............ THE SUMMER 1996 RESOURCE CENTER . VOLUME 6, NUMBER 3 NATIONAL ABANDONEDINFANTSASSISTANCERESOURCECENTER Cultural Sensitivity and Diversity Awareness: Bridging the Gap Between Families and Providers - -.; - Service providers across the United States interact with children, families and other professionals from an ever widening variety of cultural, linguistic, and ethnic backgrounds, suggesting a growing need for cultural competency training. Many staff deve]opment models that address diversity emphasize the importance of learning culturally specific information including communication patterns, health and illness beliefs and behaviors, religious practices, symbols, and rituals (Stewart, ]991; Like, ]991; Nkongho, 1992). Generally, it has been assumed that knowing about specific cultures and groups makes it easier to respect and appreciate differences and to interact effectively with persons from other cultures. However, onehour presentations and occasional classes do not adequately address the growing need for cultural education (Pahnos, 1992; Marvel, Grow & Morphew, ]993). The challenge of understanding diversity and becoming culturally competent does not stop with learning the "do's and don'ts" of a specific cultural group. The authors of this article came together as a team by participating in a CRAFT* (Culturally Responsive and Family Focused Training) program designed for early childhood professionals and parents of children with special needs. This training made it clear that developing cultural sensitivity and diversity awareness is extremely complex and an ongoing process. The process begins with the provider understanding his or her own personal history and how it influences his/her perceptions. Literature increasingly reflects the importance of family structure, gender roles, and beliefs and The third step involves the process of finding common ground between the provider's and the client's perceptions which allows the provider to start an appropriate and effective intervention. Thus it is important that cultural awareness training programs offer insight into how service providers can go beyond the cultural chasm between their own unique identity and the clients' distinctly different identities. This article describes a process that uses the Diversity Wheel (a tool developed by the Oak]and CRAFT team) to look at these three steps. Diversity Wheel F values-not only as they relate to clients/ families, but also as factors that providers bring to the encounter, and how this may influence service delivery. Second, the provider must begin the process of understanding how similar and/or different factors may influence the perceptions of the client/family. This may include, but is not limited to, becoming more knowledgeable about specific cultural norms and practices. rom childhood, we Jearn to look at people's differences primarily through cultural or facia] identities-e.g., this is an Asian family, she is African American, they are Italian. Each cultural/ethnic identification suggests a set of generalized expectations covering religion, styJes of communication, attitudes about family relationships, and types of careers or businesses. Culture can include how people live, role expectations, child rearing practices, attitudes about time or money, definitions of achievement, concepts of beauty, art, music, food, and a host of other things. Nonetheless, culture is only one element of who a person is. Please seepage2 . Continuedframpage Self Awareness 1 One way to help identify the myriad factors which define an individual's uniqueness is by using the Diversity Wheel. This tool was developed to help gain a better understanding of the many factors which shape each unique individual. The Diversity Wheel (see Illustration on p. 3) lists seventeen factors which may influence values, behaviors, ideas, and interpretations of situations. The user of the Diversity Wheel can examine how each of the sections on the Wheel pertains to an individual. To use the Wheel effectively to gain self understanding (or understanding of the client), the provider should, for each section of the wheel, ask: What are my (or my client's) significant experiences, beliefs and emotional attachments in this area? How do they affect how I (my client) view the world and how I (the client) interact with others? In what ways might these experiences, beliefs, and emotional attachments play an unconscious role in how I (the client) perceive others? This is a process that a provider needs to do thoroughly once and then periodically as shelhe goes through significant life experiences and changes. Some factors on the wheel (e.g., education and class status) may change at different points in life as a person gets older and has different life experiences. Identified areas on the wheel at age 20, for instance, may look different at age 50. Some factors (e.g., gender and race) are dimensions we are born with and cannot easily change. Given the many spokes on the Diversity Wheel, it would be limiting to see either ourselves or others only through the eyes of culture (one aspect of the wheel). Other factors profoundly influence who we are and contribute to our experiences and perceptions of others. For example, our socio-economic status not only influences our standard of living, but also the neighborhood in which we live, our access to health care and possibilities for future planning. Although our cultural identity may affect some of these, other factors, like age, immigration status and primary language, may also impact our experiences and world view. AlA RESOURCE CENTER Self perception plays a major role in our ability to provide services. As providers of service, particularly in diverse communities, it is critical that we have a clear understanding of who we are as individuals. Experiences and life stories guide interactions, expectations and biases. By using the Diversity Wheel, we can begin to identify our uniqueness and begin to understand how we experience others. With this process of self awareness, we may identify personal beliefs underlying our expected behaviors of others (PopeDavis, Prieto, Whitaker, & Pope-Davis, 1993). We each have individual reactions based on our own histories and characteristics. Recognizing this, we can then begin to see others for their unique qualities and the diversity within their group. to allow anyone person to represent a particular cultural group, or to allow our experiences with an individual to create expectations of what the next experience will be like. For instance, a provider met a client who was a single parent released from prison a few years ago and living on welfare with an abusive boyfriend. The provider expected that this would be a high risk situation, since her experience with ex-convicts had always been discouraging. In her experience, people who had been in prison were not well educated, had low self-esteem, and did not make use of available resources. She had difficult ,.. '- times establishing regular visits with these clients, and often felt she was being conned by them. The provider's doubts about this parent proved to be false. Not only did this parent complete her AA degree, but she ended the abusive relationship, obtained a job, and maintained custody of her children. Uniqueness of the Client or Family Bridging the Gap When meeting with professionals, clients bring with them their values and ideas based