Reshaping Care for Older People: ‘A look into the rear-view mirror’ –discussion paper based on further insights from national data May 2013 Peter Knight BSc JIT Programme Lead on Partnership Information Summary This discussion paper presents a retrospective analysis of trends on a selection of national measures which have relevance to Re-shaping Care for Older People in Scotland. It also weaves in additional analyses of the data in a way which takes account of the demographic shifts which have occurred during the past decade. The paper discusses some of the factors which are likely to have influenced the trends. With an eye on future changes to come, the report adds further insight and awareness about the magnitude and direction of changes which have already occurred in the care and support of older people in Scotland. In conclusion it draws attention to some of the key issues referred to in this paper and which the JIT is addressing with stakeholders. Introduction By 2009 a set of analyses including forward projections of age related emergency admissions to hospital and potential social care needs were sharply heightening awareness of the full potential impact of population change in Scotland on health and care for older people. It was evident from the analyses, which were presented at a series of meetings of Scotland’s leaders in the health and social care field in early 2009, that change was essential. The conclusion was reinforced by an emerging and largely unprecedented fiscal climate. With this backdrop serving as context, the Reshaping Care for Older People Programme was established, providing a national framework for changes that would be necessary in the short, medium and longer term. The Change Fund was introduced in 2011/12, providing the catalyst for a cohesive response from partnerships engaging in what is essentially a whole system transformation programme. . This report looks at some of the trends in national measures up to the establishment of the Re-shaping Care programme and more recently. What these trends reveal is that there is no fixed status quo, looking back – change has been a continuous presence. To illustrate this, the analyses presented here not only show the actual trends based on the published figures for each year shown but also show a ‘projected trend’ which are the values obtained by applying the 2003 (or 2002/03) rate to the population aged 65+ in each year thereafter. This provides a way of 1 seeing how far the actual trend has diverged from the trend which would have occurred had population change been the only factor at play. The specific aspects of care included in these analyses are: long stay care home residents; local authority home care (and Telecare); and, for people admitted as an emergency to Scotland's general acute hospitals: beddays used and admission numbers. Care and support of older people is multi-faceted and each element of the analyses shown here adds to our overall understanding. Setting the different elements alongside each other has the additional benefit that it is possible to reflect how the different trends differ. All the analyses are based on routinely collected national data and have the potential to be replicated locally. The information provided here is relatively high level and it is beyond the scope of the paper to give a comprehensive account, with appropriate evidence, of all the factors behind the trends. Reference is made in the text however to key factors which have reasonable credibility and which are likely to have at least contributed in some respect to the direction of the trends. Demographic context The backdrop to this paper is the changing demographics in Scotland and the way these bear upon health and care. Both health and (social) care needs are very influenced by age, with a greater need for care and support, in general, in later life. Population projections show that the population structure of Scotland is getting older and that this feature is going to accelerate during the next few decades. As is shown in the table the growth in numbers of people aged 65 or over, or 75 or over, which occurred in the decade up to 2011 is expected to be superceded by an even greater rise in numbers in those age groups in the current decade and decade after that. Actual and projected change in population aged 65+ and 75+, Scotland 65+ 75+ In ten year period: Actual increase 2001 to 2011 Projected increase 2010 to 2020 Projected increase 2020 to 2030 thousands 85.2 195.3 249.8 52.5 92.9 157.1 source: GRO Scotland About the analyses Each of the analyses in this paper uses the same general approach: the trend in the actual activity in the period from 2003 to 2011 is presented, alongside a calculated ‘projected trend’. The projected trend shows what the trend would been if nothing had changed (or if changes had cancelled out) since the start of the period (i.e. 2003 2 or 2002/03), apart from the known changes which had occurred in the size and structure of the 65+ population. The difference between the two sets of figures (i.e. actual and projected) in each chart show the net effect of changes in service delivered, adjusted for changes in population structure, since 2003. Note that in all the bar charts below the y-axis scales do not start at zero. 3 Care home residents The actual number of older people resident long term in care homes at the census point at the end of March has stayed fairly level since 2003 (Chart 1). Because of the growth in the 65+ population this means that the proportion (or rate) of older