Childhood chronic conditions – adjustment and intervention
(WFz.IPs-N-E02 – 4 ECTS)
mgr. Andreea Mihalca
Plan of the course
I. Children’s adjustment to chronic conditions
1st meeting – Introduction into pediatric psychology. Child’s understanding of health, illness and
death. Categorical vs. non-categorical approach.
Obligatory reading:
Thompson, R.J., & Gustafson, K.E. (1996). Adaptation to chronic childhood illness. American Psychological
Association: Washington. (pp.27-40; 181-196).
Pilecka, W. (2012). Suffering in the experience of the chronically ill child – A psychological analysis. In Eds. J.
Binnebesel, Z.Formella, P. Krakowiak, & U.A. Domzal. Experiencing a suffering, vol 2. (pp. 151 - 172). Lodz:
Wydawnictwo Wyzszej Szkoly Edukacji Zdrowotnej I Nauk Spolecznych.
Optional reading:
Stein, R.E.K. & Jessop, D.J.J. (1982). A noncategorical approach to chronic childhood illness. Public Health
Reports, 97 (4), 354-362.
2nd meeting – Chronically ill child in the family context.
Obligatory reading:
Kazak, A.E., Rourke, M.T., & Navsaria, N. (2009). Families and other systems in pediatric psychology. In
M.C.Roberts (ed). Handbook of Pediatric Psychology, 4th ed. (pp. 656 - 673). The Guilford Press: New York.
Thompson, R.J., & Gustafson, K.E. (1996). Adaptation to chronic childhood illness. American Psychological
Association: Washington. (pp.157-176).
Optional reading:
Binnebesel, J. (2012). A terminally ill child in a family – the dynamics of the crisis In Eds. J. Binnebesel,
Z.Formella, P. Krakowiak, & U.A. Domzal. Experiencing a suffering, vol 2. (pp. 173 - 190). Lodz:
Wydawnictwo Wyzszej Szkoly Edukacji Zdrowotnej I Nauk Spolecznych.
Gannoni, A.F., & Shute, R.H. (2009). Parental and child perspectives on adaptation to childhood chronic illness:
A qualitative study. Clinical Child Psychology and Psychiatry, 15(1): 39–53.
3rd meeting – Theoretical models of adjustment to childhood chronic diseases.
Obligatory reading:
Thompson, R.J., & Gustafson, K.E. (1996). Adaptation to chronic childhood illness (pp. 131-156). s. American
Psychological Association: Washington.
Optional reading:
Wallander, J.L. & Thompson, R.J. (1995). Psychosocial adjustment of children with chronic physical conditions.
In M.C.Roberts (ed). Handbook of Pediatric Psychology, 2nd ed. (pp. 124-142). The Guilford Press: New York.
4th meeting – Symptoms, medical treatment and psycho-social adjustment in conditions with a
psychological component: The case of asthma.
Obligatory reading:
Creer, T.L. & Bender, B.G. (1995). Pediatric asthma. In M.C.Roberts (ed). Handbook of Pediatric Psychology,
2nd ed. (pp. 219-240). The Guilford Press: New York.
Optional reading:
McQuaid, E. & Bramson, N.W. (2009). Pediatric asthma. In M.C.Roberts (ed). Handbook of Pediatric
Psychology, 4nd ed. (pp. 254-270). The Guilford Press: New York.
5th meeting – Symptoms, medical treatment and psycho-social adjustment in conditions needing
long-life treatment: The case of diabetes.
Obligatory reading:
Johnson, B.S. (1995). Insulin-dependent diabetes mellitius in childhood. In M.C.Roberts (ed). Handbook of
Pediatric Psychology, 2nd ed. (pp. 286-309). The Guilford Press: New York.
Optional reading:
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Wysocki, T., Buckloh, L.M., Greco, P. (2009). The psychological context of diabetes mellitius in youths. In
M.C.Roberts (ed). Handbook of Pediatric Psychology, 4nd ed. (pp. 287-301). The Guilford Press: New York.
6h meeting – Symptoms, medical treatment and psycho-social adjustment in conditions needing
medical rehabilitation: The case of juvenile rheumatoid arthritis.
Obligatory reading:
Richards, J.J., Elliot, T.R., Cotilar, R. & Stevenson, V. (1995). Pediatric medical rehabilitation. In M.C.Roberts
(ed). Handbook of Pediatric Psychology, 2nd ed. (pp. 702-722). The Guilford Press: New York.