on their personal histories. Even though two individuals may share a cultural identity, other factors may cause them to respond differently to the same situation. To illustrate this point, a member of our CRAFT team is a Jewish woman from a small town in the eastern United States. She had a friend who attended the same elementary school, worshipped at the same synagogue, and whose family was from the same economic group. Their physical appearance was similar, they wore similar clothes, and had the same accents. The significant difference between these girls was that one was from a family that was first generation in the United States having survived World War II in Europe. The other girl was second generation; her parents were born in this country. This fact shaped how the families of both of these girls responded to many life decisions including trust in the government, familial relationships, and faith in future endeavors. In this instance, invisible differences shaped and differentiated two girls who were otherwise very similar. In looking at what creates the uniqueness of individuals, it would be inaccurate 2 Bridging the gap between families and providers starts with knowing what the provider brings into the families' homesbeing aware of biases and agendas, and being able to contain these issues while remaining open for new perceptions. Biases form the basis for expectations, and these expectations influence judgments about families or clients. For example, the most common child rearing task of feeding a baby is laden with cultural and individual values: dependence vs. independence, cleanliness vs. exploration, control vs. choice. Someone who values independence may feel it is important to use feeding time as an opportunity for the child to master the skill of feeding; wasted food may not be a big issue. Self feeding may be different for a family who is without resources and does not have enough food from month to month, or for a family who is concerned about neatness or how much food is consumed. G It is important to pay attention to personal feelings, discomforts and uncertainties when working with families. These discomforts can be indications that the provider is in fact experiencing value differences with the family. Not attending VOLUME 6, NUMBER 0) 3 ....... ~ 0 to these feelings may compromise the quality of service and lose the familyfocused approach. Part of forming a partnership with families and working together is a dance, learning when to lead, when to follow, finding a rhythm, keeping in step. Sometimes toes get stepped on. Acknowledging mistakes and learning to talk about them with families is sometimes difficult for professionals, but it is crucial if we are to truly work together. Bridging the gap is a complex process that takes time. Do not be afraid to ask questions. Many families may appreciate the opportunity to talk about themselves. Consider it a sign of progress when a family can engage in conversation about cultural and individual differences. It is critical, however, to not assume that there is a clear understanding of each other because the client has had a few discussions with you. Having a family focused approach is crucial in supporting families and providing services. A tool like the Diversity Wheel can help establish what is important to a family and why. If health care, food or unpaid bills are a family priority, it may be difficult for parents to attend to their child's speech therapy needs. Even when providing interventions specific to the child, parents may be more concerned about their child's ability to self feed or entertain him/herself than in the ability to do puzzles or have good transitional movements. Knowing how to listen to what parents feel they need involves knowing what issues you as a provider bring into their home. ground between the values and priorities of the family and of the provider. There is always much to learn, and in that learning mistakes will be made. The process outlined in this article is just a starting place. The integration of these concepts into provider/client interactions forms a basis for culturally sensitive, family focused service delivery. - Karen Tanner, M.A., Alfreda Turner Ph.D., Susan Greenwald, L. c.S. W., Chela Rios Munoz, L. c.S. W, Sonia Ricks REFERENCES Like, R. C, 1991. Culturally Sensitive Health Care Recommendations for Family Practice Training. Family Medicine. 23(3),180-181. Marvel, M.K., Grow, M., & Morphew, P., 1993. Integrating Family and Culture into Medicine: A Family Systems Block Rotation. Family Medicine. 25(7), 441-442. Nkongho, N.O., 1992. Teaching Health Professionals Transcultural 6(3),29-33. Pahnos, M.L, 1992. The Continuing Challenge of Multicultural Health Education. Journal of School Health. 62(1),24-26. Pope-Davis, D.B., Prieto, LR., Whitaker, CM., & PopeDavis, S.A., 1993. Exploring Multicultural Competencies for Occupational Therapists: Implications for Education and Training. The American Journal of Occupational * CRAFT is a training program administered by the Department of Special Education, Calij(,rnia Concepts. Holistic Nursing Practice. Therapy. 47(9), 838-844. Stewart, B., 1991. A Staff Development Workshop on Cultural Diversity. Journal of Nursing Staff Development. 2(4),190-194. State University, Northridge OiJlersity Wheel Conclusion "" , WOrking successfully with clients/ families requires a family focused approach which includes being culturally sensitive and having a heightened awareness of diversity. Having culture specific information is only a small part of developing an alliance with clients and families. Understanding the concept of diversity is an ongoing, evolving process. This process includes understanding self, understanding the uniqueness of the client/families, and finding a meeting THE SOURCE Chela Rios Munoz, Oakland CRAFT Team 3 VOLUME 6, NUMBER 3 The LIVE& LEARNModel ForCulturally CompetentFamilyServices Working with families from diverse cultural groups presents new challenges to providers in community settings. Although there are excellent materials and resources available that deal with the theoretical and technical aspects of family services, there is very limited access to practical information and assistance in conducting successful interventions with families from diverse cultural backgrounds. Providers are often unaware of basic principles of cross-cultural service delivery, including the definition and significance of culture as a factor in service interactions, the dominant cultural values common to specific populations, and the ways in which the dominant Euro-American provider culture influences the delivery of services and the attitudes toward clients. For the purposes of this discussion, I will define culture as a stable pattern of beliefs, attitudes and behaviors, transmittedfrom generation to generation, for the purpose of successfully adapting to other group members and to the environment. In using this definition of culture, we avoid establishing hierarchies among diverse cultures, and assume that all groups have developed congruent approaches to issues of social and environmental adaptation. However, we can also infer that these adaptations are group- and site-specific, and that the relocation of persons adhering to diverse cultures necessitates a long period of re-adaptation to changing social and physical environments. In this context, it is important to note that, due to the