people supported long term in care homes has actually gone down in the period. The projected numbers shown on the chart provide some measure of this difference. Specifically they indicate what would have happened had the long term resident rate remained constant from 2003 onwards. By the latest time point on the chart (2011) the actual number of residents is 17% below the projected number based on the 2003 rate. The difference between the actual and the projected is a reflection of changes which must have occurred in the period. It is probable that a number of factors account for the difference: for example, changing thresholds regarding the necessity of admission to a care home and changing preferences of older people (and their families) could affect the rate. The availability of a wider basket of options (eg see Home Care below and note 1 of the Appendix) which enable people to live longer in their own homes may be a critical factor. Chart 1 Trend in Care Home residents aged 65+ in Scotland: actual vs projected numbers 40000 N of residents 65+ 35000 30000 Projected 25000 Actual 20000 15000 2003 2004 2005 2006 2007 2008 2009 2010 2011 Year Home care Between 2003 and 2005 the total number of people provided with local authority funded home care rose in Scotland, in line with the demographic changes in the population aged 65+ (Chart 2). After 2005 there was a sustained year-on-year reduction in the number of individuals receiving home care, through to 2011. In the same period the projected number (based, as before, on the 2003 rate) rose steadily year-on-year and the net effect, the difference between the projected and the actual, 4 has grown each year. By 2011 the actual number receiving home care is 19% below the projected number. A range of factors may have contributed to this trend including changes in the application of local eligibility criteria or a move away from the use of low intensity home care with substitution by other forms of care and support (e.g. Telecare – see below). Chart 2 Home care clients 65+ N of clients 65+ 70000 60000 Projected 50000 Actual 40000 30000 2003 2004 2005 2006 2007 2008 2009 2010 2011 Year A somewhat contrasting trend is found with the number of people provided with intensive home care (i.e. 10+ hours home care). Here the trend in the actual numbers receiving these intensive level packages of home care is higher (+13% in 2011) than the projected trend (Chart 3). This means that a greater number of people are provided with 10 or more hours of home care than would be expected on the basis of population change alone since 2003. 5 Chart 3 An analysis of the total hours of home care provided by local authorities reveals a similar divergence between actual and projected. In 2011 the actual hours provided are 20% higher than the projected (Chart 4). (Note that this analysis differs in some respects from the other analyses presented. The hours of home care relate to clients of all ages. The projection method used is slightly different from the method used elsewhere – see note 2 of the Appendix) Chart 4 6 Drawing these analyses together, it is evident that there has been a steeper than projected rise in hours of home care provided in the period from 2003, whilst the overall number of clients receiving home care has fallen in the same period. This suggests that while the ageing of the population brings with it the likelihood of higher demand for care and support, in terms of the allocation of home care resources local authorities have increasingly focussed on people with higher needs. Viewed alongside the trend information on long term care home resident numbers it may be that the relatively static number of care home residents is in part a flip side of the higher-than-expected rise in home care provided. Thus it may be that these trends are the reflection of a greater emphasis towards care and support at home even for people with higher levels of care need. Looking ahead, the community/home based improvement and development initiatives which are emerging or underway, including re-ablement and intermediate care (including further flexibility in the use of care homes), and the application of self-directed support, will lead to even more marked changes in these trends. Telecare provision As a corollary to the analyses above it is also relevant to look at the emerging figures on telecare provision by local authorities. Telecare is strongly orientated towards the prevention end of the care and support spectrum and has become a significant feature in delivery of support in an integrated system. Although trend data are not available nationally we know there has been a growing provision of telecare in recent years, in part supported by Scottish Government initiatives and funding and with the active support of the Joint Improvement Team (JIT) through the national Telecare Programme. We do know from the 2011 figures that telecare (mainly community alarms) is now provided to most people who receive home care and to an even larger number of older people who do not receive home care (Chart 5). The likely extension of the use of telehealthcare in the future as part of a wider integrated care and support package for people with long-term conditions and/or at risk of falling is another reason for assuming that the trends of the past decade discussed earlier may not reflect future trends. 