SPINA BIFIDA ASSOCIATION OF NORTH TEXAS 705 W. Ave B. Suite 409 Garland, Texas 75040 Non-Profit Org US Postage Paid Permit 242 Rowlett, TX SAVE THE DATE!! Sunday, December 4, 2011 1:30 pm – 4:00 pm Frontiers of Flight Museum Dallas, Texas Mark your calendars for a fun time for all! More details coming soon! Interested in Sponsoring this event? Do you have an idea for entertainment ? Know a great contact to help us provide food , gifts or treats? Does your company or school want to volunteer? Contact Robin Lee at 214-728-9294 or rlee@spinabifidant.org. Thank You! SPINA BIFIDA ASSOCIATION OF NORTH TEXAS 705 West Avenue B., Suite 409, Garland, TX 75040 (972) 238-8755 Fax: (214) 703-1981 E-Mail: information@spinabifidant.org Website: spinabifidant.org SPINA BIFIDA ASSOCIATION OF AMERICA 4590 MacArthur Blvd, NW, #250, Washington, DC 20007 (800) 621-3141 • (202) 944-3285 E-Mail: sbaa@sbaa.org Website: www.spinabifidaassociation.org Issue No. 44 • October 2011 • Fall Edition The Official Newsletter of the Spina Bifida Association of North Texas spinabifidant.org Calendar Of Events October is Spina Bifida Awareness Month! Spread the Word! October 6, 2011 SBANT Board of Directors Meeting October 13, 2011 3rd Annual Tee It Up for Joy For more information visit www.teeitupforjoy.com October 15, 2011 Austin Baker IV Memorial Golf Tournament For more information contact Cody Caldwell at (940) 597-5351. October 22, 2011 Hispanic Workshop Education Forum TSRH November 12, 2011 Tarrant County Night of Superstars www.nightofsuperstars.com November 18-20, 2011 Family Camp at Camp John Marc For more information contact Jessica McCoy JeskaMcCoy@yahoo.com December 4, 2011 SBANT Holiday Party Frontiers of Flight Museum 1:00-4:00 pm. 2nd Annual Walk-N-Roll A HUGE THANK YOU to everyone who was involved in this event! It wouldn't have been such a success without the support of our Volunteers, Sponsor, Donors and Participants! We exceeded our Fundraising goal and are now at almost $49,000! Way to go! The day of the event was a little hot, but it was beautiful. The turnout was amazing! The 1920's built facility provides some challenges on logistics, but what a nice problem to have! This means that so many people were pouring in to the park on lanes built for horses and carriages, that we had to start a little late. However, everyone made the most of it! Kids spent time playing, signing and decorating the Start banner, while adults mingled and talked and teenagers tried to wake up! Over 350 people were in attendance that day. It was an amazing way to spread our mission! Go to page 12 for more information and pictures. ***SAVE THE DATE! 3rd ANNUAL WALK - SEPTEMBER 8, 2012 BURGERS LAKE*** Our mission is to promote the prevention of Spina Bifida and to enhance the lives of all affected. SPINA BIFIDA ASSOCIATION OF NORTH TEXAS 705 W. Avenue B., Suite 409, Garland, Texas 75040 Email: information@spinabifidant.org Phone: 972.238.8755 2011 SCHOLARSHIPS Executive Board Chair: RYAN MCCOY ryandavidmccoy@gmail.com Vice Chair: JASON DUNCAN jasondduncan@gmail.com ALEX GEORGE Secretary: JANA HARDWICK Janah214@yahoo.com Treasurer: GAYE MORRISON ggmor@aol.com Staff Executive Director: ROBIN LEE Spina Bifida Association of North Texas 705 West Avenue B, Suite 409 Garland, Texas 75040 214-728-9294 direct 214-703-1981 FAX rlee@spinabifidant.org Directors NATASHA ANDERSON nmaintexas@yahoo.com Information & Referrals JOANNE CAFIERO 972.238.8755 jcaf@airmail.net ERIN CANO erin.cano@yahoo.com GABRIELA (GABBY) CANTU cantu.gabriela@gmail.com JULIE CARTER Julie@teaforjoy.com Hispanic Outreach Chair MARIA AVITIA 972-208-7804 (Spanish Line) esperanzaavitiaortega@yahoo.com Family Outreach Chair WENDY HARVEY harvey.4@sbcglobal.net JOANNE HURTEKANT hurtekant@sbcglobal.net MESHA SAMANTHA 2011 Scholarship Winners! Congratulations to the winners of this year’s Spina Bifida Association of North Texas Scholarship Awards. Due to the overwhelming success of the Second Annual Walk N Roll in July, we were able to award scholarships to four outstanding students. Each applicant submitted an essay, transcripts, letters of recommendation and other documentation to support their request. A committee of five individuals, each dedicated to the mission of the Spina Bifida Association of North Texas in their commitment to the committee, reviewed the applications and made the awards. Please join the committee in congratulating these students: Alex Allen will be a freshman at Tarleton State University, studying Special Education. She is a 2011 graduate of Godley High School, where she was a member of The National Honor Society, Student Council and the Fellowship of Christian Athletes. She was also a manager for the girls’ basketball team and active in her church’s youth group. As a participant in Ready, Set, Teach during