history of the United States, and the relatively recent (the last 300 years) immigrant nature of the vast majority of its population, there is-with the exception of North American Indians residing in ancestral lands-no perfectly adapted cultural group at this time. This assertion, of course, includes persons subscribing to the dominant Euro-American culture. The AlA RESOURCE CENTER ~) . United States, thus, is overwhelmingly a nation of immigrants, and its entire population is currently seeking ways to adapt socially and environmentally, regardless of the fact that one particular cultural group (Euro-Americans) is politically and economically dominant. Universality. The provider considers that all humans share basic values and therefore treats all people alike, regardless of their differences. Since behaviors are culture-bound, this approach results in a standard intervention based on the cultural Cross-Cultural Attitudes and Client Reactions . Sensitivity. The provider acknowledges differences and tries to address them by adopting external or formal cultural expressions and presenting the standard intervention within these parameters. Cultural sensitivity usually is limited to the use of the client's language and literacy level, and limited deference to major taboos. Whenever a provider and a client from different cultures meet, the former manifests a cultural attitude and the latter exhibits some reaction. I will briefly examine what these cultural attitudes are, and how they may determine to a great extent the reaction that the client exhibits. I will use a model of cross-cultural attitudes and client reactions that range, on the one hand, from superiority to cultural competence, and on the other from resistance to adaptation. Because in our society the provider usually controls important aspects of the service relationship, including site, environment, time of initiation, duration, and type of intervention, the cross-cultural attitude of the provider sets the tone for the relationship. Possible cross-cultural attitudes include: . Superiority. The provider considers the client's culture inferior or worthless, and actively tries to impose his/her values and world-view. The intervention attempts to effectively dismiss the client's values and replace them as a pre-condition for a service relationship. . Incapacity. The provider acknowledges differences, but has no skills or tools to address them effectively, and therefore proceeds with a standard intervention based on dominant cultural values. 4 values of the provider. . Competence. The provider identifies, respects, incorporates and maintains the values of the client in the design, delivery and evaluation of the service. The intervention is client-centered, as the provider listens actively, elicits the client's worldview, acknowledges the differences and similarities, recommends approaches congruent with the client's values, and negotiates their implementation or adaptation. t) Faced with one of these cultural attitudes, clients from a non-dominant culture might exhibit one of the following reactions: . Resistance. Clients refuse to participate in the intervention, are unresponsive, and may exhibit either hostility or passivity. In some cases, clients will purposely minimize their understanding of the provider's language. . Accommodation. Clients reject their native culture and attempt to adopt the values, attitudes and behaviors that they perceive to be dominant. Clients will often aim to please the provider and agree to VOLUME 6, NUMBER 3 ~) recommendations that are impractical or inappropriate. -..... ~ superficially "sensitive" as to border on blatant stereotyping, clients often respond with passive resistance. More commonly, clients accept the "sensitive" more formal aspects of the intervention, and reject the core, which is based on dominant cultural values. Cultural competence encourages and accepts adaptation in clients, as it openly recognizes and respects the differences and similarities in world-view, while incorporating client values in the serVIcecore. TheLIVE& LEARNModel I n the LIVE and LEARN Model, each letter of the acronym stands for an attitude, strategy or activity that providers can adopt to foster positive interactions with their clients. This model has been culled from the accumulated wisdom of diverse sociologists, psychologists, social workers, interpreters, medical providers (most notably P.S. Adler, H.A. Bulhan, R. Cashman, A. Castaneda, L. Comas-Diaz, G. Marin, J. Pares-Avila, M. Ramirez and T. Tafoya), and the practical experiences of the staff of the Latino Health Institute of Massachusetts, which serves more than 10,000 clients through approximately 40 different programs, most of which are offered through its Family Services Division. c L stands for Like. If the provider does not have a genuine liking for diverse families and their cultural origins, no THE SOURCE attempt to transact personally meaningful business without the benefit of interpreters. Another strategy is to establish peer relationships with persons from other cultures, and thus gain an insider's view of that culture through the eyes and the minds of our peers. In this context, we may consider establishing such peer relationships with colleagues and even former clients from the cultures of interest. reflect on our personal experiences, it will become evident that we are seldom, if ever, competent at those endeavors we dislike. For example, children forced to take music lessons against their will generally do not become virtuosi; neither will providers required to be culturally competent if they lack the fundamental positive predisposition for this work. It is far more honest and productive to assess whether diverse families would be . Adaptation. Clients maintain their values, attitudes and behaviors, adapting them to new circumstances, while simultaneously adopting skills and strategies that allow them to function effectively in the dominant culture. Cultural superiority allows for either resistance or accommodation, but largely elicits the latter. Incapacity and universality often are met with resistance or accommodation as well, although these attitudes do not actively lead to the obliteration of the client's culture. Cultural sensitivity is met by clients with the entire spectrum of reaction. When the intervention is so ~ amount of skill development will make an iota of difference. If we better served by other providers. I is for Inquire. As a certain tabloid constantly reminds us at supermarket check-out counters, "inquiring minds want to know." Providers that habitually work with certain populations have a responsibility to familiarize themselves with the demographics, history, beliefs, traditions, social norms, family structures, discipline strategies, and preferred forms of address of their clients. "&" L stands for Listen. When we listen attentively to our clients, we make a special effort to discern not only the content of their communication, but the style which they employ. In the dominant culture, this style tends to be impersonal and to-the-point, focusing more on verbal than on non-verbal aspects. In many other cultures, Continued on next page. V is for Visit. When we perceive ourselves as guests in someone else's home, we naturally adopt an attitude conducive to observation, respect, and emulation of our hosts' social norms. Conversely, if we maintain a provider attitude, even