ARTHRITIS SA Makes a big impact on research

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on the
edition 1 - 2012
Arthritis SA
Makes a big
impact on research
kidsflix
Goes
country
www.arthritissa.org.au
with
contents
Vision Statement
To improve the quality of life
of people with arthritis and
related conditions.
Mission Statement
To be recognised as the
leading provider in SA that
empowers people with arthritis
and related conditions to
achieve the best quality of life
through advocacy, education,
self-management and the
support of research.
Aims
• to provide funds for
research programs in order
to find a cure and better
treatments.
CEO’s report
2
President’s report
3
Dealing with pain
4
“Living Life to the Fullest”
4
Sally Wandell - Takes charge of pain
5
Health research and you
5
Feature Story - How to fight the war on pain & win
6
Arthristis SA Supports young scientists 7
Improve your home life
8
Arthritis Aware Program 8
Kidsflix News
9
All about bequests
10
Krispy Kremes to High Tea 11
• to give practical advice
and support to people
with arthritis and other
musculoskeletal conditions
and their carers.
Book Review
11
Our new Board Member 12
Take 9
12
Events & Happenings
13
• to organise education
programs for people
affected by arthritis and
other musculoskeletal
conditions, their families
and carers, health
professionals and
awareness in the wider
community.
Appeal Letter Back Cover
Arthritis Foundation of South Australia Inc.
incorporating Osteoporosis SA
118 Richmond Road, Marleston SA 5033
Telephone:
(08) 8379 5711
Country Free Call:
1800 011 041
Fax:
(08) 8379 5707
Email: info@arthritissa.org.au
Website:
www.arthritissa.org.au
ABN: 53 784 654 861
valued donations
Arthritis SA values your donations to help provide
services and support to the many thousands of South
Australians who suffer musculo-skeletal conditions.
Donations can be made using the enclosed donation
envelope or by telephone on (08) 8379 5711 or Country
Freecall 1800 011 041. Alternatively, secure on-line
donations can be made at www.arthritissa.org.au
Editor
Julie Black
Telephone: (08) 8379 5711
Email: julie.black@arthritissa.org.au
Advertising Enquiries
Telephone: (08) 8379 5711
Email: sue.lear@arthritissa.org.au
Design
Celdesigns
Telephone: 0412 824 463
Email: celdesigns@bigpond.com
DISCLAIMER: Views expressed by contributors
to On The Move, and advertisements appearing
in the publication, are not necessarily endorsed
by the Arthritis Foundation of South Australia.
CEO’s report Julie Black
Arthritis SA now offers an excellent
two week course known as
“Challenging Pain”. The course
provides effective strategies to assist
people to make simple changes
in their lives to help reduce pain.
We are also working closely with
a group of pharmacists to develop
an effective pain management
course to be delivered to the local
community. In addition following our
very successful health professional
symposium in March, our next
symposium in June will focus on
back pain. I encourage you to book
early to secure a place.
W
elcome to our first edition
of On the Move for 2012. In
this edition we have a focus
on pain. Unfortunately for the over
200,000 South Australians who suffer
from Arthritis, pain is very much a
part of everyday life.
In association with Inspired
Adventures, Arthritis SA has recruited
ten wonderful people to take part in
the Great Wall of China Trek. Each
member of the team including myself
will raise a minimum of $3,000 to
take part.
For me the trek will be both a
personal and a professional
challenge. I am committed to raising
as much money as possible. I am at
present actively training to be able to
walk and climb the steps of the Great
Wall of China, for between five to
eight hours a day. This adventure is a
great way to raise awareness about
Arthritis SA and to raise important
funds so that Arthritis SA can offer
a wide range of courses and also
build on our strong commitment to
research.
Our investment in research is an
investment into finding a cure for
Arthritis.
This can only be possible through the
generous support and donations from
not only our members but also our
supporters. I would like to personally
acknowledge and thank you for
allowing us to make a real difference
to the lives of so many people, and I
ask you to consider supporting us by
making your donation today.
Visit: www.arthritissa.org.au
Arthritis Week succeeds in spreading the
word about Osteoarthritis
The theme for Arthritis Week in 2012 was Osteoarthritis. Two successful events were held as part of the week.
A “Healthy Bones and Joints”
information morning was held at
the Yankalilla Community Centre
where the public was able to visit
display tables with information on
Arthritis and related conditions
and talk to educators from Arthritis
SA. They were able to join in
discussions and have a taste of
2
healthy foods from a local dairy.
An Osteoarthritis public seminar
was held at Arthritis SA and those
attending were able to listen to
Dr Graham Mercer, Orthopaedic
Surgeon from The Repatriation
General Hospital, presenting on
knee and hip joint replacements
Arthritis educators also spoke of
the services provided by Arthritis
SA.
Arthritis Week culminated in a very
successful Badge Day. A big thank
you to everyone who contributed to
making these events successful.
president’s report David Motteram
Arthritis SA makes an impact on research
only effective but also wanted. This
was reflected in our very successful
health professional symposium held
recently where over a third of the
audience were from general practice.
