DIVERSITY & THE BOTTOM LINE - PROFESSOR ALFRED LEWIS Case Study 1 Intra-familial organ transplants Category: Bioethics A 19-year-old woman is being treated for a serious kidney disease. She is currently on a dialysis machine, but treatment is steadily decreasing in efficacy. Before her condition declines any further, the physician suggests family members undergo tests to determine tissue compatibility to transplant a kidney. Only the brother shows a degree of compatibility high enough to be considered a candidate. The physician meets the brother alone to discuss the risks and benefits of the operation. Although agreeing to be tested, the brother decides not to donate a kidney after weighing the various alternatives because of the risks, and because, as he puts it, he doesn't "feel he and his sister have ever been close enough that they would ever take that kind of a risk for each other." The physician repeats a full explanation of the risks involved, and urges him to rethink his decision because of the serious nature of his sister's illness with increasingly little time to spare. The brother remains adamant in his refusal. What should the physician tell his kidney patient? Author Information Name: Carole F. Huston E-mail: huston@acusd.edu Homepage: Error! Hyperlink reference not valid. Institution: Department of Communication Studies, University of San Diego Case Study 2 A Matter of Principle Category: Bioethics In early 1982 Ms. Corrine Worthen, a registered nurse, protested against assignment to perform kidney dialysis upon a terminally ill patient who was a double amputee. She notified her head nurse that she "had moral, medical, and philosophical objections" against doing so. Prior to her protest Ms. Worthen had performed the procedure on the patient and twice had to interrupt it because the patient suffered cardiac arrest and severe hemorrhaging. Convinced that the procedure was more harmful than beneficial to the patient, Ms. Worthen asked to be reassigned. The head nurse granted her request. Several months later, however, Ms. Worthen again was called upon to dialyze the patient. She objected, stating that she thought she had worked out an agreement not to be given this assignment. The head nurse referred Ms. Worthen to the treating physician who informed her that the patient's family wanted the patient kept alive, and that the patient would soon cease to live without dialysis. Nonetheless, Ms. Worthen said she refused to dialyze the patient anymore. The head nurse then warned her that she would be fired if she continued in her refusal. Ms. Worthen continued to refuse to dialyze the patient, and she was terminated. The Code of Professional Ethics for Nurses, that applied to Ms. Worthen at the time she was fired, contained a provision with the following words: 1.4 THE NATURE OF HEALTH PROBLEMS The nurse's respect for the worth and dignity of the individual human being applies irrespective of the nature of the health problem. It is reflected in the care given the person who is disabled as well as the normal, the patient with the long-term illness as well as the one with acute illness, or the recovering patient as well as the one who is terminally ill or dying. …. If personally opposed to the delivery of care in a particular case because of the nature of the health problem or the procedures to be used, the nurse is justified in refusing to participate. Such refusal should be made known in advance and in time for other appropriate arrangements to be made for the client's nursing care. If the nurse must knowingly enter such a case under emergency circumstances or enters unknowingly, the obligation to provide the best possible care is observed. The nurse withdraws from this kind of situation only when assured that alternative sources of nursing care are available to the client. Ms Worthen sued the hospital for terminating her and lost. Author Information Name: Robert F. Ladenson E-mail: ladenson@iit.edu Homepage: http://www.iit.edu/departments/humanities/ Institution: Department of Philosophy Illinois Institute of Technology (IIT), and Illinois Institute of Technology (IIT), and Faculty Associate, Center for the Study of Ethics in the Professions (IIT) Web site: http://ethics.iit.edu/ Copyright: 2000 Case Study 3 Siamese twins An anonymous couple from Malta traveled to England this past year for a complicated delivery of their Siamese twin daughters, Jodie and Mary, who were born on August 8, 2000, joined at the abdomen and with a fused spine. Doctors soon determined that unless the twins were surgically separated both would die. Mary, the weaker twin, whose brain was underdeveloped, would never be able to survive separated from Jodie. Jodie, who was strong and alert, had an 80-90% chance of dying if surgery was not performed. She had a good chance of surviving in the event of surgery, although, in all likelihood she would be severely handicapped and need medical attention throughout her life. In similar cases in the past, the surviving twin has sometimes died within six months of surgery. In other cases neither twin survives. The medical team at St Mary's Hospital, to which the twins were taken, had never done a successful separation of Siamese twins. When the medical team suggested surgical separation, the Parents, who were Roman Catholic, refused on religious and moral grounds to give their consent. The Hospital went to court, pleading that life-saving surgery was in Jodie's best interest, and that saving one of the twins would be morally preferable to losing both. The