when conducting home visits, we tend to bring to our relationships a clinical, business-like detachment that inhibits the process of observation and emulation of client norms. Adopting the attitude of a visitor when interacting with persons from other cultures, especially when meeting with them in our own offices, is a strategy that allows us easier access into the client's world. E is for Experience. This letter suggests two useful strategies. The first is to consciously put ourselves in situations in which our culture is not dominant, such as attending social events at which our language and mores have a marked minority status. For example, when traveling in a country in which another language is dominant (and English is not universally understood or spoken), it is most instructive to 5 VOLUME 6, NUMBER 3 . ContinuedfrOln page 5 however, styles tend to personalize communications by referring to experiences, interests and feelings, and there is a greater focus on non-verbal expression. Once we have discerned the preferred communication style, it wi]] not only be easier to understand what is being said by clients, but we will also know how to respond effectively by matching their style. E is for Evaluate. Although not often used in this sense, the verb to evaluate litera]]y means "to determine the value(s)." Because a]] clients integrate culture and personality in markedly individual ways, it is important to determine the specific beliefs, attitudes and values to which they subscribe, thus avoiding stereotypes. It is also important to elicit the level of acculturation of clients, which is often-but not always-associated with length of residence in the United States. Thus, within the same family, individuals may hold beliefs and values that are different, according to generation or date of immigration. Often, it is useful to ask open-ended questions such as "How would your grandmother have addressed this issue?" Clients will then be at liberty to state the values of the culture of origin, and will volunteer valuable information about their own proximity or distance to/from those values. A is for Acknowledge similarities and differences. Once we have ascertained the values of interest, it becomes necessary to clarify for the clients our perception of the similarities and differences among values of the family members, and between those and the dominant culture. While identifying cultural similarities is always useful in establishing rapport, and is highly advisable, it is equally necessary to inform clients in a non-judgmental manner of any differences, particularly when those differences might eventua]]y arise in the service relationship. In this regard, it is absolutely imperative to inform clients if the legal require- ments of our profession (i.e., mandated reporter) can lead us to use some objective standards of behavior that conflict with the stated client value (i.e., harsh disciplining methods). R is for Recommend. In addressing any issue, there always are several possible approaches, even though some may be preferable to others. It is best to describe for the client, while matching their communication style, the entire range of options and the consequences associated with them. For this purpose, we can i]]ustrate for the client several approaches, from the least desirable to the most desirable, and inquire from them which approach seems to make most sense, given their present situation and resources. This strategy wi]] prevent us from recommending impractical solutions, to which clients may agree out of deference, but which they have no intention, or insufficient resources, to implement. N is for Negotiate. Because, in most cases, our interventions seek some form of behavior modification, it is important to reach an agreementpreferably in the form of a contractbetween the client and the provider as to which option(s) will be put into practice, what measures wi]] be jointly used to monitor progress, and the timeline for implementation. Should the client agree to an option that is not considered tota]]y appropriate by the provider, negotiation might also include a timeline for adoption of more desirable options in the future. Important Considerations When Using the LIVE & LEARNModel When initiating work with persons from diverse cultural orientations, standard assessment procedures should be used in gathering data. Making assumptions solely on the basis of ethnicity is both inaccurate and inappropriate. However, there are several critical areas that must be explored in order to insure the gathering of a thorough psychosocial and developmental history that may result in accurate formulation and service planning. In work with J. Pan-:s-Avila and our co]]eagues at the Massachusetts General Hospital, we have identified and discussed certain critical considerations for engaging clients in cross-cultural service relationships. Some of the most applicable are noted below. .nant Time. Some persons with non-domicultural orientations have flexible understandings of punctuality and aversion to a hurried pace, especia]]y within the context of their expectation of close social relations. Thus, emphasis on saving time versus being cordial is viewed as rudeness rather than efficiency. . Personal Space. Some persons with non-dominant cultural orientations require less personal space than those with EuroAmerican orientations. Additionally, some persons with other cultural orientations tend to touch more frequently, and handshaking, hugging, knee- and backslapping, rib-nudging and cheek-kissing are frequently observed. . Country of Origin. A first consideration is the client's country of origin. In the case of foreign-born persons with nondominant cultural orientations, it is important to explore the client's migration history. In the case of U.S.-born persons with non-dominant cultural orientations, a similar migration history should be obtained regarding the client's family, including a determination of how many generations ago the move occurred. Furthermore, the provider should explore the client's experiences in the U.S. relative to discrimination and/or racism. RESOURCE CENTER 6 f)\i . Language Use and Dominance. Assessment of language use and dominance is another critical area. When the client with a non-dominant cultural orientation is seen by a monolingual dominantculture counselor and the client is fluent in English, this is frequently overlooked. When clients are not fluent in English, providers often assume that they speak only the language of their culture of origin. Language congruence is fundamental to the effective delivery of services. Among the approaches that can be used to overcome language barriers, the most Please see page 12 AlA t VOLUME 6, NUMBER . 