Online Appendix for the following February 21 JACC article
TITLE: Report of the NHLBI Working Group on Research in Adult Congenital Heart
Disease
AUTHORS: Roberta G. Williams, MD, FACC, Department of Pediatrics, Children’s
Hospital Los Angeles, Keck School of Medicine University of Southern California,
Los Angeles, California, Gail D. Pearson, MD, ScD, FACC, Division of Heart and
Vascular Diseases, National Heart, Lung, and Blood Institute, NIH/DHHS, Bethesda,
Maryland, Robyn J. Barst, MD, FACC, Department of Pediatric Cardiology,
Children’s Hospital of New York, New York Presbyterian Columbia University,
Columbia University College of Physicians and Surgeons, New York, New York,
John S. Child, MD, FACC, Ahmanson/UCLA Adult Congenital Heart Disease
Center, David Geffen School of Medicine, University of California, Los Angeles,
School of Medicine, Los Angeles, California, Pedro del Nido, MD, Department of
Surgery, The Children’s Hospital, Harvard Medical School, Boston, Massachusetts,
Welton M. Gersony, MD, FACC, Department of Pediatric Cardiology, Children’s
Hospital of New York, New York Presbyterian Columbia University, Columbia
University College of Physicians and Surgeons, New York, New York, Karen S.
Kuehl, MD, MPH, FACC, Division of Pediatric Cardiology, Children’s National
Medical Center, George Washington University, Washington, DC, Michael J.
Landzberg, MD, FACC, Department of Cardiology, Brigham and Women’s Hospital
and The Children’s Hospital, Harvard Medical School, Boston, Massachusetts, Merle
Myerson, MD, EdD, FACC, Division of Epidemiology and Clinical Applications,
National Heart, Lung, and Blood Institute, NIH/DHHS, Bethesda, Maryland, Steven
R. Neish, MD, SM, FACC, Brown Foundation Heart Clinic, Texas Children’s
Hospital, Baylor College of Medicine, Houston, Texas, David J. Sahn, MD, MACC,
Clinical Care Center for Congenital Heart Disease, Doernbecher Children’s Hospital,
Oregon Health and Science University, Portland, Oregon, Amy Verstappen, President,
Adult Congenital Heart Association, Philadelphia, Pennsylvania, Carole A. Warnes,
MD, FACC, Division of Cardiovascular Diseases and Pediatric Cardiology, Mayo
Clinic College of Medicine, Rochester, Minnesota, Catherine L. Webb, MD, MS,
FACC, Division of Pediatric Cardiology, Children's Memorial Hospital, Northwestern
University Feinberg School of Medicine, Chicago, Illinois
APPENDIX
List of Working Group Members and Federal Participants
(Note: Working Group Members who are also authors have only their names listed;
others have full affiliations provided)
Working Group Members: Roberta G. Williams (Chair), Robyn J. Barst, John S.
Child, Pedro del Nido, Paul L. Douglass, Metropolitan Atlanta Cardiology
Consultants, Atlanta, Georgia; Welton M. Gersony, Karen S. Kuehl, Michael J.
Landzberg, George A. Mensah, National Center for Chronic Disease, Centers for
Disease Control, Atlanta, Georgia; Steven R. Neish, David J. Sahn, Amy Verstappen,
Carole A. Warnes, Catherine L. Webb.
Federal Participants:
NHLBI/NIH/DHHS;
Nancy D. Bridges, NIAID/NIH/DHHS; Jerome L. Fleg,
Teri
Manolio,
NHLBI/NIH/DHHS;
Merle
Myerson,
NHLBI/NIH/DHHS; Gail D. Pearson, NHLBI/NIH/DHHS, Charlene Schramm,
NHLBI/NIH/DHHS.