WORLD WIDE LIST OF MULTIPLE BIRTH BEREAVEMENT SUPPORT
INDIVIDUALS AND ORGANIZATIONS
AUSTRALIA
Contact: Simone Zmood, President
Organization: Multiple Birth Association Bereavement Support Group (MBABS)
Address: PO Box 1015, Caulfield North VIC 3161, Australia
WS: Under construction
EM: mbabs_oz@hotmail.com
Tel:
+61 3 9527 7144
Fax:
+61 3 9527 2537
Services: Volunteer, non-profit support group - affiliated with Australian
Multiple Birth Assn (AMBA) - by and for bereaved multiple birth families,
caregivers and interested others, suffering loss at any stage of gestation or
age. Quarterly newsletter, "Multiple Dreams", with a wide scope of
information relevant to bereaved multiple birth families. Associated with
the Center for Loss in Multiple Birth (CLIMB), managing Australian section
of Parent Contact list and distributes quarterly publication "Our Newsletter"
in Australia. Offer phone contact and follow-up, support group meetings,
bereavement library and resources, and parent contacts in Australia and
around the world.
CANADA
Contact Name: Lynda P. Haddon,
Chair, Loss of Multiples Support Network
Organization: Multiple Births Canada (MBC)
Address: P.O. Box 234, Gormley, Ontario, Canada L0H 1G0
Tel: (905)888-0725; Toll Free in Canada: (866)228-8824
WS: www.multiplebirthscanada.org (Loss Page on Web Site)
EM: loss@multiplebirthscanada.org
Services: quarterly newsletter, Forever Angels; Members' only EM
connection; support literature; telephone, mail and EM contact; WS link to
other support organizations; Loss column within Multiple Moments (MBC's
national magazine); Adult survivor support
Contact Name: Lynda P. Haddon,
Multiple Birth: Prenatal Education & Bereavement Support
Address: 450 Piccadilly Ave., Ottawa, Ontario, Canada K1Y 0H6
EM: haddon@istar.ca
WS: www.multiplebirthfamilies.com (under construction)
Tel: (613)722-3325
Fax: (613)236-7080
Services: Telephone, mail and e-mail contact, appropriate referrals, peer
support, bereavement literature support, Web Site, adult survivor support
Contact Name: Diane Myers
Organization: Triplets, Quads & Quints Association (TQQ)
Address: 2968 Nipiwin Dr, Mississauga, Ontario, Canada L5N 1X9
Tel: (905)826-0734
WS: www.tqq.com
EM: diane@tqq.com
Services: Emotional support to bereaved families through telephone support
with experienced and/or trained parents and referrals to appropriate
community services. No adult survivor support.
Contact Name: Donna Wilson
Organization: Sunnybrook & Women's College Health Sciences Centre
Address: 76 Grenville St., Toronto, Ontario, Canada M5S 1B2
EM: Donna.Wilson@swchsc.on.ca
Tel: (416) 323-6400, ext 4546
Services: individual counselling, peer support through Perinatal
Bereavement Services of Ontario (hospital-based group), chaplaincy
services, infertility counselling (individual & group sessions). No adult
survivor support
Denmark
Contact Name: Abelone Glahn
Organization: Nordic Twinnet
Address: 2, Fjendstrupvej 2, DK-4850 Stubbekobing, Denmark
EM: info@tvilling.net
WS: www.tvilling.net
Tel: +45 54 49 00 94
Services: mail support for parents, lone twin group for over 18 years old,
professional panel to answer parents’ questions, bereavement literature
available. Book due out in April, 2002 written by Abelone Glahn with 36
interviews with twins, 4 being lone twins.
NEW ZEALAND
Organization: Twin and Multiple Birth Loss NZ (Inc.)
Address: P.O. Box 51-984, Pakurange, Auckland, New Zealand
WS: www.twinloss.org.nz
EM: twinloss@xtra.co.nz
Services: peer support, meetings, phone support,magazine Hearts & Wings,
for anyone at any age with an interest in multiple birth loss. Some adult
survivor support.
NIGERIA
Contact: Odion Eremionkhale
Organization: Worldwide Twins and Multiple Births Foundation Inc.
Address: P.O. Box 8839, Somolu, Lagos, Nigeria
EM: multiple_births@usa.net
Services: twinless twin connection, guidance, counselling regarding
survivor’s guilt, jealousy, vaccum to be filled, emphathy, sympathy, some
social assistance.
SPAIN
Contact names: Dr.J.Ruiz, Dr.R.Aurell
Organization: Santiago Dexeus Font Foundation
Address: Dalmases nº. 50. 08017 Barcelona, Spain
EM: jorrui@iudexeus.uab.es
Tel: 34-93-2274700 ext. 2104
Services: bereavement support services from conception onwards as well as
psychological support for couples prior to starting IVF treatments
SWEDEN
Contact Name: Margareta Olwe
Organization: Svenska Tvillingklubben (Swedish Twin Society)
Address: Valhallavagen 106, 11441 Stockholm, Sweden
WS: www.tvillingklubben.se
EM: svenska@tvillingklubben.se
Tel: 46-8-662 12 22
Services: personal meetings in Stockholm, telephone support. Working on
support brochures. No adult survivor support at this time.
