SUMMER 1997
VOL. 25 NO. 1
Researchers Exploring Nicotine as a TS Treatment
by R. Douglas Shytle, Ph.D., Archie A. Silver, M.D.
and Paul R. Sanberg, M.D.
Just the word nicotine brings to mind negative images of
smoking and illness. But a growing body of evidence
indicates that nicotine, the major psychoactive substance
found in tobacco, has potential therapeutic properties.
Understanding nicotine pharmacology may be an important area for future drug development. Clinical studies
already suggest the it may be helpful in treating several
neuropsychiatric disorders including Alzheimer’s disease,
schizophrenia, ADHD and TS.
Nicotine and TS
In the late 1980’s Drs. Don Moss and Paul Sanberg demonstrated in rats that nicotine enhances the behavioral
effects of neuroleptics such as haloperidol. It was natural
to wonder if nicotine might prove to be useful in the
treatment of movement disorders such as TS. In collaboration with Drs. Brian McConville and Harold Fogelson,
we then explored the benefits of nicotine chewing gum
for people with TS.
In conjunction with haloperidol treatment, the nicotine gum reduced tics and other TS symptoms not controlled by the haloperidol drug therapy alone. The therapeutic effects of nicotine gum are of short duration and
there are also gastrointestinal side effects, so Drs.
Sanberg and Archie Silver turned to nicotine patches as a
method for administering a steady and controlled stream
of nicotine.
Within three hours of application of a 7-mg/24 hours
Nicoderm patch, we found a reduction in both frequency
and severity of tics. In some individuals the effect appeared to persist for a variable period of time after removal of the patch. These findings have been confirmed
by another group in Europe. This preliminary work led
the FDA to approve further research into the therapeutic
use of nicotine patches.
Current Study
We are currently conducting a double-blind placebocontrolled study of transdermal nicotine in TS patients
who are also taking haloperidol. This study is funded by
TSA and the NINDS. Our results should be available at
the end of 1997. We hope they will confirm our preliminary findings.
Over-the-Counter Controversy
While the FDA has not approved using the patch as a
safe and effective medication for TS, our preliminary
findings suggest that nicotine patches may be useful for
those who are not responding adequately to standard
neuroleptic treatments. With over-thecounter availability
comes options and
controversy.
Continued on page 3
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Mid-Year Appeal: 1997
Greater awareness of TS has resulted in more diagnoses
and a commensurate increase in requests for services and
information. Information about treatment, strategies for
coping with the disorder and services for families are more
in demand than ever before.
TSA needs your help to continue to offer support and information to people in need. Every dollar raised during this
mid-year appeal goes directly into service and educational
programs. So help us make 1997 a great year. Watch your
mail for further information!
Lights,
Camera, Action!
Principle photography began on May 19 for “Lessons
in the Tic Code,” a sensitive coming-of-age story staring
Gregory Hines and Polly Draper. The movie concerns a
talented young boy with TS, his protective mother and
a jazz musician who come to terms with the tics in all
their lives.
Gregory Hines, most recently seen in “Waiting to
Exhale” and on Broadway in “Jelly’s Last Jam,” and Polly
Draper, best known for her role in the hit TV series
“Thirtysomething,” star in the romantic and inspiring film
directed by Gary Winick.
Published by the
TOURETTE SYNDROME
ASSOCIATION, INC.
42-40 Bell Boulevard
Bayside, New York 11361-2820
Phone (718) 224-2999
Fax (718) 279-9596
e-mail:tourette@ix.netcom.com
NATIONAL OFFICERS
Alfred Sklaver, President
Paul Devore, Executive Vice President
Brenda Weeda, First Vice President
Diane Mallah, Second Vice President
Susan Conners, Third Vice President
Jeffrey Kunion, Treasurer
Michelle Cooler, Secretary
CORPORATE & PROFESSIONAL COUNCIL
Kenneth Halaby, Diane Mallah, Co-Chairs
SCIENTIFIC ADVISORY BOARD
Neal Swerdlow, M.D., Ph.D., Chairman
MEDICAL ADVISORY BOARD
Gerald Erenberg, M.D., Chairman
EXECUTIVE DIRECTOR
Judit Ungar
EDITORS
Milton Sutton, Judit Ungar
EDITORIAL CONSULTANT
Candida B. Korman
Summer 1997 Vol. 25, No. 1
Membership Dues: $45.00
(includes quarterly Newsletter)
To designate funds to TSA for The United
Way use #0556, for the Combined Federal Campaign use #2934.
