Qualitative Cancer Research: Taking Stock, Stepping Further
th
th
April 28 - 29 , 2014, Berlin School of Public Health, Charité Universitätsmedizin Berlin, Germany
Preliminary programme outline and timings
DAY ONE
MONDAY, April 28th, 2014
8 45-9 00
Arrival
9 00-9 10
Welcome to Conference
Jacqueline Mueller-Nordhorn
Berlin School of Public Health, Charité, Berlin, Germany
9 10-9 30
Introducing the Qualitative Research Group on Cancer
Susanne Brandner
Berlin School of Public Health, Charité, Berlin, Germany
9 30-10 00
Introduction: Qualitative Cancer Research
Christine Holmberg
Berlin School of Public Health, Charité, Berlin, Germany
10 00-11 00
Keynote Presentation
Why strive for solidarity in qualitative cancer research? Discussing the case
of 'patient delay' in healthcare seeking
Rikke Sand Andersen
Department of Public Health – Forskningsenheden for Almen Praksis and Department of
Culture and Society – Section for Anthropology and Ethnography; University of Aarhus,
Denmark
11 00-11 30
Coffee Break
11 30-1 00
Session A: EXPLORING CANCER EXPERIENCES
Chair: Yvonne Adam,
Support: Sarah Blakeslee
Berlin School of Public Health, Charité, Berlin, Germany
11:30-12:00
Young women coping with breast cancer. The cases of Belgium, France and
Italy in a comparative perspective
Cinzia Greco1, Grazia De Michele2 and Natasia Hamarat3
1
Écoles des Hautes Études en Sciences Sociales/CERMES3, France
University of Reading, UK; Breast Cancer Advocate/Blogger
3
Metices – Université libre de Bruxelles
2
12:00-12:30
Experiencing life after cancer in Puerto Rico: findings from a qualitative study
on survivorship
Karen E. Dyer
Department of Social and Behavioral Health, School of Medicine, Virginia Commonwealth
University, Richmond, U.S.A.
1
Qualitative Cancer Research: Taking Stock, Stepping Further
th
th
April 28 - 29 , 2014, Berlin School of Public Health, Charité Universitätsmedizin Berlin, Germany
12:30-1:00
“Staying independent”: a qualitative study to explore the experiences of
cancer patients living alone during their treatment
Charlotte Benoot1, Reginald Deschepper1, Maria Grypdonck2, Johan Bilsen1
1
Department of Public Health, Vrije Universiteit Brussel, Belgium
Department of Nursing Sciences , University Hospital, Ghent, Belgium
2
1 00-2 00
Lunch Break
2 00-3 00
Session B: NAVIGATING PREVENTION AND TREATMENT
Chair: Sarah Blakeslee
Support: Wiebke Stritter
Berlin School of Public Health, Charité, Berlin, Germany
2 00-2 30
Coming to decisions about cancer treatment: Understanding the processes
among older men and women with colorectal cancer
Fay J. Strohschein1,2, Rita S. Schreiber3, Joan L. Bottorff4, Francine Ducharme5,
Howard Bergman6, Carmen G. Loiselle1,2
1
Ingram School of Nursing, McGill University, Montreal, Canada
Segal Cancer Center and Lady Davis Research Institute, Jewish General Hospital, Montreal,
Canada
3
School of Nursing, University of Victoria, Victoria, Canada
4
School of Nursing, University of British Columbia, Canada
5
Faculté des sciences infirmières, Université de Montréal, Montreal, Canada
6
Department of Family Medicine, McGill University, Montreal, Canada
2
2 30-3 00
Negotiating risks and responsibilities: A critical narrative study of parents’
decision-making about human papillomavirus (HPV) vaccination
Jessica Polzer
Department of Women’s Studies and Feminist Research and School of Health Studies, The
University of Western Ontario, London, Canada
3 00-3 30
Coffee Break
3 30-4 30
Session C: CHRONIC ILLNESS AND SURVIVORSHIP
Chair: Jennifer Kennedy
Support: Wiebke Stritter
Berlin School of Public Health, Charité, Berlin, Germany
3 30-4 00
Meeting the needs of black and minority ethnic breast cancer patients during
early survivorship: what can we learn from qualitative interviews conducted
with a multi ethnic sample in England?
