1 Community development: How effective is it as an approach in health promotion? John Raeburn and Tim Corbett University of Auckland Paper prepared for the Second International Symposium on the Effectiveness of Health Promotion University of Toronto May 28-30, 2001 Note: This version of this paper was submitted in time to go on the symposium website before the symposium itself. It is still in process, and a more finished version will be available later. But the basic arguments and conclusions are here. 2 The aim of this paper is to look at how effective a community development approach is in health promotion. We hesitate to call community development (CD) a ‘strategy’ – rather, it is a whole distinctive way of thinking about health promotion (HP). Calling it a ‘strategy’ makes it seem very instrumental and calculated. We argue here that CD is a good in its own right – that it is a way of looking at the world which can be valued independently of its effectiveness. It embodies many of the dearest held values and worldviews of those of us who are passionate about HP as an endeavour, and coupled with the concepts of ‘empowerment’ and ‘equity’, probably represents the ideal heartland of HP. Indeed, to take this supposedly ‘cool’ look at CD within an ‘evidence-based’ framework is a paradox – CD is a matter of passion, whereas the modern fashion for evidence-based medicine and evidence-based HP has a gloss about it which is very much a part of modern, corporatised, accountable new right thinking which is exactly what HP represents an antidote to. However, we also realize that HP is in competition with other sectors of the health domain for resources, and of course, we do want to know whether what we do is effective – that is not the issue – but it is how we go about the process of determining its effectiveness that counts, and what is currently meant by an ‘evidence-based’ approach may not be it. As we understand it, the brief for this paper is the following: To summarise the evidence for the effectiveness of a community development approach to health promotion (CDHP) To discuss conceptual issues around health promotion and the assessment of its effectiveness, in this case with regard to CDHP To discuss ways in which the assessment of the effectiveness of CDHP is currently done, and how it can be done better in the future These topics could take a whole book to cover, and an army of reviewers. Indeed, in one of the only significant reviews we found in the area (Hancock, Sanson-Fisher et al. 1997) there were 14 authors, and they covered only a fragment of the field. Since both of us were hugely busy, and there was only a limited time to do this in, this review does not pretend to be comprehensive. Instead, we will try to go to the core of the issues, with examples. We gathered, from afar (and New Zealand, we have decided, is the farthest away country from anywhere in the world!), that the context for this discussion was the current fashion for ‘evidence-based’ health promotion. This is curious, because the whole concept of ‘evidence-based’ seems to come from medicine (as in the Cochrane Collaboration), and once again, we health promoters seem hell bent on aping the ‘culture’ of medicine to justify our place in the world. No doubt we want to be respectable, scientific and to get our share of scarce health resources to do our stuff. But are we jeopardising the true spirit of HP in the process? We are not arguing against having evidence to support and investigate HP endeavours. Of course not. But it is the rigid formalism of the evidence based approach, with the randomised control trial (RCT) as its explicit or implicit gold standard (Nutbeam, 1999), that we want to question. Again, this is not to say that RCTs, or the big quasi- 3 experimental trials (BQETs), do not have a place in the scheme of things, including some aspects of HP, but there are other ways too. This point has been strongly made in Canada, by a variety of qualitative and post-modernist researchers (e.g. Eakin et al., 1996; Labonte and Robertson ,1996; Poland, 1996). But we also think this goes beyond the quantitative/positivist vs qualitative/constructionist debate. To us, HP is pre-eminently an approach to health, to life, and it is first and foremost a set of values in action. Naturally, we want to see whether HP efforts using this set of values actually work, but that is not the main issue. In short, the wonderfulness that HP represents as an antidote to a modern fractured world almost solely driven by new right, corporatised, high technology, media driven values and imperatives should not be lost in the effort to emulate the tools of that world and its rigidly scientific, squeaky clean evaluative methodologies. We need to preserve the true spirit of health promotion, come what may! Nowhere are these issues more dramatically represented than in the domain of community development as applied to HP. For us, and for many, community development and its cousin empowerment, represent the true heartland of HP. And at the heart of CD, and HP, certainly as understood by Irv Rootman and John Raeburn, is the concept of ‘people-centredness’ (Raeburn and Rootman, 1998). Here in Toronto in 1991, at an international conference on HP research, we made an impassioned plea that the thirst for good science, especially of a population, numbers driven nature, should not be allowed to eclipse the ‘true’ purpose of HP, and we do so again now (Raeburn, 1992). The true purpose of HP, we believe, is to enhance the lives of real, palpable people, to honour those people, and to make the ‘people-control’ aspect of the Ottawa Charter definition of HP the most central matter, with research methods having to array themselves around that centre, rather than the other way round, which so often seems to be the case. Exactly a decade later, the need to hold fast to this perspective has not lessened one iota - indeed, with the concept of population health becoming a new hegemony (thankfully, not so much in New Zealand as in Canada), it becomes even more important to hold to the true values of HP, and its people-first perspective. Community development and health promotion Having said that, let us now address the issue of community development, and how this relates to HP. This, we came to realise as we prepared for this review, and looked at dozens of papers and abstracts, is in itself a thorny issue. Our brief, from the symposium organizers, was to look at community development, and as you are no doubt aware, the community dimension of HP goes well beyond what is normally understood by the term CD. So, we asked, since no-one else at the symposium seemed to be addressing the rest of the community sector, were we meant to be doing this as well? This may seem like splitting hairs, but it is absolutely not so. When we asked Irv Rootman about this, we understood that we should err on the side of CD as such, but also take into account that sector of HP that had at least some degree of community participation in its approach. Which brings us to the definitional domain. The one major review referred to before,, undertaken by the Australian team of Hancock, Sanson-Fisher et al. (1997), used the term ‘community action’, which is of course the Ottawa Charter term for its 4 community stream. They say the key component of community action is ‘community participation’, and that this falls along a continuum, on which CD is one pole. They also say there are international differences in usage here. One end of the continuum, where community involvement and active participation occur at all stages of the intervention process, is commonly called “community development” in Australia, Canada, and the United Kingdom, or more often “community organizing” in the United States. [New Zealand does not rate a mention with the Australians!]