7 Chart 5 Local authority services: Telecare & home care Scotland 2011 Telecare no home care 21% Home care+Telecare 54% 25% Other home care clients Although constrained by the single year of data available, it is interesting to note that the dark bar (the ‘actual’) in the 2011 column in Chart 2 would double in height were it to include also the Telecare-only clients. Emergency hospital inpatients: Occupied beddays The benefits to older people of avoiding emergency admission to hospital, except where it really is clinically necessary, have been widely discussed. Emergency hospital inpatient stays are also known to account for the largest single area of expenditure on the care and support of older people. There is an existing HEAT target designed to lead to reduced hospital bedday rates by people aged 75 and over, thus focussing specifically on the age group most likely to use hospital inpatient beds. For consistency with the earlier analyses in this paper, the analyses below look at the 65+ age group but the general conclusions also apply to the 75+ age group. The trend in the use of hospital inpatient beds following emergency admission since 2003/04 is, in general, rising until 2008/09 (Chart 6). As mentioned earlier, the Reshaping Care programme was launched in 2009 and building on the earlier initiatives within the long term conditions programme added a sharper focus to efforts to change the direction of this trend. By 2010/11 the number of beddays had fallen to its lowest level since 2003/4. Using a similar approach to the method used on the social care data, the 2002/03 rate of beddays has been applied to the population in each of the subsequent years 8 to give projected values up to 2010/11. As is evident from the chart, if the increase in beddays had kept in step with the increasingly older population after 2002/03, the additional bed requirement would have been substantial. In fact even up until 2008/09 the number of beddays based on the 2002/03 projection is higher than the actual beddays used. From 2009/10 onwards, the gap between the projected beds and the actual beds has grown substantially, with a difference of 11% by 2010/11. Chart 6 Hospital emergency admission 65+: occupied beddays 3300000 beddays 3000000 Projected beddays 2700000 2400000 Actual beddays 2100000 3 4 5 6 7 8 9 0 1 2/0 03/0 04/0 05/0 06/0 07/0 08/0 09/1 10/1 0 20 20 20 20 20 20 20 20 20 There are likely to be many reasons for a growing divergence between actual and projected. Partnerships have worked hard to avoid unnecessary delays in moving people on from hospital once their care and treatment is complete and there has been a well documented reduction in the number of delayed discharges. This success in partnership working will undoubtedly have made a contribution. There is also evidence from surveys of a long term improvement in healthy life expectancy in the population at large which might well have had some impact. After 2008/09 however, where a tipping point occurs in the trend, it is likely that the Re-shaping Care and long term conditions programmes, in combination with associated HEAT targets, will have been essential factors. For Scotland as a whole the challenge remains to sustain and improve upon these trends. This would allow resources to be released to deliver on the longer term aims of the Re-shaping Care programme – to enable older people to live well at home as independently as possible. The projections which are referred to in the first sentence of the introduction showed that the demographic changes could lead to a need for more and more hospital beds in Scotland unless alternative care and support, 9 including anticipatory and preventative measures, can be developed. This conclusion is still as valid today as it was in 2009. Even in the short spell since 2008/09 had the bedday rate per 1000 population aged 65+ continued at the 2008/09 level to 2010/11 almost 500 beds more would have been required in Scotland’s hospitals. Numbers of emergency admissions The HEAT targets rightly focus on bed days because of the consensus around the potentially detrimental effect for older people associated with prolonged stays in hospital, higher risk of long term care and the associated costs. It is also important however to retain interest in the number of emergency admissions: although many emergency admissions are entirely appropriate, the process of emergency admission to hospital is potentially disruptive for the patient and their families and the front-end costs of emergency care are significant. A year on year rise in the number of emergency admissions of older people has been observed since 2003 but is especially evident from 2006/07 onwards. In 2006/07 the gap between the actual and the projected volume increased markedly and has been sustained since then (Chart 7). In 2010/11 the actual number of admissions was nearly 7% higher than the projected number. Emergency admissions, arriving through A&E or directly referred into hospital, continue to challenge the flow through acute care. Chart 7 Hospital emergency admissions 65+ emergency admissions 240000 220000 200000 Actual admissions 180000 160000 Projected admissions 140000 120000 /03 /04 /05 /06 /07 /08 /09 /10 /11 02 003 004 005 006 007 008 009 010 0 2 2 2 2 2 2 2 2 2 Year Other analyses (not shown here) show that a much bigger percentage rise has occurred in admissions which result in short stays in hospital (e.g. 1 day or less) than 10 the percentage rise in admissions which result in longer lengths of stay. There are likely to be a mix of reasons for this pattern including: more older people with complex and multiple conditions managed in the community; changing thresholds for emergency admission for specific