on the edition 1 - 2012 Arthritis SA Makes a big impact on research kidsflix Goes country www.arthritissa.org.au with contents Vision Statement To improve the quality of life of people with arthritis and related conditions. Mission Statement To be recognised as the leading provider in SA that empowers people with arthritis and related conditions to achieve the best quality of life through advocacy, education, self-management and the support of research. Aims • to provide funds for research programs in order to find a cure and better treatments. CEO’s report 2 President’s report 3 Dealing with pain 4 “Living Life to the Fullest” 4 Sally Wandell - Takes charge of pain 5 Health research and you 5 Feature Story - How to fight the war on pain & win 6 Arthristis SA Supports young scientists 7 Improve your home life 8 Arthritis Aware Program 8 Kidsflix News 9 All about bequests 10 Krispy Kremes to High Tea 11 • to give practical advice and support to people with arthritis and other musculoskeletal conditions and their carers. Book Review 11 Our new Board Member 12 Take 9 12 Events & Happenings 13 • to organise education programs for people affected by arthritis and other musculoskeletal conditions, their families and carers, health professionals and awareness in the wider community. Appeal Letter Back Cover Arthritis Foundation of South Australia Inc. incorporating Osteoporosis SA 118 Richmond Road, Marleston SA 5033 Telephone: (08) 8379 5711 Country Free Call: 1800 011 041 Fax: (08) 8379 5707 Email: info@arthritissa.org.au Website: www.arthritissa.org.au ABN: 53 784 654 861 valued donations Arthritis SA values your donations to help provide services and support to the many thousands of South Australians who suffer musculo-skeletal conditions. Donations can be made using the enclosed donation envelope or by telephone on (08) 8379 5711 or Country Freecall 1800 011 041. Alternatively, secure on-line donations can be made at www.arthritissa.org.au Editor Julie Black Telephone: (08) 8379 5711 Email: julie.black@arthritissa.org.au Advertising Enquiries Telephone: (08) 8379 5711 Email: sue.lear@arthritissa.org.au Design Celdesigns Telephone: 0412 824 463 Email: celdesigns@bigpond.com DISCLAIMER: Views expressed by contributors to On The Move, and advertisements appearing in the publication, are not necessarily endorsed by the Arthritis Foundation of South Australia. CEO’s report Julie Black Arthritis SA now offers an excellent two week course known as “Challenging Pain”. The course provides effective strategies to assist people to make simple changes in their lives to help reduce pain. We are also working closely with a group of pharmacists to develop an effective pain management course to be delivered to the local community. In addition following our very successful health professional symposium in March, our next symposium in June will focus on back pain. I encourage you to book early to secure a place. W elcome to our first edition of On the Move for 2012. In this edition we have a focus on pain. Unfortunately for the over 200,000 South Australians who suffer from Arthritis, pain is very much a part of everyday life. In association with Inspired Adventures, Arthritis SA has recruited ten wonderful people to take part in the Great Wall of China Trek. Each member of the team including myself will raise a minimum of $3,000 to take part. For me the trek will be both a personal and a professional challenge. I am committed to raising as much money as possible. I am at present actively training to be able to walk and climb the steps of the Great Wall of China, for between five to eight hours a day. This adventure is a great way to raise awareness about Arthritis SA and to raise important funds so that Arthritis SA can offer a wide range of courses and also build on our strong commitment to research. Our investment in research is an investment into finding a cure for Arthritis. This can only be possible through the generous support and donations from not only our members but also our supporters. I would like to personally acknowledge and thank you for allowing us to make a real difference to the lives of so many people, and I ask you to consider supporting us by making your donation today. Visit: www.arthritissa.org.au Arthritis Week succeeds in spreading the word about Osteoarthritis The theme for Arthritis Week in 2012 was Osteoarthritis. Two successful events were held as part of the week. A “Healthy Bones and Joints” information morning was held at the Yankalilla Community Centre where the public was able to visit display tables with information on Arthritis and related conditions and talk to educators from Arthritis SA. They were able to join in discussions and have a taste of 2 healthy foods from a local dairy. An Osteoarthritis public seminar was held at Arthritis SA and those attending were able to listen to Dr Graham Mercer, Orthopaedic Surgeon from The Repatriation General Hospital, presenting on knee and hip joint replacements Arthritis educators also spoke of the services provided by Arthritis SA. Arthritis Week culminated in a very successful Badge Day. A big thank you to everyone who contributed to making these events successful. president’s report David Motteram Arthritis SA makes an impact on research only effective but also wanted. This was reflected in our very successful health professional symposium held recently where over a third of the audience were from general practice. Our symposiums are a wonderful opportunity to provide information and resources to health professionals at local community level, who we hope will pass on this