her senior year, she was able to experience first-hand the many challenges and rewards of teaching. She is eager and well prepared as she starts her college career this fall. Samantha Ross returns to Oklahoma to continue her studies in Meteorology. She is a determined student who faces challenges with enthusiasm and resolve. Samantha submitted a moving essay with her application that is surely to inspire many students, young and old, that are living with spina bifida. Please see her essay “Challenge” on the next page. George Turner returns to The University of Arkansas this fall to continue his studies in Communications. Last year, George took the campus by storm, and with the blessing of the university chancellor, organized the first ever University of Arkansas Disabilities Awareness Week. He secured corporate sponsorship, organized volunteers, planned programming and speakers and coordinated complete marketing efforts. He managed to do well in his classes, too! Look for great things to come from this young man, as he considers a career in Fund Raising and Development. Mesha Wing recently completed her freshman year at Texas Tech University in Lubbock, where she is studying interior design and architecture. She is a strong student with goals to earn her degrees, succeed in her chosen career and eventually own her own business. One of her goals is to use her education and experience as a volunteer in her community and around the world, designing houses, schools, and community centers in areas with few financial resources. We wish her the very best as she pursues these goals. 2 2011 SCHOLARSHIPS The following essay was submitted by Samantha Ross for her Scholarship Application. Read it, be inspired and share it with someone. Challenge - noun Challenge 1. something that by its nature or character serves as a call to battle, contest, special effort, etc.: Space exploration offers a challenge to humankind. One word, nine letters, but it carries a heavy weight. Who would have thought that that one word would be defining my life? I never asked for challenges to be thrown into my path continually, but this appears to be my destiny. It began when I was born with the physical disability of Spina Bifida, enduring the many surgeries and hospital stays associated with that disability and continues today while I strive to earn my degree. Facing battles everyday whether they were health related, social or educational have helped mould me into the young woman I am today. Carol Burnett echoes my philosophy when she stated “I have always grown from my problems and challenges, from the things that don’t work out, that’s when I’ve really learned.” To learn is to grow. I attend a school where sometimes, just getting to class presents the initial trial for the day. Oklahoma can be windy and warm one day or have twelve inches of snow the next. But the weather is why I am here. The University of Oklahoma provides one of the top degrees in Meteorology offered in the nation. I have chosen this challenging major that was probably not the best “fit” with the learning disability associated with spina bifida and hydrocephalous. It requires special effort on my part to take notes that would rival any textbook, study hard, and pick myself up, dust myself off and start again when Challenge rears its’ ugly head. And Challenge presents herself to me quite frequently. She is my nemesis, but it is her that pushes me harder, makes me stronger. My mother always says that I “like to do things the hard way”, but that is not entirely true. It has that appearance, but in fact I am determined; determined to succeed at what I put my mind to, determined to finish what I start, determined the be the best I can be despite the obstacles placed in my path. I go into battle every day with the material I must learn and process and with my spirit. But Challenge is also my friend. She has helped me to grow, to learn, to strive for the opportunity to become more than what “society” sees me as capable of becoming. I am only beginning my journey, but as I move forward to the next chapter of my life, that of an independent, confident young adult, I will embrace Challenge, because from her, I have learned, and I have grown. October Is National Spina Bifida Awareness Month! October is National Spina Bifida Awareness Month, a time to educate the public and further understanding about Spina Bifida while celebrating the lives of the more than 166,000 Americans affected. Every day in the United States, an average of 8 births are affected by Spina Bifida or a similar birth defect of the brain and spine. It remains the most commonly occurring complex birth defect in this country. The root cause of Spina Bifida is unknown and the effects for each person are different. Hispanics have an abnormally high rate of