Since 1975, ASK has been making life better for children with cancer and their families. While the hospital and medical staff focus on treatment, ASK works to provide the quality-of-life support needed to make going through treatment less traumatic. ASK supports the ASK Pediatric Hematology/Oncology Clinic at Children/s Hospital of Richmond at VCU. History of Organization - The ASK Childhood Cancer Foundation (ASK) was founded in 1975 by a small group of parents of pediatric cancer patients at Children’s Hospital of Richmond (CHoR) at VCU. They joined together to provide mutual support, to search for answers together and to deal with the devastating diagnoses. Today - Today, the group’s mission is to make lives better for children with cancer from diagnosis through treatment and beyond. Our mission is accomplished by providing social, emotional, financial and spiritual support for children with cancer and their families. ASK steps in at the time of diagnosis to help the family deal with the non-clinical side of what’s happening. While the hospital and medical staff focus on the treatment, ASK works to provide the children and their families with the quality-of-life support they need to make going through it all less traumatic. Our vision is to serve as the central source of support for children with cancer and provide comfort and compassion in an exemplary manner. ASK enhances the Pediatric Hematology/Oncology Department at CHoR by funding several positions including a child psychologist, chaplain, and child life therapist. ASK also tries to provide opportunities for cancer patients and their families to forget about their disease and enjoy life. The organization sponsors trips to local attractions and sporting events. Annual high school graduation ceremonies, monthly birthday parties and weekly celebrations for successful treatments are ongoing. ASK also provides funding directly to families in crisis to help defray mounting financial obligations above and beyond medical expenses. Our Funding – ASK receives funding from a variety of sources including local corporations, foundations and individuals. ASK’s budget for the fiscal year 2014 is $569,194. To receive a copy of our most recent annual report or IRS 990, please contact the ASK offices at (804) 658-5910. 2013-2014 Board of Directors & Staff Guiding Principles: Put children and families first Be mission driven Be responsible stewards of resources Be ethical Be an open and collaborative community partner Be proactive as well as responsive Be creative and innovative Show compassion at all times Board of Directors: Leslie Armstrong Scott Armstrong, President Jim Baber Shaaron Brown Nancy Chase Jim Eck Zach Grabill Jodie Kitchens Josh Kugelman Craig LeFeber Victoria Levi Darry Newbill Aaron Redman Jill Shimp Kenny Melvin Ex-Officio Board Members: Amy Godkin, Executive Director, ASK Lexi Aman, Development Director, ASK Katie Barber, Child Life Therapist, ASK Matthew Bitsko, ASK Child Psychologist Robyn Dillon, Social Worker, VCU Health Systems Dr. Kami Godder, Director of Pediatric Hematology/Oncology, VCU Dr. Asadullah Kahn, Pediatric Neuro-Oncologist,VCU Health Systems Dr. Gita Massey, Pediatric Oncologist, VCU Health Systems Alma Morgan, Educational Consultant, VCU Health Systems Tom David Siebert, ASK Chaplain Positions We Fund The Chaplain ministers to children with cancer and their families from the time they are first informed of the diagnosis. This person provides not only counseling, but also spiritual guidance, sympathetic companionship, crisis intervention and, if needed, bereavement counseling. The Psychologist is a doctorial-trained, state-licensed professional who serves children and their caretakers on a consultative basis. Services include but are not limited to: psychological assessment and diagnosis, individual and family psychotherapy, pain and symptom management, consultation with other members of the psychosocial team to develop a support plan for those struggling to cope with the issues surrounding childhood cancer and serious blood disorders. The Child Life Therapist is a member of each child’s health care team, working to reduce the fear and anxiety that often accompany treatment and helping patients and their families cope with the stress of illness. During long hours spent in the clinic, the child life therapist provides supportive intervention, as well as educational and therapeutic play. Children are encouraged to express themselves through play, using toys to demonstrate their feelings about medical treatments and procedures. How We Help Child Life Program & Events ASK’s Child Life Program is run by a full-time Child Life Therapist who works in the ASK Pediatric Hematology/Oncology Clinic. The program’s child life therapist and volunteers serve as the children’s advocates, helping them maintain contact with their friends back home and celebrating milestones of their childhood. During long hours spent in the clinic, the child life therapist provides