Our symposiums are a wonderful
opportunity to provide information
and resources to health professionals
at local community level, who we
hope will pass on this information to
their patients.
A
rthritis SA is committed to
supporting research at all
levels. In this edition of On the
Move we have featured a research
award to an up and coming young
researcher Melissa Cantley. We
support research at this level through
to significant contributions to the
national research platform. In total
eighteen grants and scholarships
were awarded this year ranging from
$10,000 to $100,000. A full list of
these can be viewed on the Arthritis
Australia website. Of these four were
South Australian recipients.
More recently we have
commissioned a research study to
identify all musculoskeletal research
projects being undertaken in South
Australia. This will be an extremely
useful project and the first of its kind
in South Australia.
Arthritis SA is actively
building relationships with our
rheumatologists and general
practitioners as a result of research
carried out in 2011. Our research
titled “Community perceptions of
Arthritis” is extremely important as
it assists the organisation greatly in
ensuring we communicate to people
with arthritis in ways that are not
Research and education are
vital keys to improving the health
outcomes of people with Arthritis.
With one in four South Australians
suffering from some form of Arthritis
I urge you today to make a tax
deductable donation to our Research
for a Cure Appeal to assist us in our
vital work.
In this time of economic challenges
donors have the right to know
where and how their money is
spent. Arthritis SA is committed to
ensuring that all donations are used
responsibly and effectively.
Arthritis SA offers a wide range of
services from telephone information,
talks in the community, funding
research and a range of specialised
exercise programs.
Over recent years we have
significantly reduced our operating
expenses and have had a major
focus on increasing the number of
people with Arthritis whom we can
support. This involves regular training
and upskilling of the telephone
service operators and volunteer
educators through to funding high
level evidence based research
projects.
number of people with Arthritis whom
we support and we are well on track
to achieve this.
I ask you to support our ongoing work
and make a real difference to the one
in four people with Arthritis by making
a donation today. This is as simple
as completing and returning the reply
paid envelope enclosed, visiting our
website www.arthritissa.org.au or
ringing our office on 08 8379 5711.
“
Research
& Education
are the keys
to improving
the health
outcomes of
people with
Arthritis
”
It is because of our highly trained
volunteers that Arthritis SA can
provide even more education and
support at local community levels.
Our aim over the last twelve months
has been to significantly increase the
3
with pain can be one of the
Dealing with pain Living
hardest parts of having Arthritis
What causes pain?
Arthritis pain can be caused by:
• Inflammation, the process that
causes heat and swelling in your
joints
• Damage to joints
• Muscle tension, from trying to protect
joints from painful movements
The pain cycle: Pain, stress,
fatigue (tiredness) and depression all
affect each other. For example, people
who feel depressed or anxious have
been found to be more sensitive to
pain. This can make your pain feel
worse, which can lead to a continuing
cycle of fatigue and depression.
The good news is that this pain cycle
can be broken by using some of the
strategies described below.
What can I do to manage
my pain? Pain may limit some of
the things you do, but it doesn’t have
to control your life. Your mind plays
an important role in how you feel pain.
Thinking of pain as a signal to take
positive action rather than being scared
or worried about it can be helpful. Also
you can learn ways to manage your
pain.
Here are some things you can try:
Take medicines wisely: Many
different types of medicines can help
control the pain of Arthritis.
Your doctor or pharmacist can help you
understand which medicines are right
for you and how best to use them.
Exercise: Research has shown
that regular appropriate exercise can
help reduce pain. It also keeps your
joints moving, strengthens muscles to
support your joints, reduces stress and
improves sleep.
Use heat and cold. The benefits of
heat and cold for Arthritis are yet to be
proven by research. However these
treatments are soothing and safe when
used carefully. Ask your doctor or
physiotherapist whether heat or cold is
best for you.
Take care of your joints and save
energy. Looking after your joints during
your daily activities can help reduce
pain, stress and tiredness. It involves
simple habits such as:
avoiding activities that cause pain,
asking for help when you need it and
using special aids and gadgets to make
tasks easier.
Massage: There are limited
scientific studies that show massage
reduces Arthritis pain. However many
people with Arthritis find it a useful way
to relax and reduce muscle tension.
Make sure the massage therapist has
experience working with people who
have Arthritis.
Acupuncture: Acupuncture
is an ancient Chinese practice of
putting small, thin needles into the
skin at specific points on the body to
block the pain signal. There are mixed
results from studies of acupuncture for
Arthritis. However some people may
find it useful alongside other proven
treatments, such as medicines.
Transcutaneous
electrical nerve
stimulation (TENS): A TENS
machine applies very mild electric
pulses to block pain messages
going from the painful area to your
brain. TENS can be very useful
for longer-term pain but does not
work for all people. You should see
a physiotherapist to trial a TENS
machine, and to learn how to use it
correctly, before you buy one.