3 t EXCELLENCE 0 () ACTION The Effectiveness of Indigenous Recovering Outreach Counselors in Reaching Substance Abusing Women of Color Within the Drug Culture There is growing consensus that a more comprehensive and systematic approach is needed to respond to the complex needs of substance abusing women and their families. Drug addicted women come from every social and economic class, race, culture and religion. Virtually chained to the close and perilous drug culture, victims typically look to other drug users for the only social support they receive. They rely on other addicts to guide them to safe sellers, handouts, money and information required to survive in the drug culture. With rare exceptions, professional outreach workers find it extremely difficult to gain acceptance from clients in the drug culture. Ethnic and cultural influences on the client's life style, and clients' interpretation of the environment, further complicate the client/service provider relationship. Drug addicted clients typically come from worlds significantly different from the ones that shaped the belief systems of most professional service providers. As a result, professionals often have difficulty gaining credibility because they lack an understanding of the drug culture and the ethnic and cultural backgrounds frequently represented among clients snared in this web. The PEP Program Q IN The PEP (Partnership to Empower Parents) Program is an AlA project which uses a consortium of consumers, community members, family care agencies, educators, family preservationists and substance abuse treatment specialists to provide intensive outreach and concrete services to help families in South Dade County, FL, break the cycle of addiction THE SOURCE and learn to parent their infants and young children. To overcome the obstacles described above, PEP selected and trained some of the recovering clients, who had. been drug-free for at least one year, to serve as outreach workers for drug addicted women in targeted communities. With these recovering clients, PEP created what is called a DART Team (Drug Addiction Recovery Team). Team members are trained in assessment and in carrying out their roles and responsibilities as paid peer counselors and outreach workers to drug addicted women in their own neighborhoods. DARTTeam Members PEP'S DART Team members come from the same neighborhoods and share ethnic and cultural backgrounds with program participants. Having grown up and/or shared drugs with many PEP clients, DART members are uniquely positioned to develop a basic support system for clients' substance abuse recovery efforts and family strengthening within the context of their culture. They know the environment, and they know what is going on in the lives of their clients on a daily basis. In those respects, DART team members are more capable than "cultural strangers" to communicate with the participants through speech and action. To start where the clients are means understanding the clients' culture first. The shared cultural background of the DART team and the client population shifts the diagnosis and intervention activities from a pathological orientation to an ecological orientation. The barriers associated with cross-cultural interactions (e.g., 7 PEP: Healthy Baby miscommunication, stereotyping and narrow parameters of one's own cultural background) are significantly reduced. DART members can easily understand situations in the context of history and culture of the clients because it is their own history and culture as well. DART members can be considered "cultural interpreters" for substance abusing women of eolor. As recovering substance abusers themselves, DART workers are better able to engage clients, explain the service options in the client's language, recognize clinical symptoms in a cultural context, confront a client who claims to be off drugs, and serve as guides to help participants traverse the sometimes culturally insensitive family care treatment and Continued on next page. VOLUME 6, NUMBER 3 . Continued from page 7 service systems. For example, the importance of the simple request by an AfricanAmerican client to "have her hair done" before entering a residential treatment center is understood and facilitated by DART members. The request is culturally significant and, once given the attention needed, is removed as a barrier to the recovery process. DART team members also serve as role models for clients. They are seen as "scouts" who travel successfully outside of the neighborhood, bringing their clients information, ideas and resources necessary to assist clients in the recovery process. They stimulate participant interest in substance abuse rehabilitation and drug-free life styles. Through models set by team members, client participants begin to feel that they, too, can achieve sobriety and learn life management skills similar to those exhibited by the recovering "sisters" on the DART team. The following case example illustrates the valuable contributions of indigenous counselors. t PEP Community Board Training drug-using companion convinced her that maybe there was hope for her. With the help of the DART team, Staci entered a residential treatment center and reconnected with drug-free extended family members. She is working toward reunification with her children, and plans to become a DART member in the future. Staci, a PEPClient DARTMembers as Team Players Staci came to the PEP program in 1995, addicted to both alcohol and crack. From 1988-1995, Staci exchanged sex for money or drugs to support her habits. Staci reported being in jail for one year on an assault and battery charge that she says was directly related to her addictions. Staci has six children, three of whom were prenatally exposed to drugs and alcohol. She is currently receiving AFDC, food stamps, Medicaid and Section 8 Housing. She is unemployed and has been for 15 years due to her alcoholism and drug addictions. Staci says that she needed the DART team members to help her realize that she could actually get clean and sober and stay that way. This message was conveyed in an experiential manner; she knew one of the DART members because she had used drugs with her in the past. Staci says that this same woman came to her house and became an example to her, and that the transformation she saw in her former D ART members are also a critical source of information for the community and professionals who work with PEP clients. As recovering addicts, DART members serve as communicators to community organizations regarding substance abuse among women, and they provide the community with information about services available from PEP to help mothers overcome substance abuse and its effects on their children and families. The DART team distributes information and brochures, and reaches out to mothers and their children in need of help to overcome drug abuse. Additionally, DART members provide PEP's professional staff, and other community providers, with critical information on the ethnic and cultural beliefs, values and practices of their clients, and help professionals to understand behaviors which are characteristic of the drug culture. DART team members are included in regularly scheduled staff meetings with PEP's professional social workers to review and discuss clients and their treatment plans. DART members provide information about clients from a different cultural perspective, and offer their interpretation and assessment of clients' behavior. The entire staff works together, respecting and integrating the perspectives and assessments of both professional and peer workers, to develop and revise client intervention plans. This is not an easy process. Along with the undeniable benefits of using peer workers, there are always challenges to managing a staff which is culturally, ethnically, economically and educationally diverse. DART team members often need t)11 support in their own recovery process, and assistance drawing the line between client and peer/friend. Despite these challenges, PEP attributes much of its success in reaching substance using women of