information to their patients. A rthritis SA is committed to supporting research at all levels. In this edition of On the Move we have featured a research award to an up and coming young researcher Melissa Cantley. We support research at this level through to significant contributions to the national research platform. In total eighteen grants and scholarships were awarded this year ranging from $10,000 to $100,000. A full list of these can be viewed on the Arthritis Australia website. Of these four were South Australian recipients. More recently we have commissioned a research study to identify all musculoskeletal research projects being undertaken in South Australia. This will be an extremely useful project and the first of its kind in South Australia. Arthritis SA is actively building relationships with our rheumatologists and general practitioners as a result of research carried out in 2011. Our research titled “Community perceptions of Arthritis” is extremely important as it assists the organisation greatly in ensuring we communicate to people with arthritis in ways that are not Research and education are vital keys to improving the health outcomes of people with Arthritis. With one in four South Australians suffering from some form of Arthritis I urge you today to make a tax deductable donation to our Research for a Cure Appeal to assist us in our vital work. In this time of economic challenges donors have the right to know where and how their money is spent. Arthritis SA is committed to ensuring that all donations are used responsibly and effectively. Arthritis SA offers a wide range of services from telephone information, talks in the community, funding research and a range of specialised exercise programs. Over recent years we have significantly reduced our operating expenses and have had a major focus on increasing the number of people with Arthritis whom we can support. This involves regular training and upskilling of the telephone service operators and volunteer educators through to funding high level evidence based research projects. number of people with Arthritis whom we support and we are well on track to achieve this. I ask you to support our ongoing work and make a real difference to the one in four people with Arthritis by making a donation today. This is as simple as completing and returning the reply paid envelope enclosed, visiting our website www.arthritissa.org.au or ringing our office on 08 8379 5711. “ Research & Education are the keys to improving the health outcomes of people with Arthritis ” It is because of our highly trained volunteers that Arthritis SA can provide even more education and support at local community levels. Our aim over the last twelve months has been to significantly increase the 3 with pain can be one of the Dealing with pain Living hardest parts of having Arthritis What causes pain? Arthritis pain can be caused by: • Inflammation, the process that causes heat and swelling in your joints • Damage to joints • Muscle tension, from trying to protect joints from painful movements The pain cycle: Pain, stress, fatigue (tiredness) and depression all affect each other. For example, people who feel depressed or anxious have been found to be more sensitive to pain. This can make your pain feel worse, which can lead to a continuing cycle of fatigue and depression. The good news is that this pain cycle can be broken by using some of the strategies described below. What can I do to manage my pain? Pain may limit some of the things you do, but it doesn’t have to control your life. Your mind plays an important role in how you feel pain. Thinking of pain as a signal to take positive action rather than being scared or worried about it can be helpful. Also you can learn ways to manage your pain. Here are some things you can try: Take medicines wisely: Many different types of medicines can help control the pain of Arthritis. Your doctor or pharmacist can help you understand which medicines are right for you and how best to use them. Exercise: Research has shown that regular appropriate exercise can help reduce pain. It also keeps your joints moving, strengthens muscles to support your joints, reduces stress and improves sleep. Use heat and cold. The benefits of heat and cold for Arthritis are yet to be proven by research. However these treatments are soothing and safe when used carefully. Ask your doctor or physiotherapist whether heat or cold is best for you. Take care of your joints and save energy. Looking after your joints during your daily activities can help reduce pain, stress and tiredness. It involves simple habits such as: avoiding activities that cause pain, asking for help when you need it and using special aids and gadgets to make tasks easier. Massage: There are limited scientific studies that show massage reduces Arthritis pain. However many people with Arthritis find it a useful way to relax and reduce muscle tension. Make sure the massage therapist has experience working with people who have Arthritis. Acupuncture: Acupuncture is an ancient Chinese practice of putting small, thin needles into the skin at specific points on the body to block the pain signal. There are mixed results from studies of acupuncture for Arthritis. However some people may find it useful alongside other proven treatments, such as medicines. Transcutaneous electrical nerve stimulation (TENS): A TENS machine applies very mild electric pulses to block pain messages going from the painful area to your brain. TENS can be very useful for longer-term pain but does not work for all people. You should see a physiotherapist to