Samuels 1 Jennifer Samuels Professor Ness-Santana English 116 1 November 2014 The Power Governing the Uterus Women’s reproductive health asks a very interesting question: who has the right to govern the uterus and the rest of its supporting parts? History is filled with several examples of women being unable to decide how to govern their own health. A current example is addressed in the recent bestseller, The Immortal Life of Henrietta Lacks. In 1951, a woman named Henrietta Lacks had cancer, was experimented on, and was left infertile. To this day, it is unknown if she was ever given a choice in participating in the experiment, or even had the knowledge to understand what was being done to her. Surprisingly, this is a topic that continues to be challenged in today’s society. By addressing the historical influence as well as the manner in which women’s reproductive rights continues to impact politics and medicine throughout modern day society, it can clearly be seen that, try as they may, women are not the governors of women’s reproductive health. There are many historical medical cases that were instrumental in the shaping of society’s views on women’s reproductive health. However, the three that really had an impact concerning female’s reproductive rights were the hysteria, Mississippi appendectomies, the case of Henrietta Lacks, and birth control. Hysteria was the first ailment that was applied only to women, thus defining them as weak creatures that were susceptible to this disorder that was, by definition, linked to the uterus. It is seen in history as early as 2000B.C. and as late as the early 20th century. The historic definition of hysteria is in terms that relate it to the uterus or the womb. Samuels 2 In the Hippocratic corpus, hysteria is a disease of the womb, treatable with exercise and massage. Plato’s reference to hysteria as a disease caused by the uterus, ‘an animal inside in animal,’ is well known…. Galan (ca. A.D. 129-200), the physician’s physician for centuries after his death, described hysteria as a uterine disease caused by sexual deprivation , to which women were particularly susceptible. (Maines 23-24) Women were given this diagnosis if they had symptoms which could include fainting, edema or hyperemia, nervousness, insomnia, muscle spasms, shortness of breath, loss of appetite for food or sex, the tendency to sometimes cause trouble, or any other unfavorable reaction. The cures could be as pleasurable as a manually stimulated orgasm by a doctor or midwife, or the patient could have been prescribed with rest cure, which could lead to psychosis. These were two very different prescriptions that could have been given, yet women did not get a choice in which they could receive. This allowed men to view women as inferior because of this disease that had a wide range of symptoms all linked back to the uterus. Men were often put in a position of power or control over a woman with hysteria, which is depicted in the short story, “The Yellow Wallpaper,” by Charlotte Perkins Gilman. The protagonist was a women who was diagnosed by her doctor and husband, as having hysteria and needed to rest in a room with barred windows, a locked door and a gate at the top of the stairs. The antagonist is her husband, who prescribed what was common for the times, rest to cure her of her ailment. Since her mind was not stimulated for three months she entered a state of psychosis in which she saw women coming out of the ugly, yellow wallpaper that was plastered all over the walls of the room in which she lived. This short story is, “regarded as an important early work of American feminist literature, Samuels 3 illustrating attitudes in the 19th century towards women’s physical and mental health” (Perkins vii). It was based off of Gilman’s own bout with severe depression. This is a classic example in high culture that shows the importance of not assuming that all symptoms that could ail a woman are the result of a disease that originates in the uterus. The Mississippi appendectomies were involuntary surgical sterilizations against all women from roughly 1934 through the 1980’s. It is clear that women of color were the main target. The Mississippi appendectomies were discovered, “[I]n June 1973, [when] the abuse of two young sisters in Montgomery, Alabama, exposed the decades of stolen African American fertility” (Washington 203). A lawsuit was filed and it was then that, “lawyers discovered that 100,000 to 150,000 women had been sterilized using federal funds and half of these women were black” (204). Many methods, including coercion and trickery, were used to force a woman to have a hysterectomy. It was said that“[i]n the South, rendering black women infertile without their knowledge during other surgery was so common that the procedure was called a ‘Mississippi appendectomy’” (204). The Mississippi Appendectomies is a very specific example that demonstrates the lack of control that women had over their medical or reproductive rights. Worse still, is the fact that the people who were in a position of power over these women were not family members; it was the doctors making all of the decisions for the patients. The most significant case surrounding consent and fertility was the case of Henrietta Lacks. She was a poor black woman who discovered in January 1951 that she had cervical cancer. Doctors were treating her with the approved remedy of the time, radium. Towards the end of her treatments, Henrietta asked her doctor when she’d be better so she could have another child. Until that moment, Henrietta didn’t know Samuels 4 that the treatments had left her infertile…. [I]n Henrietta’s medical record one of her doctors wrote, ‘Told she could not have any more children. Says if she had been told so before, she would have not gone through with treatment.’ But by the time she found out, it was too late. (Skloot 47-48) All women can feel empathy for Henrietta. To have been given a treatment without being told that pregnancy is no longer an option, is devastating. This goes against a women’s right to choose when to reproduce. Not giving Henrietta Lacks the option to decide on whether or not to continue with the treatment is appalling. After all, pregnancy is often seen as a desired physical state for women to be in; so much that women now use various pharmaceutical and holistic treatments in order to become pregnant. To have the ability to reproduce taken away without one’s knowledge must be so difficult, yet her doctor’s showed no care for what this women went through. Birth control has had a very interesting history with regard to its use, which has also helped shaped women’s reproductive health today. While women have been using modern birth control for several decades now, during the beginning stages most women were unaware of the potential risks or side effects that occurred with its use. Birth control was seen as a way to limit the African American population during a time when eugenics was popular. Clinics were built in predominantly African American neighborhoods from 1939 through the early 1990’s, to introduce the African American population to birth control. African Americans were using FDA approved birth control years before Anglo women were using the same medication. This was just so that researchers could become aware of any side effects and alter the medication to make it more desirable to Anglo women. The proliferation of birth control clinics were seen as unethical because, “they were [also] intended to selectively reduce births within the group…. Some Samuels 5 contraceptive initiatives did richly earn the ‘genocide’ label” (Washington 201). This clearly demonstrates the power that the United States government had over controlling a group, in this case black women. These historical events influenced modern medicine, with regards to women’s reproductive health, in several ways; the most notable would be the Belmont Report. It is partly because of the aforementioned cases, as well as many others, that led the federal government to create the National Commission for the Protection of Human Subjects of Biomedical and Behavioral Research (NCPHSBBR), in the United States. “The National Commission drafted the guidelines that have become known as the Belmont Report, which articulated the principles of respect, beneficence, and justice in conducting research” (RamaRao 231). This would prevent women from going into surgery to remove a gallbladder, only to later learn that their doctor took their uterus as well. This document provides much needed structure and continuity throughout the medical community by providing ethical guidelines as well as addressing problems before they arise. The manner in which the Belmont Report does this, is by clearly defining various medical terminologies such as research, practice, informed consent, disclosure, comprehension, and voluntary decision making. However, the Belmont Report is not perfect, and the flaw is acknowledged once the difference of power is brought to light. While it is remarkable to know that the Belmont Report exists to protect citizens from doctors with a god-like complex, a person could be faced with a situation in which there is an imbalance in power between themselves and their caregiver. After all, doctors are well educated and respected in society. Patients often believe that they do not have the right to tell a medical professional that they do not agree with a diagnosis or treatment. An example of this situation is when a “physician conducting a study also provides routine care. Patients may feel pressure to Samuels 6 join a study in order to please their physician/ provider or because they fear that choosing not to participate will result in lower care” (233). Many patients may not have the financial means or transportation to simply change physicians. This creates an environment in which the doctor is given an abundance of power. Only when the power has become equilibrated will patients really trust that doctors have their best interest at heart, and maybe then doctors will not be constantly under scrutiny. However there are a few doctors that are making such great attempts to please their patients they choose to withhold medical information that could be very beneficial to the patient. One case that is very specific to women’s reproduction is with reference to the Human Papillomavirus (HPV) vaccination. Currently a vaccine has been approved to prevent and protect prepubescent children from becoming infected with HPV later on in life. This is the same virus that can cause cervical cancer in women, penile cancer in men as well as genital warts. HPV is a sexually transmitted infection and the vaccine is most effective when given to young people before they become sexually active. The controversy surrounding this vaccine only lies with inoculating the girls, and not the boys, because of the gender stereotypes regarding sex in this society. This poses a problem to doctors that may not know the religious, moral, or ethical views of parents of their patients. Less than a year before a vaccine to prevent human papillomavirus (HPV) infection in females was approved… fewer than half of U.S. pediatricians surveyed said that they would offer such a vaccine for 10-12 year-old females if one were available. A majority of respondents felt that parents would be upset if they offered to vaccinate a 10-12 year-old against an STD. (Hollander 121). Samuels 7 Politically this puts doctors in a tough place; they can either do what is best for the patient or what’s best for the parent. As it was clearly demonstrated, most doctors would choose the latter, because the parents are paying the bill. Political representatives have taken it upon themselves to use their belief systems to dictate what should be done in modern medicine. An example of politics stepping in and governing the masses is very apparent in the controversial topic of access to emergency contraceptives. “Currently there are four FDA-approved products on the market. Three… are approved for preventing pregnancy when taken within 72 hours after unprotected sex…. The fourth product, Ella can be taken up to 5 days after unprotected