The TSA does not endorse products, services
or manufacturers. Such names appear only
as information for our members. TSA assumes no liability whatsoever for the use of
any product or service mentioned.
Use of material appearing in the TSA Newsletter is allowed so long as TSA is acknowledged as the source.
Tourette Syndrome Association, Inc.
Founded 1972
TSA gratefully acknowledges
the contribution of
M&M BINDERY
to the production of
this Newsletter
2
LETTERS
TS in China
. . . I inform you with gratitude that your materials
reached me. I have delivered
these materials to my colleagues and the parents of
children with TS to read. We
all are very glad to read
American TSA materials . . .
— Guangzhou Children’s
Hospital,
Guangzhou, China
They thought I
was cheating. . .
. . . My teacher in third grade
thought I was cheating in class
because my head would jerk
to the side . . . I am now a
graduate student at Northeast
Louisiana University, pursuing
an MA in Gerontology. Many
of my studies focus on the
neurological aspects of aging.
Having Tourette’s gives me
deeper insights into such diseases and disorders . . .
— Claire Carothers
Monroe, LA
Knowledge is Power
(Twelve-year-old Michael
writes) At school I worry that
students and staff members
will tell me to be quiet so I
suppress most of my tics . . .
What has helped kids is when
they see a video about TS.
After the video is shown, I
answer questions for the class.
Knowledge is power!
— Michael Potvin
Brooklyn Park, MN
E-mail Comment
on Web Page
I was pleasantly surprised to
discover this web page
through a search on Oliver
Sacks . . . This is an amazing
resource for people who
know what they are
looking for, or
for people who
would like to find
out more about TS
in general.
— Cheryl Furjanic,
New York, NY
President’s Message
Richard
I often try to write something funny or
cute in this column—not this time.
Instead, I would like to dedicate this
column to Richard.
I first saw Richard at a national
conference a few years ago. His symptoms were so overpowering that no one who met him can forget him. I
could say that I was “touched” but really my insides were
torn apart. Perhaps you too were moved by Richard’s
brief appearance in a TS video. After our first meeting, I
resolved to do something about the Richard’s of the
Tourette Syndrome family. To this day I feel sad whenever I hear his name.
I know that TSA cannot take direct care of Richard.
The cost of his treatment is so prohibitive that the needs
of many others would have to be ignored. The National
office cannot afford it, his local chapter cannot afford it,
nor can all our chapters put together!
But we have to keep trying! We must continue to
look for new and more effective treatments. We must
continue to disseminate information that increases sensitivity and awareness. TSA already handles up to 1200
calls a month from families with newly diagnosed children and adults coping with TS.
We are also committed to working with the medical
community, allied professionals and law enforcement, to
increase understanding and knowledge of TS.
I look forward to a day when we can take care of all
the Richards in the TS family. For now, let us keep his
story close to all our hearts.
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Highlights in this Issue
A Word from the Executive Director
I want to extend my sincere personal thanks to
Sue Levi-Pearl. Sue edited this newsletter for
three years, going above and beyond the call
of duty with each and every issue. She will
now devote all her time to Media Relations,
Publications and her responsibilities as TSA’s
Director of Medical and Scientific Programs.
As TSA’s Executive Director, I would like to point out
that the activities of both the local chapters and national
headquarters have succeeded in promoting awareness of
TS in the press and the general public. This awareness is
sure to increase when the exciting new movie, “Lessons
in the Tic Code,” opens.
Increasing awareness is key and TSA needs your
continued support in our efforts. The Legacy Society (see
article on insurance) offers creative options for endowing
TSA long into the future.
Up-to-the-minute information is always a priority, so
we lead off this issue with an article on nicotine patches.