Mind techniques: Relaxation
techniques, such as deep breathing
and visualisation (mental pictures), can
help you reduce stress and muscle
tension. These techniques need to
be practised and you may have to try
several methods before you find one
that works for you. There are many
CDs and books available from your
local Arthritis office or library to help
you learn relaxation techniques.
Distraction: Focussing your
attention on something other than your
pain can also help you cope with pain.
This might involve exercising, reading,
listening to music or other methods to
take your mind away from your pain.
Contact Arthritis SA for further
information about dealing with pain on
(08) 8379 5711 or Country Free Call
1800 011 041 www.arthritissa.org.au
Copyright © Arthritis Australia 2007.
Reproduced Dealing with Pain Fact
Sheet with permission from Arthritis
Australia
Playford “Living Life to the Fullest” Expo
Wednesday February 29th
was a very busy day for Joan
and David at the Playford Civic
Centre for the “Living Life to the
Fullest” Expo. This event was
a free event for the over 50s or
“baby boomers”.
Along with fitness
demonstrations, travel advice
and even financial help,
special guests Michael Keelan
and Dorinda Hafner were on
board to speak about healthy
4
eating and growing your own
vegetables.
There was an amazing turnout
and the Arthritis SA stand was
kept busy all day with Joan and
David talking to people and
offering advice.
While Joan was looking after
people at the Arthritis SA
stand David ran an hour long
workshop on Arthritis and pain
management. Advice was given
on preventative strategies for
lessening the risk of Arthritis.
People learnt what they can do
now to help them stay healthy
in the future and this is what the
whole expo was about.
In summary, the “Living Life
to the Fullest Expo” was a
wonderful event to be a part of.
Arthritis SA wishes all those who
attended a happy and healthy
life!
Sally Wandell - takes charge of her pain
hips. Sitting to breastfeed became
difficult and uncomfortable and
lifting the baby from the car became
excruciatingly painful. After many
visits to a physio and daily practice
of post natal pilates, the pain seemed
to disappear and I felt fine. Arthritis
was never mentioned at this time
and I went on to have baby number
two. He was born 5 weeks early this
time with feeding and developmental
problems and was diagnoised with
Autism. The stress and emotional
rollercoaster all proved too much and
once again it began to take its toll on
me.
Prior to being diagnosed with
Psoriatic Arthritis I was a young
enthusiastic travel agent, full of life,
good health, spending time travelling
around the world and experiencing
some amazing adventures. With so
much to look forward to, I was getting
married and starting a family. Life
really was everything I had imagined
it to be.
It all turned upside down when
my first son was born suddenly 12
weeks early. I spent months nursing
this precious little bundle in the
Women’s and Children’s Hospital
until finally the day came when I
could take my baby home. It was an
extremely stressful and emotional
time, definitely not as I had imagined
for myself! Little did I know this was
just the beginning of many changes
in my life.
After a few months at home, I
began to get sore ankles, wrists and
My right foot became swollen to the
point I could barely walk, finally I was
sent to a foot specialist who told me
I had a classic case of “Psoriatic
Arthritis”. On this day my world came
crashing down. Thoughts were
buzzing around in my head I’m only
35. How was I going to look after my
children? What was going to happen
to me? Will I be in a wheelchair by
the time I am 40?
I was referred to a Rheumatologist
and I cried the whole appointment,
unable to imagine what lay ahead.
I fell into a black hole of depression
and desperation, wanting answers
as to what would come of all this.
Months of depression followed, not
wanting to get out of bed and the
anxiety was unbearable at times.
I called the Arthritis SA helpline
wanting an answer to all this. The
support worker was very reassuring
and offered to send me some
information in the post and also
mentioned about a course called
Challenging Pain.
I decided to attend the Challenging
Pain course and arrived full of
intention, I walked in and being the
only person in my 30’s I nearly did a
u turn and left. I really didn’t want to
be in an Arthritis course. At my age
I should have been out shopping,
enjoying time with my friends, not
sitting in a meeting about pain
management! Thankfully I persisted,
took my seat and am now am ever so
grateful I did.
Attending Challenging Pain gave me
the building blocks to then attend the
6 week Moving Towards Wellness
course. The course proved to be
very helpful on a personal level
giving me an array of tools to take
positive steps in my life and I met two
amazing leaders who inspired me to
become a Leader myself. I now run
both Challenging Pain and Moving
Towards Wellness courses and have
met some inspiring people along the
way.
With the help of my Rheumatologist,
medication, exercise and my
knowledge from the courses I have
a positive outlook to my future living
with Psoriatic Arthritis. I hope to make
a difference by being a volunteer at
Arthritis SA and helping other young
people overcome their fears and
dealing with the effects Arthritis has
on our lives. My goal is to also see an
increased awareness that Arthritis is
not just for old people!
Health research and you
Arthritis – the disease
There are 3.8million Australians living with Arthritis.