diagnosis. Hispanic mothers are one-and-a -half to two times more likely to give birth to a child with Spina Bifida than non-Hispanic Caucasians. Spina Bifida is not one condition. It is a multitude of problems that affect the mind, the body and the spirit. Advancements in treatment and prevention, however, have opened new doors for those with Spina Bifida. While it presents unique challenges, those affected by Spina Bifida are able to attend school, work, raise a family, and spend time with friends just like everyone else. Our Scholarship Recipients are models for achievement. Spread the mission of SBANT to support them and others that will follow in their footsteps, all because someone believed in them. 3 IN THE NEWS 10th Annual Hispanic Group Talent Show! The 10th Annual Talent Show was held at Bachman Recreation Center on April 14. An amazing evening of singing and dancing performed by 27 acts of children and young adults with Spina Bifida and their siblings. This group is so popular they were asked to perform their finale group act at Scottish Rite for the second year in a row and even at a mall in Ft Worth! This evening could not have been possible without the many volunteer hours put in by Maria and her group and without the financial support of Therapy 2000 and Advocate Medical. WE'VE GOT TALENT! Hispanic Family Camp March 18-20, 2011 4 COMMUNITY EVENTS A free, educational workshop is being offered for all parents of children with special needs to help better understand the unique planning that can be necessary to create a long term plan for their child. The workshop series, The 7 Core Concepts of an Effective Special Needs Plan, provides parents an easy to follow checklist to work toward addressing the core needs of a special needs plan for their child. The workshop is being presented by Don White, the Special Needs Planning Center advisor serving the DFW community. You may contact Don directly at dwhite@thesnpcenter.com or (214) 518-5805. Core concepts that will be discussed include: • Social Security • Self-determination and Advocay • Basic Legal Needs • Special Needs Trust • Continuity of Care • Post-Education Planning • Independent Living Where: North Richland Hills Library 9015 Grand Avenue North Richland, TX 76180 Please RSVP: dwhite@thesnpcenter.com When: or call (214) 518-5805 Thursday, October 27th @ 6:30pm Thursday, December 1st @ 6:30pm Have you visited the SBA website lately? There is an exciting new resource that was created to give parents and clinicians tips and tools to help children with Spina Bifida develop into successful and happy adults. It also has information for young adults seeking ways to become more independent and lead a fuller, richer life. Go to www.spinabifidaassociation.org to link to this resource! SBANT eNewsletter Receives 2011 Community Outreach Award at National Conference Not receiving this outstanding information tool? Make sure we have your current email address! Send it to information@spinabifidant.org 5 GIVING SBANT Appreciates the Support of all its Donors! The Gift That Keeps Giving What better way to recognize special people in your life than with a gift to the Spina Bifida Association of North Texas! Your gift will be acknowledged in our newsletter, plus both the donor and the recipient will receive a personal acknowledgement of the honorary gift. All donations are tax deductible. Examples are: A sincere thank you is extended to the following organizations and individuals for their support of SBANT. Their generous donations make all of our important programs and services possible. • Birthdays • Graduations • Bat Mitzvah • In Honor Of • Promotions • Anniversaries General Donations…. Carey Hebdricks Thanks to the following foundations and companies for their donations and matching gifts…. • Births • Weddings • Christenings • In Memory Of • Bar Mitzvah The Spina Bifida Association of North Texas depends on generous contributions from individuals, corporations and organizations to continue its services and programs here in North Texas. Please remember SBANT when special occasions arise. Credit Cards accepted. Singles Charity Council/Supporters of Childrens Charities Tea for Joy B.P. Fabrics of America Because of Joy C & R Medical The Options Clearing Corporation To make a donation to SBANT go to www.spinabifidant.org or call Robin Lee at 214-728-9294. Pictured above are some of the OCC employees, their family members and even interns who volunteered their time at the 2nd Annual Walk-N-Roll. OCC (www.theocc.com) selected SBANT as it's charity recipient for 2011. Employees are donating their time and money to support SBANT's efforts to provide great programs, such as our camp programs, to individuals with Spina Bifida. Through direct donations, payments in a "Friday Jeans Day" fund, and setting up fundraising at local restaurants, this company is passionately supporting our mission! THANK YOU OCC EMPLOYEES! 