ETHICS SECRETARIAT ethics.secretariat@mq.edu.au 9850 6848 Human Research Ethics Committee (HREC) Policy on Providing Reimbursements to Research Participants Introduction The National Statement on Ethical Conduct in Human Research (2007) provides the following information in relation to providing reimbursements to research participants: (From Chapter 2.2 General Requirements for Consent) 2.2.10 It is generally appropriate to reimburse the costs to participants of taking part in research, including costs such as travel, accommodation and parking. Sometimes participants may also be paid for time involved. However, payment that is disproportionate to the time involved, or any other inducement that is likely to encourage participants to take risks, is ethically unacceptable. 2.2.11 Decisions about payment or reimbursement in kind, whether to participants or their community, should take into account the customs and practices of the community in which the research is to be conducted. The National Statement is available at the following link: http://www.nhmrc.gov.au/_files_nhmrc/publications/attachments/e72.pdf General Guidance It is sometimes desirable to acknowledge the assistance that participants give researchers by recompensing participants for their time, travel costs and inconvenience. Any reimbursement should not be significant enough to cause people to take risks or accept burdens they would otherwise avoid. In addition, you should avoid any form of reimbursement, which would directly encourage behaviours that might cause the participant harm (e.g. offering gambling related products). Reimbursement of participants requires justification. Researchers proposing any form of reimbursement need to establish that the research project involves little personal risk, that the participant is aware that the payment does not depend on continued participation (freedom to withdraw consent is preserved) and that the reward for participation is not likely to make the participant dependent on the researcher. In all cases the HREC will evaluate any proposed payment in light of: (1) the National Statement (see above); (2) these general guidelines; and (3) other participant specific guidelines outlined below. Human Research Ethics Committee MACQUARIE UNIVERSITY http://www.research.mq.edu.au/for/researchers/how_to_obtain_ethics_approval/human_research_ethics ETHICS SECRETARIAT ethics.secretariat@mq.edu.au 9850 6848 The HREC will consider the following factors when assessing the appropriateness of a proposed reimbursement: Who the research participants are What participants will be asked to do The time commitment involved in participation The overall context of the research Use of Amazon Mechanical Turk (M-Turk) in Research Amazon Mechanical Turk is a marketplace for work where employers can advertise tasks, known as Human Intelligence Tasks (HITs) and workers can select tasks to complete for a nominal sum. Researchers are increasingly using M-Turk as a source of participants. A number of articles have been published that raise questions about the use of M-Turk and the payments made to M-Turk workers. For example, research suggests that 20% of MTurk workers rely on M-Turk tasks as a primary source of income (see http://www.mitpressjournals.org/doi/pdf/10.1162/COLI_a_00057). Researchers are advised to consider the characteristics of tools such as M-Turk when designing research projects. The HREC will consider the use of M-Turk in research on a case by case basis taking into account the factors listed in the ‘General Guidance’ section above. Specific Participant Groups Research can involve participants from a number of specific groups, e.g. Aboriginal and Torres Strait Islander peoples, people in other countries, prisoners, participants involved in medical research, children and young people, etc. Reimbursement may raise additional ethical issues with certain groups. The HREC suggests that you consider the information provided below when preparing an application, which involves reimbursing one of these groups of people. Aboriginal and Torres Strait Islander Peoples (National Statement on Ethical Conduct in Human Research (2007) Chapter 4.7: Aboriginal and Torres Strait Islander Peoples) Australian Institute of Aboriginal and Torres Strait Islander Studies (AIATSIS) ‘Guidelines for Ethical Research in Australian Indigenous Studies’ (GERAIS) http://www.aiatsis.gov.au/research/docs/GERAISjune2011.pdf Human Research Ethics Committee MACQUARIE UNIVERSITY http://www.research.mq.edu.au/for/researchers/how_to_obtain_ethics_approval/human_research_ethics ETHICS SECRETARIAT ethics.secretariat@mq.edu.au 9850 6848 NHMRC Values and Ethics: Guidelines for Ethical Conduct in Aboriginal and Torres Strait Islander Health Research http://www.nhmrc.gov.au/_files_nhmrc/publications/attachments/e52.pdf People in Other Countries (National Statement on Ethical Conduct in Human Research (2007) Chapter 4.8: People in Other Countries) The principles presented in the AIATSIS Guidelines can be applied to research with people in other countries. http://www.aiatsis.gov.au/research/docs/GERAISjune2011.pdf Prisoners (National Statement on Ethical Conduct in Human Research (2007) Chapter 4.3:People in Unequal or Dependent Relationships) Corrective Services NSW http://www.correctiveservices.nsw.gov.au/__data/assets/pdf_file/0011/312986/i ncentives_paper1.pdf http://www.correctiveservices.nsw.gov.au/information/research-andstatistics/corrective-services-ethics-commitee Participants involved in Medical Research (National Statement on Ethical Conduct in Human Research (2007) Chapter 3.3:Interventions and therapies, including clinical and non-clinical trials, and innovations) Statement on Consumer and Community Participation in Health and Medical Research http://www.nhmrc.gov.au/guidelines/publications/r22-r23-r33-r34 Using the National Statement 1: Payments to participants in research, particularly clinical trials http://www.nhmrc.gov.au/_files_nhmrc/file/health_ethics/hrecs/reference/using _the_national_statement.pdf Human Research Ethics Committee MACQUARIE UNIVERSITY http://www.research.mq.edu.au/for/researchers/how_to_obtain_ethics_approval/human_research_ethics ETHICS SECRETARIAT ethics.secretariat@mq.edu.au 9850 6848 Children and Young People (National Statement on Ethical Conduct in Human Research (2007) Chapter 4.3: Children and Young People) A Handbook for Human Research Ethics Committees and Researchers Understanding Consent in Research Involving Children: The Ethical Issues http://www.mcri.edu.au/projects/ConsentInResearch/media/handbook.pdf (Chapter 7: Is it acceptable to offer or pay money or incentives of any kind to children and young people?) Human Research Ethics Committee MACQUARIE UNIVERSITY http://www.research.mq.edu.au/for/researchers/how_to_obtain_ethics_approval/human_research_ethics