trial a TENS machine, and to learn how to use it correctly, before you buy one. Mind techniques: Relaxation techniques, such as deep breathing and visualisation (mental pictures), can help you reduce stress and muscle tension. These techniques need to be practised and you may have to try several methods before you find one that works for you. There are many CDs and books available from your local Arthritis office or library to help you learn relaxation techniques. Distraction: Focussing your attention on something other than your pain can also help you cope with pain. This might involve exercising, reading, listening to music or other methods to take your mind away from your pain. Contact Arthritis SA for further information about dealing with pain on (08) 8379 5711 or Country Free Call 1800 011 041 www.arthritissa.org.au Copyright © Arthritis Australia 2007. Reproduced Dealing with Pain Fact Sheet with permission from Arthritis Australia Playford “Living Life to the Fullest” Expo Wednesday February 29th was a very busy day for Joan and David at the Playford Civic Centre for the “Living Life to the Fullest” Expo. This event was a free event for the over 50s or “baby boomers”. Along with fitness demonstrations, travel advice and even financial help, special guests Michael Keelan and Dorinda Hafner were on board to speak about healthy 4 eating and growing your own vegetables. There was an amazing turnout and the Arthritis SA stand was kept busy all day with Joan and David talking to people and offering advice. While Joan was looking after people at the Arthritis SA stand David ran an hour long workshop on Arthritis and pain management. Advice was given on preventative strategies for lessening the risk of Arthritis. People learnt what they can do now to help them stay healthy in the future and this is what the whole expo was about. In summary, the “Living Life to the Fullest Expo” was a wonderful event to be a part of. Arthritis SA wishes all those who attended a happy and healthy life! Sally Wandell - takes charge of her pain hips. Sitting to breastfeed became difficult and uncomfortable and lifting the baby from the car became excruciatingly painful. After many visits to a physio and daily practice of post natal pilates, the pain seemed to disappear and I felt fine. Arthritis was never mentioned at this time and I went on to have baby number two. He was born 5 weeks early this time with feeding and developmental problems and was diagnoised with Autism. The stress and emotional rollercoaster all proved too much and once again it began to take its toll on me. Prior to being diagnosed with Psoriatic Arthritis I was a young enthusiastic travel agent, full of life, good health, spending time travelling around the world and experiencing some amazing adventures. With so much to look forward to, I was getting married and starting a family. Life really was everything I had imagined it to be. It all turned upside down when my first son was born suddenly 12 weeks early. I spent months nursing this precious little bundle in the Women’s and Children’s Hospital until finally the day came when I could take my baby home. It was an extremely stressful and emotional time, definitely not as I had imagined for myself! Little did I know this was just the beginning of many changes in my life. After a few months at home, I began to get sore ankles, wrists and My right foot became swollen to the point I could barely walk, finally I was sent to a foot specialist who told me I had a classic case of “Psoriatic Arthritis”. On this day my world came crashing down. Thoughts were buzzing around in my head I’m only 35. How was I going to look after my children? What was going to happen to me? Will I be in a wheelchair by the time I am 40? I was referred to a Rheumatologist and I cried the whole appointment, unable to imagine what lay ahead. I fell into a black hole of depression and desperation, wanting answers as to what would come of all this. Months of depression followed, not wanting to get out of bed and the anxiety was unbearable at times. I called the Arthritis SA helpline wanting an answer to all this. The support worker was very reassuring and offered to send me some information in the post and also mentioned about a course called Challenging Pain. I decided to attend the Challenging Pain course and arrived full of intention, I walked in and being the only person in my 30’s I nearly did a u turn and left. I really didn’t want to be in an Arthritis course. At my age I should have been out shopping, enjoying time with my friends, not sitting in a meeting about pain management! Thankfully I persisted, took my seat and am now am ever so grateful I did. Attending Challenging Pain gave me the building blocks to then attend the 6 week Moving Towards Wellness course. The course proved to be very helpful on a personal level giving me an array of tools to take positive steps in my life and I met two amazing leaders who inspired me to become a Leader myself. I now run both Challenging Pain and Moving Towards Wellness courses and have met some inspiring people along the way. With the help of my Rheumatologist, medication, exercise and my knowledge from the courses I have a positive outlook to my future living with Psoriatic Arthritis. I hope to make a difference by being a volunteer at Arthritis SA and helping other young people overcome their fears and dealing with the effects Arthritis has on our lives. My goal is to also see an increased awareness that Arthritis is not just for old people! Health research and you Arthritis – the disease There are 3.8million Australians living with Arthritis. Nearly 1 in 5 Australians has Arthritis and the risk of contracting Arthritis increases with age to nearly 1 in 2 by the age of 55. Alarmingly, the statistics show 1 in 4 South Australians are inflicted with Arthritis or another musculoskeletal condition, which is higher than the national average. The Federal Government recognised Arthritis as a serious health issue by making it a National Health Priority in 2002. It is the most prevalent of all National Health Priorities. You are more likely to contract Arthritis than heart disease, cancer, asthma, diabetes or mental illness and it is the single biggest cause of disability in Australia. In addition, nearly half of all Australians living with cancer, diabetes and heart disease are also living with Arthritis. 