. Programs at the other end of the continuum, where the community participation is token, and may be consultative only, are often called “community-based”. They then say that their use of the term ‘community action’ is ‘defined as a health promotion program that involves the community in, at least, implementation and control of the process of the program’. We could unpack this and ask does it need to be a formal ‘program’ as such, or more organic? Is control of the process the same as control of the whole endeavour and agenda, and so on? For us, these are the essential features of CD - where the community owns the programme, intervention, change process or however one might construe this, including setting the agenda (maybe in partnership with outsiders), defining the needs, wishes, and priorities for action, controlling the action, and owning the data and evaluation processes, if those are being undertaken. Which brings us to two key questions here. The first is, what is ‘the community’ in this context? The second is, what is any evaluation or assessment of outcomes/effectiveness for? We won’t waste too much time on the former, as many have spent that time before us, although perhaps we should, since Marie Boutilier, Shelley Cleverly and Ron Labonte tell us that misconceptualisations of ‘community’ are a fundamental flaw in much CDHP (Boutilier et al., 2000). According to sociologists, there are over 100 definitions of community). What we mean here is that ‘the community’ is a significant group of people seen in their everyday, ordinary living context, who share either a common locality and actual or potential social bonds and/or goals in that locality, or who have some other binding factor (other than locality) which gives them a sense of commonality and relatedness. Our view is that locality is proto-community, and that other concepts are variations on this. From this perspective, the Hancock et al. (1997) view that Americans equate the term ‘community organization’ (CO) with CD is not correct, if we take the conventional Rothman and Tropman (1987) breakdown of community organization as the gospel - only one of their three types of CO, locality development, would qualify. The second issue, that of why assess effectiveness in the first place, deserves a bit more attention. The guidelines and indeed the whole thrust of this symposium is that the assessment of the effectiveness of HP is a ‘good thing’. But by whom and for whom? Now, we the writers of this are academics, and our livelihood depends on our producing scientific papers full of quantitative and qualitative data fit for publication 5 in the appropriate journals. But we also equally work at the coal face in communities, and know the imperatives that pertain to them. And the two can often clash (Allison and Rootman, 1996). For us, the art of assessing effectiveness is not to what extent it can approximate an RCT or some other conventional yardstick, whatever that may be in the qualitative realm, but whether it serves the ‘true’ purpose of HP, which in our view is to enhance the health, wellbeing and quality of life of the people of interest (POI), and to do this in a way that is empowering and strength-building. So why do academics and experts want to know the effectiveness of HP endeavours? Well, it depends on who is talking. If we assume that we all have the wellbeing of society and people at heart, then there are several reasons, for example: producing a scientific result that can be published in a reputable journal, and hence enhance the careers of the academics involved to give credibility to a ‘soft’ and amorphous area (viz. HP), currently under siege by ‘true’ scientists and decision makers, such as the proponents of population health to get or retain resources for HP, in a climate of ever shrinking resource - that is, a political purpose, or getting funds for research to validate, and be accountable to, community or people processes, particularly to enable community people to justify their work, and to know it is of value, and to ensure the benefit or outcome of what is done is having a desired impact, rather than having no impact or even doing harm - which much community work has the potential to do (e.g. by falsely raising community expectations) As far as we are concerned, all are justifiable ends, but the last one is far and away the most important, and the others should be secondary. So, where have we got to? First, the brief of this paper concerns CD, which falls at the community ownership and control end of the community participation continuum Second, we need to retain the vision of ‘true’ HP, and of keeping people at the centre of our preoccupations, rather than ‘science’ as such Third, the definition of community is primarily to do with location, though other concepts are okay too Fourth, the aim of assessing the effectiveness of CDHP is first and foremost to aid in the process of community empowerment and ownership, and only secondarily to serve the purposes of academics and professionals One could say a lot more about what a CDHP approach should be at this stage. For example our belief is that it should primarily be about building community assets, capacities, strength, resilience, etc rather than dealing to risk factors or deficits, which is often the case (e.g. Rappaport (1992), Raeburn and Rootman (1998), Kretzmann and McKnight (1993)). It should be, to use the new right terminology, about building social cohesion and social capital (Coburn, 1999), and the building of social support and a supportive environment (Sarafino, 1998). It should be about community control 6 and ownership (Raeburn, 1992b; Steptoe and Appels, 1989), and about unifying fragmented or oppressed communities, as we see in the third world (Durning, 1989). It should be about equity, the single biggest social issue we face in today’s world, which impinges directly on health (Wilkinson, 1996). It should be about respecting culture, diversity and the essential humanity of everyone. CDHP, we submit, in its truest form, is a kind of inspirational or ‘spiritual’ enterprise, one of the noblest human enterprises. We know this puts us at the receiving end of those who would label such an approach in HP as one of sentimentalising community (e.g. Labonte, ), but nevertheless, it is a very moving and powerful enterprise for all concerned, one which could change the world (Durning, 1989). We don’t want to see this lost in the ‘coolness’ of rigorous scientific appraisal to meet some high standards of academic excellence. On the other hand, if we can succeed in doing both - keeping the vision and doing good science - then that would be optimal. Theory and practice The first thing one does for a paper such as this is a literature search. Given limited time and resources, we largely (not entirely) kept this to the last five or six years, to cover the period since the last symposium (where Marie Boutilier and John Raeburn covered the same territory), and to the sources reasonably accessible to us. We cannot claim to have been exhaustive, but we did get over 90 articles, monographs and references that looked promising. On sorting these, we were astonished to find that the actual number of completed evaluated studies in the whole of community related HP was actually very small. And most of these did not fit the category of CDHP as outlined here. Below, we discuss what we did find in more detail. Here, we say that of the 91 articles and documents we used, 67 were written about evaluation, measurement and effectiveness issues relating to community health promotion (the general term we will use), and only 24 were of evaluated studies. Of these, only one met the criterion of CDHP as such. The rest were more of the community programme or community intervention variety, to use the terminology of Dixon and Sindall (1994). There were, however, another two sets of literature that did not automatically come up under conventional HP searches, which actually did have significant numbers of evaluated community studies. One was that of mental health promotion (e.g. the Welsh publication called Mental Health Promotion: Forty Examples of Effective Intervention (Health Promotion Wales, 1996), and the other was that of injury prevention research, including violence and suicide prevention (e.g. Klassen et al., 2000; Dejong, 1994). However, few of these studies meet the criteria for CDHP either, although there is significant community involvement in many of them. What is the theory literature saying? It is beyond the scope of this article on the effectiveness of CDHP to cover the gamut of theoretical literature in any detail. All we can do is bullet point our summary of what it mainly seems to be to do with. The RCT trial is the gold standard for evidence based evaluation of HP, including community health promotion. But it and its clones show little benefit for using community approaches in the HP projects included in the reviews of these trials, 7 and many feel other forms of research are more appropriate, given the nature of community (e.g. Nutbeam, 1999) The RCT culture, and the cry for ‘evidence based data’, is the product of our current rationalist/new right economic era, with its orientation to accountability, scarce resources for health, lack of feeling for community and social issues, the rise of biomedicine with gene and other discoveries, the dismantling of the welfare state, and hard science as its touchstones (e.g. Dixon and Sindall, 1994) Community research is diffuse, complex and hard. Its protagonists tend to opt for post-modernist methodologies, which often do not get as far as producing effectiveness data, or if they do, these tend to take the form of ‘community stories’ or interviews with participants, which does not necessarily carry much political clout (e.g. Labonte and Feather, 1996) Most community health promotion does not have a good handle on ‘community’, and tends to ignore the very heart of what is implied