Nearly 1 in 5 Australians has Arthritis and the risk of
contracting Arthritis increases with age to nearly
1
in 2 by the age of 55. Alarmingly, the statistics
show 1 in 4 South Australians are inflicted with
Arthritis or another musculoskeletal condition, which
is higher than the national average. The Federal
Government recognised Arthritis as a serious health
issue by making it a National Health Priority in 2002. It
is the most prevalent of all National Health Priorities.
You are more likely to contract Arthritis than heart
disease, cancer, asthma, diabetes or mental illness
and it is the single biggest cause of disability in
Australia. In addition, nearly half of all Australians
living with cancer, diabetes and heart disease are also
living with Arthritis.
5
feature story
How to fight the war on pain
U
nfortunately, when people
hear the word Arthritis they
often associate it with pain.
Arthritis SA is becoming aware of
more young people who have lived
with pain for years before getting a
proper diagnosis and a treatment
and management plan in place. They
are seeking advice and support from
Arthritis SA now.
Two thirds of people living with
Arthritis are experiencing significant
pain, disability, effects on their work
capacity and social isolation. Early
intervention with treatment and
pain management can significantly
improve a person’s quality of life.
Nigel Stevens from Queenstown,
South Australia, was diagnosed
with Ankylosing Spondylitis (AS)
after living with back pain for many
years. Eighteen months ago the pain
intensified and Nigel sought help
from his local GP who referred him
to a rheumatologist. After undergoing
two MRI scans, Nigel was referred
for a gene test and tested positive
for HLA-B2. A diagnosis of AS was
later confirmed. He’s now being
treated with a specialist drug and
is undergoing a pain management
program. Nigel said he never
suspected Arthritis and hadn’t
heard of AS until he was diagnosed.
“I’d only heard of rheumatoid and
osteoarthritis but later found out
there are over 150 types of Arthritis,”
said Nigel. Nigel now has a young
family and is entirely grateful for the
advances in medications that now
keep his pain under control and he
can pick up and cuddle his baby
daughter pain free.
According to Arthritis SA Chief
Executive Officer Julie Black, it’s
the lack of understanding of Arthritis
in the community that’s leading to
people not getting diagnosed earlier.
Move on with Flexagil®
Pain relief cream
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At Blackmores, we don’t want pain to rule your life.
New Blackmores Flexagil® is a clinically proven pain relief cream that helps relieve pain, inflammation and
swelling in minor sports injuries, symptoms of osteoarthritis of the knee and acute pain and inflammation in
back and joints.
Blackmores Flexagil® is a plant based cream containing a natural comfrey root extract and is an effective
alternative to topical diclofenac*, found in some pain relief gels.
CHC 52146-10/11
Available in leading pharmacies.
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6
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Just before Christmas last year
June was referred to an orthopaedic
surgeon and within three weeks
was admitted to hospital for a hip
replacement. The recovery has been
slower than she expected but she
is now far more mobile and the pain
has been reduced. June can still tell
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of drugs with the maximum benefits.
This may mean at times the amount
of pain medication a person is taking
is quite high while at other times
people may not need to take any
medication for pain.
The key to winning the war on pain
is to seek treatment early so that
complications do not develop. Good
pain management will help improve a
person’s quality of life.
Arthritis SA runs regular Arthritis
information sessions for the public
including sessions on specific
forms of Arthritis. The two week
Challenging Pain course is also
available at a wide number of
venues. Visit our website www.
arthritissa.org.au to find a course
near you.
PICTURE: Right, Researchers
Dr Catherine Hill and Dr Tiffany
Gill actively support Arthritis SA
education programs along with
extensive research programs.
ARTHRITIS SA supports young scientists
A
s part of its commitment
to supporting up and
coming scientists in
the area of research, Arthritis
SA was delighted to award
the Alpers prize to Melissa
Danielle Cantley, University of
Adelaide for her paper entitled
“A relationship between
periodontitis and inflammatory
arthritis”. The award of $1,000
was presented at the Australian
Rheumatology Association
South Australian branch
meeting recently for the best
scientific paper at the clinical
and scientific meeting of ARA.
Periodontitis (PD) and
rheumatoid arthritis (RA) are
similar chronic inflammatory
diseases where bone loss is
a major problem. Increasing
evidence suggests that a
relationship may exist between
the two.
This unique model can now be
used to further investigate the
relationship between PD and
arthritis and test the effects of
potential treatments.
Previous studies have
demonstrated that PD is a risk
factor for development of RA
and it may also enhance RA
severity. The aim of the research
was to investigate bone loss and
the relationship between preexisting PD and experimental
arthritis similar to human
disease in an animal model.
7
Arthritis advice to improve your home life…
T
wo fourth year occupational
therapy students from the
University of South Australia
have been on placement at Arthritis
SA. Their aim is to promote health
by enabling people to perform
meaningful and purposeful activities.
