Module 4: Understanding Emotional Me & U-First! …….. Understand me, a Person with dementia Program Goal: “Using U-First!, every Person with dementia will have an improved quality of life as a result of increased understanding and improved communication between Partners in Care.” Use these Notes pages to record key information for future reference. Combine the Notes pages from all eight modules to create a Me & U-First! notebook. Add more pages if you need them. Remember that the narration and on-screen text are different. You may find it easier to listen to the narrator first and then read the on-screen content. Read the instructions on the U-First! Web site, click on the Notes page, and go through the Help Module for tips on using the modules. Remember! Keep Mimi and Joe’s P.I.E.C.E.S. TM charts handy and add what you learn about their emotional well-being under the first ‘E’. Module 4: Understanding the Emotional Aspects of Aging and Dementia Adjustment and Loss with Aging A Person with dementia may be adjusting to many losses and adapting to changes such as a diagnosis of dementia or the need to move to long term care. Coping Strategies How would you describe your coping style? How do you cope with stress? A basic human need is to have meaningful activity. The key message for caregivers is to avoid taking over too much as the Person may be left feeling bored or useless. Mental Health The stigma of mental illness or dementia may prevent someone from asking for help or reporting their symptoms. They may be embarrassed about their symptoms or worry that you will treat them differently. Depression Depression is a common mental illness that affects a Person’s thoughts, feelings, behaviour and physical health. It is not just sadness or weepiness. Have you interacted with a Person with depression? What was that like? Page 1 of 3 2008 Module 4: Understanding Emotional Many older people will not use the word depressed to describe how they are feeling. The flags that you identify and share with your Partners can lead to assessment, diagnosis and possible treatment. The flags of depression: S – sleep I – interest G – guilt E – energy C – concentration A – appetite P – psychomotor S – suicidal ideation Anxiety The flags of anxiety: Psychotic and other symptoms Hallucinations: Delusions: Illusions: Confabulation: Some helpful observations to share with other Partners: -Does the Person seem frightened for their safety? -Are their symptoms upsetting to others? Is their family or room-mate frightened? -Can the Person talk about other things or are they stuck on one idea? -Is the Person acting on their belief? Some examples are refusing to eat because they feel their food is poisoned or calling the police because they believe they are being robbed. Tips Spirituality Each Person’s understanding of spirituality is unique to them and is not limited to an affiliation with an organized religion. Page 2 of 3 2008 Module 4: Understanding Emotional What do we Understand now about Mimi and Joe? Fill in their P.I.E.C.E.S. TM charts! Scenario: Mimi Describe this scenario with Mimi: Understanding: My knowledge that all behaviour has meaning. “What is Mimi trying to tell me?” Flagging: My observations of the Person’s behaviour. “What am I seeing and what has changed?” Interaction: How I relate to the Person, family/caregiver and other health care providers “How does Mimi interpret what I say and do?” Reflection and Reporting: My time to think about what I’ve learned about the Person, the meaning of the behaviour and how what I share improves care “What do others need to know from me to improve Mimi’s care plan?” Support: My supportive and creative care strategies “What am I doing to bring out Mimi’s strengths?” Team: How the care team that I am a part of works in the best interest of the Person “What can we do together?” Summary It is very important to understand the impact of emotional well-being on a Person with dementia. Issues such as adjustment to loss, coping strategies, mental illnesses such as depression and symptoms such as hallucinations and delusions may be affecting the Person’s abilities and behaviour. The frontline worker may flag changes requiring assessment and treatment but also adapt their interaction to be more supportive of the Person with dementia. Reflecting on their experience with an individual with dementia and then reporting their observations allows the whole team to contribute to an accurate care plan for the Person. The next Module is about Understanding the Person with dementia and their capabilities. Use the ‘Back’ button to return to www.u-first.ca for the next module or Resources. Page 3 of 3 2008