in the term ‘community development’ - that is, that the building of community as such is a goal, and is beneficial to health - and instead, uses community as a tool or instrument for outsiders’ agendas, with little regard for the people or community-building dimension, or for issues beyond the health problem being addressed (e.g. Hancock and Minkler, 1997; Dixon and Sindall, 1994; Peterson, 1994; Nilsen, 1996; ) The voice of the community is not often being heard, and a community led enterprise, which is what CD is about, would have to lead to a whole new paradigm of action and of training professionals (Cheadle et al., 1997; Rosenau, 1994; Guldan, 1996) Most so-called community ‘health promotion’ projects and programmes are actually prevention programmes (Higgins and Green, 1994; DeFriese and Crossland, 1995) and there are still too few which break free from an old lifestyle, individualistic model. However, to be sure, there are many theorists (rather than practitioners!) who think they should break free from these old shackles! There are many different approaches to conceptualising and doing effectiveness measurement for community work, including controlled studies, quasi-experimental studies, programme evaluation, demonstration projects, case studies, interviewing of participants, surveys, psychometric measures, self-report measures, epidemiological studies, story telling, satisfaction measures, using social indicators, doing a critical analysis, focus groups, key informant studies, participant observational studies, ethnographic methods, action research, and so on. Each has its place. Probably the most common methods are surveys and interviews of various kinds, incorporated into controlled studies or standing in their own right. Triangulation seems to be the recommended approach. Obviously, the selection of the appropriate methods and measures depends a lot on one’s research orientation, especially on the quantitative/positivist vs qualitative/constructionist dimension. Hard countable data still seem to rule supreme in the effectiveness studies that are published, although the theoreticians often do not like this kind of data much. 8 The effectiveness of community development health promotion Now we move to the more formal appraisal of what studies show the effectiveness of CD to be as a way of ‘doing’ HP. This instantly brings us into tricky territory, because although there is quite a lot of ‘community health promotion’ outcome research, very little of it fits what we would call ‘community development’ research. For the purposes of this discussion, we make a tripartite distinction among the studies that have been done which impinge on this area, and in an area of multiple usages of language and definition, assert our own, at least for this paper. There appear to be three main levels of HP activity involving community, which we categorise as A, B and C: Category A This is the ‘lowest’ level. It is one that places the HP action in the community (e.g. a school, a community health centre, a neighbourhood, or even just a large population), and makes explicit mention of ‘community’, but does little more. The action is something that is ‘done to’ this community, with little attempt to engage them other than to cooperate with or ‘consume’ the action. We use the term community-based HP to describe this level. Category B This is a middle level, and probably includes a lot of what is referred to by some as ‘community development’. It actually involves at least four subcategories, each of which represents varying degrees of effort to have active community input into the HP process, but where the agendas are still primarily under the control of the professionals or researchers. In each case, ‘community participation’ seems to be used in an instrumental way to help bring about the ends desired by the professionals, for example, to reduce injury rates in a community. The four subcategories are: (1) consultation, discussion, needs assessment and action involving community based service agencies (e.g. police, youth workers, social workers, community workers, teachers, NGO spokespeople, voluntary agency representatives, etc); (2) consultation, discussion ,needs assessment and action involving the people of the community directly (e.g. representative members of the residential or interest community being worked with) ; (3) agencies and/or community people having a degree of decisional and organisational control over the nature of, and implementation of, the intervention activities by community agencies/people; (4) partnership, where the balance of control for decision-making, control and actions is divided equally between professionals and the community, and also where (hopefully) there is an honouring of the culture and uniqueness of the community concerned. This last category comes close to CD as we understand it. But where it falls short of that is that the overall direction, control and priorities still remain in the hands of professionals, and there is no explicit agenda of capacity or community building as such by professionals. This overall category we call community action. Category C This is the ‘highest’ level, and is the one we call community development. This has three criterion dimensions. One is that the balance of power between professional and community people (not just service agencies) is clearly with the community – that is, the enterprise is community-controlled. Indeed, in its purest form, there may be no professionals involved at all (e.g. Boyte, 1989), or the professionals will simply be used by the community in a consultative way, such as 9 getting advice on how to do surveys or evaluation (Raeburn, 1992). Various forms of ‘facilitation’ rather than ‘control’ by professionals also qualify here. This process of having and exercising power over one’s life and community process is one crucial aspect of an empowerment process. The second criterion is that of community building, based on an agenda of developing social cohesion, mutual support, networks, friendships, cooperativeness, and overall quality of life and liking of the community. This participatory and positive aspect of the CD process is also empowering, since participation is seen to be at the heart of community empowerment (Rappaport, 1987). The third criterion is the development of community capacity and strengths, through people learning skills, confidence, ways of doing things, influencing policy, making a difference, seeing the results of their efforts, etc. Here, community controlled evaluation is a useful too, but it is more what is felt than what can be measured. Such capacity building is probably closest to what most people understand by the concept of empowerment. We call the three criteria here the 3 Cs – community control, community building and capacity building. This category of CD comes closest, we assert, to the ideal of CD as an enterprise based on the core HP concept of empowerment. However, we do not claim that activities in the other two categories cannot be empowering to some extent. In particular, any sense of control engendered by a community activity is likely to lead to a sense of empowerment, particularly as skills develop and participation increases. These categories are not pure, and there will be overlaps. Nevertheless, we think the distinctions are useful, and that Category 3 is what we should all be aspiring to when we talk about community development with regard to health promotion. This brings us to the issue of what do we mean by health promotion in this context? This is no place to discuss this in detail, but HP seems a variable feast here. In spite of protestations to the contrary, much HP seems locked pretty firmly into a risk model, which is the hallmark of ‘prevention’ rather than HP. In our view, HP refers primarily to efforts to enhance health, wellbeing and quality of life in a global sense, rather than just attempting to reduce specific disease or problem related risks. Most of the big RCT type trials, such as MRFIT, are concerned primarily with disease related specific risks, and are therefore, in our view, prevention trials rather than HP trials as such. There is, of course, much overlap between concepts of prevention and HP. But we feel that it is better to be honest, and call a spade a spade – that is, if something is a prevention activity, then to call it that, even if it is a modern one that takes HP principles into account. Similarly, treatment can involve HP processes too, such as getting people along to be screened for illnesses, encouraging people to use health services, or using HP principles in recovery. But we feel it is better to call this for what it is as well – it is treatment with some HP aspects. To make this clearer, and based on the articles we sorted, we have devised a category system here to, designated as Type A, B and C. Type A. This is where HP and community activities are involved, but where the preoccupation is primarily to do with treatment and recovery. We label these processes and outcomes as to do with treatment/recovery 10 Type B. This is where a single or several risk factors or behaviours associated with illness or injury categories are targeted by a campaign or intervention with the intention of reducing the risk of contracting an illness, or avoiding injury or disability, or to deal with the risks associated with some mental health or social problem such as youth suicide. Many social marketing campaigns fits into this type, as do most of the big RCT cardiovascular, smoking, destigmatisation, anti-abuse and similar campaigns. A number of school campaigns, and those emanating from health centres would also fit in here. We label these processes and outcomes as to do with prevention. Type C. These are where the goal is enhanced generic health, wellbeing, quality of life, strength, fitness, resilience, empowerment, justice, equity, community cohesion, and so on. These we regard as the ‘true’ aims of HP, as distinct from prevention or treatment. A Type C HP activity may be stimulated by a specific or ‘negative’ trigger like a concern with heart disease, obesity or youth suicide. But the methods and outcomes are general and geared to positive goals. These processes and outcomes we label as having to do with health and wellbeing. Note that in this discussion, we are not considering the actual HP methods used, and these can be various across all the categories and types, including media, education, life skills training, policy development, advocacy, creating supportive environments and so on. However, to qualify as a community development method, it would need to exist in a community context where the activity is consonant with the 3 Cs. From all this, then, it should be clear that the proto CDHP, by our estimate, is that which is Category 3 and Type 3. The farther the deviation from this ‘ideal’, the farther it is from ‘true’ CD. This can be represented by the following chart: Categories of community HP Communitybased Types Treatment Of Community action Community development Risk Wellbeing HP Domain Do-main 11 Table 1 Degree of approximation to ‘true’ community development Here, the hearts represent not the prevention of CHD, but our ‘feeling’ towards the different grades of community oriented HP, in terms of their closeness to ‘true’ CDHP. It will be noted that we have divided the Community Action category into two subtypes. The right hand column is for those projects that have many elements of CD in them, but fall short of true CD with its 3C’s criteria of community control, community building and capacity building. The left hand community action column would be for community action which has some community participation, but is only token or at a very low level, with little control or partnership happening. (We could further subdivide the community action column by saying whether the ‘community’ was defined in terms of the people themselves or community agencies and services, with the former being judged by us as superior. However, this would make the table very complex, so we have left that out. The next step, then, was to do a count of how many of the papers we tracked down over the past five years or so fitted these categories. To do this, in a very rough and ready way, we might say, we took those papers which actually included data or qualitative information from research relating to the outcomes of community oriented HP endeavours. We could have done a whole thesis on this alone. For example, what is HP in this context? We excluded some potential categories, simply because they do not seem conventionally to be classified in the HP domain. In particular, these were injury prevention, alcohol and drug prevention, and mental health promotion here, each of which has a significant research literature associated with it. It should also be noted that this count takes no account of methodology, nor does it set any criteria about the quality of research, such as whether it had controls or not.. (Note: we included reviews of outcome studies which might have been done earlier). We also have not divided the Community Action column into two – it would have taken a while to sort the studies by the degree of community involvement, and we did not have a chance to do this before sending this draft in. 12 Categories of community HP Communitybased Types Community action Community development Treatment 2 0 0 Risk 8 5 0 Wellbeing 3 5 1 13 10 1 Of HP Domain Do-main TOTALS (N=24): Table 2 Number of researched HP effectiveness articles fitting community categories from past five years or so (excluding injury/violence prevention, A&D prevention, and mental health promotion) Before we proceed, and as an aside, when we came to do this sort (by putting piles of reprints into rows on the floor), we also had a pile for theory papers related to community oriented health promotion evaluation. It is of interest to see how the size of this compared with all the actual research that had been done, and that we could find, over the same time period. This is illustrated in Table 3. THEORY ACTUAL RESEARCH 13 67 24 Table 3 Theory vs practice papers relating to the effectiveness of community HP We feel this table is a telling statement about the activities of academics! Anyway, to return to Table 2, it can be seen that there is a nicely inverse relationship between the degree of ‘true’ CD and the studies done. And note that most of the community action ones fall into the risk or prevention category. Our impression is that if were to factor two of the other categories related to HP, like injury prevention and A&D prevention, plus many of the MHP articles, that they too would fall into this category, although quite a few of the MHP ones also fall into Community – based/wellbeing and Community action/wellbeing. As we said before, it is possible to think of subdividing some of the columns in Table 2, as we did in Table 1. The numbers barely justify this, of course! But since there is such a poor showing in Column 3 – the one we believe in most, and the one we feel that most health promoters like to think of as their heartland (more fantasyland than heartland, by the look of it!) – maybe we are being too idealistic to think that something called ‘community development’ should actually exist at all! Rather, maybe it is more realistic to think in terms of ‘community participation’ in HP endeavours, and that this can vary At this stage, we intended to use this classification to present summaries of our judgments of how effective programmes seem to have been. At the time of writing this draft, we have not yet done this, but may have it done by the time the paper is presented at the symposium! This requires first a rough classification for the judged effectiveness of studies, taking all matters into account, including the presence or absence of controls. You will just have to trust our judgment on this – or better, you could do it yourself, to see if our judgments are reliable. (This would make a nice study!) This classification is suggested to be as follows with regard to the health promoting properties or effects of a given approach or study: A Seems very beneficial B Has some benefit, but not very great C Has little or no effect D Seems to have made things worse X Impossible to say 14 This would then be used to fill in the cells of the following table: Categories of community HP Communitybased Community action Community development A A A B B B C C C D D D X X X A A A Types B B B Of C C C HP D D D Domain X X X A A A B B B C C C D D D X X X Treatment Risk Do-main Wellbeing 15 Table 4: Ratings of benefit of different types of community oriented health promotion Obviously, such an approach does not have the rigour of a meta-analysis, or strict evidence based approach acceptable to, say, the Cochrane Collaboration people. But there is no reason it could not be reliable – to ascertain this, it simply requires the application of simple psychometric reliability type measures as one finds in everyday psychology testing using ratings. And it has the advantage of being universally applicable. It does not just select those studies which fulfil rigid control or ‘positivist’ criteria. Any study is eligible, quantitative or qualitative, controlled or uncontrolled, or anywhere in between any of these. It also makes intuitive sense to anyone, whether scientist, community member, bureaucrat or the ultimate test of low-level understanding – politicians. Regardless of these findings, the fact of the matter is there are very few studies that fit the category of community development as we define it. We don’t think this is because our definition is faulty – we feel it actually reflects the reality. But given that it is the reality, should we maybe be taking another approach to the CD-type area? one which emphasises participation rather than the criteria of community control, community building and capacity building. If we did this, then our impression the more the active and whole hearted the participation of a community in a HP project, the greater it is likely to be successful. The injury prevention literature certainly seems to indicate this (Coggan et al., 2000). If this is so, then we can perhaps construct an hypothesis that looks like this, and which is eminently testable, so long as we can have good criteria for degree of participation: The community participation hypothesis Community as location/target only Active participation in planning and execution Full community control and self-determination 16 In short, the further the research falls to the right on this continuum, the more successful it is likely to be, other things being equal. It is only an hypothesis, but we bet it is borne out! Anyway, let us now return to the issue of the effectiveness of community approaches to HP, as shown by existing studies. On the whole, this has not been the best, resulting in papers with lugubrious titles like: ‘Community health improvement approaches: Accounting for the relative lack of impact’ (Shortell, 2000); ‘Obstacles to community health promotion’ (Guldan, 1996); ‘Community development in health promotion: empowerment or regulation?’(Peterson, 1994); ‘Do local inhabitants want to participate in community injury prevention?…’ (Nilsen and Kraft, 1997). We also find statements from reviews such as the following: [Based on a review of 34 child injury prevention studies] ‘Although community-based interventions hold promise, there is a paucity of evidence examining the impact of these approaches on safety behaviours or injury rates among children’ (Klassen it al., 2000. p84) [Based a review of seven major lifestyle (heart and cancer) prevention programmes using community action]: While the advantages of community action are potentially high, [none of the studies reviewed] meet all of the criteria for rigorous evaluation….The most methodogically adequate cancer study, the COMMIT intervention, had only a moderate degree of success in reducing community smoking rates. Similarly, none of the six studies (25 articles) on cardiovascular disease fulfilled all the [scientific] criteria. The results for the most methodologically adequate study, the Minnesota Heart Health Program, were disappointing, with strong secular trends preventing adequate assessment of the intervention … [Overall, there is a] failure of methodologically superior projects… to show major gains in reducing health risk behaviours’. (Hancock et al., 1997, pp235, 229) The failure of these sorts of studies to show much in the way of results is attributed primarily by the reviewers as having primarily to do with the methodology of evaluation. The issue of scientific rigour vs the imperatives of community considerations are a constant problem, as Ken Allison and Irv Rootman have pointed out (Allison and Rootman, 1996). Although we have no doubt the research may not be as good is it could be, we could equally argue that these studies are also not up to scratch on the community side. For instance, given our previous analysis, we can say with certainty that they do not use true CD. Overall, then, what does our overview of the literature of the past five or six years show us about the effectiveness of community-whatever-it-might-be in health promotion? (i.e. not just CDHP as such). 17 First, as indicated, the big RCT and QETs which look at lifestyle, risks and usually heart disease or cancer, do not have impressive results, although they all feel that they can learn more about how to do the community side better. Second, while results are generally disappointing, there are a number of studies that are an exception, and are impressive in what they accomplish. These, however, tend to be in non-standard HP areas, notably injury prevention and mental health promotion (MHP). For example, a well-researched Safe Communities study in New Zealand showed very impressive results on many measures in a relatively poor community, which among other things had, in one year, a 7% increase in seat belt wearing, which made it the best rate in the whole country. Many other safety behaviours changed too, in all sectors of society, and in three years, there were significant declines in rates of child injury requiring hospitalisation, whereas in a control community, these rates went up. Here, very intensive and enlightened community participation was involved, giving a good deal of ownership to local people, and respecting culture and local identity – very important issues from a CD perspective – and the results bear testimony to this. The MHP domain has numerous success stories involving community oriented programmes and positive wellbeing outcomes, especially relating to resilience and life skills approaches with children, often in combination with parents, peers and community organisations. A good set of studies is given in a 1996 Welsh publication called Mental health promotion: Forty examples of effective intervention (Health Promotion Wales, 1996) bears testimony to this. And earlier, the classic treatise by Jack Pransky called Prevention: the critical need demonstrated the same for hundreds of programmes in the United States, in the area called ‘primary prevention’ (Pransky,1991). Indeed, we in my department at the University of Auckland are so impressed with what is happening in MHP, and how it often can truly capture the essence of CD, empowerment, wellbeing, quality of life, and all those things we have believed in over the years, that we have moved away somewhat from classical HP, and have developed, and are teaching and researching, a whole new area called ‘Mental Health Development’(MHD) – which we would tell you about if we had time. Suffice it to say that MHD incorporates many of the things that we feel are missing in CDHP today – though of course we have yet to evaluate its effectiveness too. However, we have started, and it looks very promising (e.g. Rix-Trott, 2000). Just as an aside, but related, is that we believe that the most successful studies are those that do not emphasise risk or prevention so much (which most of the community action studies do),but which emphasise positive outcomes – wellbeing, resilience, capacity, empowerment, etc. The MHP studies that are effective almost all do this. It has been an ideal for HP too, and is represented in the kind of approach we find here in the Toronto quality of life research (e.g. Raphael et al., 1999). The third main conclusion is that there are hardly any effectiveness evaluation articles in the area of ‘’true’ CD. Indeed, in the last five years, the only one (well, actually two – the Other Way Project and the Empowering Resource Centre) we could find was our own in New Zealand, and those were a bit marginal, although an earlier evaluated project cited in the same source is still going today, and it fits the criteria fully (cited in Raeburn and Rootman, 1998). We have on several occasions 18 undertaken evaluated Category 3 Type 3 projects, and have had only one failure. But we don’t always get the evaluations published – which could be the fate of many such evaluation projects! Fourth, in spite of the lack of CDHP effectiveness research as such, there is other evidence that such an approach works, and works really well. This evidence comes from two sources. One are case histories, direct observation or other sources. These can be totally convincing that they are effective, even if the evidence is only anecdotal, or qualitative, or case study in nature. One in the literature that stands out for us is the Modello Gardens project using the ‘health realization’ approach (Pransky, 1991), which comes out of the community psychology literature. Another is the Alkali Lake work in BC, an even purer example (no professionals were involved), which we have only seen on a CBC video. Community psychology has many examples also of block organizations, etc who organize to improve their quality of life, and there are the cases cited by Saul Alinsky, Nancy Milio, and others over the years that show clearly that CDHP works. There are also journalistic stories like that of Bertha Gilkey (Boyte, 1989), whose work in Cochrane Gardens in St Louis is a model of a nonprofessional, community self-determination project which changed the face of a whole low income housing area. Another source of convincing but unresearched material comes from development projects in the third world. A favourite article of ours over the years is that called ‘Grass roots groups are our best chance for global prosperity and ecology’(Durning, 1989), a summary of a report by Worldwatch in 1989. Here, we read stories of a type with which we are sure you are familiar, of grass roots community groups standing strong against exploitative corporations, oppressive governments and even armies, to save their environments, to build schools and health services, to upgrade their communities, and so on. To give just one example: In Lima’s El Salvador district, Peruvians have planted a half-million trees; built 26 schools, 150 day-care centres, and 300 community kitchens; and trained hundreds of door-to-door health workers. Despite the extreme poverty of the district’s inhabitants and a population that has shot up to 300,000, illiteracy has fallen to 3 percent, one of the lowest rates in South America – and infant mortality is 40 percent below the national average. The ingredients of success have been a vast network of women’s groups, and the neighbourhood association’s democratic administrative structure, which extends down to representatives in each block. (p42) Durning says about this and hundreds of other such examples: ‘In the face of seemingly insurmountable problems, community groups around the planet have been able to accomplish phenomenal things.’ (p42). Such projects may not be labelled health promotion by their participants, or even especially seen as having a health dimension, but they clearly do have positive health impacts, physical, mental, social and spiritual. The Lima example shows this clearly. They are perhaps the purest form of CDHP, and they unquestionably work In short, then, CDHP works, and works splendidly. But we can only draw this conclusion if we widen the concept of what we customarily call health promotion. It needs to include injury prevention and mental health promotion. It needs to 19 include examples that may not be labelled health promotion by their protagonists, such as the community psychology examples, or the third world ones. In the meantime, we need more formal effectiveness research to back this up. One can only regret that some of that energy that is going into theorising about this and related areas does not go in actually doing the evaluative work. There are so many good projects, but the people involved in them, including professionals and academics, are not producing the effectiveness data to show that they do indeed work. These data do not need to be RCTs and QETs. They can be from quite simple goal-oriented evaluations, collection of local data, percentage changes in important indicators (like the literacy rate quoted about for Lima), and qualitative data which has an effectiveness assessment objectives. . (See below for further suggestions as to the kind of evaluation we can do here). What we need are data that not only stand up to scientific scrutiny (and this does not required RCTs), but which can also be used for political persuasion purposes, and to convince funding bodies for the need to support these projects. Instead, what do we see? No discernible research projects in this area. Further, neoliberal governments around the world are defunding and talking down a community development approach (even while engaging in empty talk about ‘community cohesion’), and even HP itself, which has CDHP at its heart, is under threat as a concept, notably in Canada, it seems, but also elsewhere, including New Zealand. Recommendations for evaluation of effectiveness for CDHP It is clear to us that CDHP (properly defined) evaluative research is quite rare, and RCTs or their equivalent for assessing the effectiveness of CDHP are nonexistent. So we are unlikely to have a meta-analysis in the CDHP field for a long time yet! Yet CDHP clearly works! So what is the optimal way to evaluate it, to demonstrate its effectiveness, both to the communities that control it, and to outsiders, including scientists and politicians? We do not have the time or space here to do this justice. However, we believe that the optimal way to go here is by the use not of the RCT or QET, but of that old favourite in HP planning and evaluation – the planning model. This is the approach we ourselves take in our ‘true’ CDHP work, and it is a powerful tool which meets many purposes, and provides convincing outcome data for the different those audiences. The planning model is based on goals, which go in and out of favour over the years, but we are reactionary enough to have favoured them constantly, and still do. Written down, consensual goals are wonderful things – they enable one to set directions clearly, to have buy-in by everyone, to pick up exactly what needs and wishes assessments are saying and to translate these into do-able and prioritised outcomes, and they permit good organization (as in management by objectives) around 20 subprojects. Goals permit easy reviews of progress, and (most important for us here) they provide the basis for convincing outcome statements. That is, if goals well represent the aspirations of a community (and it is easy to check that out since they are so explicit and public), then the attainment of those goals is clearly a success by anyone’s judgment. This is not to say that goals are the only measure of outcome.. They need to be triangulated with any and every other possible type of data source, quantitative and qualitative – surveys, focus groups, interviews, objective indicators, satisfaction measures, health outcomes, and so on. But when these are all organized around the concept of goals – which are simply statements of what one wants to achieve by when and by whom – they make coherent and convincing sense, including to people in the community who have set them in the first place. The planning model that we use is illustrated by our particular version, called the People System (Raeburn, 1992). It consists of eight steps, with feedback loops, as follows: Outline aims, philosophy & domain Do needs and wishes assessment Set goals Clarify the organisational structure Develop the action components Proceed with full implementation Do periodic outcome evaluations Of most relevance here is the final element of this system – the outcome evaluation step. This is where the effectiveness of the project is summed up, both in terms of goals, and any other measures. The advantage of this model is that outcome evaluation can be seen as an integral part of the whole enterprise. It is also under the ownership of the community, who may need some assistance in knowing how to set goal and collect outcome measures, but that is usually pretty straight forward. Also, it can be made to fit into any research design, including a RCT or QET. Our own preference is for informal QETs – as mentioned, there are many QET designs. But even without a control condition, or comparison community, you can still get very convincing results with just a demonstration project, since the measures are so triangulated, and you can get the community to judge how much impact the project has had on their lives, which can to some extent bypass the need for a control group. A smart critical analysis, which takes into account ‘secular trends’ in society, may be just as valuable as a formal RCT or similar. 21 Conclusion Community development health promotion (CDHP) is only one kind of community oriented HP, which in turn is only one sector of the HP enterprise, but it represents, we believe, the true heart of HP. In the context of this ‘effectiveness’ symposium, there is little to offer in the conventional sense of the ‘gold standard’ of randomised control trials (RCTs), or even big quasi-experimental trials (QETs), in this area. Indeed, there seems to be virtually no effectiveness research to speak of in the ‘true’ CDHP area – yet this is the area many health promoters probably feel HP is really about. There is a large amount of theorising and rhetoric about appropriate paradigms and epistemology, but very little substantive work using any of these approaches, from whichever camp! As a result, we have to extend our search for ‘community’ in HP to a wider sector than CDHP narrowly defined. There is certainly more outcome research in the community action sector, and more again in the community-based sector, and it is a matter of judgment the extent to which the term ‘community development’ can be used to include these. Our view is that some of the community action studies do start to approximate ‘true’ CD, especially if we include injury prevention and mental health promotion studies, and some of these give outstandingly positive results. But at the same time, in terms of meeting the criteria of CD given here (community control, community building, and capacity building), the control still remains with the professionals and researchers. Nevertheless, in good community action studies, a degree of community building and capacity building may take place, even if this is seldom explicit or measured in its own right. Most of the major evaluative studies in the community action area tend to be disappointing too, although there are some notable exceptions. The failure to find positive results for community action is usually ascribed in the literature