Over the last nine weeks, they
have been implementing a project
in collaboration with Arthritis SA,
based around the in-home needs
of individuals with Arthritis. Through
discussion with Arthritis SA staff,
the project will aim to strengthen
the telephone information service to
better support people with their inhome needs.
those living with Arthritis. Please
contact us if you are interested in
our project and would like to assist.
We have an online blog, which we
update fortnightly with the project’s
progress. Please feel free to leave
any comments or questions for us to
respond to at http://arthritisinhome.
edublogs.org.”
Jessica Mammone &
Ashleigh Horsell
Occupational Therapy Students
arthritisinhome@gmail.com
Our contact at Arthritis SA is:
Jenny Bennett, General Manager
Health Services of Arthritis SA,
(08) 8423 0909
They aim to engage the Arthritis SA
community in various strategies,
such as discussion groups, surveys
and observation. According to
Jessica, “The overall long-term
outcome of the project with Arthritis
SA is to see an increase in the
well-being and in-home safety of
Arthritis Aware program - NEEDS YOU
V
olunteers are being sought to assist in an
exciting new community pharmacy based
Arthritis support program currently under
development by Arthritis South Australia.
The proposed program titled “Arthritis Aware
Pharmacy” will be facilitated by Arthritis South
Australia to carefully selected pharmacies that
have undergone specific training in the conditions
associated with Arthritis & Osteoporosis.
These pharmacies will be able to provide customers
and patients who suffer from Arthritis related
conditions counselling and support by pharmacists
and pharmacy staff that have been trained with the
latest education and information which will be updated
annually.
In addition to the high calibre training received, the
pharmacy staff will also have full access to Arthritis
SA educators and resources and be able to provide a
Pain Management Support Service to selected clients.
The Pain Program is a complete health plan that is
designed to target all areas known to contribute to
8
minimising pain. The program begins with a complete
review of the client’s medications and support
aids along with a self-managed holistic health plan
conducted with full consultation with the client’s health
practitioner.
If you are interested in participating and would like to
know more, please contact:
Mike Walters on 0409 833 812 or via email on
mike.walters@arthritissa.org
Our News
A trip to the Riverland brought fun and laughter
to over 250 children and their families attending
Kidsflix Renmark in March 2012. First time Kidsflix
volunteer Jan Smith from Barmera manned the
puppet making table and expressed her enjoyment
of the morning, “Thanks so much for involving our
young ones in the fabulous Kidsflix event today at
the Chaffey. They all enjoyed helping to put smiles
on faces – of the kids and their families. Such a
heart-warming, positive experience.”
Families travelled from all over the Riverland
district to be part of the morning, from as far away
as Lameroo to Barmera, Berri, Waikerie, Loxton,
Monash, Morgan and Renmark. They were
greeted at the door by Mickey and Minnie Mouse
and then began their morning of face painting,
jewellery design and finger puppet making before
heading into the Chaffey Theatre to watch The
Muppets.
Families attending Kidsflix Noarlunga on the 31st
of March were entertained by 2012 National Year
of Reading Ambassadors ‘Giggly Kids’. The Giggly
Kids show has been designed to engage young
people and help them think and learn through
play and music. It involves a series of catchy,
storytelling songs with live singing and musical
instruments, comedy and physical theatre.
Being able to reach out to children living with
chronic illness, disabilities or from disadvantaged
homes not only within the city but in rural and
remote communities is integral to the success of
Kidsflix; as is your valued donation.
Show your support today and sponsor a child to
attend a Kidsflix event near you by simply visiting
www.arthritissa.org.au and click on ‘Donate &
Bequests’ or call (08) 8379 5711 or country freecall
1800 011 041.
Upcoming events
Elizabeth: Reading Cinemas – Saturday 19th May
Mitcham: Wallis Cinemas – Saturday 4th August
9
All about bequests
What is a Charitable
Bequest?
Many people want to leave money
to charities after their death as this
will be the only opportunity that they
have to give a significant contribution
to an organisation that is close to
their hearts. As with any aspect of
will-writing, legacies and bequests
must be dealt with in a legally valid
manner. So how should you go about
leaving money to a charity in your
Will?
Bequests and legacies constitute
a vitally important income stream
for a large number of charities like
Arthritis SA. Such gifts provide our
organisation with one-off or ongoing
donations that are often higher in
value than conventional gifts.
But there is confusion about the
nature of bequests. So what are they,
and how can they help Arthritis SA?
What are bequests?
A bequest is a gift made by an
individual in their Will. Bequests can
be made to a range of individuals or
organisations; most people choose to
bequeath the majority of their estate
(that is, their total assets on their
death) to their spouse or family. Many
others, though, choose to leave
some of their assets to charity.
The terms ‘bequest’ and ‘legacy’ are
often used interchangeably when
discussing this type of long term
gift. These terms basically describe
the same thing: the gift of cash or
other assets from a testator (that is,
the individual writing the Will) to a
recipient – known as the beneficiary
– Arthritis SA.
How can a Bequest help
Arthritis SA?