5 feature story How to fight the war on pain U nfortunately, when people hear the word Arthritis they often associate it with pain. Arthritis SA is becoming aware of more young people who have lived with pain for years before getting a proper diagnosis and a treatment and management plan in place. They are seeking advice and support from Arthritis SA now. Two thirds of people living with Arthritis are experiencing significant pain, disability, effects on their work capacity and social isolation. Early intervention with treatment and pain management can significantly improve a person’s quality of life. Nigel Stevens from Queenstown, South Australia, was diagnosed with Ankylosing Spondylitis (AS) after living with back pain for many years. Eighteen months ago the pain intensified and Nigel sought help from his local GP who referred him to a rheumatologist. After undergoing two MRI scans, Nigel was referred for a gene test and tested positive for HLA-B2. A diagnosis of AS was later confirmed. He’s now being treated with a specialist drug and is undergoing a pain management program. Nigel said he never suspected Arthritis and hadn’t heard of AS until he was diagnosed. “I’d only heard of rheumatoid and osteoarthritis but later found out there are over 150 types of Arthritis,” said Nigel. Nigel now has a young family and is entirely grateful for the advances in medications that now keep his pain under control and he can pick up and cuddle his baby daughter pain free. According to Arthritis SA Chief Executive Officer Julie Black, it’s the lack of understanding of Arthritis in the community that’s leading to people not getting diagnosed earlier. Move on with Flexagil® Pain relief cream Healthy Muscles, Healthy Muscles, age it’s important to June Newbold As wasyou an extremely As you age it’s important to together exerc active business womanwith who resistance at the together with resistance exerc age of 80 years accepted that her That’s why Blackmores d osteoarthritis would slow her That’s whydown Blackmores d withbewhey protein concen and not much could done about with whey protein concent vitamin D to h it. She had led a calcium very busyplus life both calcium plus vitamin D to h on farms and running country hotels. muscle stre Lifting and standing on her feet allmuscle stre day was just a normal part of life. new As the years went by June became aware that her pain progressively got worse particularly in her hip and back. Late last year the pain had become excruciating and she could no longer walk her loyal companion Bobby the Jack Russel dog. At Blackmores, we don’t want pain to rule your life. New Blackmores Flexagil® is a clinically proven pain relief cream that helps relieve pain, inflammation and swelling in minor sports injuries, symptoms of osteoarthritis of the knee and acute pain and inflammation in back and joints. Blackmores Flexagil® is a plant based cream containing a natural comfrey root extract and is an effective alternative to topical diclofenac*, found in some pain relief gels. CHC 52146-10/11 Available in leading pharmacies. Always asas directed. If symptoms persist see your healthcare professional. Alwaysread readthe thelabel. label.Use Useonly only directed. If symptoms persist see your healthcare professional. *An effective alternative to 1% w/w of diclofenac. ™™ ™ ™ .com.au 6 A5_Flexagil Ad.indd 1 Just before Christmas last year June was referred to an orthopaedic surgeon and within three weeks was admitted to hospital for a hip replacement. The recovery has been slower than she expected but she is now far more mobile and the pain has been reduced. June can still tell you when there will be a change in Always the only asher directed. symptoms persist seeyour your healthcare profession Always read the label. Use only If symptoms persist see healthcare professiona the weather because joints ache Always read the label. Use only as directed. If symptoms symptoms persist seeyour your healthcare pro Alwaysread read thelabel. label.Use Use only persist see healthcare profe *In resistance exercise exerciseregime. regime. *Inconjunction conjunctionwith with aa healthy healthy varied diet and resistance but she is now far more active and Go being to www.blackmores.com.au/acti-life-pro www.blackmores.com.au/acti-life-pro to her pain Go is controlled better. .com.au 17/10/11 6:05 PM The aim of good pain management is .com.au to keep you on.com.au the minimum amount and win of drugs with the maximum benefits. This may mean at times the amount of pain medication a person is taking is quite high while at other times people may not need to take any medication for pain. The key to winning the war on pain is to seek treatment early so that complications do not develop. Good pain management will help improve a person’s quality of life. Arthritis SA runs regular