We will continue to follow this story as it develops. As of
today there is no magic pill and we strongly recommend
that you consult your physician before trying any new or
untested therapy.
Tourette Syndrome Association
Summer 1997
COPING
continued from page 1
Tourette Syndrome On The Job
Exploring Nicotine
Job stress can exacerbate the symptoms of TS. TSA’s Information
and Referral Services receives many inquiries regarding your rights
during interviews and on the job.
To the many inquiries from TS patients and doctors
who want to know about using the patch, here is our
response:
Can an employer question me about TS or require a
medical examination? Prospective employers cannot ask you
Patients should not self-medicate. Doctors should be
consulted about the use of the patch.
Doctors must be made aware of any medical conditions
which may be adversely affected by the patch (e.g. cardiovascular disease).
Because of nicotine’s adverse effects on prenatal brain
development, women of child-bearing age should use
adequate birth control and should not use nicotine
patches at all when pregnant.
The patch should not be considered for children younger
than eight or weighing less than 60 lbs.
Patients should be made aware of nicotine’s side effects,
including headaches and nausea.
if you are disabled, or about the nature or severity of your disability. But they can—and will—ask you if you are able to perform
the job with or without reasonable accommodation.
They cannot require you to undergo a medical examination
before offering you a job. However, they can make passing a
medical exam a condition of employment after they have offered
you a position. This exam must be a requirement for everyone
offered that job—not just you. They cannot then reject you based
on information obtained during the medical examination unless it
affects your ability to perform the job.
Once you’ve been hired, your employer cannot order a medical exam or even question you about your disability unless the
exam or questions are directly related to your job performance.
Should I tell my employer that I have TS? Tell the employer if—in order to perform essential job functions—you will
need them to make reasonable accommodations. It is usually the
employee’s responsibility to inform the employer when some kind
of accommodation is necessary.
Know your rights and take responsibility as an employee. Be
your own advocate.
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MEDIA MATTERS
“I t may be (tic!) hard to
follow the (tic!) . . .”
TSA’s latest ad—“It may be (tic!)
hard to follow . . .”—is now included in a major magazine network
advertising package that places TSA’s
awareness message in many city and
suburban editions from Miami to
Manhattan. Look for the ad in Time,
Newsweek, U.S. News and World
Report, Sports Illustrated and other mass circulation publications.
Are Nicotine Patches Addictive?
Tobacco is addictive, and it contains nicotine, in addition
to many other harmful chemicals in the tar and smoke.
But addiction is a complex problem involving the time
between the behavior (e.g. smoking a cigarette) and the
drug’s entry into the brain. Smoking rapidly raises the
blood levels of nicotine; the patch offers a much slower
absorption rate which should substantially reduce the
likelihood of nicotine dependence. However, the potential for dependency following long-term daily use has not
been determined.
The Future
Anecdotal reports suggest that for some people with
mild TS symptoms, the nicotine patch may work alone,
making them feel “calmer” and reducing tics. However,
controlled clinical studies are needed before any real
conclusion can be drawn. We look forward to giving
you the results of our current study as soon as they
are available.
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40 Million Listeners a Week TSA’s Public service announcements promoting awareness of Tourette Syndrome are now
airing regularly on the 79 CBS Radio stations—reaching more than
40 Million listeners a week!
Public Affairs and Private Citizens The distribution of
TSA’s current celebrity TV spots is growing with the help of individual initiatives. TSA members are adding to the efforts of the
national staff by contacting their local TV Public Affairs Directors
and stimulating interest in airing the new spots.
You too can have an impact on your community. Contact the
appropriate person at your local TV station and if they express
serious interest, TSA will forward screening copies for their review.
Sally Jessy Raphael Our last issue carried the story of Jeremy Hutsell and Amy Yarum’s efforts to educate their high school
classmates in Connecticut about TS. Since then, the dynamic duo
have taken their message to a wider audience, appearing on the
popular Sally Jessy Raphael show on April 21.
Tourette Syndrome Association
Summer 1997
Business
Cards
and
Medical
ID’s
Cherry Larson, of Mayville ND, has written to TSA about
the business card she created for her ten-year-old son,
Nathan. The card makes visits to restaurants, movie theaters, etc. a little easier by explaining TS and how it affects Nathan. Create your own personal cards or use
TSA’s medical ID.