Bequests provide a unique
opportunity for the chosen
organisation to receive a potentially
large, one-off payment – or even
the use of an asset other than cash.
Legacies are a vital financial tool for
charities of any size. For example,
the purchase of the Arthritis SA
building at Marleston was made
possible by a very generous bequest.
Bequests have always been an
important source of income for
Arthritis SA enabling us to carry
10
FOR MORE INFORMATION
please give Margaret
Nowlan a call on
08 8423 0914 or
email: Margaret.Nowlan@
arthritissa.org.au
out research and comprehensive
pain management and education
programs. We are very grateful to
these bequestors that Arthritis SA
has been regarded so highly that the
organisation and the thousands of
South Australians that we assist have
been lucky enough to benefit from that.
With some forethought and careful
planning now, you could help
to secure the financial future of
research into a cure for Arthritis and
better pain management techniques.
There is no cure as yet for Arthritis
and other musculo-skeletal related
conditions.
A bequest is a long-term solution.
It is, by its nature, not something
that happens overnight. It is
usually the result of a long-term
relationship.
Understandably, people are generally
keen to ensure that their assets
pass on their death to a person
or organisation that means a lot
to them. As such, it tends to be a
charity with which the benefactor
(bequestor) has had the closest,
most personal link throughout their
life time. Many of our bequests
over the years have come from
our wonderful volunteers who have
become involved with Arthritis SA
as it represents a cause close to
their hearts or has provided valuable
support for them or a loved one.
In soliciting bequests from our
existing donors and partners it is our
sincere aim to conduct our Bequest
Program with the utmost sensitivity.
We are very mindful of recent
media around aggressive Bequest
Programs interstate which have been
seen as inappropriate or offensive.
Arthritis SA is very careful to conduct
such sensitive discussions in an
insightful and thoroughly transparent
manner with utmost confidentiality
being provided.
How can I leave a
charitable bequest?
You should seek legal advice to
ensure that your Will is valid and that
you have adequately provided for
those people for whom you should
provide. Your Will may be challenged
if this is not done properly. This
advice will also assist you with tax
matters such as trusts, guardians,
asset valuations and power of
attorney.
If you are a potential donor
considering leaving a charitable
bequest, you will be pleased to
hear that the process for doing so is
relatively straightforward. A bequest
is no more than an instruction in your
Will. Upon your death this document
will be read by your executors (the
individuals you have nominated to
carry out your wishes) and they will
act on your instructions.
You can therefore create a charitable
bequest by simply leaving details
in your Will of the asset you wish
to bequeath, and your intended
beneficiary. Arthritis SA is grateful
to receive a specific bequest, your
entire estate or a percentage of your
estate.
Under no circumstances will staff
of Arthritis SA provide any form
of advice to potential donors. We
strongly recommend that you seek
appropriate independent legal advice
when preparing your Will.
Our Planned Giving Officer, Margaret
Nowlan, who is very experienced
and empathetic, works closely with
potential bequestors for Arthritis SA.
If you would like to identify whether
Arthritis SA would be a good charity
for you to leave a bequest to, why
not give Margaret a call on 08 8423
0914 or email her for more details:
Margaret.Nowlan@arthritissa.org.au.
Rosalie Upton
From Krispy Kreme’s to High
Tea
Members and friends from the
Marion Support Group
Arthritis SA has recruited ten wonderful people
committed to raising a minimum of $3,000 each as
part of the Great Wall of China Trek. Each person
has developed new and exciting ways to raise their
funds. CEO Julie Black and Contact Centre Manager
Tanya Harrison held a High Tea at Arthritis House
with 50 people enjoying magnificent cakes and ribbon
sandwiches raising $2,000 between them. While
Brenton Thomass and Stuart Hore undertook a Krispy
Board member Colette Smith, CEO Julie Black
and friends enjoy the afternoon
Kreme donut drive and distributed over 120 dozen
donuts.
Wayne Duffy of Dulwich Bakeries has collection tins
in each of the Bakeries while Chemplus pharmacists
Rudy Farrugia and Stephanie Bennett are busy raising
funds through a dinner dance. Good luck to all the
participants, knowing your money raised is going to
a great cause provides special inspiration to us and
many others within the community.
useful websites
Arthritis Australia
www.arthritisaustralia.com.au
Medicare
www.medicareaustralia.gov.au
Osteoporosis Australia
www.osteoporosis.org.au
Australian Psychological Society
www.psychology.org.au
Beyond Blue
www.beyondblue.org.au
Australian Association of Massage
Therapists www.aamt.com.au
National Prescribing Service Limited
www.nps.org.au
Institute of Registered Myotherapists
of Australia www.myotherapy.org.au
A new
face
for the
board
Arthritis SA is pleased to
welcome Anne Young to
the Board
Anne is currently the General
Manager Marketing, Branding and
Communication, Chemplus Pty
Ltd Anne has a long history in the
pharmaceutical industry and has
a strong background in managing
compliance with legislative and
ethical requirements and company
policies and procedures.
