REFERENCES ON SIBLINGS Bank, S.P. & Kahn, M.D. (1982) The Sibling Bond. New York, NY: Basic Books. Barak, A. & Solomon, Z. (2005) In the shadow of schizophrenia: A study of sibling’s perceptions. The Israel Journal of Psychiatry and Related Sciences, 42(4), 234-241. Banett, R.A. & Hunter, M. (2012) Adjustment of siblings of children with mental health problems: behaviour, self-concept, quality of life and family functioning. Journal of child and family studies, 12(2), 262-272. Barnable, A., Gaudine, A., Bennett, L. & Meadus, R. (2006) Having a Sibling With Schizophrenia: A Phenomenological Study. Research and Theory for Nursing Practice: An International Journal, 20(3) 247-264 Canning, L (2006) Rethink siblings survey. Rethink, London Cicerelli, V. (1991) Sibling relationships in middle and old age. In G.H. Brody (Ed) Sibling relationships: Their causes and consequences, 47-73. Norwood, N.J: Ablex. Curson,D. & Sharkey, S.(2006) ‘Out of the mouths of babes’: Drawing upon siblings’ experiences to develop a therapeutic board game for siblings and children with a chronic illness. Clinical Psychology Forum, 159, 36-38 Davtian,H.(2003) UNAFAM study of the needs of siblings. EUFAMI Newsletter, 11, 14-16 Dia, D.A. & Harrington, D. (2006) What about me? Siblings of children with an anxiety disorder, Social Work Research, 30(3), 183-188. Dunn, J. (2000) State of the art: Siblings. The Psychologist, 13, 5, 244-248. Ewertzon, M., Cronqvist, A., Lutzen, K. & Andershed, B. (2012) A lonely life journey bordered with struggle: being a sibling of an individual with psychosis. Issues in mental health nursing, 33, 157-164. Feinberg, M.E., Solmeyer, A.R. & McHale, S.M. (2012) The third rail of family systems: sibling relationships, mental and behavioural health and preventive intervention in childhood and adolescence. Clinical Child and Family Psychology Review, 15, 43-57. Fisher, H., Tobitt, S. Saleem, S. and Steele, S. (2004a) Siblings’ and mothers’ grief reactions to the diagnosis of psychosis in a young family member. Schizophrenia Research, 70(supplement 1), 88 Fisher, H., Bordass, E., & Steele, H. (2004b), Siblings’ experience of having a brother or sister with first-episode psychosis. Schizophrenia Research, 70 (Supplement 1), 88. Friedrich, R. M., Lively, S., & Rubenstein, L.M. (2008) Siblings’ Coping Strategies and Mental Health Services : A National Study of Siblings of Persons with Schizophrenia. Psychiatric Services, 59, 261-267. Gerace, L.M., Camilleri, D. & Ayres, L. (1993) Sibling Perspectives on schizophrenia and the family. Schizophrenia Bulletin, 19, 3, 637-647. Goetting, A. (1986) The developmental tasks of siblingship over the life cycle. Journal of Marriage and the Family, 48, 703-714. Greengerg, J.S., Seltezer, M.M., Orsmond, G.I. & Krauss, M.W. (1999) Siblings of adults with mental illness or mental retardation: current involvement and expectation of future caregiving. Psychiatric Services, 50(9), 1214-1219. Harris, E.G. (1988) My brother’s keeper: Siblings of chronic patients as allies in family treatment. In D. Kahn & K.G. Lewis (Eds) Siblings in therapy: Life Span and Clinical Issues, 314-338. New York: W.W. Norton. Hatfield, A.B. & Lefley, H.P. (2005) Future involvement of siblings in the lives of persons with mental illness. Community Mental Health Journal, 41(3), 327-338. Ironside,V. (2003) The Wise Mouse. London:Young Minds. Johnson, J.T. (1988) Hidden Victims: An Eight Stage Healing Process for Families and Friends of the Mentally Ill. New York, N.Y: Double Day. Kinsella, K., Anderson, R. Anderson, W. (1996) Coping skills, strengths and needs as perceived by adult offspring and siblings of people with mental illness: A retrospective study. Psychiatric