Arthritis information sessions for the public including sessions on specific forms of Arthritis. The two week Challenging Pain course is also available at a wide number of venues. Visit our website www. arthritissa.org.au to find a course near you. PICTURE: Right, Researchers Dr Catherine Hill and Dr Tiffany Gill actively support Arthritis SA education programs along with extensive research programs. ARTHRITIS SA supports young scientists A s part of its commitment to supporting up and coming scientists in the area of research, Arthritis SA was delighted to award the Alpers prize to Melissa Danielle Cantley, University of Adelaide for her paper entitled “A relationship between periodontitis and inflammatory arthritis”. The award of $1,000 was presented at the Australian Rheumatology Association South Australian branch meeting recently for the best scientific paper at the clinical and scientific meeting of ARA. Periodontitis (PD) and rheumatoid arthritis (RA) are similar chronic inflammatory diseases where bone loss is a major problem. Increasing evidence suggests that a relationship may exist between the two. This unique model can now be used to further investigate the relationship between PD and arthritis and test the effects of potential treatments. Previous studies have demonstrated that PD is a risk factor for development of RA and it may also enhance RA severity. The aim of the research was to investigate bone loss and the relationship between preexisting PD and experimental arthritis similar to human disease in an animal model. 7 Arthritis advice to improve your home life… T wo fourth year occupational therapy students from the University of South Australia have been on placement at Arthritis SA. Their aim is to promote health by enabling people to perform meaningful and purposeful activities. Over the last nine weeks, they have been implementing a project in collaboration with Arthritis SA, based around the in-home needs of individuals with Arthritis. Through discussion with Arthritis SA staff, the project will aim to strengthen the telephone information service to better support people with their inhome needs. those living with Arthritis. Please contact us if you are interested in our project and would like to assist. We have an online blog, which we update fortnightly with the project’s progress. Please feel free to leave any comments or questions for us to respond to at http://arthritisinhome. edublogs.org.” Jessica Mammone & Ashleigh Horsell Occupational Therapy Students arthritisinhome@gmail.com Our contact at Arthritis SA is: Jenny Bennett, General Manager Health Services of Arthritis SA, (08) 8423 0909 They aim to engage the Arthritis SA community in various strategies, such as discussion groups, surveys and observation. According to Jessica, “The overall long-term outcome of the project with Arthritis SA is to see an increase in the well-being and in-home safety of Arthritis Aware program - NEEDS YOU V olunteers are being sought to assist in an exciting new community pharmacy based Arthritis support program currently under development by Arthritis South Australia. The proposed program titled “Arthritis Aware Pharmacy” will be facilitated by Arthritis South Australia to carefully selected pharmacies that have undergone specific training in the conditions associated with Arthritis & Osteoporosis. These pharmacies will be able to provide customers and patients who suffer from Arthritis related conditions counselling and support by pharmacists and pharmacy staff that have been trained with the latest education and information which will be updated annually. In addition to the high calibre training received, the pharmacy staff will also have full access to Arthritis SA educators and resources and be able to provide a Pain Management Support Service to selected clients. The Pain Program is a complete health plan that is designed to target all areas known to contribute to 8 minimising pain. The program begins with a complete review of the client’s medications and support aids along with a self-managed holistic health plan conducted with full consultation with the client’s health practitioner. If you are interested in participating and would like to know more, please contact: Mike Walters on 0409 833 812 or via email on mike.walters@arthritissa.org Our News A trip to the Riverland brought fun and laughter to over 250 children and their families attending Kidsflix Renmark in March 2012. First time Kidsflix volunteer Jan Smith from Barmera manned the puppet making table and expressed her enjoyment of the morning, “Thanks so much for involving our young ones in the fabulous Kidsflix event today at the Chaffey. They all enjoyed helping to put smiles on faces – of the kids and their families. Such a heart-warming, positive experience.” Families travelled from all over the Riverland district to be part of the morning, from as far away as Lameroo to Barmera, Berri, Waikerie, Loxton, Monash, Morgan and Renmark. They were greeted at the door by Mickey and Minnie Mouse and then began their morning of face painting, jewellery design and finger puppet making before heading into the Chaffey Theatre to watch The Muppets. Families attending Kidsflix Noarlunga on the 31st of March were entertained by 2012 National Year of Reading Ambassadors ‘Giggly Kids’. The Giggly Kids show has been designed to engage young people and help them think and learn through play and music. It involves a series of catchy, storytelling songs with live singing and musical instruments, comedy and physical theatre. Being able to reach out to children living with chronic