3
Future Business
Leaders of America
DEVELOPMENT
The Legacy Society:
Gifts of Insurance
The Planned Giving Program is at the heart of TSA’s
continuing financial security. The Spring issue of the
Newsletter featured Wills and Bequests, this issue will
introduce Gifts of Insurance.
Existing Policies and New Ones
TSA can be named as the beneficiary and owner of an
existing life insurance policy. This is especially appealing
when the original function of the policy is no longer
relevant, i.e. the care of children who are now adults. If
the assignment to TSA is permanent (irrevocable), the
donor receives a tax deduction for the gift, continues to
make the tax deductible annual premiums and TSA has a
planned gift for the policy’s value.
Individuals can also purchase a policy for the sole
purpose of giving TSA a planned gift. The value of the
gift and cost of the premiums will vary with the age and
insurability of the donor. TSA must be named the legal
owner of the policy for the donor to receive the benefit
of the tax deduction.
Insurance can also be used to help facilitate another
kind of planned gift. The cash value of the policy can
“replace” funds designated for heirs as part of a Charitable Trust arrangement naming TSA as a beneficiary.
This arrangement does not have the same tax implications as assigning the policy directly to TSA.
Whether it is part of a planned gift to TSA or as a
component in a Charitable Trust, insurance can be an
excellent way to plan substantial donations to TSA.
To join the Legacy Society, call Mark Levine at the
national TSA office.
TSA and FBLA (Future Business Leaders of America)
have had a long-standing and rewarding association.
FBLA, and its college counterpart—Phi Beta Lambda—
have raised both awareness and funds for TSA.
Mark Levine, TSA’s Director of Development, will
give workshops on TS and the work of TSA, at the FBLA
Conference (July 1 & 2 in Anaheim, California).
“FBLA gives us a great opportunity to bring our message of TS
awareness to more than a quarter of a million high school
students, and introduce them to ways in which their organization
can help support TSA.” — Mark Levine
TSA members can also help continue this relationship by contacting local FBLA chapters and inspiring new
educational and fundraising events. The national TSA
headquarters will happily assist individuals who approach FBLA chapters with educational information.
The President’s Club
and Publications
The mission of TSA’s publications department is the dissemination of the in-depth, practical, and up-to-date
information needed by families coping with TS. This
information is vital. The materials must also be continually revised, updated and expanded.
The President’s Club plays an important role in
funding this never-ending task. Please respond generously in answer to our annual appeal. If you’re not already a member, drop us a note, fax, e-mail or give us a
call and we’ll make sure you become a member of the
President’s Club.
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Basketball!
April 11 was a great
night for basketball
and a special night for
TSA. Over 200 Northern California chapter members joined
the Sacramento
Kings Foundation
to celebrate
Mahmoud Abdul-Rauf’s
work on behalf of TSA. In
a pre-game ceremony at
center court, over 17,000
people witnessed a special
mayor’s proclamation
commending Mahmoud
and his commitment to
TSA. Local chapter members joined the basketball
star and his family for a
post-game party.
4
VICTORY
Young Man for
All Seasons
Andy Ogburn graduated
from high school with a
string of impressive
awards and scholarships.
He volunteers for a
Habitat for Humanity,
Christmas in April, South
Side Mission, the March of Dimes and
many other important social causes. He plays the
saxophone and sings in a band. He’s also a budding
entrepreneur, with his own lawn care business.
If You Are Moving . . . or if you are receiving duplicate copies
of this Newsletter—please let us know so that we can update our
mailing list. To update we need both your old and new addresses.
Tourette Syndrome Association
Summer 1997
Information & Referral Services
Reaches Out to Professionals
TSA has known for a long time that many professionals
(doctors, educators, social workers, etc.) know little or
nothing about Tourette Syndrome. Getting information
into the right hands is of primary concern to TSA’s Information & Referral Services department.