supportive intervention, as well as educational and therapeutic play. Children are encouraged to express themselves through play, using toys to demonstrate their feelings about medical treatments and procedures. ASK’s Child Life Program strives to provide as many normal life experiences as possible during treatment and offer opportunities for cancer patients and their families to forget about their disease and enjoy life. The organization organizes events such as: Family Laser Tag Easter at the Zoo Kourageous Kids Party Holiday Party Monthly birthday parties, annual high school graduation ceremonies, and weekly celebrations for successful treatments are ongoing. ASK also partners with other organizations, schools, churches and individuals for additional social support and activities. Family-to-Family Program/ On-going Support Groups The Family-to-Family Program helps families connect within the hospital setting and providing them with support. Upon diagnoses, a family is assigned a parent whose child has already undergone treatment for the same or similar type of cancer. ASK sponsors monthly family discussion groups for both oncology and sickle cell patients that meet at the Penny Tree Family Resource Center. ASK also sponsors bereavement support groups in partnership with Full Circle Grief Center. Educational workshops specifically designed for teens, long term survivors, siblings, and families of newly diagnosed children are planned throughout the year. Pastoral Care & Family Crisis Fund The Chaplain provides counseling, spiritual guidance, sympathetic companionship, and crisis intervention to children with cancer and their families. Recognizing the heavy financial toll that a diagnosis of cancer can have on a family ASK offers a Family Crisis Fund. This account is designed to help families in crisis pay for items such as rental and/or mortgage payments, utility bills, overnight hotel stays, parking and meal tickets, groceries and funeral expenses. Moving Forward In coordination with the YMCA, Moving Forward is a fun and dynamic physical fitness program designed to help survivors improve strength, mobility, coordination, endurance, balance, and self-esteem. Each participant receives personal training and a family membership for one year. Tutoring and Testing ASK has partnered with Alma Morgan, Educational Consultant, to provide tutoring, neuropysch testing and evaluations, educational workshops, college and vocational advising, and scholarships in an effort to help children with cancer succeed in the academic setting during and after their treatments. First STEP - Socialization Through Enriched Play The ASK Childhood Cancer Foundation (ASK) has realized the need for additional supportive services for young children whose preschool or kindergarten experience has been postponed or interrupted during medical treatment. First STEP offers an individualized early childhood educational program for ASK Pediatric Hematology/Oncology Clinic patients and families. First STEP is especially designed to meet the unique educational, social and emotional needs of young children with chronic illnesses as they go through the process of healing. This program is provided though the partnership with First Baptist Weekday School. Young Adult Survivors Group Young Adult Survivors Group connects 20-30 year old childhood cancer survivors for educational and social support. The group directs its attention to the needs of teens and young adults after their cancer treatments are complete. They tackle medical, social, psychological, employment and insurance issues that may affect them as they mature. Kourageous Kids Each September, ASK recognizes Childhood Cancer Month with a portrait display honoring the courageous spirit of children with cancer. Various venues in the Richmond area host the display giving more visibility to ASK and our mission as well as promote awareness of childhood cancer. Scholarships ASK offers college scholarships to qualified survivors of childhood cancer. Monies are also made available to nursing staff to further their education and knowledge of childhood cancer treatment and practices. Clinic & Bone Marrow Transplant Unit Renovation Projects In 2002, ASK renovated a space in the Children’s Hospital of Richmond’s Nelson Building to create the ASK Pediatric Hematology/Oncology Clinic. This child-friendly space was designed to create a warm and home-like atmosphere. This space received the Top Ten Most Innovative Facilities Award in 2003 from the Center for Innovative Healthcare Facilities. In 2004, ASK worked with the Bone Marrow Transplant Unit to create a pediatric-friendly atmosphere in five existing rooms. The space includes two in-patient rooms, an exam room, an infusion room and a family lounge, all designed in a kid-friendly and home-like atmosphere similar to the ASK Clinic. ASK is currently working with the Children’s Hospital of Richmond on the design of the new pediatric hematology/oncology clinic at the Children’s Pavilion.