presiding judge acknowledged the court's duty "to put the welfare of each child paramount," but, nonetheless, concluded that Jodie's right to life outweighed Mary's, thus ruling in favor of the Hospital. The Parents appealed the decision of the court. In support of the Parents' position, Archbishop Cormac Murphy-O'Connor, head of the Catholic Church of England and Wales, submitted a statement to the court of appeals in which he said: [T]hough the duty to preserve life is a serious duty, no such duty exists when the only available means of preserving life involves a grave injustice. In this case, if what is envisaged is the killing of, or a deliberate lethal assault on, one of the twins, Mary, in order to save the other, Jodie, then there is a grave injustice involved. Despite the objections of the Parents and the Archbishop, the court of appeals ruled that the surgery should go forward. On November 7,2000 a team of twenty surgeons, nurses, and technicians at St. Mary's Hospital performed the 20 hour surgery that would result in the death of Mary and give Jodie a chance to live. Author Information Name: Robert F. Ladenson E-mail: ladenson@iit.edu Homepage: http://www.iit.edu/departments/humanities/ Institution: Department of Philosophy Illinois Institute of Technology (IIT), and Illinois Institute of Technology (IIT), and Faculty Associate, Center for the Study of Ethics in the Professions (IIT)Web site: http://ethics.iit.edu/ Copyright: 2001 Case Study 4 Designer Babies Most of us know families where all the children are of the same sex, either boys or girls. In at least some of these cases, the parents often wish for at least one more child of the other sex. They desire this, not because they do not like or appreciate the children they already have, but because their hopes and dreams of parenthood often involve having a child of the other sex. A father may dream of teaching a son sports or being the father of the bridge, a mother may look forward to sharing in her daughter’s journey into womanhood or her son’s carrying on of the family name. Until recently, these desires would remain unfulfilled unless they were lucky. Now physicians have available a technique called PGD (Pre-implantation Genetic Diagnosis), which allows physicians to screen embryos for a wide range of possible diseases as well as for gender. Suitable embryos can then be implanted, while the future parents may decide not to implant other embryos. These other embryos, depending on the reasons why they were rejected, may be destroyed or given to other infertile couples, where they will be implanted in the woman and (hopefully) brought to term. Consider the following three questions in regard to PGD: • What restrictions, if any, should the government impose on the use of PGD? • What restrictions, if any, should physicians and health care organizations impose of the use of PDG? • What moral considerations should prospective parents consider in regard to their use of PDG? Author Information Name: Lawrence M. Hinman E-mail: hinman@sandiego.edu Homepage: http://ethics.sandiego.edu/About/editor/index.asp Institution: University of San Diego Web site: http://ethics.sandiego.edu/ Copyright: Lawrence M. Hinman 2002 Case Study 5: Creating a Life to Save a Life In England, the Whitaker family faced a terrible situation: their son, Charlie, suffered from a rare disorder that prevented his body from producing red blood cells. Without daily medications and frequent transfusions, Charlie would simply die. With them, he continues to live, but under close medical care. For a while, it looks as though Charlie’s parents had figured out an answer to this dilemma. They proposed to use in vitro fertilization to have another child, but with an added twist. They would, as is usual in this procedure, have the eggs fertilized outside the womb in a laboratory dish, but they would then include an additional step. Using new screening techniques, they would screen the embryos to see which would be most able to donate blood-making cells to Charlie. That would be the one that they would choose to implant and bring to term. In contrast to the United States and many other countries, in England someone proposing such a procedure must obtain government permission –in this case, from the Human Fertilization and Embryology Authority. The Authority rejected the request by the Whitaker family, saying that it was not right to create a human life with the express intent of saving another life. This case raises two kinds of questions. First, do you agree with the Authority’s decision? Why or why not? What are the significant moral considerations in this case? What consideration is decisive for you? Second, who should make these decisions? The United States does not currently have such a board, nor do most other countries. However, something similar is currently under consideration in several countries. Leaving aside financial considerations about who should bear the cost for the moment, who should have the right to make the final decision in such cases? Who should make the decision if the procedure is being paid for by federal health insurance? Private health insurance? The individual patient or family? Notes: Source: Aaron Zitner, “COLUMN ONE. A Matter of Life, Ethics.” Los Angeles Times, October 29, 2002, p. 1.. Author Information Name: Lawrence M. Hinman E-mail: hinman@sandiego.edu Homepage: http://ethics.sandiego.edu/About/editor/index.asp Institution: University of San Diego Web site: http://ethics.sandiego.edu/ Copyright: Lawrence M. Hinman 2002