During the past eight months the department has
made a special push to address the inadequate education
of professionals in a variety of fields. Instead of waiting
for inquiries from diagnostic centers, counseling agencies, special education administrators, family physicians,
etc., the Information & Referral Services department has
reached out directly to these professionals and offered
information in a mammoth educational effort.
Almost two-thirds responded with requests for
further information. An impressive 65% of the professionals and professional agencies responded with
requests for more information and expressions of willingness to become active participants in TSA’s effort to promote public awareness and education.
A Database in the Works
One of many objectives for this professional outreach, is
the creation of a comprehensive database of agencies
and people able to offer expert advice in diverse areas
including: special education, legal counsel, residential
facilities, medical insurance and more.
Big Numbers The professionals contacted include:
10,088 diagnostic and counseling agencies, 5020 special
education administrators, 2675 primary care and family
physicians, 700 libraries, 385 specialists who have been
involved with TS in the past, 287 police departments . . .
disability protection centers, social workers, speech and
language centers and more. And the list is still growing.
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VICTORY
Karate and
Choral Winner
Chris Todd outgrew his severe early
tics and went on to rack up many
noteworthy achievements, including a
black belt in karate and membership
in two choral groups (the Kellam
High School Madrigals—East Coast
champions—and the Goodfellas).
Chris says that having TS has
helped him see the best in everyone.
The Practice is Back!
Thanks! Your cards, letters and e-mail to ABC Television made the
difference and “The Practice” is back on the fall schedule (10 p.m.
on Saturdays). Many in the TSA family are looking forward to this
show which will run a moving episode about a young girl with TS
and her fight to stay in school. Special TSA thanks go to Jeffrey
Kramer, President of David E. Kelley Productions, for conceiving
the idea of the TS episode.
Tourette Syndrome Association
Summer 1997
AWARENESS
Chapter Action
TSA celebrates its 25th Anniversary this year and chapters
across the country have big plans for awareness and
fundraising events.
Picnics and more in Northern California The
Northern California Chapter held its Human Race Walk-athon on May 10, in
conjunction with the
Volunteer Center of
Northern California. On
May 17, the Manteca
and Stockton Support
Groups co-sponsored a
Picnic at Northgate
Park in Manteca. On
April 19 in Santa Clara,
workshops addressed
the needs of parents.
Basketball and Calendars in Georgia The
Georgia Chapter’s Celebrity Basketball Event featured
Dan Roundfield (former Atlanta Hawk); Tom Lowe
(Fulton County Commissioner), Teresa Edwards (member
of the U.S. Olympic Basketball Team) and Steve Smith
(star guard for the Hawks). The local NBC affiliate
sponsored the game and the broadcast featured TS
awareness messages.
The Georgia Chapter is promoting a Calendar Contest, open to children of all ages. The Chapter encourages other chapters to purchase the calendars and sell
them for chapter fundraisers. Any Chapter that bought 50
or more units by May 27 received the opportunity to
have three events listed in the 1998 edition.
‘Images of Success’ Conference in Syracuse
New York The Mid-western and Western New York
Chapters will co-host a two-day conference November 14
and 15 at the Rochester Marriott Thruway Hotel. Friday’s
agenda will focus on educational and medical professionals and Saturday’s will concentrate on family issues.
The schedule for the conference includes Guest Speakers
Sue Conners and Sheryl Pruitt, and a medical symposium
chaired by David Lichter, M.D.
Guest Speaker in Washington State Dr. Roger
Freeman was the guest speaker at the Washington State
Chapter meeting on May 19.
Conference in Illinois The Illinois Chapter held a
one-day conference entitled “Tourette Syndrome Meeting
the Educational Challenge.” Sue Conners, TSA board
member and Chairperson of the National Education
Committee, was the featured speaker. Ms. Conners has
spoken extensively on TS and education issues.
Ask the Experts in New Jersey The New Jersey
Chapter brought together an extraordinary panel of
experts—two attorneys, two psychologists and a pediatric neurologist, on April 20 at the Robert Wood Johnson
Hospital in New Brunswick. After panel members
presented information of interest to parents of children
with TS as well as adults coping with TS, there was a
lively Q&A.