6 GIVING MEMORIALS & HONORAIUMS Memorials In Memory of Angie Rogers Homer Birdine Deborah Endres In Memory of Susan Dobrow Alan Myhal In Memory of Charles Boutell Nora Graner Mr. & Mrs. William Barnett Dennis DeLoose Sandra Mast & Frank Woodyard Kenneth Ducote Mr. & Mrs. O. Dunlap Mr. & Mrs. Robert Mitchell Alie Sessions Kathleen Wood You can double or even triple the power of your contribution by asking your employer to match your gift! More and more corporations of all sizes offer matching gift programs as a way to promote positive employee and public relations. Programs are designed to achieve a range of objectives and may include the opportunity for your company to match a variety of gifts you make to SBANT including cash, life insurance, stocks and securities, charitable annuities, and even volunteer hours! Simply ask your human resources department to find out if your company will match your gifts to SBANT. Or, if you need help starting a matching gift program at your company, contact us. Use Goodsearch as your search engine or when shopping online! An easy way to earn money for SBANT! COMING SOON! MATCHFINDER BY BLACKBAUD! If you make your donation online, you will be able to check if your company matches donations right then! Still want to mail us a check? We will be able to search for you! Keep this in mind for your year-end giving!! 7 2011 CAMP TLC For 20 years SBANT, with the support of Texas Scottish Rite Hospital for Children, has sponsored a week long residential camping experience in the foothills of the Texas Hill Country, at Camp John Marc, called Camp TLC. Camp John Marc is nationally recognized as a premier therapeutic camp, known both for its incredible facility and its innovative programming. The non-profit organization that operates the camp, Special Camps for Special Kids, underwrites over3/4 of the expenses of Camp TLC. This year, many parents made generous donations that paid a significant portion of the $10,000 in expenses that SBANT is responsible for. The Tea for Joy event , held each May, made a significant gift to SBANT for camp expenses, as did a recurring gift from a Camp John Marc Board member, who also helps to support our family camps held at CJM. This year, nearly 100 campers had a blast. Although we’ve never formally surveyed the kids, we’re pretty sure the universal response to “Why do you like camp?” would be “Because it’s fun!” (probably accompanied by that irritating “Duh” look they must all learn in kindergarten.) A very untraditional camp highlight this year was the viewing of the final NBA championship game, thanks to a borrowed flat screen TV, a borrowed antenna, a long 2x4, some duct tape, and an “app” on Jeff Carter’s I-phone that locates broadcast towers! (Who knew Jeff had so much McGyver in him?) We did survey all of our parents who had given us email contact information. Out of 75 parents, we got a decent 33% response rate. The most repeated comments from parents were: “She is more confident since she got back from camp.” “He’s more willing to try new things.” “She made new friends who understand her disability.” “He is even more independent.” “He came home with more maturity.” “She gets the opportunity to be more assertive, and a leader, at camp.” Comments like these confirm our belief that this rather expensive and volunteer labor-intensive program is one SBANT can be proud of. 8 2 0 1 1 FA M I LY C A M P APPLICATION FOR SBANT FAMILY CAMP WEEKEND CAMP JOHN MARC - MERIDIAN, TEXAS NOVEMBER 18-20, 2011 For children with Spina Bifida ages 7 and under - and their families It is almost time for the SBANT 2011 Family Camp! On behalf of the SBANT Board, I would like to invite you to Family Camp 2011 at Camp John Marc if you have a child with Spina Bifida, age 7 or younger. Camp John Marc offers an incredible facility in Meridian, Texas. You can visit their website at www.campjohnmarc.org to see all of the wonderful facilities and activities that are available. This is the same location that Camp TLC is held each June for Spina Bifida campers 8-15 years old. Therefore, Family Camp can also serve as a good introduction to the location for the future Camp TLC camper. SB Child’s Name _________________________________ Age ________ (at time of camp) Dad’s Name _______________________________________________ Mom’s Name ______________________________________________ Note: There is a 5 Family Member Limit (Total Members), if there are additional family members to attend, please contact Jessica McCoy (jeskamccoy@yahoo.com) for information on the additional cost. Brothers and Sisters that will attend: Name ____________________________________________________ Age _______ Name ____________________________________________________ Age _______ Name ____________________________________________________ Age _______ Address______________________________________________________________ Phone#_______________________________Email___________________________ Each family will be staying in their own cabin at Camp John Marc. The cabins include 10 twin beds and a large bathroom area with 2 toilets, 2 showers and 2 sinks. No linens are provided – please bring sheets, pillows, towels, blankets/sleeping bags, etc. All cabins have heating and air conditioning. Microwaves are available in the dining hall to use at any time, as well as an ice machine. Coolers are recommended for personal use. Meals will be provided for Friday night, Saturday breakfast, lunch and dinner, and Sunday breakfast. Camp fee per family is $125. The number of cabins available are limited. Priority is given to new campers – in order to give everyone a chance to visit this wonderful camp! PLEASE RETURN THIS APPLICATION BY OCTOBER 21st TO: Jessica McCoy 3682 Smoke Tree Trail Euless, TX 76040 or email it to JeskaMcCoy@yahoo.com Questions at 817-992-7530 or JeskaMcCoy@yahoo.com Send money in with your application. Please make checks payable to Spina Bifida Association of North TX (SBANT). Once your money is received you will receive a release form to be returned before camp. If your application is not accepted, your check will be promptly returned uncashed. If you would like to make an additional donation, please enclose your gift to the Family Camp Fund with this application. 9 2 0 1 1 FA M I LY C A M P S H I R T Name ________________________________________________________ Please total place number needed next to each size. (If you need a size chart email me at JeskaMcCoy@yahoo.com ) YOUTH GREY _____XS ____S _____M _____L _____XL LADIES GREY ____S _____M _____L _____XL _____2XL MENS GREY ____S _____M _____L _____XL _____2XL _____3XL COST = $10.00 PER SHIRT, ADD $2 FOR 2XL AND 3XL. PLEASE MAKE CHECKS PAYABLE TO SPINA BIFIDA ASSOCIATION OF NORTH TEXAS MAIL TO : JESSICA MCCOY 3682 SMOKE TREE TR. EULESS, TX 76040 PLEASE PLACE YOUR ORDER BECAUSE THEY WILL NOT BE SOLD AT CAMP! ALL ORDERS AND PAYMENTS ARE DUE BY NOVEMBER 1ST 10 U P D AT E S ! Contact Info Needed! We Need Your Email Address!! Don’t miss out on the latest information! Update your email with us today! Send your current email address and any other new contact info to information@spinabifidant.org or call 972-238-8755. To be more timely and cost efficient, most information will be sent out via email instead of snail mail, so don't delay!! Contact us today!! Happy 70th Birthday Ellen! Ellen Dibler, an adult with Spina Bifida, was honored by the SBA earlier this year for her dedication to the organization and mission of SBA. She is not only one of the oldest living adults with Spina Bifida, she is also a wife, a mother and a grandmother. She has never let her disability dictate her life. Through her work with Mary Kay, she advocates for people with disabilities, promotes folic acid awareness and encourages others to strive for greatness. She has previously served both on the SBA board and the SBANT board. Happy 70th Birthday Ellen! Thank you for all you have done! We love you! PROGRAMS EXPANDING IN 2012! Stay tuned for more information! Suggestions? Let us know! We are here to serve you! HAVE YOU HAD YOUR FOLIC ACID TODAY? NOW SEARCHING FOR 2012 VOLUNTEERS AND BOARD MEMBERS! Interested in supporting SBANT with your skills, contacts and knowledge? We need you! Contact Joanne Hurtekant for more information at Hurtekant@sbcglobal.net or (214) 324-9081. 11 2N D A N N UA L WA L K - N - R O L L Thank You to our Sponsors! Not only do they benefit us financially, they Volunteer and theyTHANK make themselves available so you can see the different YOU TO OUR SPONSORS! products options thatWE areAPPRECIATE available. Support them when you can! LET and THEM KNOW THEIR SUPPORT! PICNIC CO-SPONSORS PRESENTING SPONSORS SPONSORS REFRESHMENT SPONSOR IN KIND SPONSORS FACEPAINTING BY MIRIAM MARTINEZ SUPERSAVERS—RIVER OAKS 12 2N D A N N UA L WA L K - N - R O L L LITTLE WARRIORS TEAM Trey, Ali Cannon & Carlee Bin Wells & Team Bin Our Top Teams Little Warriors - $7423 Team Bin - $3210 Cafiero Family - $3250 Ella Kwan Our Top Participants Bin Wells - $3210 Trey, Ali, Cannon & Carlee - $2735 Ella Kwan - $2257 Cafiero Family Our Spirited Teams!! 