illness, disabilities or from disadvantaged homes not only within the city but in rural and remote communities is integral to the success of Kidsflix; as is your valued donation. Show your support today and sponsor a child to attend a Kidsflix event near you by simply visiting www.arthritissa.org.au and click on ‘Donate & Bequests’ or call (08) 8379 5711 or country freecall 1800 011 041. Upcoming events Elizabeth: Reading Cinemas – Saturday 19th May Mitcham: Wallis Cinemas – Saturday 4th August 9 All about bequests What is a Charitable Bequest? Many people want to leave money to charities after their death as this will be the only opportunity that they have to give a significant contribution to an organisation that is close to their hearts. As with any aspect of will-writing, legacies and bequests must be dealt with in a legally valid manner. So how should you go about leaving money to a charity in your Will? Bequests and legacies constitute a vitally important income stream for a large number of charities like Arthritis SA. Such gifts provide our organisation with one-off or ongoing donations that are often higher in value than conventional gifts. But there is confusion about the nature of bequests. So what are they, and how can they help Arthritis SA? What are bequests? A bequest is a gift made by an individual in their Will. Bequests can be made to a range of individuals or organisations; most people choose to bequeath the majority of their estate (that is, their total assets on their death) to their spouse or family. Many others, though, choose to leave some of their assets to charity. The terms ‘bequest’ and ‘legacy’ are often used interchangeably when discussing this type of long term gift. These terms basically describe the same thing: the gift of cash or other assets from a testator (that is, the individual writing the Will) to a recipient – known as the beneficiary – Arthritis SA. How can a Bequest help Arthritis SA? Bequests provide a unique opportunity for the chosen organisation to receive a potentially large, one-off payment – or even the use of an asset other than cash. Legacies are a vital financial tool for charities of any size. For example, the purchase of the Arthritis SA building at Marleston was made possible by a very generous bequest. Bequests have always been an important source of income for Arthritis SA enabling us to carry 10 FOR MORE INFORMATION please give Margaret Nowlan a call on 08 8423 0914 or email: Margaret.Nowlan@ arthritissa.org.au out research and comprehensive pain management and education programs. We are very grateful to these bequestors that Arthritis SA has been regarded so highly that the organisation and the thousands of South Australians that we assist have been lucky enough to benefit from that. With some forethought and careful planning now, you could help to secure the financial future of research into a cure for Arthritis and better pain management techniques. There is no cure as yet for Arthritis and other musculo-skeletal related conditions. A bequest is a long-term solution. It is, by its nature, not something that happens overnight. It is usually the result of a long-term relationship. Understandably, people are generally keen to ensure that their assets pass on their death to a person or organisation that means a lot to them. As such, it tends to be a charity with which the benefactor (bequestor) has had the closest, most personal link throughout their life time. Many of our bequests over the years have come from our wonderful volunteers who have become involved with Arthritis SA as it represents a cause close to their hearts or has provided valuable support for them or a loved one. In soliciting bequests from our existing donors and partners it is our sincere aim to conduct our Bequest Program with the utmost sensitivity. We are very mindful of recent media around aggressive Bequest Programs interstate which have been seen as inappropriate or offensive. Arthritis SA is very careful to conduct such sensitive discussions in an insightful and thoroughly transparent manner with utmost confidentiality being provided. How can I leave a charitable bequest? You should seek legal advice to ensure that your Will is valid and that you have adequately provided for those people for whom you should provide. Your Will may be challenged if this is not done properly. This advice will also assist you with tax matters such as trusts, guardians, asset valuations and power of attorney. If you are a potential donor considering leaving a charitable bequest, you will be pleased to hear that the process for doing so is relatively straightforward. A bequest is no more than an instruction in your Will. Upon your death this document will be read by your executors (the individuals you have nominated to carry out your wishes) and they will act on your instructions. You can therefore create a charitable bequest by simply leaving details in your Will of the asset you wish to bequeath, and your intended beneficiary. Arthritis SA is grateful to receive a specific bequest, your entire estate or a percentage of your estate. Under no circumstances will staff of Arthritis SA provide any form of advice to potential donors. We strongly recommend that you seek appropriate independent legal advice when preparing your Will. Our Planned Giving Officer, Margaret Nowlan, who is very experienced and empathetic, works closely with potential bequestors for Arthritis SA. If you would like to identify whether Arthritis SA would be a good charity for you to leave a bequest to, why not give Margaret a call on 08 8423 0914 or email