Charlotte N.E. Tompkins1, Jo Armes2, Seeromanie Harding3, Emma Ream2, Karen
Scanlon1
1
Breast Cancer Care, London, UK
Florence Nightingale School of Nursing & Midwifery, King's College London, UK
3
Ethnicity and Health Research Programme, Medical Research Council, Social and Public
Health Sciences Unit, University of Glasgow, UK
2
2
Qualitative Cancer Research: Taking Stock, Stepping Further
th
th
April 28 - 29 , 2014, Berlin School of Public Health, Charité Universitätsmedizin Berlin, Germany
4 00-4 30
Chronic cancer treatment and healthcare configurations: a qualitative
investigation
Valérie Buthion1, Nora Moumjid2, Jennifer Margier3
1
Lyon 2 University, COACTIS EA 4161, Lyon, France
Lyon 1 University, GATE-LSE (UMR 5824 CNRS,) Centre Léon Bérard, Lyon, France
3
Lyon 1 University, GATE-LSE (UMR 5824 CNRS), Grenoble University Hospital, France
2
4:30-5:30
Final Discussion
Chair: Yvonne Adam, Sarah Blakeslee & Susanne Brandner
Berlin School of Public Health, Charité, Berlin, Germany
7:30
Get Together, place: tba
3
Qualitative Cancer Research: Taking Stock, Stepping Further
th
th
April 28 - 29 , 2014, Berlin School of Public Health, Charité Universitätsmedizin Berlin, Germany
DAY TWO
TUESDAY, April 29th, 2014
9:00-10:30
Session D: INSTITUTIONALISING CANCER
Chair: Wiebke Stritter
Support: Susanne Brandner
Berlin School of Public Health, Charité, Berlin, Germany
09:00-9:30
Complexities, complications and competencies. Physicians’ views on the
interdisciplinary treatment of urological cancer in Germany
Denny Chakkalakal
Berlin School of Public Health, Charité, Berlin, Germany
09:30-10:00
A qualitative study of the views of researchers on the definitions, issues and
evaluation of translational research in oncology
Frédérique Thonon1,2,3, Mahasti Saghatchian1, Rym Boulkedid2, Serge
Gottot2, Corinne Alberti2, 3
1
European and International affairs, Gustave Roussy, Paris, France
Unité d’épidemiologie Clinique, Hôpital Robert Debré, Paris, France
3
Université Pierre et Marie Curie, Paris, France
2
10:00-10:30
Public participation in Oncologic Drug Evaluation
Loes Knaapen
Public Health Research Institute, University of Montreal (IRSPUM), Canada
10:30-11:00
Coffee Break
11:00-12:30
Session E: CANCER KNOWLEDGE UNDER CONSTRUCTION, PART 1
Chair: Martin Schultze
Support: Denny Chakkalakal
Berlin School of Public Health, Charité, Berlin, Germany
11:00-11:30
Caught between hopes and fears: the construction of hope in a cancer trial
Sabine de Graaf
University of Amsterdam, Amsterdam, Netherlands
11:30-12:00
The illusion of control in the global flow of breast cancer awareness
campaigns
Margret Jäger1, Kathryn Bouskill2
1
Department of Public Health and Health Technology Assessment, Private Universität für
Gesundheitswissenschaften, Medizinische Informatik und Technik; UMIT Wien, Austria
2
Emory University/Atlanta, UMIT, U.S.A.
4
Qualitative Cancer Research: Taking Stock, Stepping Further
th
th
April 28 - 29 , 2014, Berlin School of Public Health, Charité Universitätsmedizin Berlin, Germany
12:00-12:30
HPV vaccination discourses: Impact on Canadian girls’ bodies and
subjectivities
Luisa Molino1, Geneviève Rail1, Caroline Fusco2
1
Simone de Beauvoir Institute; Concordia University, Montreal, Canada
University of Toronto, Toronto, Canada
2
12:30-1:30
Lunch Break
1:30-3:00
Session F: CANCER KNOWLEDGE UNDER CONSTRUCTION, PART II
Chair: Denny Chakkalakal
Support: Jennifer Kennedy
Berlin School of Public Health, Charité, Berlin, Germany
1:30-2:00
Queering qualitative cancer research: cancer’s margins, knowledge and
subjectivities
Geneviève Rail1, Mary Bryson2, Tae Hart3,Jacqueline Gahagan4, Janice
Ristock5, Luisa Molino6
1
Concordia University, Montreal, Canada
University of British Columbia, Vancouver, Canada
3
Ryerson University, Toronto, Canada
4
Dalhousie University, Halifax, Canada
5
University of Manitoba, Winnipeg, Canada
6
Concordia University, Montreal, Canada
2
2:00-2:30
Inventing neologisms regarding breast cancer in South Korea
Miwon Seo
Ecole des Hautes Etudes en Sciences Sociales (EHESS)- Centre d'Analyse et d'Intervention
Sociologique (Cadis) - Centre de Recherche sur la Corée (CRC), Paris, France
2:30-3:00
Reflections on risk: consultation experience of women diagnosed with breast
cancer risk
Sarah Blakeslee
Berlin School of Public Health, Charité Universitätsmedizin, Berlin, Germany
3:00-3:30
Coffee Break
3:30-4:30
Final Discussion and Closing of Conference
Chair: Denny Chakkalakal, Jennifer Kennedy, Martin Schultze & Wiebke Stritter
Berlin School of Public Health, Charité, Berlin, Germany
5