aimed at either disease prevention and/ 3 or health promotion . The questions used to measure this construct are: I walk for exercise, for at least 15 minutes per day, most days of the week. I do at least one type of physical activity every day for at least 30 minutes (e.g. walking, gardening, housework, golf, bowls, dancing, Tai Chi, swimming). On most days of the week, I do at least one activity to improve my health (e.g. walking, relaxation, exercise). On most days of the week, I set aside time for healthy activities (e.g. walking, relaxation, 3 exercise) . Respondents who rated their condition as “not severe” now had a significantly higher score than those with a “severe” condition and those who still used the skills learnt from the course also had a significantly higher score for this domain than those who did not still use the skills (Table 3.4). 3 http://www.crd.unimelb.edu.au/heiq/ heiQ™ items Version 3 Evaluation of Self Management Course Page 21 TM heiQ Table 3.4: Health directed behaviour by sex, age group, when participated in the MTW course, severity of condition, still use skills learnt Health directed behaviour n Mean (SD) 36 3.18 (0.39) 194 3.21 (0.51) 18 to 44 years 6 3.33 (0.68) 45 to 64 years 100 3.11 (0.53) 65 years or over 130 3.26 (0.48) p-value Sex Male Female 0.72 Age group 0.05 Time since participation Less than one month to three years ago 128 3.19 (0.55) More than three years ago 91 3.22 (0.47) Don’t know 18 3.10 (0.46) 0.64 Severity of condition when started the MTW course Not severe 88 3.21 (0.44) 148 3.19 (0.55) 141 3.33 (0.44) 93 2.99 (0.54) Yes 205 3.23 (0.49) No 16 2.93 (0.61) Severe 0.71 Severity of condition now Not severe Severe <0.001 Still use the skills learnt Differences between means tested by one-way ANOVA or independent samples t-test. Significance p<0.05 Evaluation of Self Management Course Page 22 0.02 TM heiQ Respondents who were able to do things that they weren’t able to previously; were able to do more exercise; could deal with problems differently; had improved interaction with health care providers; had improved quality of life; and whose life had improved a lot as a result of MTW course scored statistically significantly higher for health directed behaviour (Table 3.5). Table 3.5: Health directed behaviour as a result of the MTW course Health directed behaviour n Mean (SD) Yes 112 3.30 (0.51) No 117 3.10 (0.50) Yes 148 3.27 (0.51) No 84 3.07 (0.49) Yes 167 3.24 (0.51) No 66 3.06 (0.48) Yes 152 3.27 (0.50) No 76 3.01 (0.50) Yes 152 3.30 (0.50) No 74 2.98 (0.50) 136 3.07 (0.47) 97 3.36 (0.53) Yes 99 3.22 (0.53) No 132 3.19 (0.47) p-value Able to do things that weren’t able to 0.002 Do more exercise 0.005 Deal with problems differently 0.02 Improved interaction with health care providers <0.001 Improved quality of life <0.001 How has life improved Improved somewhat Improved a lot <0.001 Have used other services offered by Arthritis SA Differences between means tested by one-way ANOVA or independent samples t-test. Significance p<0.05 Evaluation of Self Management Course Page 23 0.66 TM heiQ Skill and technique acquisition This scale captures the knowledge-based skills and techniques that assist participants to manage disease related symptoms and health problems more effectively4. The questions used to measure this construct are: When I have symptoms, I have skills that help me cope. I have a good understanding of equipment that could make my life easier. I have a very good idea of how to manage my health problems. I have effective ways to prevent my symptoms (e.g. discomfort, pain and stress) from limiting 4 what I can do in my life . Females scored statistically significantly higher for skill acquisition compared to males. Those who did not know when they had participated in the MTW course and those who rated their condition as severe at the time of the survey scored statistically significantly lower for skill acquisition than the other respondents (Table 3.6). Table 3.6: Skill and technique acquisition by sex, age group, when participated in the MTW course, severity of condition, still use skills learnt Skill and technique acquisition n Mean (SD) p-value Sex Male 36 2.74 (0.29) 196 2.89 (0.34) 18 to 44 years 6 2.87 (0.43) 45 to 64 years 100 2.85 (0.33) 65 years or over 131 2.88 (0.33) 128 2.89 (0.34) More than three years ago 91 2.88 (0.32) Don’t know 19 2.66 (0.30)* 88 2.87 (0.34) 149 2.87 (0.33) 142 2.91 (0.33) 93 2.81 (0.33) Yes 205 2.88 (0.33) No 16 2.80 (0.38) Female 0.01 Age group 0.82 Time since participation Less than one month to three years ago 0.02 Severity of condition when started the MTW course Not severe Severe 0.94 Severity of condition now Not severe Severe 0.02 Still use the skills learnt Differences between means tested by one-way ANOVA or independent samples t-test. Significance p<0.05 4 http://www.crd.unimelb.edu.au/heiq/ heiQ™ items Version 3 Evaluation of Self Management Course Page 24 0.34 TM heiQ Respondents who reported they did more exercise; had improved interaction with health care providers; had improved quality of life; and that life had improved a lot as a result of the MTW course had significantly higher scores for skill and technique acquisition (Table 3.7). Table 3.7: Skill and technique acquisition as a result of the MTW course Skill and technique acquisition n Mean (SD) Yes 111 2.90 (0.35) No 119 2.84 (0.32) Yes 148 2.93 (0.34) No 84 2.77 (0.30) Yes 166 2.89 (0.34) No 67 2.81 (0.32) Yes 152 2.90 (0.36) No 76 2.79 (0.27) Yes 152 2.92 (0.34) No 75 2.78 (0.29) 137 2.79 (0.32) 96 2.98 (0.32) Yes 99 2.89 (0.35) No 134 2.85 (0.32) p-value Able to do things that weren’t able to 0.17 Do more exercise <0.001 Deal with problems differently 0.09 Improved interaction with health care providers 0.01 Improved quality of life 0.001 How has life improved Improved somewhat Improved a lot <0.001 Have used other services offered by Arthritis SA Differences between means tested by one-way ANOVA or independent samples t-test. Significance p<0.05 Evaluation of Self Management Course Page 25 0.42 TM heiQ Constructive attitudes and approaches This scale uses the statement “I am not going to let this disease control my life” and measures if 5 there is a shift in how the individual views the impact of their condition(s) on their life . The questions used to measure this construct are: If others can cope with problems like mine, I can too. I try not to let my health problems stop me from enjoying life. I do not let my health problems control my life. My health problems do not ruin my life. I feel I have a very good life even when I have health problems5. Respondents who stated that their condition was “not severe” at the time of survey had a statistically significantly higher score for constructive attitudes and approaches than those who stated that their condition was “severe” at the time of survey (Table 3.8). Table 3.8: Constructive attitudes and approaches by sex, age group, when participated in the MTW course, severity of condition, still use skills learnt Constructive attitudes and approaches n Mean (SD) p Sex Male 36 2.80 (0.40) 193 2.87 (0.40) 18 to 44 years 6 2.93 (0.50) 45 to 64 years 98 2.78 (0.39) 130 2.92 (0.39)* Female 0.30 Age group 65 years or over 0.03 Time since participation Less than one month to three years ago 126 2.88 (0.40) More than three years ago 91 2.85 (0.41) Don’t know 18 2.80 (0.36) 87 2.88 (0.37) 147 2.86 (0.41) 141 2.92 (0.36) 91 2.78 (0.44) Yes 202 2.88 (0.39) No 16 2.69 (0.45) 0.67 Severity of condition when started the MTW course Not severe Severe 0.69 Severity of condition now Not severe Severe 0.006 Still use the skills learnt Differences between means tested by one-way ANOVA or independent samples t-test. Significance p<0.05 5 http://www.crd.unimelb.edu.au/heiq/ heiQ™ items Version 3 Evaluation of Self Management Course Page 26 0.06 TM heiQ Respondents who stated that they did more exercise; had improved interactions with health care providers; had improved quality of life; and life had improved a lot as a result of the MTW course had significantly higher scores for constructive attitudes and approaches (Table 3.9). Table 3.9: Constructive attitudes and approaches as a result of the MTW course Constructive attitudes and approaches n Mean (SD) Yes 111 2.90 (0.42) No 115 2.82 (0.39) Yes 146 2.92 (0.38) No 83 2.76 (0.42) Yes 164 2.89 (0.39) No 66 2.78 (0.42) Yes 150 2.92 (0.38) No 75 2.74 (0.42) Yes 151 2.91 (0.40) No 73 2.77 (0.40) 135 2.80 (0.40) 96 2.96 (0.39) Yes 97 2.84 (0.41) No 133 2.88 (0.40) p Able to do things that weren’t able to 0.13 Do more exercise 0.004 Deal with problems