her for more details: Margaret.Nowlan@arthritissa.org.au. Rosalie Upton From Krispy Kreme’s to High Tea Members and friends from the Marion Support Group Arthritis SA has recruited ten wonderful people committed to raising a minimum of $3,000 each as part of the Great Wall of China Trek. Each person has developed new and exciting ways to raise their funds. CEO Julie Black and Contact Centre Manager Tanya Harrison held a High Tea at Arthritis House with 50 people enjoying magnificent cakes and ribbon sandwiches raising $2,000 between them. While Brenton Thomass and Stuart Hore undertook a Krispy Board member Colette Smith, CEO Julie Black and friends enjoy the afternoon Kreme donut drive and distributed over 120 dozen donuts. Wayne Duffy of Dulwich Bakeries has collection tins in each of the Bakeries while Chemplus pharmacists Rudy Farrugia and Stephanie Bennett are busy raising funds through a dinner dance. Good luck to all the participants, knowing your money raised is going to a great cause provides special inspiration to us and many others within the community. useful websites Arthritis Australia www.arthritisaustralia.com.au Medicare www.medicareaustralia.gov.au Osteoporosis Australia www.osteoporosis.org.au Australian Psychological Society www.psychology.org.au Beyond Blue www.beyondblue.org.au Australian Association of Massage Therapists www.aamt.com.au National Prescribing Service Limited www.nps.org.au Institute of Registered Myotherapists of Australia www.myotherapy.org.au A new face for the board Arthritis SA is pleased to welcome Anne Young to the Board Anne is currently the General Manager Marketing, Branding and Communication, Chemplus Pty Ltd Anne has a long history in the pharmaceutical industry and has a strong background in managing compliance with legislative and ethical requirements and company policies and procedures. Anne is also on the Board of The Mary Potter Foundation and served on the board of Scotch College for three years. Australian Physiotherapy Association www.physiotherapy.asn.au The National Health and Medical Research Council (NHMRC) www.nhmrc.gov.au Carers Australia www.carersaustralia.com.au Helping toes in need Manufacturing & Custom Making in SA. The home of Ben Playford-SA’s Certified Pedorthist (C.Ped.Au). • DVA Approved Custom Makers • Professionally Trained & Qualified • Health Fund Rebates may apply • Specialising in Arthritic & Diabetic Feet • Variety of styles & brands available to suit all • 2 locations-Kent Town and Norton Summit • Home visits available Telephone: (08) 83900626 for an appointment near you 11 TAKE 9 - Go to the movies more often! With the Take 9 Movie Card you will get some amazing savings from Wallis Cinemas. Sponsored by Channel 9 Telethon, Wallis Cinemas and Robern Menz The Take 9 Movie Card offer:•See two movies for free •Includes 9 movies for only $9 each for you and a friend or family member •A bag of Menz Fruchocs to share •Available all sessions •Valid to end of March 2013 •Chance to win a Wallis Gold Pass •Over $150 savings on normal ticket prices Available from early March until sold out! Cost of card is $19. A surcharge will apply for 3D movies. To purchase call Reception on 08 8379 5711 or download an order form from the website www.arthritissa.org.au new 2012/2013 Entertainment Books Entertainment books The are worth their weight in gold! Still only $65 Purchase your brand new 2012/2013 Entertainment Book now to receive over $15,000 in valuable offers, valid through 1 June, 2013. At the same time, you’ll be helping Arthritis SA in valuable fund raising to go towards research and education services and community awareness programs. 12 You can purchase your 2012/2013 Entertainment Book either online www.arthritissa.org.au, call (08) 8379 5711 or 1800 011 041 or visit Arthritis SA during business hours Monday – Friday. events and happenings Moving Towards Wellness 2012 You attend 2.5hrs one day a week for six weeks Course fees Arthritis SA Member $33.00 Member Pensioner $24.20 Non-member $88.00 Non-member Pensioner $60.00 Accompanying Person $11.00 (GST Inclusive) Mutual Community Members please phone David on (08) 8423 0902 to check if you are eligible to have your costs covered in the course you enrol in. Arthritis SA 118 Richmond Road, Marleston Weekday courses at Arthritis SA are held from 1.00pm-3.30pm Wednesday 23rd May-Wednesday 27th June Evening courses at Arthritis SA are held from 7.00pm-9.30pm Weekend courses at Arthritis SA are held from 10.00am-12.30pm Saturday 28th July-Saturday 1st September. Gawler Hospital Day Centre Gawler Health Service, Hutchinson Road, Gawler East All courses at Gawler are held from 10.00am-12.30pm Friday 4th May-Friday 8th June Elizabeth Anglicare ‘The Platform’, Elizabeth Way, Elizabeth All courses in Elizabeth held from 10.00am-12.30pm Athlestone Community Centre 338 Gorge Road, Athlestone (opposite Athelstone Village) All courses at Athlestone are held from 10.00am-12.30pm Friday 27th July-Friday 31st August. Aldinga Beach G.P Plus, Pridham Boulevard, Aldinga Beach All courses at Aldinga Beach are held from 9.30am-12.00noon Friday April 13th-Friday 18th May Please phone David on (08) 8423 0902 to register your interest for this area. Please note all dates and locations are subject to change. Please phone 1800 011 041 for the most up to date information. Challenging Pain 2012 You attend 2.5hrs one day a week for two weeks. Course fee Members of Arthritis SA-FREE Non-member participant $27.50 (GST Incl.) Marleston Arthritis SA, 118 Richmond Road, Marleston Tuesday 22nd May & Tuesday 29th May 1.00pm-3.30pm Gawler Hospital Day