5
ASK THE MEDICAL ADVISORY BOARD
In each issue, a member of TSA’s Medical Advisory Board addresses medical questions that affect people with TS and their
families. This issue’s contributor is Thomas L. Lowe, M.D. Associate Professor of Child and Adolescent Psychiatry, Director,
Tourette & Tic Disorders Clinic University of California Medical
Center, San Francisco, California.
Q
My twelve-year-old son has been diagnosed with TS and
ADHD. But his most serious and disturbing symptoms are
angry and violent outbursts in which he becomes both verbally
and physically abusive. These episodes are unpredictable, out of
character and occur with little provocation. Are there any medications that can control these symptoms in people with TS?
A
Problems with angry, aggressive behavior sometimes occur in
children with TS and other chronic illnesses. There are several medications that can be helpful in controlling these excessive
behaviors including SSRIs and tricyclics. Occasionally, medications
used to treat ADHD and TS can also provide some relief from
these symptoms. For specific advice about medications and doses,
you should consult a physician with experience treating children
and adolescents with these medications.
Q
A
My sixteen-year-old son has TS and anorexia. I am wondering if anorexia is part of his OC behavior, and if it can be
treated with TS and OC medications?
Eating disorders such as anorexia have long been viewed as
related to obsessive compulsive disorders and are increas-
ingly referred to as obsessive-compulsive spectrum disorders.
Trials of serotonergic agents (such as those used to treat OCD) are
being actively studied and have led to some positive results. This
is another case in which finding a doctor with the right experience
is important to the treatment process.
Q
A
My nine-year-old has been tentatively diagnosed with bipolar
disorder. Is there a connection between bipolar and TS?
Q
A
Every time the new fire alarm in my workplace goes off my
tics become extreme. Do you know of any similar cases?
The possible relationship between TS and other illnesses is an
area of active study. Although some diagnoses, such as
ADHD and OCD, have been shown to co-occur often with TS, no
clear relationship has been shown with bipolar disorder. Since
bipolar illness can run in families, family history is an important
factor in the diagnosis of children.
Your experience is a reaction often described by people with
TS. Because TS is very sensitive to, and frequently worsened
by stressful situations, your central nervous systems reacts to the
sudden, unexpected fire alarm with a worsening of TS symptoms.
The reaction is usually time-limited, and the symptoms eventually
subside back to original levels. Perhaps you should talk to your
employer about limiting your exposure to sudden excessive
stimuli such as the alarm. Your physician might be able to provide
you with a letter requesting limited exposure to the alarm for
medical reasons.
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NET NEWS: HTTP://TSA.MGH.HARVARD.EDU/
Good and Bad Medicine on the NET There is a
lot of useful medical information available on the Internet but be forewarned about physician “wannabes” offering advice that is not always accurate—and sometimes
not even free!
To make sure you’re visiting an
ethically managed site, check for
the Geneva Health on the Net
Foundation’s code-of-conduct logo.
It’s the ‘Good Housekeeping Seal’ of
health and medical web sites. The
logo assures you that the site abides
by the following six principles:
(1) only qualified professionals provide advice
(2) information does not replace the doctor-patient
relationship
(3) site owner meets requirements for privacy of medical information
(4) sources of information are cited
(5) claims of treatment, product or service benefits are
supported by balanced evidence
(6) contact addresses are provided
The accessibility of up-to-date medical information
available on the net is transforming the doctor patient
relationship. Informed patients can—and do—demand
the best from their doctors. But purveyors of inaccurate
and irresponsible medical information can damage the
trust necessary to make doctors and patients work together as a team. Don’t believe everything you download
and always ask questions.
6
Journal Ads and Gala Tickets
We invite you to join us in celebration of TSA’s 25th Anniversary. Place your Journal ad or order your tickets for the Silver
Ball. Any questions? Call the Development Department at the
national office (718) 224-2999.