differently 0.05 Improved interaction with health care providers 0.002 Improved quality of life 0.02 How has life improved Improved somewhat Improved a lot 0.003 Have used other services offered by Arthritis SA Differences between means tested by one-way ANOVA or independent samples t-test. Significance p<0.05 Evaluation of Self Management Course Page 27 0.46 TM heiQ Self-monitoring and insight This scale examines the ability to monitor one’s condition, and the physical and/or emotional responses that lead to insight and the appropriate action or actions to self manage. There needs to be an acknowledgement of realistic disease-related limitations, and an ability and confidence to 6 remain within these limits . The questions used to measure this construct are: With my health in mind, I have realistic expectations of what I can and cannot do. As well as seeing my doctor, I regularly monitor changes in my health. I know what things can trigger my health problems and make them worse. When I have health problems, I have a clear understanding of what I need to do to control them. I have a very good understanding of when and why I am supposed to take my medication. I carefully watch my health and do what is necessary to keep as healthy as possible6. There were no significant differences in the mean score between groups for self-monitoring and insight (Table 3.10). Table 3.10: Self-monitoring and insight by sex, age group, when participated in the MTW course, severity of condition, still use skills learnt Self-monitoring and insight n Mean (SD) p 36 195 2.65 (0.41) 2.76 (0.36) 0.10 6 100 130 2.92 (0.49) 2.69 (0.35) 2.76 (0.37) 0.19 Time since participation Less than one month to three years ago More than three years ago Don’t know 127 91 19 2.77 (0.35) 2.71 (0.39) 2.64 (0.29) 0.26 Severity of condition when started the MTW course Not severe Severe 88 148 2.71 (0.37) 2.75 (0.36) 0.34 Severity of condition now Not severe Severe 141 93 2.75 (0.37) 2.73 (0.37) 0.67 Still use the skills learnt Yes No 204 16 2.74 (0.36) 2.67 (0.38) 0.45 Sex Male Female Age group 18 to 44 years 45 to 64 years 65 years or over Differences between means tested by one-way ANOVA or independent samples t-test. Significance p<0.05 6 http://www.crd.unimelb.edu.au/heiq/ heiQ™ items Version 3 Evaluation of Self Management Course Page 28 TM heiQ Scores for self-monitoring and insight were significantly higher for those respondents who were able to: do things that weren’t able to before; do more exercise; and deal with problems differently. The scores were also higher for those who have improved interactions with health care providers; have improved quality of life; and for those who had improved a lot as a result of the MTW course (Table 3.11). Table 3.11: Self-monitoring and insight as a result of the MTW course Self-monitoring and insight n Mean (SD) Yes 111 2.79 (0.38) No 118 2.68 (0.34) Yes 147 2.79 (0.33) No 84 2.63 (0.39) Yes 166 2.76 (0.36) No 66 2.66 (0.36) Yes 151 2.80 (0.36) No 76 2.61 (0.34) Yes 151 2.79 (0.36) No 75 2.66 (0.34) 136 2.66 (0.34) 96 2.85 (0.37) Yes 99 2.74 (0.36) No 133 2.74 (0.37) p Able to do things that weren’t able to 0.02 Do more exercise 0.002 Deal with problems differently 0.04 Improved interaction with health care providers <0.001 Improved quality of life 0.008 How has life improved Improved somewhat Improved a lot <0.001 Have used other services offered by Arthritis SA Differences between means tested by one-way ANOVA or independent samples t-test. Significance p<0.05 Evaluation of Self Management Course Page 29 0.91 TM heiQ Health service navigation This scale examines the understanding of and ability to interact with a range of health organisations and health professionals. It also measures the ability and confidence to communicate 7 and negotiate with healthcare providers to get needs met . The questions used to measure this construct are: I communicate very confidently with my doctor about my healthcare needs. I have very positive relationships with my healthcare professionals. I confidently give healthcare professionals the information they need to help me. I get my needs met from available healthcare resources (e.g., doctors, hospitals and community services). I work in a team with my doctors and other healthcare professionals7. Scores for