Anne is also on the Board of
The Mary Potter Foundation and
served on the board of Scotch
College for three years.
Australian Physiotherapy
Association
www.physiotherapy.asn.au
The National Health and Medical
Research Council (NHMRC)
www.nhmrc.gov.au
Carers Australia
www.carersaustralia.com.au
Helping toes in need
Manufacturing & Custom Making in SA.
The home of Ben Playford-SA’s Certified
Pedorthist (C.Ped.Au).
• DVA Approved Custom Makers
• Professionally Trained & Qualified
• Health Fund Rebates may apply
• Specialising in Arthritic & Diabetic Feet
• Variety of styles & brands available to suit all • 2 locations-Kent Town and Norton Summit
• Home visits available
Telephone: (08) 83900626 for an appointment near you
11
TAKE 9 - Go to the movies more often!
With the Take 9 Movie Card you will get
some amazing savings from Wallis Cinemas.
Sponsored by Channel 9 Telethon, Wallis
Cinemas and Robern Menz
The Take 9 Movie Card offer:•See two movies for free
•Includes 9 movies for only $9 each for you
and a friend or family member
•A bag of Menz Fruchocs to share
•Available all sessions
•Valid to end of March 2013
•Chance to win a Wallis Gold Pass
•Over $150 savings on normal ticket prices
Available from early March until sold out!
Cost of card is $19. A surcharge will apply for
3D movies.
To purchase call Reception on 08 8379 5711 or download an order form from the website
www.arthritissa.org.au
new 2012/2013 Entertainment Books
Entertainment books The
are worth their weight in gold!
Still only $65
Purchase your brand new
2012/2013 Entertainment Book now
to receive over $15,000 in valuable
offers, valid through 1 June, 2013.
At the same time, you’ll be helping
Arthritis SA in valuable fund
raising to go towards research and
education services and community
awareness programs.
12
You can purchase your
2012/2013 Entertainment
Book either online
www.arthritissa.org.au, call
(08) 8379 5711 or
1800 011 041 or visit
Arthritis SA during business
hours Monday – Friday.
events and happenings
Moving Towards Wellness 2012
You attend 2.5hrs one day a week for
six weeks
Course fees
Arthritis SA Member $33.00
Member Pensioner $24.20
Non-member $88.00
Non-member Pensioner $60.00
Accompanying Person $11.00 (GST
Inclusive)
Mutual Community Members please
phone David on (08) 8423 0902 to
check if you are eligible to have your
costs covered in the course you
enrol in.
Arthritis SA
118 Richmond Road, Marleston
Weekday courses at Arthritis SA are
held from 1.00pm-3.30pm
Wednesday 23rd May-Wednesday
27th June
Evening courses at Arthritis SA are
held from 7.00pm-9.30pm
Weekend courses at Arthritis SA are
held from 10.00am-12.30pm
Saturday 28th July-Saturday 1st
September.
Gawler Hospital Day Centre
Gawler Health Service, Hutchinson
Road, Gawler East
All courses at Gawler are held from
10.00am-12.30pm
Friday 4th May-Friday 8th June
Elizabeth
Anglicare ‘The Platform’, Elizabeth
Way, Elizabeth
All courses in Elizabeth held from
10.00am-12.30pm
Athlestone Community Centre
338 Gorge Road, Athlestone
(opposite Athelstone Village)
All courses at Athlestone are held
from 10.00am-12.30pm
Friday 27th July-Friday 31st August.
Aldinga Beach
G.P Plus, Pridham Boulevard,
Aldinga Beach
All courses at Aldinga Beach are
held from 9.30am-12.00noon
Friday April 13th-Friday 18th May
Please phone David on (08) 8423
0902 to register your interest for this
area.
Please note all dates and locations
are subject to change. Please phone
1800 011 041 for the most up to date
information.
Challenging Pain 2012
You attend 2.5hrs one day a week for
two weeks.
Course fee
Members of Arthritis SA-FREE
Non-member participant $27.50
(GST Incl.)
Marleston
Arthritis SA, 118 Richmond Road,
Marleston
Tuesday 22nd May & Tuesday 29th
May 1.00pm-3.30pm
Gawler Hospital Day Centre
Gawler Heath Service, Hutchinson
Road, Gawler East T.B.C.
Health Professional Seminar Series 2012
All day seminars for Health
Professionals to be held at Enterprise
House, Greenhill Road, Unley.