conditions; influence of algorithm driven referrals for chest pain, stroke/ TIA and breathlessness, availability of senior decision makers; access to diagnostics; access to ambulatory alternatives to emergency admission; and unintended consequences of other targets such as the four-hour A&E standard. Bundling together the analysis on beddays and actual admissions of older people admitted as an emergency it is clear that whilst much is being achieved regarding reduced hospital bed use the number of emergency admissions is still an impediment to progress and continues to rise. With support from the Change Fund many of the emerging initiatives in local partnerships have the reduction of admissions or support for earlier discharge as intended outcomes. If partnerships are able to achieve success with these initiatives, drawing upon the improvement support of the Joint Improvement Team and others as required, they will have gone a long way towards the re-shaping of care and support for older people which is absolutely necessary for Scotland. 11 Conclusions 1. The paper features key trends in a number of areas of activity in care and support for older people. It presents new analyses using a method which illustrates what the trends might have been had the increasing number of older people, in this case people aged 65+, been the determining and only factor which changed in the period covered. The bringing together here of different measures and the use of the latter method means that we are able to contrast the different activities and draw wider inferences than is possible from a fragmented analysis of each measure individually. 2. The differences between the actual trends and the population driven trends (‘projected’) shows the net impact of a mix of other factors including changing local practice and policies. These changes have been achieved, in part at least, from the continuing improvement initiatives which have been a feature in Scotland, as well as the result of many individual local decisions. The available data largely pre-date the impact of the Change Fund which should drive further change. 3. One of the inferences suggested by the social care data is that there is a partial correlation between the static or falling number of care home residents at Scotland level, despite the rising number of older people since 2003, and the trend in the number of hours of home care which have grown even more than would be expected as a consequence of the expanding population. While home care client numbers have fallen overall since 2005, there has been a rise in the number receiving intensive levels of home care. Intensive levels of home care are likely to be possible alternative form of care and support to long term care home admission. 4. Orientated strongly towards the prevention end of the care and support spectrum, Telecare provision has become a significant feature. The number of people who were provided with Telecare support in 2011 outstrips the number getting home care. 5. Convincing progress at Scotland level towards a reduced reliance on inpatient beds for emergency care has been achieved since 2008/09. The presence of a HEAT target in this regard will help partnerships focus on further progress in the next few years. This is a sentinel area of focus within local Change Plans and an area where the JIT is actively providing support. 6. A sustained rise in the number of older people being admitted as an emergency continues to challenge acute care services. Much of the growth in these admissions is for short spells in hospital. This key issue has been identified as a specific area for JIT and others to focus improvement effort with local partnerships, along with the on-going improvement work to reduce delayed discharges. PK JIT May 2013 (original version issued to partnerships in March 2013) 12 APPENDIX Technical notes (revised May 2013) Calculation of projected numbers In the case of the care home residents, home care clients (ie not the 10+ hours or the care hours overall) and the hospital admissions projections the calculation involved applying the age related rate at 2002/03 or 2003 to the estimated population in each year. In the case of the 10+ hours home care and home care hours it was not possible to use this method and an alternative approximation of was used. Details are available on request. 1. The following observation is made by Scottish Government’s Analytical Services Division which was responsible for collecting Care Home Information for much of the period covered by the analysis: Introduction of standards by Care Commission resulted in closure of small residential care homes unable to meet new standards. New Care Homes tend to be large purpose built Nursing Homes. Evidenced by increasing size of care homes and shift towards private sector (older people care homes.) Care hours projection figures 2. In addition, the published home care hours data are not age-specific insofar as they are able to be used in the general method used for projecting the 2003 rates. Because of this a different, less reliable, method for projecting the care hours is adopted here. The projections for the care hours uses all ages data adjusted each year by an estimate of the growth in the population at risk in that year. The reliability of this method is uncertain. If better alternative methods are identified these will be used in the future. Data sources: Care Home residents: Home care & Telecare: Emergency admissions: Population: ISDScotland/ASD H&SC ASD ISDScotland NRS (GROScotland) 13