TSA Souvenir Journal in conjunction with the Silver Ball
The Pierre Hotel, New York, NY • November 17, 1997
Silver Ball Ticket — $300
Journal Rates (Ad Size 4" x 10")
Back Cover ................... $5,000 Bronze Page ................. $2,500
White Page ................... $2,300
Front or Back
Inside Cover ............. $2,500 Half Page (4" x 4") ......... $2,175
Gold Page ..................... $1,500 Quarter Page (4" x 2") ... $2,125
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Tourette Syndrome Association
Summer 1997
OFF THE BOOKSHELF
Naked by David Sedaris is a critically acclaimed collection of
humorous autobiographical essays including the author’s
experiences with TS and OCD. His wildly imaginative
strategies to disguise his condition helped propel the
book directly to the New York Times best-seller List and
won the book the honor of a Book of the Month Selection. (Little Brown, NY, 1-800-759-0190, $21.95)
Why Michael Couldn’t Hit: And Other Tales of the Neurology
of Sports by Harold L. Klawans, M.D. As a sports buff,
medical detective and neurologist, the author explores
the inner workings of the brains of world-class athletes
including Roger Bannister, Mahmoud Abdul-Rauf,
Michael Jordan and Muhammad Ali. (W.H. Freeman &
Co., NY, 1-800-877-5351, $22.95)
Parenting Toward Solutions: How Parents Can Use Skills
They Already Have to Raise Responsible, Loving
Kids by Linda Metcalf, Ph.D. The book outlines age
specific suggestions, strategies for crisis intervention,
school related problems and conflict resolution. (Prentice
Hall, NJ, 1-201-767-5937, $27.95)
ADD and Adolescence: Strategies for Success from CH.A.D.D.
is a collection of articles by educators, psychologists and
medical professionals offering tips for managing the increased workload of high school, diagnosis, treatment,
advocacy and what happens after high school.
(CH.A.D.D., FL, 1-954-587-3700, $15.00)
Ritalin Free Kids: Safe and Effective Homeopathic Medicine
for ADD and Other Behavioral and Learning
Problems by Judyth Reichenberg-Ullman, N.D., M.S.W.
and Robert Ullman, N.D. Homeopathic treatments have
a long history outside the U.S. The authors present case
reports and testimonials. (Picnic Point Press, WA, 1-206233-1155, $15.00)
Understanding DNA and Gene Cloning: A Guide for the
Curious by Karl Drlica. This book provides the nonscientist with the information necessary to understand
the ethical and medical implications of the current revolution in genetics. (John Wiley & Sons, Inc., NJ 1-908469-4400, $28.95)
○ ○ ○ ○ ○ ○ ○ ○ ○ ○ ○ ○ ○ ○ ○ ○ ○ ○ ○ ○ ○ ○ ○ ○ ○ ○ ○ ○ ○ ○ ○ ○ ○ ○ ○ ○ ○ ○ ○ ○ ○ ○ ○ ○ ○ ○ ○ ○ ○ ○ ○ ○ ○ ○ ○ ○ ○ ○ ○ ○ ○ ○ ○ ○ ○ ○ ○ ○
Recent Scientific Articles*
A Putative Poststreptococcal Case of OCD with Chronic Tic
Disorder, Not Otherwise Specified
DM Tucker, JF Leckman, L Scahill, GE Wilf, R LaCamera, L Cardona,
P Cohen, S Heidmann, J Goldstein, J Judge, E Snyder, A Bult,
BS Peterson, R King, P Lombroso
J Am Acad Child Adolesc Psychiatry, 35:12, Dec 1996, 1684-1691
A Functional-Analytic Approach to the Diagnosis of a
Transient Tic Disorder
JE Carr, CC Taylor, RJ Wallander, ML Reiss
J Behav Ther & Exp Psychiat, Vol 27, No 3, 1996, 291-297
DRD2, DRD3 and 5HT2A Receptor Genes Polymorphisms in
Obsessive-Compulsive Disorder
H Nicolini, C Cruz, B Camarena, B Orozco, JL Kennedy, N King,
K Weissbecker, JR de la Fuente, D Sidenberg
Molecular Psychiary, 1996, 1, 461-465
Profile Comparisons Between ADHD and Non-ADHD Children
on the Temperament Assessment Battery for Children
DE McIntosh, AS Cole-Love
Journal of Psychoeducational Assessment, 1996,14, 362-372
