The Legacy of Angels Foundation
Funded Grants
In 2009 the Foundation funded $500,000 in grants for the following:
Cystic Fibrosis Foundation, Bethesda, Maryland
Cystic Fibrosis Care and Therapeutics Development in Minnesota
Joanne Kurtzberg M.D. - Duke University Medical Center, Durham, North Carolina
Infantile Krabbe Disease Research Program
In 2010 the Foundation funded $1,289,000 in grants for the following:
Maria Luisa Escolar, M.D. - University of North Carolina - Chapel Hill, North Carolina
A Virtual Medical Home and Clinic for Children with Krabbe Disease
Maria Luisa Escolar, M.D. - University of North Carolina - Chapel, Hill, North Carolina
Krabbe Transitional Research Network (KTRN) Meeting
Joanne Kurtzberg M.D. - Duke University Medical Center, Durham, North Carolina
Infantile Krabbe Disease Research Program
Dieter Matern, M.D., Ph.D. - Mayo Clinic, Rochester, Minnesota
Development of Efficient and Effective Screening Strategies for Lysosomal Storage
Disorders, Friedreich Ataxia, Wilson Disease, and X-Adrenoleukodystrophy
The Cystic Fibrosis Foundation - "Molecular Defects of CFTR caused by the F508
Mutation" - $250,000
In 2011 the Foundation funded $1,576,000 in grants for the following:
Maria Luisa Escolar, M.D. – University of Pittsburgh Medical Center, Pittsburgh, PA
MRI for Neurodevelopment For Rare Diseases Program
Maria Luisa Escolar, M.D. – University of Pittsburgh Medical Center, Pittsburgh, PA
Krabbe Translational Research Network Collaborative Lab Grant
Maria Luisa Escolar, M.D. – University of Pittsburgh Medical Center, Pittsburgh, PA
Krabbe Transitional Research Network (KTRN) Meeting
Michael Farrell, M.D. - Medical College of Wisconsin, Milwaukee, Wisconsin
Quality Improvement in Cystic Fibrosis Newborn Screening: Improving Follow-up and
Outcomes with Tools for “Facilitative Interactive Communication
Jill Levy-Fisch – Save Babies Through Screening Foundation Inc.
Newborn Screening Education Video
Joanne Kurtzberg, M.D. - Duke University Medical Center, Durham, North Carolina
Infantile Krabbe Disease Research Program
Michael Rock, Ph.D. - University of Wisconsin, Madison, Wisconsin
Quality Improvement in Cystic Fibrosis Newborn Screening