to poor research methodology. While this is probably so, we also argue that another reason is that the ‘community’ dimension is not CD enough, and to the extent that it is, then results may reflect this positively. We developed a participation continuum to try to capture this as an hypothesis. Notwithstanding, such a continuum should not deflect us from the reality – that in spite of the rhetoric, virtually no-one is doing outcome evaluated HP work which meets the basic criteria of CD. But even if the amount of formal CDHP outcome research is very small, there is other more informal evidence to indicate convincingly that it works. We hear many accounts and stories anecdotally and qualitatively that such projects work. In particular, the developing world has many superb examples of this In terms of how to go about evaluating CDHP projects, there are many legitimate approaches beyond the RCT or the QET. We have suggested further that the planning model approach is an optimal one here. Regardless, we need a rapprochement between the differing theoretical factions around the topic of HP research and evaluation, and indeed, we need some of the academic horsepower currently taken up in theorising to be out there actually doing some evaluative research in the field – in an empowering and community-controlled way, of course! We would like to end by suggesting that it would be good if we as health promoters were to give more attention to actually attempting to assist in the processes of setting 22 up ‘true’ CDHP projects, and to attempting to evaluate them. These projects work – but we need to have the evidence to show they do. It is time for ‘epistemological’ debates to quieten, and to produce the goods! The survival of the HP we believe in may depend on it. With HP and indeed society under threat from dislocation and continuing new threats to our wellbeing – including new and major issues like gambling – there has never been a greater need for CDHP. Communities can use us and our expertise – on their terms, of course. But they may get tired of waiting for us as we argue over theories, and go ahead without us! CDHP remains the ultimate and most precious jewel of HP. Let us not let it die from inattention. 23 References and articles consulted for this paper (not all necessarily referenced in the text) Albright, C. L., K. L, et al. (2000). “Results of a multifactor cardiovascular risk reduction program in the Czech Republic: The healthy Dubec project.” International Journal of Behavioural Medicine 7(1): 44-61. Allison, K. R. and I. Rootman (1996). “Scientific rigor and community participation in health promotion research: are they compatible.” Health Promotion International 11(4): 333-340. Barnes, H. M. (2000). “Collaboration in community action: a successful partnership between indigenous communities and researchers.” Health Promotion International 15(1): 17-25. Batliner, B. (1998). “Evaluation of the community health promotion project Mauren Aktiv (German).” Sozial- und Praventivmedizin 43(5): 262-268. Behnke, K. S., J. W. Farquhar, et al. (1997). “Private Sector-funded Community Health Promotion.” American Journal of Health Promotion 11(6): 415-416. Boutilier, M., S. Cleverly, et al. (2000). Community as a Setting for Health Promotion. Settings for Health Promotion. B. D. Poland, L. W. Green and I. Rootman. Thousand Oaks, Sage Publications Inc. Boutilier, M., R. Mason, et al. (1997). “Community action and reflective practice in health promotion research.” Health Promotion International 12(1): 69-78. Cheadle, A., W. Beery, et al. (1997). “Conference Report: Community-Based Health Promotion-State of the Art and Recommendations for the Future.” American Journal of Preventive Medicine 13(4): 240-243. Coburn, D. (1999). Income inequality, lowered social cohesion and the poorer health status of population: the role of neo-liberalism (unpublished manuscript). Department of Public Health Sciences. University of Toronto. Cousins, M. and M. I (1995). “Use of Medical Care After a Community-Based Health Promotion Program - A Quasi-Experimental Study.” American Journal of Health Promotion 10(1): 47-53. Crisp, B. R., H. Swerissen, et al. (2000). “Four approaches to capacity building in health: consequences for measurement and accountability.” Health Promotion International 15(2): 99-107. Defriese, G. and C. Crossland (1995). “Strategies Guidelines, Policies And Standards - The Search For Direction In The Community Health Promotion.” Health Promotion International 10(1): 69-74. DeJong, W. (1994). Preventing Interpersonal Violence Among Youth - An Introduction to School, community, and Mass Media Strategies, US Department of Justice. Derose, K. P., S. A. Fox, et al. (2000). “Church-based Telephone Mammography Counseling with Peer Counselors.” Journal of Health Communication 5(2): 175-188. Dhillon, H. S. and L. Philip (1995). “Health Promotion and Community Action for Health in Developing Countries.” Journal of Public Health Medicine 17(3): 370-371. 24 Dixon, J. and C. Sindall (1994). “Applying Logics of Change to the Evalution of Community Development in Health Promotion.” Health Promotion International 9(4): 297-309. Dunt, D., N. Day, et al. (1999). “Evaluation of a community-based health promotion program supporting public policy initiatives for a health diet.” Health Promotion International 14(4): 317-327. Durning, A. B. (1989). “Grass roots groups are our best hope for global prosperity and ecology.” Utne Reader 34: 40-49. Eakin, J., A. Robertson, et al. (1996). “Towards a critical social science perspective on health promotion research.” Health Promotion International 11(2): 157-165. Elkins, D., E. Matickatyndale, et al. (1997). “Toward Reducing the Spread of HIV in Northeastern Thai Villages - Evaluation of a Village-Based Intervention.” AIDS Education & Prevention 9(1): 49-69. Fincham, S. (1992). “Community Health Promotion Programs.” Social Science & Medicine 35(3): 239249. Fournier, A. M., C. Harea, et al. (1999). “Health Fairs as a Unique Teaching Methodology.” Teaching & Learning in Medicine 11(1): 48-51. Freudenberg, N. (1998). “Community-Based Health Education for Urban Populations - an overview (Editorial).” Health Education & Behavior 25(1): 11-23. Gold, M. R., K. I. McCoy, et al. (1997). “Assessing Outcomes in Population Health: Moving the Field Forward.” American Journal of Preventive Medicine 13(1): 3-5. Green, L. W. (1997). “Community Health Promotion: Applying the Science of Evaluation to the Initial Sprint of a Marathon.” American Journal of Preventive Medicine 13(4): 225-227. Guba, E. (1990). The Paradigm Dialog. Newbury Park, Sage. Guldan, G. (1996). “Obstacles to Community Health Promotion.” Social Science & Medicine 43(5): 689-695. Hadley, M. and D. Maher (2000). “Community involvement in tuberculosis control: lessons from other health care programmes (review).” International Journal of Tuberculosis & Lung Disease 4(5): 401-408. Hagihara, A., M. Murakami, et al. (1997). “Association Between Attitudes Toward Health Promotion And Opinions Regarding Organ Transplants In Japan.” Health Policy 42(2): 157-170. Hagihara, A., M. Murakami, et al. (1997). “Association between attitudes toward health promotion and opinions regarding organ transplants in Japan.” Health Policy 42: 157-170. Haines, A., I. Heath, et al. (2000). “Joining together to combat poverty: everybody welcome and needed.” Quality in Health Care 9(1): 4-5. Hancock, L., R. Sanson-Fisher, et al. (1997). “Community Action for Helath Promotion: A review of Methods and Outcomes 1990-1995.” American Journal of Preventive Medicine 13(4): 229239. Hancock, L., R. Sanson-Fisher, et al. (1996). “Community action for cancer prevention: overview of the Cancer Action in Rural Towns (CART) project, Australia.” Health Promotion International 11(4): 277-290. 