Rehabilitation Journal, 20(2), 24-32 Lukens, E. Thorning, H. & Lohrer, S., (2002) How siblings of those with severe mental illness perceive services and support. Journal of Psychiatric Practice, 8(6), 354-364 Magliano, L., Fadden, G., Fiorillo, A., Malangone, C., Sorrentino, D., Robinson, A. & Maj, M. (1999) Family burden and coping strategies in schizophrenia: Are key relatives really different to other relatives? Acta Psychiatrica Scandanavica, 99, 1015. Marsh,D. Dickens,R. Koeske,R. Yackovich,N. Wilson,J. Leichliter,J. & McQuillis,V. (1993) Troubled journey: Siblings and children of people with mental illness. Innovations and Research, 2(2), 13-23 Miller, F., Dworkin, J., Ward, M & Barone, D. (1990) A Preliminary Study of Unresolved Grief in Families of Seriously Mentally Ill Patients. Hospital and Community Psychiatry, 42,12, 1321-1325. Mulder & Lines, (2005) A sibling’s guide to psychosis. Information, ideas and resources. Canadian Mental Health association, Toronto, Canada Nechmad, A., Fenning, S., Ternochiano, P., Treves, I., Fennig-Naisberg, S, Levkovich, Y. (2000) Siblings of Schizophrenic Patients – A Review. The Israel Journal of Psychiatry and Related Sciences, 37(1), 3-11. Newman, S., Simonds, L.M., Billings, J. (2011) A narrative analysis investigating the impact of first episode psychosis on siblings’ identity. Psychosis, 1-10, iFirst Article. O’Shea, M. (2000) The impact on siblings of psychosis within the family: a comparison with key relatives. Unpublished Doctoral Clinical Psychology Thesis, University of Birmingham Samuels, S & Chase, L. (1979) The well sibling of schizophrenics. Journal of Family Therapy, 7, 24-35. American Schmid, R., Schielein, T., Binder, H., Hajak, G & Spiesel, H. (2009) The forgotten caregivers: siblings of schizophrenic patients. International Journal of Psychiatry in Clinical Practice, 13, 326-337. Scott, A. (2010) Sister speaks out about sibling psychosis. Journal of Psychosocial Nursing and Mental Health Services, 48(1), 10-21. Shanas, E. (1979) Social myth as hypothesis: The case of the family relations of old people. The Gerontologist, 19, 3-9. Sin, J., Henderson, C., Pinfold, V., Norman, I. (2013) The E Sibling Project: Exploratory randomised controlled trial of an online multi-component psychoeducational intervention for siblings of individuals with first episode psychosis. BMC Psychiatry, 13:123. Sin, J. (2006, pers comm) Berkshire EI service siblings audit data. Sin, J., Moone, N & Harris, P. (2008). Siblings of individuals with first-episode psychosis: understanding their experiences and needs. Journal of Psychosocial Nursing and Mental Health Services, 46(6), 33-40. Smith, J.(2006, Pers comm) Worcestershire EI service siblings audit data. Smith,J. Fadden, G. and O’Shea, M.(2009) Interventions with siblings. In F. Lobban and C. Barrowclough (Eds.) A Casebook of Family Interventions forPsychosis. Chichester: Wiley and Sons. Smith,J. Fadden,G. and Taylor,L.(2010) The Needs of siblings in First Episode Psychosis In P.French, M.Reed, J.Smith, M.Rayne and D.Shiers (Eds) Early Intervention in Psychosis: Promoting Recovery. Oxford: Blackwell Publishing Ltd. Smith, J.M. & Greenberg, J.S. (2007) The effect of quality of sibling relationships on the life satisfaction of adults with schizophrenia. Psychiatric Services, 58, 1222-1224. Smith, J.M. & Greenberg, J.S. (2008) Factors contributing to the quality of sibling relationships for adults with schizophrenia. Psychiatric Services, 59, 57-62. Solomon,P. & Draine, J.