sex” (Guttmacher 1). While it is nice to have options; there are still, “six states [that] explicitly allow pharmacists to refuse to dispense contraceptives, including emergency contraception” (1). Women need these options, however politicians are taking the bible and using it dictate women’s reproductive health options. The issue of reproductive freedom, or lack thereof, can be seen all throughout politics. Issues such as abortion have been ripping apart the political parties, as well as the nation. Betty Friendan, author of The Feminine Mystique, asked her readers to, “Consider in 1996 that the issue of abortion as women’s choice was the crucial issue splitting the Republican party” (Friedan 20). Since then women have made gains to prove their political power by establishing that women are more likely to register to vote than men. This increases their political power by increasing their strength in numbers. Some of the topics that influence women to vote for a particular candidate include issues such as, “family leave, the right to women not to be forced out of hospitals less than 48 hours after giving birth, the right of parents to take time off to take children to the dentist, or for a parent-teacher appointment became serious political business” Samuels 8 (Friedan 20). This clearly demonstrates the manner in which women have made advances towards shifting the political power off of men and onto themselves. Fast forward to January 2011, and one would be amazed that women have overcame such obstacles such as the right to choose. The Senate in the state of Mississippi made it illegal to, “intentionally assist a minor in obtaining an abortion without the parental consent mandated by state law, even if the procedure was performed in a state where parental involvement was not required” (Guttmacher Monthly). Just to clarify, if a minor from Mississippi goes to a state where it is legal to obtain an abortion without parental consent, the doctor can be charged with committing a crime, because it is not legal for a minor to obtain an abortion without parental consent in Mississippi. This really is a backward bill that just recently came out of the state. All females need to have access to safe abortions so that they are able to protect themselves from the dangers of illegal abortions; after all women in desperate situations are capable of acting out in desperate ways. While it might seem depressing that women’s rights are being challenged, there are still some states that agree with the current United States Secretary of State, Hillary Rodham Clinton, when she asserted, “’women’s rights are human rights’ to the whole world” (Friedan 25). Take California for example, they were the pioneers when it came to enacting a safe haven law that allows mothers to abandon their newborns at safe haven spots, such as hospitals, police and fire stations. This allows mothers another option in case they are either against abortion, they were unable to obtain one, or maybe the mother was unable to set up a formal adoption prior to delivering the child. Regardless of the reason, this is just another manner in which a mother is able to put the infant up for adoption. That state of California makes it known that Samuels 9 The Safely Surrendered Baby Law responds to the increasing number of newborn infant deaths due to abandonment in unsafe locations. First created in January 2001, the Safely Surrendered Baby Law was signed permanently into state law in January 2006. The law’s intent is to save lives of newborn infants at risk of abandonment by encouraging parents or persons with lawful custody to safely surrender the infant within 72 hours of birth, with no questions asked (Babysafe.ca.gov). This law considers trends, not personal views or opinions, in making an attempt to prevent other mothers from killing their newborn infants out of desperation. Currently, there are 34 states and Washington D.C that allow a person leaving the infant to remain anonymous. It is important for politicians to recognize instances when their personal beliefs hinder those around them. There are many historical cases, such as hysteria, Mississippi appendectomies, the case of Henrietta Lacks as well as birth control that have shaped the way we view medicine today. While it can be seen that some states, such as California, are doing their best to provide safe options to its citizens, there are others, such as Mississippi, that are trying to keep this country in a medieval society. The only option is to remain vigilant, and let each state’s representatives know that this country does not tolerate patients not having the power to govern their own bodies. The case of Henrietta lacks happened only 60 years ago, and birth control clinics used for eugenics was still happening up until last decade. By studying these atrocious medical histories it is then that politics and medicine can change to provide safe options for women and their reproductive health. Samuels 10 Works Cited ”Emergency Contraception” Guttmacher.org. Guttmacher Institute. 1 Nov. 2011. Web. 15 Nov. 2011. Friedan, Betty. The Feminine Mystique. New York, NY: Norton & Company Inc. 2001. Print Friedland, Barbara, Saumya, RamaRao, John W. Townsend. “A Question of Ethics: Research and Practice in Reproductive Health.” Jstor.org. Studies in Family Planning. 38.4. Dec. 2007. PDF file. 13 Nov. 2011. Gilman, Charlotte Perkins. The Yellow Wallpaper. Forgotten books.com 2008. PDF file. 13 Nov. 2011. Hollander, D. “Many Pediatricians Are Reluctant to Vaccinate Young Females against Human Papillomavirus”. Jstor.org. Perspectives on Sexual and Reproductive Health. Guttmacher Institute. 39. 2. June 2007. PDF file. 13 Nov. 2011. “Monthly State Update: MAJOR DEVELOPMENTS IN 2011” Guttmacher.org Guttmacher Institute. 1 Nov. 2011. Web. 15 Nov. 2011. “Safely Surrendered Baby Law” Babysafe.ca.gov. Department of Social Services. 2007. Web. 13 Nov. 2011 Skloot, Rebecca. The Immortal Life of Henrietta Lacks. New York: Broadway Paperbacks, 2010. Print. Washington, Henrietta A. Medical Apartheid. New York: Harlem Moon, 2006. Print. Samuels 11