13 IN THE NEWS Letter from the Chair This year has been a great year for the Spina Bifida Association of North Texas. We started off the year with our annual Bowl-A-Thon which was great fun for everyone involved. We enjoyed a successful Walk-N-Roll in July at Burger’s Lake and we are already looking forward to the Holiday Party this December. I would like to thank all of our families and supporters for helping make this year of fundraising very successful. We are able to expand our outreach services, we are offering more scholarships, and we won a Community Outreach award at the national conference for our new E-Newsletter. Our new executive director Robin Lee has been a great addition to our organization and is a great advocate for Spina Bifida causes and our community. For those of you with young children seven and under, TLC family camp is fast approaching. Keep the weekend of November 18-20th free and send in the application inside this edition of the Horizon or find a copy on the website at www.spinabifidant.org. I hope to see all of you at the holiday party on December 4th at the Frontiers of Flight Museum – see more information in this newsletter. Thank you all! Executive Director Letter It is finally almost Fall! At the time of this printing, I will have been serving as your new Executive Director for about 5 months. What a busy and exciting time it has been for SBANT! We awarded Scholarships, had our 10th Annual Hispanic Talent Show, had almost 100 campers at Camp TLC, hosted an AMAZING 2nd Annual Walk-N-Roll and Family Picnic and much more! Our technology has been greatly expanding. In May, we launched our first edition of our monthly e-newsletter. If you have not been receiving this, you are missing out! We will be doing most of our correspondence via email in the future. Not only is it more cost effective than printing, but it is easy for readers to go back and reference and even forward to friends and family! We will still be sending out some mailings, including this newsletter, which will run twice a year – once in the spring and once in the fall. We will also be utilizing our social networks such as Facebook and Twitter to deliver information. Make sure we have your current email address on file so you don’t miss out on what’s going on at SBANT! There is a lot going on in the next few months at SBANT. Much of this is included in this issue. As we prepare to move into 2012, we will be setting our goals for next year and how we can expand and improve our programs and ways that we support our constituents. My goals are to expand our Adult Outreach, have more Education sessions, reach out to local OB/GYNs to make them aware of SBANT’s services, as well as Folic Acid awareness. I ask you to look to the future. How can we make SBANT better? Can you help us? Are you making use of SBANT’s resources, including our partnerships and relationships with other groups such as RISE, Turning Point, Dallas Jr Mavs Wheelchair Basketball, etc. SBANT exists to support and grow our mission – To Promote the Prevention of Spina Bifida and Enhance the Lives of ALL affected! Thank you for being a part of our family! 14 SBANT COMMUNITY Want to go Hunting? Want to bring some sunshine to someone? We would like to start a Sunshine Committee! SPREAD SOME SUNSHINE! Role of Sunshine Committee Make Visits, Send Cards, Make Phone calls or Send Emails Who Benefits? SBANT constituents and YOU! We want our adults, kids and families who are having health issues, just had surgery or really just need a pick-me-up, to know that we care! Want to be a part of this Sunshine Committee or need some Sunshine? Contact Sarah Harig at intern@spinabifidant.org or leave a message at 214-728-9294. Hello! My name is Sarah Harig and I am the new intern for SBANT. I recently graduated from the University of Virginia with a Bachelor of Arts in Psychology and History and will be starting graduate school for counseling psychology in January. While in undergraduate school, I was extremely involved in the community doing activities ranging from playing Bingo with local nursing home residents to beautifying parks to shaving my head to raise money for children’s cancer research. As a result, when I was deciding what I wanted to do after graduation, I knew I had to continue my community involvement . When the opportunity to intern with SBANT presented itself, I couldn’t turn it down. Now I am just a little over a week into my internship and I can already tell I will be involved in this for the rest of my life! I am so excited to be working for this organization and helping with its mission to raise awareness about Spina Bifida and to enrich the lives of those living with it! In honor of his late son Colt (pictured here), Troy Matson is coordinating hunting trips for children and adults with Spina Bifida. Colt, who passed away July 2010 at the age of 22, loved hunting, fishing and sports and really enjoyed life. He did not let his having Spina Bifida stop him from trying anything! Troy wants to support the Spina Bifida community by allowing others to experience the outdoors and hunting. Contact Troy for more information at (903) 436-1338 or sanduskyoutpost@gmail.com SEE LINK ON SPINABIFIDANT.ORG FOR MORE INFO! 15