color to the culturally competent work of the DART team-peer workers who share the clients' ethnic, racial and socioeconomic background and who have experienced the drug culture first-hand. - Shirley Pinder Cook & Scott Briar, DSW tl AlA RESOURCE CENTER 8 VOLUME 6, NUMBER 3 Culturally Competent Program Evaluation rO It I n recent years, family support programs have increasingly recognized the importance of cultural competency in providing services tofamilies with children affected by substance abuse and HIV. However, cultural competence principles are just beginning to be considered in the evaluation (~fprograms and systems which serve these families. Andres Pumariega (1996) points out that "the cultural 'blindness' approach which has characterized the field of evaluation has kept [evaluators} from identifying important differences in needs and orientation to service utilization across ethnic groups" (p. 1). In order to make programs more effective in reaching and improving outcomes offamilies with different cultural, racial and socioeconomic backgrounds, process and outcome evaluations must consider and reflect cross-cultural differences. Thefollowing information, excerptedfrom Pumariega (1996)*, offers practical guidelinesfor designing culturally competent evaluations. Defining Program Characteristics An evaluation for either a program or a system of care begins with defining consumer/population, process, and outcome characteristics. This gives the evaluation the data it needs to answer the key questions of which interventions work, for whom, and how. Consumer/population characteristics include information about race and ethnic- , ity as well as other demographic characteristics that often interact with culture, e.g., gender, age, socioeconomic status, and urbanicity. Relating these characteristics to the geographic region being served sheds light on factors that influence service delivery, e.g., the proximity of the population to natural stressors and physical access to services. If there are significant culturally diverse populations, it is useful to know how the target populations compare to the prevailing community population. Program characteristics are also key in designing an evaluation. The philosophy of the program or system determines the service model and the associated process characteristics to be examined. Process characteristics can include type and frequency of interventions, length of stay, attainment of individual treatment goals in care plans, staff involved in interventions, and behaviors that change as a result of applying interventions. Culturally relevant process questions include: . What outcomes are expected from the program and how do they compare to the functional expectations of individuals of the cultures/ethnicities/socioeconomic status being served? (For example, if emotional separation and autonomy is an important program outcome, is this appropriate for a cultural group for which multigenerational closeness is the norm?) . How does program philosophy relate to staffing composition, including the distribution of professional disciplines and their ethnic composition? . How does the program relate to the community organizations/leadership that represent minority groups served? (Windle, Jacobs & Sherman, 1986) . Is effective cultural competence training available for statl and how does it impact program philosophy? . How does program philosophy compare and interact with the cultural values of the target population, e.g., emphasis on spirituality, individual versus family orientation, and assignment of clients to different therapeutic modalities? This may include traditional healing approaches (religious ceremonies, rituals, specific cultural interventions such as sweat lodges, or community intervention), and which clients benefit from such interventions as opposed to Western approaches. . What are the points of entry into the program and the barriers to accessing care? How do those relate to the clients' cultural and socioeconomic needs? Outcome characteristics in evaluation usually involve symptom change, functional change, safety, cost, community tenure and level ofrestrictiveness, and consumer/family burden and satisfaction. Culturally related outcome questions include: . How do outcomes differ across cultural, racial or ethnic groups? Participation by the Community and Providers/Agencies Staff, child, and family participation must be fostered in order to evaluate a program or system of care. Minority community members often are not enthusiastic about evaluation because of prior negative experiences. There is also mistrust about whether research will be used as a tool of government agencies, immigration, social services/child welfare agencies for custody termination or termination of benefits. Research methodology sometimes conflicts with cultural values, tradition, and accepted means of communication of sensitive information. Staff may fear that evaluation might frighten families away from services. A number of approaches can be used to engage the cooperation of minority children and families. Seeking out advice, input, and endorsement from leaders and elders in the minority community is quite effective, both in building trust and in Continued on next page. THE SOURCE 9 VOLUME 6, NUMBER 3 . Continued from page 9 informing the selection of instruments, methods, and procedures. Recruiting evaluation assistants from the community builds in community involvement and expertise. Cultural competence training for staff as outcome evaluation is introduced can heighten awareness for the need to examine cultural diversity issues. Informed consent procedures must also be easily understood and should involve appropriate family members indicated. share many life experiences in common, and may be hard to generalize to other groups. Sampling from culturally diverse groups must assure that the racial/ethnic, socioeconomic, age, and gender composition of any sample reflects the service population. Oversampling or stratification of samples may be necessary if the samples of culturally diverse individuals are too few in number to be representative. Measurement Strategies Evaluation Design and Sampling Selection of instruments and measurement strategies introduces many cultural considerations. Few instruments are The nature of the actual design chosen has significant implications for culturally diverse groups. appropriate for use across different cultural groups, and some have subtle but distinct cross-cultural biases (Pumariega, Holzer & Swanson, 1991). Instruments being used or compared across cultural groups should have these characteristics: . Pre-post or multiple baseline designs are commonly used. However, culturally diverse populations served frequently change over time for reasons other than interventions provided, e.g., exposure to mainstream culture, generational change, and signal events in the life of the community (Szapocznik, Scopetta & King, 1978). It is important to monitor such intervening changes when using these designs. . Single case methodology, which tracks ratings of selected target behaviors before and after intervention to determine effects, is useful in evaluations involving groups which have only small numbers of people available. . Experimental designs, where clients are randomly assigned to different interventions, are often consider the "gold standard" scientifically. However, these studies are