(1995) Subjective burden among family members of mentally ill adults: Reactions to stress, coping and adaptation. American Journal of Orthopsychiatry, 65(3) 419-427 Stalberg, G., Ekerwald, H. & Hultman, C.M. (2004) Siblings of patients with schizophrenia: sibling, bond, coping patterns, and fear of possible schizophrenia heredity. Schizophrenia Bulletin, 30(2), 445-458. Titleman, D. & Pysk, L. (1991) Grief, guilt and identification in siblings of schizophrenic individuals. Bulletin of the Menninger Clinic, 55, 72-84. RESOURCES LIST ON SIBLINGS’ ISSUES Almond, D. (2007) My Dad’s a Birdman. London: Walker Books Ltd. (A novel about a parent’s mental health problems but which can be adapted for young siblings). Froggatt ,D. ( 2001) Leave my stuff alone- a story for young teen siblings. WFSAD, Canada Horn K. and Howe, D. (2002) For brothers and sisters, information about psychosis, Young People and Early Psychosis Intervention (YPPI) Centre Australia Ironside,V. (2003) The Wise Mouse. Young Minds, London (for aged 5-11 years) Lloyd,H. (2002) Children can understand. The Meriden Family Programme, West Midlands Maynard C. and Smith J. (2003) Information about psychosis for brothers and sisters South Worcestershire Early intervention Service, UK Mulder, S. and Lines,E.(2005) A sibling’s guide to psychosis: information, ideas and resources. Canadian Mental Health Association, Canada NSF(Scotland): It’s www.nsfscot.org.uk about you too! (age 8-10years) Download from NSF(Scotland): Need to know (age 11-14years) Download from www.nsfscot.org.uk NSF ( Scotland) Making time to talk (for parents with a mental illness wanting to talk to children about mental illness) download from www.nsfscot.org.uk Sherman, M (2006) I’m not alone: A teen’s guide to living with a parent who has mental illness www.seedsofhopebooks.com Schizophrenia Society of Ontario (2006) When your brother or sister has schizophrenia www.schizophrenia.on.ca ‘What’s Eating Gilbert Grape’ (1993). Movie staring Johnny Depp and Leonardo Di Caprio dealing with the relationhip between a young disabled man and his brother. Further Reading: Lamb, W. (1998). I know this much is true. London: HarperCollins Publishers. (This is a novel about twins where one has schizophrenia, and may be helpful for staff in understanding the impact on siblings. Not suitable for children) Loudon, M. (2006) Relative stranger: A sister’s story. Canangate Books ISBN:1841956759 Neugeboren, J. (1997). Imagining Robert: My Brother, Madness and Survival. New York: William Morrow and Company, Inc. Safer, J. (2003) The normal one: life with a difficult or damaged sibling. Delta Books. ISBN-10: 0385337566 ; ISBN-13: 978-0385337564 Secunda, V (1997) When madness comes home: Help and hope for the children, siblings and partners of the mentally ill. Hyperion Books ISBN-10: 0786861711 ; ISBN-13: 978-0786861712 Simon, C. (1998) Mad house: Growing up in the shadow of mentally ill siblings. Penguin. ISBN-10: 0140274340 ; ISBN-13: 978-0140274349 USEFUL WEBSITES E Sibling Project: http://siblingpsychosis.org/ The E-Sibling Project aims to address the needs of siblings by providing interactive peer support and information on psychosis. ‘Sibs’: www.sibs.org.uk Generic website for siblings producing information sheets, regular newsletter, will take calls from siblings, runs workshops. Article on this group appears in the September 2008 edition of the newsletter. Young Sibs: www.youngsibs.org.uk Young Sibs is an online support service for brothers and sisters of disabled children and young people. It is for siblings who live in the UK and are under 18. Rethink Siblings: www.rethink.org/siblings New on-line national network for siblings to share experiences and get support set up by Rethink mental health charity. www.champsworldwide.com For children aged 5-12yrs who have an adult family member with a mental illness. Dr Gráinne Fadden June 2013