Saturday June 23rd-Back Pain
including Ankylosing Spondylitis
Consumer monthly information
sessions 2012
Monthly Sessions for consumers to
be held at Arthritis SA, 118 Richmond
Road, Marleston
Thursday May 8th-7.30-9.30pm
Dr Phillip Griffin
Plastic and Reconstrutive Surgeon
Sunday May 20th 1.00pm-3.30pm
Fibromyalgia
Thursday June 7th 1.00pm-3.00pm
Polymyalgia Rheumatic
Tuesday July 17th 1.00pm-3.00pm
Gout
Sunday July 29th 1pm-3.30pm
Fibromyalgia
Training Opportunities 2012
Tai Chi for Arthritis update and Part 2
Training
Venue: Arthritis SA, 118 Richmond
Road, Marleston
Dates: Saturday 5th & Sunday 6th
May 9.00am-4.30pm each day
Tai Chi for Diabetes Leader Training
Venue: Arthritis SA, 118 Richmond
Road, Marleston
Dates: Saturday 16th June & Sunday
17th June 9.00am-5.00pm each day
Tai Chi for Arthritis Leader / Instructor
Training
Venue: Arthritis SA, 118 Richmond
Road, Marleston SA 5033
Dates: Saturday 8th & Sunday 9th
September 9.00am-4.30pm each day
For further information, expressions
of interest, cost and registration
please contact Vivienne Tomlinson or
Jenny Bennett at Arthritis SA on (08)
8379 5711, Toll Free 1800 011 041 or
www.arthritissa.org.au
Exercise Classes
Classes are held at Arthritis SA and
Osteoporosis SA, 118 Richmond
Road, Marleston during school
terms. Contact (08) 8379 5711 or
1800 011 041 for further details and
ask to speak to Class Coordinator.
Held on Mondays and Fridays:
Easy Moves
Bones on the Move
Osteoporosis Balance
Tai Chi for Arthritis
Please note Arthritis SA reserves the right to cancel or postpone events if necessary
13
I ask you to think of any four people to whom you are close
Now imagine one of them has a
debilitating disease, which causes
chronic bone and joint pain and
eventuates in loss of basic mobility.
Unfortunately, this scenario is all too real for many South
Australians. One in four will be afflicted with a form
of Arthritis sometime during their lifetime. The yearly
monetary cost of treating this disease is in the billions
of dollars, but the human cost is immeasurable. That’s
why Arthritis South Australia (Arthritis SA) has been
committed to raising money every year since 1975 to
fund research into a cure for Arthritis.
It’s the reason we need to increase our funding
levels even more in 2012.
The various forms of Arthritis (including Osteoarthritis,
Rheumatoid Arthritis, and Osteoporosis) are a problem
that is not going away.
In fact, current models show quite the opposite:
• By 2020, nearly 1 in 3 adults 18-years and older in
South Australia will have some form of Arthritis at
current diagnostic rates
• By 2050, approximately 7-million adults in Australia will
be suffering from some form of Arthritis unless we find
the cure.
Today’s research is tomorrow’s cure
Arthritis SA is changing people’s lives through the
continuation and expansion of existing research. We
need to know that tomorrow is closer to the answers we
seek and with that end in sight, we need to fast-track our
fundraising efforts sooner rather than later.
I can’t stress to you enough how critical our continued
funding is to meeting these ends. Without your generous
support our progress becomes fragmented and
dysfunctional. I am calling upon you all to continue your
support of our cause and if at all possible to increase your
frequency or level of commitment to allow us, in turn, to
deliver enhanced results.
How can you help today?
I ask you personally, to make a regular donation to support
the Arthritis SA Research. Your donation will fund research
programmes which provide answers about the causes of
Arthritis and result in better treatment for Arthritis sufferers.
Our longer-term programmes aim to find a cure for all the
many forms of Arthritis and musculoskeletal conditions,
including Osteoarthritis, Rheumatoid Arthritis, Osteoporosis
and Arthritis in children.
Put simply, your money helps us towards achieving
our vision of a future free from Arthritis sooner.
Dr Simon Burnet
Medical Director, Arthritis South Australia
Yes, I want to support Arthritis SA

The Arthritis Foundation of South Australia incorporating Osteoporosis SA
Please choose your gift by ticking the appropriate box below.
Please to join us in conquering Arthritis together by making your gift today!
$50
$100
$200
$250
$________ your gift as you can afford
OR I would like to become a regular giver to Arthritis SA Research
Please accept my regular pledge of
Twice per year
or $60
or bi-monthly quarterly
Donation amount:
Payment method:
$40
$
Cheque
Money Order (made payable to Arthritis SA)
MasterCard
Please debit my credit card:
Visa
Amex
Card number
Expiry date
Signature
/
Name on card
Please send me information on:
Becoming a member
Self Management courses
Leaving a bequest
Regular giving
address: 118 Richmond Road, Marleston SA 5033 phone: (08) 8379 5711 country freecall: 1800 011 041
email: info@arthritissa.org.au website: www.arthritissa.org.au Donate: online at www.arthritissa.org.au
Declaration of privacy
The Arthritis Foundation acknowledges and respects the privacy of individuals. It is our policy to provide our supporters with information about our activities and
from time to time to request further support. We respect your privacy and will not on sell your name to any other organisation. If you request no further mail from
Arthritis South Australia or Osteoporosis South Australia, please write to us including your address details and donor number.
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