hard to implement in the real world of service provision. Ethical questions may come up when one group is receiving an intervention that is obviously less worthwhile, and this reinforces suspicions in ethnic minority clients. . Longitudinal designs following a cohort of clients over time to measure outcome can be useful. Their drawback is that some behavioral changes may be specific to certain "cohort" groups if they AlA RESOURCE CENTER . Conceptual equivalence: the same theoretical construct is being measured across different cultures (e.g., parental role function is defined the same in all the groups being studied). . Semantic equivalence: both translation across language as well as idioms and expressions of the groups being studied are accounted for (e.g., the Anglo term feeling "blue" does not have meaning for Hispanics, and has a historical context for African-Americans). . Content equivalence: the content of each item in the instrument is relevant to the phenomenon being studied in that culture. For example, the concept of being "put-upon" may not have an equivalent expression in another culture. Lack of familiarity with clinical jargon and different understanding of symptoms and culturally-bound syndromes (e.g., schizophrenia versus being possessed) must be taken into account. It may be necessary to include descriptors of illness or behaviors in questions. . Criterion equivalence: the variable measured is interpreted based on the norms for that culture (e.g., the level of depression and the cut-off for significant 10 depression is based on the normative response for that culture). Measures of symptoms or behaviors need to account for culturally determined thresholds of dysfunction within the community. It may be necessary to develop different cut-off scores for different ethnic groups using culturally-specific normative samples. ~I . Methodological equivalence: methods of assessment and data collection yield comparable responses across culture. For example, it is a problem if some groups are more open in self-administered questionnaires, while others prefer interaction with,an interviewer. A problem which periodically arises is whether to use instruments specific to one culture or cross-cultural instruments. Mono-cultural instruments may be necessary when specific aspects of a culture are being evaluated as a variable in the impact of a program, e.g., ethnic pride/ethnic identification in a particular culture. Instruments that can measure constructs across cultures are necessary when making comparisons across cultural/ethnic groups. It may be necessary to develop parallel versions of instruments that are specific for different groups. Qualitative approaches, e.g., openended questions, interviews, or observations, may be useful in eliciting important perceptions or attitudes without the limits imposed by rating instruments. These approaches often are very compatible with cultural values and means of transmission of information in communities. The measurement of cultural identifi- tJ cation and cultural value orientation presents particular challenges. The construct most commonly endorsed in the crosscultural mental health field is that of biculturality or multiculturality, i.e., culturally diverse individuals by necessity are bi-cultural or multi-cultural in order to adapt successfully. The domain of cultural/ethnic identification must allow for this construct, and must take into account a number of domains, e.g., self-identification, relational patterns (friends, intimate relations, etc.), culturally related traditions and preferences (clothing, foods, traditions, language, media, etc.), and cultural value orientation. For many children and VOLUME 6, NUMBER 3 {I (0 families, the measure of concrete behaviors or activity orientations are a valuable means of assessing cultural identification. These include simple activities such as the amount of time spent with family, religious activity, and time spent exposed to the media (Pumariega, et aI., 1992). Use of Databases and particular cultural populations. The imperatives for cost effectiveness and clinical effectiveness which have been promoted by the transition to managed systems of care may actually promote the development of higher levels of cultural competence in community-based systems of care. Culturally competent care may well be the most cost-effective and clinicallyeffective care. Behavioral Symptomatology. of the Pumariega, A., Swanson, J., Holzer, c., Linskey, A. & Quintero-Salinas, R. (1992). Cultural Context and Substance Abuse iu Hispanic Adolescents. of Child and Family Studies, 1(1): 75-92. Szapocznik, Journal 1., Scopetta, M., & King, O. (1978). Theory and practice in matching treatment to the specific characteristics and problems of Cuban immigrants. Journal of Community Psychology, 6, 112-122. Windle, c., Jacobs, J.H. & Shennan, P.S. (1986). Mental Health Program Performance Measurement, Rockville, MD: ADAMHA, Clinical Records Proceedings Annual Meeting of the American Academy of Child & Adolescent Psychiatry. Volume VB, NR-1l9. NIMH, Division of Biometry and Applied Sciences. REFERENCES Kilgus, M., Pumariega, A. & Cuffe, S. (1995). Race and Clinical or agency databases may be important information sources for outcome evaluation. However, there are often problems with the rating of ethnic/racial identification in databases. Often clini- (t cians do not ask race/ethnicity directly, but infer it from appearance or surnames! Problems often occur with the coding categories used for cultural and ethnic groups, with insufficient or unclear categories (e.g., a single Hispanic category or Asian/Pacific Islander combined). There are also problems with the coding of much culturally-related information in databases, such as socioeconomic status, diagnosis, and service utilization information. It may be important to develop rational coding categories for clinical database information, with instruction for clinical staff or other staff entering information. Racial/ethnic bias in clinical diagnosis is well documented, especially by clinicians not familiar with the culture (Kilgus, Pumariega, & Cuff, 1995), so that these data might have limited utility. It may be more valuable to have clinicians rating the presence of symptoms reported by the base of objectivity and not contaminated by the biases of classification systems. Diagnosis in Adolescent Psychiatric Inpatients. Journal of the Academy of Child and Adolescent Psychiatry. 