Slowed Reaction Time During a Continuous Performance Test
in Children with Tourette’s Syndrome
DW Shucard, RHB Benedict, A Tekok-Kilic, DG Lichter
Neuropsychology, 1997, Vol II, No 1, 147-155
Covert Visual Spatial Attention in Boys with Attention Deficit
Hyperactivity Disorder: Lateral Effects, Methylphenidate
Response and Results for Parents
JT Nigg, JM Swanson, SP Hinshaw
Neuropsychologia, Vol 35, No 2, 1997, 165-176
New Developments in Behaviour Therapy for Obsessive-Compulsive Disorder
JH Greist
Int Clin Psychopharmacology, II, (Suppl 5), 1996, 63-73
Risperidone in the Treatment of Tourette Syndrome: A
Retrospective Case Note Study
MM Robertson, DA Scull, V Eapen, MR Trimble
Journal of Psychopharmacology, 10(4), 1996, 317-320
Refining Treatment Approaches in Obsessive-Compulsive
Disorder
N Fineberg
Int Clin Psychopharmacology, 1996, II (suppl 5):13-22
New Developments in Obsessive-Compulsive Disorder
Research: Implications for Clinical Management
Y Sasson, J Zohar
Int Clinical Psychopharmacology, 1996, II (suppl 5):3-12
Therapeutic Effect and Safety of Adjunctive Risperidone in
Refractory Obsessive-Compulsive Disorder (OCD)
L Ravizza, G Barzega, S Bellino, F Bogetto, G Maina
Psychopharmacology Bulletin, 32(4), 1996, 677-682
Clinical Aspects of Obsessive-Compulsive Disorder and
Syndromes: Data from Phase 2 of a Large French Clinical
Sample
EG Hantouche, M Bourgeois, M Bouhassira, S Lancrenon
L’Encephale, 1996, XXII:255-263
Tourette Disorder: A Cross-Cultural Review
D Staley, R Wand, G Shady
Comprehensive Psychiatry, Vol 38, No 1 (Jan-Feb), 1997, 6-16
*The Tourette Syndrome Association cannot provide copies of the
papers listed above. Please refer to a local medical library.
TSA is grateful to GATE Pharmaceuticals, a Division of Teva Pharmaceuticals, U.S.A., for providing us with support to underwrite the
publication of this column. Professionals and families continue to tell us how valuable these references are for all who wish to remain
current on research activities relevant to TS.
Tourette Syndrome Association
Summer 1997
7
TOURETTE SYNDROME
ASSOCIATION, INC.
42-40 Bell Boulevard
Bayside, NY 11361-2820
Barbie Dolls and
Research Money?
Americans spend more on cut flowers and Barbie
Dolls than on funding the N.I.H. (National Institutes for Health), according to Mary Wooley, President of Research! America—a broad-based coalition supporting a variety of bio-medical research
endeavors.
TSA, a charter member of Research! America,
looks to its membership to support increased
funding of important medical research. Grass roots
efforts include lobbying politicians, contacting
local TV and radio stations—even sending e-mail
to the White House: president@whitehouse.gov.
Non-Profit Org.
U.S. POSTAGE
Smithtown, NY
Permit No. 587
PAID
When Your Grandchild has TS
A-103 — $3.00
Contemporary Approaches to Pharmacotherapy in Tourette’s Syndrome & Obsessive
Compulsive Disorder
M-123 — $4.00
Behavior Problems and Severity of Tics
M-132 — $3.00
Historical Vignette: Tolstoy’s Description of
Tourette Syndrome in Anna Karenina
M-304 — $2.00
Medications for the Treatment of ADHD
M-310 — $4.00
Learning Difficulties in Children with TS
M-311 — $2.00
“Just Right” Perceptions Associated with Compulsive Behavior in Tourette’s Syndrome
M-339 — $3.00
Coprolalia in Younger Patients with Gilles de la
Tourette Syndrome
M-345 — $3.00
Clinical Management of Tourette’s Syndrome &
Associated Disorders
M-355 — $3.00
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The Best Sellers in the 1997 Catalog
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TSA’s Top 10: