International Society for Heart and Lung Transplantation
International Heart and Lung Transplant Registry
Data/Analysis Request Process
All requests for data and/or analysis from the ISHLT heart and Lung Transplant Registry must be submitted
using the ISHLT Data/Analysis Request Form (below). ISHLT staff evaluate the request and code it according
to one of the below levels.
Level 1 requests are simple requests asking for explanation or additional detail about data in Registry reports or
requests involving < one hour of time. Individuals submitting Level 1 requests are NOT required to be ISHLT
members. Priority of response is given first to Society members, second to non-members who need the
information in the treatment of a patient, third to all others. Level 1 requests will be answered on an as received
basis within 14 days.
Level 2 requests are those requests involving 1- 5 hours of time. Level 2 requests will be fulfilled only for
members of the Society who are working at a center which is actively reporting data to the Registry. Level 2
requests will be forwarded to the appropriate Registry Executive Committee member for approval. If approved,
Level 2 requests will be answered within 4-6 weeks.
Level 3 are those requests involving >5 hours of time. Level 3 requests will be fulfilled only for members of the
Society who are working at a center which is actively reporting data to the Registry. Level 3 requests will
automatically be placed on the agenda for the next Registry Executive Committee Conference Call for approval.
A Registry Executive Committee member will be assigned to consult on each such approved project. For
extensive projects, the Registry Executive Committee may choose to recommend that the requestor complete a
formal ISHLT Grant application and submit the proposal by the February 15 deadline. The deadlines for
submitting Level 3 requests are as follows: January 31, May 31, Sept 30.
Individuals requesting any level of data must sign a statement that presentation or publication of this information
will be accompanied by acknowledgment of the ISHLT/UNOS International Heart and Lung Transplant Registry
as the source of the data.
Individuals receiving Level 2 and 3 data will be required to sign an agreement that any written or verbal
presentations resulting from the data must be submitted to ISHLT for prior approval. Any publications or
abstracts must list the ISHLT/UNOS International Heart and Lung Transplant Registry as a contributing
institution and must list at least one Registry Executive Committee member and at least one UNOS staff
member as co-authors. The ISHLT Annual Meeting Program Committee and the Journal of Heart and Lung
Transplantation have the right of first refusal for abstracts and manuscripts, respectively, generated from Level 2
and 3 data requests.
International Society for Heart and Lung Transplantation
International Heart and Lung Transplant Registry
Data/Analysis Request Form
Please PRINT or TYPE. Complete this form in its entirety and return via fax (804-716-0095), email
(amanda.rowe@ishlt.org) or mail to Amanda Rowe, ISHLT Data Requests, 9921 Eildonway Place, Richmond,
VA 23233. TEL: 804-716-0096. You will receive a reply to your request within 14 days of our receipt of it.
Your Name: __________________________________________________________________________
Institution Name: _____________________________________________________________________
Mailing Address: ______________________________________________________________________
Phone: ___________________________________
Fax: __________________________________
Email: ______________________________________________________________________________
Your Profession/Occupation (optional):
[
[
[
[
]
]
]
]
Cardio-Thoracic/Vascular Surgeon
Nurse/Transplant Coordinator
Immunologist
Student
[
[
[
[
]
]
]
]
Cardiologist
Pulmonologist
Pathologist
Other:______________________________
ISHLT Membership Status:
[
] Member
[
] Non-member
Organ(s) for which data is requested
[
] Heart
[
] Lung
Data requested is for:
[
[
[
] Heart/Lung
] Worldwide
] United States only; Note: ISHLT does not provide US-only data. Requests
for US-only data should be made to datarequests@unos.org)
Is data needed for the treatment of a specific individual? [
] Yes
[
] No
If yes, what is your relation to the individual?
[
[
[
] Physician
] Relative
] Other
[
[
] Nurse
] Friend
If no, for what purpose is data needed (i.e., manuscript, presentation, general interest, etc.)?
_________________________________________________________________________________________
Please describe below that data/information you would like to receive or attach a document that describes your
project in detail:
Please sign the following statement: I acknowledge that presentation or publication of this information will be
accompanied by acknowledgment of the ISHLT/UNOS International Heart and Lung Transplant Registry as the
source of the data.
Signature: ____________________________________
Date: ___________________________