UNITED KINGDOM
Contact Name: Jane Denton or Marion Paterson
Organization: The Multiple Births Foundation (MBF)
Address: Level 4 Hammersmith House, Queen Charlotte's & Chelsea
Hospital, Du Cane Road, London W12 OHS, United Kingdom
WS: www.multiplebirths.org.uk
EM: marion.paterson@ic.ac.uk
Tel: 0202 383 3519
Services: Two publications on bereavement available from the MBF:
booklet for bereaved parents and twins "When a Twin or Triplet Dies" cost
£2.50
MBF Guidelines for Professionals boxed set of five £25.00
Guidelines on bereavement £7.99 Other publications also available from
MBF. Details on website.
Organization: Twins and Multiple Births Association (Tamba)
Address: Harnott House, 309 Chester Rd., Little Sutton, Ellesmere Port
CH66 1QQ, England
EM: enquiries@tambahq.org.uk
Tel: 0870 770 3304
Services: contact with other bereaved families, quarterly newsletter, parent
contact list, quarterly meetings throughout England, Book of Remembrance,
Memorial Service every two years. No adult survivor support.
UNITED STATES
Contact Name: Jean Kollantai (Director)
Organization: Center for Loss in Multiple Birth (CLIMB), Inc.
Address: P.O. Box 91377, Anchorage AK 99509 (US)
WS: www.climb-support.org
EM: climb@pobox.alaska.net
Tel: 907/222-5321 (or 907/ 274-7029, Lisa Fleischer)
Services: Since 1987, CLIMB (non-profit) provides support by and for
parents and bereaved families throughout the U.S. and beyond, from
conception through pregnancy and birth, in infancy, or in childhood.
Quarterly newsletter of personal accounts and information, some materials
for specific situations (pregnancy after the death in-utero or adverse prenatal
diagnosis, SIDS, complete loss, multifetal pregnancy reduction, etc.).
Manages active parent contact network, supports regional/local gatherings of
bereaved multiple birth parents. Provides materials and assistance for
professionals, multiples' organizations, and interested others. Limited adult
survivor support.
Contact Name: Maureen Doolan Boyle
Organization: MOST (Mothers of Supertwins), Inc.
Address: PO Box 951, Brentwood, NY 11717-0627 USA
WS: www.MOSTonline.org
EM: Info@MOSTonline.org
Tel: 1-631-859-1110
Services: Information for bereaved families. Package includes additional
resources. Currently developing a members' only online network for families
with surviving HOM children. Offer a members' only online network for
families with one or more surviving HOM children with ongoing medical/
developmental issues (for families who may or may not have experienced a
loss); column in magazine SUPERTWINS, regarding loss and grief issues
by members who share their experience and the professionals who support
them. Offers members networking with other families both online and via
telephone.
Contact Name: Dawn Keller, Executive Secretary
Organization: National Organization of Mothers of Twins Clubs
(NOMOTC)
Address: PO BOX 438, Thompson Station, TN, U.S.A. 37179
WS: www.nomotc.org
EM: nomotc@aol.com
Tel: 615-595-0936
Services: Bereavement support Coordinator who corresponds with families.
No adult survivor support.
Elizabeth Noble, P.T.
Author: Having Twins, 3rd ed. in process, surviving twin.
448 Pleasant Lake Ave., Harwich, MA, U.S.A. 02645
PH: (508) 432-8040 FAX: (508) 432-9685
WS: www.elizabethnoble.com
EM: en@elizabethnoble.com
Eileen M. Pearlman, Ph.D.
Organization: Twinsight
Address: 1137 Second St., #109, Santa Monica, California 90403, U.S.A.
WS: www.twinsight.com
EM: epearlman@twinsight.com
Tel: 1(310)458-1373
Services: bereavement counseling and psychotherapy services provided for
parents and for survivor twins from birth through adult.
Elizabeth A. Pector, M.D.
Family Physician, Spectrum Family Medicine
Coordinator of Chicago-area group for parents raising survivors:
BRAMBLE (Building Respect after Multiple Birth Loss Experiences) No
adult survivor support.
P.O. Box 5845, Naperville, IL , U.S.A. 60567-5845
Tel: 630-305-3025
Fax: 630-305-0311
WS: www.synspectrum.com/multiplicity.html
EM: synspectrum@yahoo.com
Contact Name: Dr. Nancy L. Segal
Address: California State University, Twin Studies Center
CSU Fullerton, 800 N. State College Blvd., Fullerton, VA 92834, USA
WS: psych.fullerton.edu/nsegal
EM: nsegal@fullerton.edu
Tel: 714-278-2568
Services: Ongoing study of twin loss in childhood, adolescence and
adulthood; referrals for counseling and support groups; distribution of
information on loss of a twin
Contact Name: Janet L. Bleyl, Founder and President
Organization: The Triplet Connection
Address: P.O. Box 99571, Stockton, Calif. 95209, USA
WS: www.tripletconnection.org
EM: tc@tripletconnection.org
Tel: (209)474-0885
Services: “Tender Hearts” packet, networking information for families who
lost one, two or more of triplets, quads, quints, etc. Referral of adult
survivors.
Organization: Twinless Twins Support Group International
Address: PO Box 980481, Ypsilanti. MI 48198-0481, USA
WS: www.twinlesstwins.org
EM: twinsource@yahoo.com
Services: Support for multiples of all ages who have lost their sibling(s).
List compiled March, 2002