34(1): 67-72. Pumariega, AJ. (1996). Culturally Competent Evaluation of Outcomes in Systems of Care for Children!s Mental Health. TABrief, 2(2): 1,3-5* Pumariega, A., Holzer, c., & Swansou, J. (1991). Cross-Ethnic Comparisou *TABrielis a newsletter published by the Technical Assistance Centerfor the Evaluation of Children's Mental Health Systems, located at Judge Baker Children's Center, 295 Longwood Ave., Boston, MA 02115. Ph (617) 232-8390, x2139; Fax (617) 232-4125. of Youth Self Report of Conclusion f The practice of culturally competent outcome evaluation needs to be greatly developed given the culturally diverse nation in which we live and the different needs of culturally diverse children and their families. Such evaluation is crucial in supporting the need for an effectiveness of culturally competent programs and for special programs with a focus on THE SOURCE 11 VOLUME 6, NUMBER 3 . Continued from page 6 appropriate, in descending order of effectiveness are: (1) providing the service with bilinguallbicultural staff; (2) using trained interpreters (simultaneous or consecutive) and providing effective training to interpreters and service providers in the preferable modes of interpretation, team building, and communication strategies; and (3) teaching monocultural providers the language(s) of the clients. Providers should determine whether clients are English-dominant, language of origin-dominant, or bilingual. Even for English-dominant clients, it is important to assess what language is spoken at home and what type of schooling the clients had (bilingual or English-only programs). Providers should be aware that original language-dominant or bilingual clients speaking English may invest more energy in correct expression, thus giving precedence to the cognitive aspect of communication over the affective component of language. Thus, these clients may appear more constricted or flat. Clients may also use bilingualism as a defensive structure, utilizing one language to communicate and reserving another as the emotional language. Clients may discuss certain emotionally charged topics in their non-dominant language as a way of gaining some emotional distance. At other times, clients may use their dominant language in order to access meaningful memories or experiences. Even if the provider is monolingual, it is useful to allow clients to think out loud in their dominant/emotional language to facilitate their access to and organization of meaningful material. . Natural Support Systems. Another area to consider is the client's natural support systems. The availability of such support will be crucial in helping clients to cope with their family issues. An assessment of the social network should include a list of friends and acquaintances indicating their ethnic background. The current state of relationships with the extended family is particularly important. In this regard, both family meetings and genograms are useful assessment and intervention techniques that should be considered. AlA RESOURCE CENTER When it is not possible to interview the family due to geographic and/or emotional distance, use of a genogram is highly recommended in gaining an understanding of family dynamics and relations. The provider should also establish whether the client has attributed family status to nonblood-related individuals, as this is frequently done by persons with non-dominant cultural orientations. If such is the case, the provider should treat these family members accordingly, and include them in the assessment and intervention process. Gathering a history of intimate relationships is also crucial. If the client (parent) is currently in a relationship, it is important to explore whether the partner is from the same or a different cultural group. If the partner is not from the same cultural group, the provider should assess how the couple deals with their cultural differences, and how these differences affect the couple's and the family's dynamics. . Provider Selection and Transference Issues. The social network data will provide useful information that may help in anticipating potential transference issues that may emerge in a service relationship. How the client deals with racism, ethnocentrism, and other issues may be seen in the client's interpersonal relations and choice of friends and partners. This will also become apparent in the client's selection of a provider, when a choice is available. Given the scarcity of providers from matching cultural origins, for example, clients will most likely be forced to choose according to age, gender, or language fluency. Some will give priority to language, while others will favor gender or age. Still others may choose providers with considerable expertise in the area of their basic presenting issue or problem, regardless of ethnic background. This forced choice should be explored in the assessment process, as it may illustrate meaningful psychosocial information. It will also have significant intervention implications. When the selection results in a culturally discordant service relationship, the dynamics that occur in the client's social network will be played out in the intervention. Then, more than ever, providers must 12 be aware of and sensitive to the power of differentials that exist between them and their clients. . Other Considerations. It is always important to consider specific values, attitudes, norms, and expectations in designing service plans. For example, providers should be aware that reliance on Euro-American relationship models where women are assertive and independent might be uncomfortable and culturally inappropriate for other women. Most importantly, interventions should assist all women in translating knowledge and awareness of coping skills into successful verbal and behavioral repertoires. For some women the emphasis may lie more with nonverbal than verbal skills. Possible negative impacts on the family, especially on children, may increase the motivation of more traditionally-oriented men and women to accept service. Male-dominant traditions may provide useful intervention strategies with men because cultural values emphasizes their role in assuming responsibility for and protection of the family. Finally, if at all possible, providers should offer clients a choice of either or both English and their preferred language. If providers have limited command of other languages, they should avoid literal translations. Monocul- f) ~ turallbilingual providers also should avoid regionalisms in language and consider the educational level and socioeconomic status of clients in their choice of words, images, and metaphors. The LIVE & LEARN Model presents providers with a practical, phased approach to cross-cultural service delivery that respects client centrality, avoids stereotyping, and leads to the adoption of mutually acceptable objectives-and measures-for behavior change. It is simple and straightforward, and accommodates varying degrees of provider cross-cultural experience, always leaving room for improvement. - Nicolas Carhalleira, ND, MPH, DSc Latino Health Institute of Massachusetts ~) VOLUME 6, NUMBER 3 AlA Resource Center The Source 1950 Addison St., Ste. 104 Berkeley, CA 94704-1182 Tel: (510) 643-8390 Fa:c: (510) 643-7019 Production Betsy Joyce Principal Investigator Richard Barth, Ph.D. Director Jeanne Pietrzak, M.S.W. Senior Research Associate Amy Price, M.P.A., B.S.W. Research B.A. Staff Researcher Research Contributing Writers Scott Briar, Nicolas Carballeira, Shirley Pinder Cook, Susan Greenwald, Chela Rios Munoz, Ruth Pontifiet, Sonia Ricks, Karen Tanner, Alfreda Turner Associate Gwen Edgar-Miles, Sheryl Goldberg, " Editor AmyPrice M.S.W., Ph.D. Assistants Ruth Pontitlet, B.A. Carmen Hernandez, B.A. Megan Vogel-Edwards, B.A. Leslie Zeitler, B.A. Support Staff Renee Robinson, B.A. The Source is published by the AlA National Resource Center through grants from the U.S. DHHS/ACF Children's Bureau (#90-CB-O036). The contents of this publication do not necessarily reflect the views or policies of the Center or its funders. nor does mention of trade names, commercial products, or organizations imply endorsement. Readers are encouraged to copy and share articles and information from The Source, but please credit the AlA Resource Center. The Source is printed on recycled paper. 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