health service navigation were statistically significantly higher for respondents whose condition was not severe condition at the time of survey (Table 3.12). Table 3.12: Health service navigation by sex, age group, when participated in the MTW course, severity of condition, still use skills learnt Health service navigation n Mean (SD) p Sex Male 36 2.86 (0.26) 197 2.94 (0.35) 18 to 44 years 6 3.13 (0.16) 45 to 64 years 100 2.90 (0.35) 65 years or over 133 2.92 (0.35) 129 2.92 (0.35) More than three years ago 92 2.95 (0.36) Don’t know 19 2.79 (0.19) 88 2.92 (0.33) 151 2.92 (0.36) 142 2.97 (0.32) 95 2.84 (0.38) Yes 207 2.92 (0.35) No 16 2.92 (0.33) Female 0.20 Age group 0.28 Time since participation Less than one month to three years ago 0.23 Severity of condition when started the MTW course Not severe Severe 0.90 Severity of condition now Not severe Severe 0.006 Still use the skills learnt Differences between means tested by one-way ANOVA or independent samples t-test. Significance p<0.05 7 http://www.crd.unimelb.edu.au/heiq/ heiQ™ items Version 3 Evaluation of Self Management Course Page 30 1.00 TM heiQ Scores for health service navigation were significantly higher for respondents who reported that they: were able to do things that weren’t able to before; could do more exercise; could deal with problems differently; have improved interaction with health care providers; have improved quality of life; and had improved a lot as a result of the MTW course (Table 3.13). Table 3.13: Health service navigation as a result of the MTW course Health service navigation n Mean (SD) Yes 112 2.97 (0.36) No 120 2.87 (0.34) Yes 150 2.98 (0.34) No 84 2.81 (0.33) Yes 168 2.96 (0.34) No 67 2.81 (0.32) Yes 153 2.94 (0.36) No 77 2.85 (0.29) Yes 153 2.96 (0.35) No 76 2.81 (0.32) 138 2.86 (0.30) 97 3.00 (0.38) Yes 100 2.90 (0.37) No 134 2.94 (0.31) p Able to do things that weren’t able to 0.03 Do more exercise <0.001 Deal with problems differently 0.002 Improved interaction with health care providers 0.04 Improved quality of life 0.001 How has life improved Improved somewhat Improved a lot 0.002 Have used other services offered by Arthritis SA Differences between means tested by one-way ANOVA or independent samples t-test. Significance p<0.05 Evaluation of Self Management Course Page 31 0.36 TM heiQ Social integration and support This scale attempts to capture the positive impact of social engagement and support that occurs through interaction with others and the impact that may arise from associating with others who share similar health-related life experiences. This also involves the confidence to seek support from interpersonal relationships as well as community-based organisations on a continuing basis8. The questions used to measure this construct are: I have enough friends who help me cope with my health problems. I get enough chances to talk about my health problems with people who understand. If I need help, I have plenty of people I can rely on. Overall, I feel well looked after by friends or family. When I feel ill, my family and carers really understand what I am going through8. Respondents who stated that their condition was not severe at the time of survey had statistically significantly higher scores for social integration and support (Table 3.14). Table 3.14: Social integration and support by age, sex, when participated in the MTW course, severity of condition, still use skills learnt Social integration and support n Mean (SD) p Sex Males 36 2.98 (0.41) 194 2.98 (0.46) 18 to 44 years 6 3.17 (0.45) 45 to 64 years 100 2.93 (0.45) 65 years or over 129 3.01 (0.45) 126 3.00 (0.48) More than three years ago 92 2.97 (0.44) Don’t know 18 2.83 (0.34) 88 3.02 (0.43) 147 2.96 (0.46) 140 3.07 (0.44) 93 2.84 (0.42) Yes 204 2.99 (0.45) No 16 2.83 (0.46) Females 0.94 Age 0.22 Time since participation Less than one month to three years ago 0.31 Severity of condition when started the MTW course Not severe Severe 0.27 Severity of condition now Not severe Severe <0.001 Still use the skills learnt Differences between means tested by one-way ANOVA or independent samples t-test. Significance p<0.05 8 http://www.crd.unimelb.edu.au/heiq/ heiQ™ items Version 3 Evaluation of Self Management Course Page 32 0.16 TM heiQ Scores for social integration and support were statistically