Rapoff, M.A., Lindsey, C.B., Karlson, C. (2009). Medical and psychosocial adjustment in juvenile rheumatoid
arthritis. In M.C.Roberts (ed). Handbook of Pediatric Psychology, 4nd ed. (pp. 366-410). The Guilford Press:
New York.
LeBovidge, J.S., Lavigne, J.V., Donenberg, G.R., & Miller, M.L. (2003). Psychological adjustment of children
and adolescents with chronic arthritis: a meta-analytic review. Journal of Pediatric Psychology, 28(1): 29-39.
Optional reading:
Kewman, D.G., Warschausky, S.A. & Engel, L. (1995). Juvenile rheumatoid arthritis and neuromuscular
conditions: scoliosis, spinal cord injury and muscular dystrophy. In M.C.Roberts (ed). Handbook of Pediatric
Psychology, 2nd ed. (pp. 384-402). The Guilford Press: New York.
7th meeting –Symptoms, medical treatment and psycho-social adjustment in life-threatening
conditions: The case of cancer.
Obligatory reading:
Powers, S.W., Vannatta, K., Nall, R.B., Coal, V.A., & Stekbens, J.A. (1995). Leukemia and other childhood
cancers. In M.C.Roberts (ed). Handbook of Pediatric Psychology, 2nd ed. (pp. 310-326). The Guilford Press:
New York.
Earle, E. A., & Eiser, C., (2007). Children's behaviour following diagnosis of acute lymphoblastic leukaemia: A
qualitative longitudinal study. Clinical Child Psychology and Psychiatry, 12, 281-294.
Optional reading:
Vannatta, K., Salley, C.G., & Gerhardt, C.A. (2009). Pediatric oncology. In M.C.Roberts (ed). Handbook of
Pediatric Psychology, 4nd ed. (pp. 319-333). The Guilford Press: New York.
8th meeting – (mid-term test) Symptoms, treatment and psycho-social adjustment in genetic
conditions: The case of cystic fibrosis.
Obligatory reading:
Quittner, A.L., Burker, D.H., Marciel, K.K., & Grimley, M.E. (2009). Cystic fibrosis. In M.C.Roberts (ed).
Handbook of Pediatric Psychology, 4nd ed. (pp. 271-287). The Guilford Press: New York.
Optional reading:
Zubrzycka, R. (2012). Suffering in cystic fibrosis. In Eds. J. Binnebesel, Z.Formella, P. Krakowiak, & U.A.
Domzal. Experiencing a suffering, vol 2. (pp. 275 - 290) Lodz: Wydawnictwo Wyzszej Szkoly Edukacji
Zdrowotnej I Nauk Spolecznych.
Stark, L.J., Jelalian E. & Miller, D.L. (1995). Cystic fibrosis. In M.C.Roberts (ed). Handbook of Pediatric
Psychology, 2nd ed. (pp. 241-262). The Guilford Press: New York.
9th meeting – Symptoms, treatment and psycho-social adjustment in chronic conditions needing
transplant: The case of chronic renal failure.
Obligatory reading:
Schweitzer, J.B. & Hobbs, S.A. (1995). Renal and liver disease: End-stage and transplantation issues. In
M.C.Roberts (ed). Handbook of Pediatric Psychology, 2nd ed. (pp. 425-445). The Guilford Press: New York.
Optional reading:
Rodrigue, J.R. & Zelikovsky, N. (2009). Pediatric organ transplantation. In M.C.Roberts (ed). Handbook of
Pediatric Psychology, 4nd ed. (pp. 392-402). The Guilford Press: New York.
II. Psychological intervention in specific problems associated to childhood chronic conditions
10th meeting – The consultation model in pediatric settings. Confidentiality and ethical issues.
Obligatory reading:
Carter, B.D., Kronenberg, W.G., Scott, E., & Ernst, M.M. (2009). Inpatient pediatric consultation liaison. In
M.C.Roberts (ed). Handbook of Pediatric Psychology, 4th ed. (pp. 114-130). The Guilford Press: New York.
Rae, W.A., Brunnquell, D., & Sullivan, J.R. (2009). Ethical and legal issues in pediatric psychology. In
M.C.Roberts (ed). Handbook of Pediatric Psychology, 4th ed. (pp. 19-34). The Guilford Press: New York.
Optional reading
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Hamlett, K.W. &Stabler, B. (1995). The developmental progress of pediatric psychology consulting. In
M.C.Roberts (ed). Handbook of Pediatric Psychology, 2nd ed. (pp. 39-54). The Guilford Press: New York.