Centre Gawler Heath Service, Hutchinson Road, Gawler East T.B.C. Health Professional Seminar Series 2012 All day seminars for Health Professionals to be held at Enterprise House, Greenhill Road, Unley. Saturday June 23rd-Back Pain including Ankylosing Spondylitis Consumer monthly information sessions 2012 Monthly Sessions for consumers to be held at Arthritis SA, 118 Richmond Road, Marleston Thursday May 8th-7.30-9.30pm Dr Phillip Griffin Plastic and Reconstrutive Surgeon Sunday May 20th 1.00pm-3.30pm Fibromyalgia Thursday June 7th 1.00pm-3.00pm Polymyalgia Rheumatic Tuesday July 17th 1.00pm-3.00pm Gout Sunday July 29th 1pm-3.30pm Fibromyalgia Training Opportunities 2012 Tai Chi for Arthritis update and Part 2 Training Venue: Arthritis SA, 118 Richmond Road, Marleston Dates: Saturday 5th & Sunday 6th May 9.00am-4.30pm each day Tai Chi for Diabetes Leader Training Venue: Arthritis SA, 118 Richmond Road, Marleston Dates: Saturday 16th June & Sunday 17th June 9.00am-5.00pm each day Tai Chi for Arthritis Leader / Instructor Training Venue: Arthritis SA, 118 Richmond Road, Marleston SA 5033 Dates: Saturday 8th & Sunday 9th September 9.00am-4.30pm each day For further information, expressions of interest, cost and registration please contact Vivienne Tomlinson or Jenny Bennett at Arthritis SA on (08) 8379 5711, Toll Free 1800 011 041 or www.arthritissa.org.au Exercise Classes Classes are held at Arthritis SA and Osteoporosis SA, 118 Richmond Road, Marleston during school terms. Contact (08) 8379 5711 or 1800 011 041 for further details and ask to speak to Class Coordinator. Held on Mondays and Fridays: Easy Moves Bones on the Move Osteoporosis Balance Tai Chi for Arthritis Please note Arthritis SA reserves the right to cancel or postpone events if necessary 13 I ask you to think of any four people to whom you are close Now imagine one of them has a debilitating disease, which causes chronic bone and joint pain and eventuates in loss of basic mobility. Unfortunately, this scenario is all too real for many South Australians. One in four will be afflicted with a form of Arthritis sometime during their lifetime. The yearly monetary cost of treating this disease is in the billions of dollars, but the human cost is immeasurable. That’s why Arthritis South Australia (Arthritis SA) has been committed to raising money every year since 1975 to fund research into a cure for Arthritis. It’s the reason we need to increase our funding levels even more in 2012. The various forms of Arthritis (including Osteoarthritis, Rheumatoid Arthritis, and Osteoporosis) are a problem that is not going away. In fact, current models show quite the opposite: • By 2020, nearly 1 in 3 adults 18-years and older in South Australia will have some form of Arthritis at current diagnostic rates • By 2050, approximately 7-million adults in Australia will be suffering from some form of Arthritis unless we find the cure. Today’s research is tomorrow’s cure Arthritis SA is changing people’s lives through the continuation and expansion of existing research. We need to know that tomorrow is closer to the answers we seek and with that end in sight, we need to fast-track our fundraising efforts sooner rather than later. I can’t stress to you enough how critical our continued funding is to meeting these ends. Without your generous support our progress becomes fragmented and dysfunctional. I am calling upon you all to continue your support of our cause and if at all possible to increase your frequency or level of commitment to allow us, in turn, to deliver enhanced results. How can you help today? I ask you personally, to make a regular donation to support the Arthritis SA Research. Your donation will fund research programmes which provide answers about the causes of Arthritis and result in better treatment for Arthritis sufferers. Our longer-term programmes aim to find a cure for all the many forms of Arthritis and musculoskeletal conditions, including Osteoarthritis, Rheumatoid Arthritis, Osteoporosis and Arthritis in children. Put simply, your money helps us towards achieving our vision of a future free from Arthritis sooner. Dr Simon Burnet Medical Director, Arthritis South Australia Yes, I want to support Arthritis SA The Arthritis Foundation of South Australia incorporating Osteoporosis SA Please choose your gift by ticking the appropriate box below. Please to join us in conquering Arthritis together by making your gift today! $50 $100 $200 $250 $________ your gift as you can afford OR I would like to become a regular giver to Arthritis SA Research Please accept my regular pledge of Twice per year or $60 or bi-monthly quarterly Donation amount: Payment method: $40 $ Cheque Money Order (made payable to Arthritis SA) MasterCard Please debit my credit card: Visa Amex Card number Expiry date Signature / Name on card Please send me information on: Becoming a member Self Management courses Leaving a bequest Regular giving address: 118 Richmond Road, Marleston SA 5033 phone: (08) 8379 5711 country freecall: 1800 011 041 email: info@arthritissa.org.au website: www.arthritissa.org.au Donate: online at www.arthritissa.org.au Declaration of privacy The Arthritis Foundation acknowledges and respects the privacy of individuals. It is our policy to provide our supporters with information about our activities and from time to time to request further support. We respect your privacy and will not on sell your name to any other organisation. If you request no further mail from Arthritis South Australia or Osteoporosis South Australia, please write to us including your address details and donor number.