significantly higher for respondents who reported that they: were able to do things that weren’t able to before, do more exercise, deal with problems differently. These respondents also had improved interaction with health care providers, improved quality of life and had improved a lot as a result of the MTW course (Table 3.15). Table 3.15: Social integration and support as a result of the MTW course Social integration and support n Mean (SD) Yes 111 3.05 (0.51) No 117 2.91 (0.38) Yes 147 3.05 (0.45) No 84 2.85 (0.42) Yes 167 3.04 (0.44) No 66 2.81 (0.43) Yes 151 3.07 (0.44) No 77 2.78 (0.40) Yes 151 3.06 (0.48) No 75 2.81 (0.38) 137 2.89 (0.42) 96 3.11 (0.47) Yes 100 2.97 (0.51) No 131 2.99 (0.41) p Able to do things that weren’t able to 0.02 Do more exercise <0.001 Deal with problems differently <0.001 Improved interaction with health care providers <0.001 Improved quality of life <0.001 How has life improved Improved somewhat Improved a lot <0.001 Have used other services offered by Arthritis SA Differences between means tested by one-way ANOVA or independent samples t-test. Significance p<0.05 Evaluation of Self Management Course Page 33 0.67 TM heiQ Emotional wellbeing – negative effect This scale measures the overall negative affective responses to illness, including anger, 9 depression and anxiety, which are attributed to the illness . The questions used to measure this construct are: If I think about my health, I get depressed. I get upset when I think about my health. I often feel angry when I think about my health. My health problems make me very dissatisfied with my life. I often worry about my health I feel hopeless because of my health9. Scores for emotional wellbeing were statistically significantly lower for those respondents who did not have a severe condition at the time of survey (Table 3.16). Table 3.16: Emotional wellbeing by age, sex, when participated in the MTW course, severity of condition, still use skills learnt Emotional wellbeing n Mean (SD) p Sex Males 36 4.01 (0.42) 193 3.94 (0.52) 18 to 44 years 6 3.97 (0.53) 45 to 64 years 98 4.01 (0.52) 131 3.92 (0.50) 127 3.93 (0.52) More than three years ago 91 3.98 (0.51) Don’t know 18 4.16 (0.42) 87 3.94 (0.46) 148 3.98 (0.54) 141 3.83 (0.48) 92 4.16 (0.49) Yes 204 3.94 (0.51) No 16 4.18 (0.57) Females 0.46 Age 65 years or over 0.40 Time since participation Less than one month to three years ago 0.17 Severity of condition when started the MTW course Not severe Severe 0.56 Severity of condition now Not severe Severe <0.001 Still use the skills learnt Differences between means tested by one-way ANOVA or independent samples t-test. Significance p<0.05 9 http://www.crd.unimelb.edu.au/heiq/ heiQ™ items Version 3 Evaluation of Self Management Course Page 34 0.07 TM heiQ The scores for emotional wellbeing were statistically significantly lower for respondents who reported that they: were able to do things that weren’t able to before, do more exercise, or deal with problems differently. These respondents also had improved interaction with health care providers, improved quality of life and had improved a lot as a result of the MTW course (Table 3.17). Table 3.17: Emotional wellbeing as a result of the MTW course Emotional wellbeing n Mean (SD) Yes 112 3.85 (0.53) No 116 4.08 (0.48) Yes 148 3.85 (0.51) No 83 4.16 (0.47) Yes 166 3.91 (0.51) No 66 4.12 (0.48) Yes 151 3.87 (0.49) No 76 4.16 (0.51) Yes 151 3.85 (0.52) No 74 4.19 (0.43) 136 4.07 (0.46) 96 3.81 (0.54) Yes 98 3.93 (0.52) No 132 3.98 (0.50) p Able to do things that weren’t able to 0.001 Do more exercise <0.001 Deal with problems differently 0.006 Improved interaction with health care providers <0.001 Improved quality of life <0.001 How has life improved Improved somewhat Improved a lot <0.001 Have used other services offered by Arthritis SA 0.52 Differences between means tested by one-way ANOVA or independent samples t-test. Significance p<0.05 Summary Demographic factors impact on the quality of life following a self management course, as TM measured by the heiQ , with age and severity of the condition generally the most significant factors. Other variables also demonstrated significant differences in scores for each domain except for positive and active engagement with life. Evaluation of Self Management Course Page 35