25 Hancock, T. and M. Minkler (1997). Community health assessment or healthy community assessment: Whose community? Whose health? Whose assessment? Community Organizing and Community Building for Health. M. Minkler. New Brunswick, Rutgers University Press. Hawe, P. (1994). “Capturing the meaning of 'community' in community intervention evaluation:some contributions from community psychology.” Health Promotion International 9(3): 199-210. Higgins, J. W. and L. W. Green (1994). “The APHA criteria for development of health promotion programs applied to four Healthy Community projects in British Columbia.” Health Promotion International 9(4): 311-320. Hodgson, R. and T. Abbasi (1996). Mental Health Promotion: Forty Examples of Effective Intervention, Health Promotion Wales: 34. Holmila, M. (1995). “Community action on alcohol: experiences of the Lahti Project in Finland.” Health Promotion International 10: 283-291. Hyder, A. A. (2000). “Community-based health care and development: exploring the myths.” World Health Organisation 78(3): 408. Klassen, T. P., J. M. MacKay, et al. (2000). “Community-Based Injury Prevention Interventions.” Unintentional Injuries in Childhood 10(1): 83-. Koelen, M., L. Vaandrager, et al. (2001). “Health Promotion research: dilemmas and challenges.” Journal of Epidemiology 55(4): 257-262. Kotarski, B. R. (2000). “Reexamining preventive health standards for women in a new century: Successful screening strategies of one community-based health center source.” Womens Health Issues 10(6): 294-299. Labonte, R. and J. Feather (1996). Handbook on Using Stories in Health Promotion Practice. Ottawa, Health Canada. Labonte, R. and A. Robertson (1996). “Delivering the goods, showing our stuff - the case for a constructivist paradigm for health promotion research and practice.” Health Education Quarterly 23(4): 431-447. Leger, S. (1999). “Health promotion indicators. Coming out of the maze with a purpose.” Health Promotion International 14(3): 193-195. Lewando-Hunt, G. (1999). “Health Promotion and Community Action for Health in Developing Countries.” Health Policy & Planning 14(2): 204-205. Mansergh, G., L. A. Rohrbach, et al. (1996). “Progress Evaluation of Communtiy Coalitions for Alcohol and Other Drug Abuse Prevention: A Case Study Comparison of Researcher - and Community-Initiated Models.” Journal of Communiy Psychology 24: 118-135. Mendoza, F. and E. Fuentes-Afflick (1999). “Latino childrens health and the family-community health promotion model.” Western Journal of Medicine 170(2): 85-92. Moon, A. M., M. A. Mullee, et al. (1999). “Helping schools to become health-promoting environments - an evaluation of the Wessex Healthy Schools Award.” Health Promotion International 14(2): 111-122. Neff, L. J., A. B. E, et al. (2000). “Assessment of trail use in a community park.” Family & Community Health 23(3): 76-84. 26 Neuhauser, L., M. Schwab, et al. (1998). “Community participation in health promotion: evaluation of the California Wellness Guide.” Health Promotion International 13(3): 211-222. Nilson, O. (1996). “Community health promotion: concepts and lessons from contemporary sociology.” Health Policy 36: 167-183. Nilson, O. and P. Kraft (1997). “Do Local Inhabitants Want To Participate in Community Injury Prevention - A Focus On The Significance Of Local Identities For Community Participation.” Health Education Research 12(3): 333-345. Nutbeam, D. (1998). “Evaluating health promotion - progress, problems and solutions.” Health Promotion International 13(1): 27-43. Nutbeam, D. (1999). “The challenge to provide 'evidence' in health promotion.” Health Promotion International 14(2): 99-101. Oddy, W. H., C. D'Arcy, et al. (1995). “Epidemiological Measures of Participation in Community Health Promotion Projects.” International Journal of Epidemiology 24(5): 1013-1021. O'Neill, M., A. Pederson, et al. (2000). “Health promotion in Canada: declining or transforming?” Health Promotion International 15(2): 135-141. Payne, C. A. (1999). “The challenges of employing performance monitoring in public health community-based efforts: A case study.” Journal of Community Health 24(2): 159-170. Pelletier, J., J. Moisan, et al. (1997). “Heart Health Promotion: A community Development Experiment in a Rural Area of Quebec, Canada.” Health Promotion International 12(4): 291-297. Petersen, A. R. (1994). “Community development in health promotion: Empowerment or Regulation?” Australian Journal of Public Health 18(2): 213-217. Pirie, P., E. Stone, et al. (1994). “Program Evaluation Strategies for Community-Based Health Promotion Programs - Perspectives from the Cardiovascular Disease Community Research and Demonstration Studies.” Health Education Research 9(1): 23-36. Poland, B. D. (1996). “Knowledge development and evaluation in, of and for Healthy Community initiatives. Part I: guiding principles.” Health Promotion International 11(3): 237-247. Poland, B. D. (1996). “Knowledge development and evaluation in, of and for Healthy Community initiatives. Part II: potential content foci.” Health Promotion International 11(4): 341-349. Pransky, J. (1991). Prevention: The Critical Need. Springfield, MO, Burrell Foundation. Rada, J., M. Ratima, et al. (1999). “Evidence-based purchasing of health promotion: methodology for reviewing evidence.” Health Promotion International 14(2): 177-187. Raeburn, J. M. (1992). “Health promotion research with heart: keeping a people perspective.” Canadian Journal of Public Health 83(Supplement 1): s20-24. Raeburn, J. M. (1992). The PEOPLE system: towards a community-led process of social change. Psychology and Social Change. D. Thomas and A. Veno. Palmerston North, Dunmore Press. Raeburn, J. M., J. M. Atkinson, et al. (1994). “Superhealth Basic - Development and Evaluation of a low-cost community-based lifestyle change programme.” Psychology & Health 9(5): 383-395. Raeburn, J. M. and I. Rootman (1998). People-centred health promotion. Chichester, John Wiley & Sons. 27 Raphael, D. (2000). “The question of evidence in health promotion.” Health Promotion International 15(4): 355-367. Raphael, D., B. Steinmetz, et al. (1999). “The Community Quality of Life Project: a health promotion approach to understanding communities.” Health Promotion International 14(3): 197-298. Reininger, B., T. Dinh-Zarr, et al. (1999). “Dimensions of participation and leadership: Implications for community-based health promotion for youth.” Family & Community Health 22(2): 72-82. Renaud, L., S. Chevalier, et al. (1997). “L'institutionnalisation des programmes communautaires: revue des modeles theoriques et propositon d'un modele.” Canadian Journal of Public Health 88(2): 109-113. Renaud, L., S. Chevalier, et al. (1997). “Institutionalization of Community-based Programs - Review of Theoretical Models and a New Model (Review).” Canadian Journal of Public Health 88(2): 109-113. Rosenau, P. V. (1994). “Health Politics Meets Post-Modernism: Its Meaning and Implications for Community Health Organizing.” Journal of Health Politics 19(2): 303-333. Rothman, J. and J. E. Tropman (1987). Models of community organisation and macropractice perspectives: Their mixing and phasing. Strategies of Community Organisation: MacroPractice. F. M. Cox, J. L. Erilich, J. Rothman and J. E. Tropman. Itasca, Peacock. Rutten, A., T. Von Lengerke, et al. (2000). “Policy, competence and participation: empirical evidence for a multilevel health promotion model.” Health Promotion International 15(1): 35-47. Sanderson, C., B. J. A. Haglund, et al. (1996). “Effect and stage models in community intervention programmes; and the development of the Model for Management of Intervention Programme Preparation(MMIPP).” Health Promotion International 11(2): 143-156. Sanson-Fisher, R., S. Redman, et al. (1996). “Developing methodologies for evaluating communitywide health promotion.” Health Promotion International 11(3): 227-236. Schmacke, N. (1998). “Health Promotion Through Neighborhood Health Centers - A Tribute to Rosen, George on the 20th Anniversary of his Death.” Health Promotion International 13(2): 151-154. Shelley, E., L. Daly, et al. (1995). “Cardiovascular risk factor changes in the Kilkenny Health Project. A community health promotion programme.” European Heart Journal 16: 752-760. Shiell, A. and P. Hawe (1996). “Health Promotion Community Development And The Tyranny Of Individualism.” Health Economics 5(3): 241-247. Shortell, S. M. (2000). “Community Health Improvement Approaches: Accounting for the Relative Lack of Impact.” Health Series Research 35(3): 555-560. Smaje, C. “Review of Health Promotion and Community Action for Health in Developing Countries (H.S. Dhillon and Lois Philip, World Health Organisation).” Journal of Public Health Medicine 17(3): 370-371. Sorensen, G., M. K. Hunt, et al. (1998). “Worksite and Family Education for dietary change: the Treatwell 5-a-Day Program.” Health Education Research 13(4): 577-591. Steptoe, A. and A. Appels (1989). Stress, Personal Control and Health. Chichester, Wiley. Wallace, J. I., D. M. Buchner, et al. (1998). “Implementation and Effectiveness of a community-based Health Promotion Program for Older Adults.” Journals of Gerontology Series A-Biological Sciences & Medical Sciences. 53(4): M301-M306. 28 Wechsler, H. and E. Weitzman (1996). “Editorial: Community Solutions to Community Problems Preventing Adolescent Alcohol Use.” American Journal of Public Health 86(7): 923-925. Wickizer, T. M., E. Wagner, et al. (1998). “Implementation of the Henry J Kaiser Family Foundation Community Health Promotion Grant Program - A Process Evaluation.” Milbank Quarterly 76(1): 121. Wilkinson, R. G. (1996). Unhealthy societies. The afflictions of inequality. London, Routledge. Wise, M. and L. Signal (2000). “Health promotion development in Australia and New Zealand.” Health Promotion International 15(3): 237-248. Zimmerman, M. A. (1998). “Special Issue - Community-Based Health Education for Urban Populations, Part I - message from the editor (Editorial).” Health Education & Behavior 25(1): 5-7.