Thompson, R.J., & Gustafson, K.E. (1996). Adaptation to chronic childhood illness (pp.232-234). American
Psychological Association: Washington.
11th meeting – Intervention in hospitalization distress and pre-surgery preparation.
Obligatory reading:
Blount, R.L., Zempsky, W.T., Jaaniste, T., Evans, S., Cohen, L., Devine, K.A., & Zeltzer, L.K. (2009).
Management of pediatric pain and distress due to medical procedures. In M.C.Roberts (ed). Handbook of
Pediatric Psychology, 4th ed. (pp. 171-189). The Guilford Press: New York.
Optional reading:
Forsner, M., Jansson, L., & Sørlie, V. (2005). The experience of being ill as narrated by hospitalized children
aged 7–10 years with short-term illness. Journal of Child Health Care, 9(2). 153–165.
Harbeck-Weber, C. & McKee, D.H. (1995). Prevention of emotional and behavioral distress in children
experiencing hospitalization and chronic illness. In M.C.Roberts (ed). Handbook of Pediatric Psychology, 2nd
ed. (pp. 167-184). The Guilford Press: New York.
12th meeting – Pain management and relaxation techniques.
Obligatory reading:
Thompson, R.J., & Gustafson, K.E. (1996). Adaptation to chronic childhood illness. American Psychological
Association: Washington. (pp.271-288).
Varni, J.W., Blount, R.L., Waldron, S.A., & Smith, A.J. (1995). Management of pain and distress. In
M.C.Roberts (ed). Handbook of Pediatric Psychology, 2nd ed. (pp. 105-123). The Guilford Press: New York.
Optional reading:
Antoszewska, B. (2012). Pain and suffering in children with cancer. In Eds. J. Binnebesel, Z.Formella, P.
Krakowiak, & U.A. Domzal. Experiencing a suffering, vol 2. (pp. 201-218) Lodz: Wydawnictwo Wyzszej
Szkoly Edukacji Zdrowotnej I Nauk Spolecznych.
Ost, L.G. (2002). Applied relaxation. In (eds) M.Hersen, & W.Sledge. Encyclopedia of psychotherapy, vol. 1 (pp.
95-102). Elsevier Science: USA.
13th meeting – Intervention for increasing adherence and compliance to treatment.
Obligatory reading:
LaGreca, A.M. & MacKay, E.R. (2009). Adherence to pediatric treatment regimens. In M.C.Roberts (ed).
Handbook of Pediatric Psychology, 4th ed. (pp. 130-151). The Guilford Press: New York.
Mathews, J.R., Spieth, L.E., & Christophersen, E.R. (1995). Behavioral compliance in a pediatric context. In
M.C.Roberts (ed). Handbook of Pediatric Psychology, 2nd ed. (pp. 617-632). The Guilford Press: New York.
Optional reading:
Safren, S.A., Gonzalez, J.S., & Soroudi, N. (2008). Coping with chronic illness. A cognitive-behavioral therapy
approach for adherence and depression. (pp. 57-82). New York: Oxford University Press.
14th meeting – Psychological intervention for school and social reintegration.
Obligatory reading:
DuPaul, G.J., Power, T.J., & Shapiro, E.S. (2009). Schools and integration/reintegration into schools. In M.C.Roberts
(ed). Handbook of Pediatric Psychology, 4th ed. (pp. 689-702). The Guilford Press: New York.
Optional reading:
Madan-Swain, A., Katz, E.R., & LaGory, J. (2004). School and social reintegration after a serious illness or
injury. In R.T. Brown (ed). Handbook of pediatric psychology in school settings (pp. 637-655). Lawerence
Earlbaum Associates: New Jersey.
15th meeting – Psychological intervention at the end-of-life.
Obligatory reading:
Gerhardt, C.A., Baughcum, A.E., Young-Saleme, T., Vannatta, K. (2009). Palliative care, end of life and
bereavement. In M.C.Roberts (ed). Handbook of Pediatric Psychology, 4th ed. (pp. 216-226). The Guilford
Press: New York.
Optional reading:
Reynolds, L.A., Miller, D.L., Jelalian, E., & Spirito, A. (1995). Anticipatory grief and bereavement. In
M.C.Roberts (ed). Handbook of Pediatric Psychology, 2nd ed. (pp. 142-164). The Guilford Press: New York.
Class organization:
Seminar; 45 hours
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Conditions for admission to the exam:
1. class attendance (maximum 2 absences allowed)
2. passing a mid-term test
Form of examination:
20% - class activity – relevant interventions during the course
80% - written project on a given assignment
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