NATIONAL CANCER INSTITUTE
IRCCS “GIOVANNI PAOLO II”
VIA S. HAHNEMANN, 10
- 70126
BARI
– ITALY
DEPARTMENT OF CRITICAL AREA AND SURGERY
DIRECTOR
V. MATTIOLI, MD
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BACKGROUND
Cancers represent the greatest problem of public health for all the industrialized Countries, Italy
included. Cancer Survival, in the last years, has significatively increased and to confirm it, there are the
last data relating to the Italian Cancer Registries (ICR). Cancer Survival up to five years since the
diagnosis is of 45,7% in men and of 57,5% in women: a result in line with the European average that
shows an improvement in the last twenties, even if we aren’t still at the United States level, which
reached values of 64%.
Italian data show an increase of about 15% as regards 1985, while for the cancer survival to ten years
the improvement is of about 6%.
The actual estimates indicate that in Italy the population of cancer survivors is of 1.709.000, 2,5% of
the whole population with an increasing forecast to 2010 of 1.25.000(3,3%). For Region Puglia the
estimate is of 70-80.000 long-term cancer survivors.
The great survivorship is due to the increased availability of efficacious therapies and to the diffusion of
screening programs, even if analyzing the existing discrepancies among the rates of mortality
estimated for Regions, a difference of mortality of 10% is evident. For this reason these data must be
interpreted with prudence as in Italy the mortality data are systematically available both at national and
regional level; the other indicators are generally available only for the interested areas by ICR, that
cover about 20% of national population, with only 3 Regions out of 20, Umbria, Friuli and Trentino, Alto
Adige, entirely covered by activities of registration.
These figures testify the emergency of a social, health, complex and polymorphous scenario, still less
known in our Country and in Europe: Cancer Survivorship.
The studies done in the USA since the seventies, even if fragmentary at the beginning, have focused
over the time an epidemiological profile for these “ex patients” who in that Country are about
10.000.000, the 3% of the whole population. Particularly important has been the cognitive and
operative impulse given by the National Coalition for Cancer Survivorship (NCCS), a cancer advocacy
group founded in 1986 and constituted by the same patients survived to cancer.
However only recently these knowledges have taken to a scientific literature of great importance that
has as document of reference, the Report of the Institute of Medicine (IOM) and of National Research
Council, published in 2006 by the National Academy of Sciences.
In the last decade the scientific contribution has considerably increased on this new subject by the most
scientific American known Journals that have started to publish a great number of papers and special
numbers, entirely dedicated both to the knowledge of the psychosocial and rehabilitative aspects of the
long-term survivorship, and to the Continuous Formation for Doctors and Nurses. Considerable is today
the contribution of the main American Medical Societies, among them the American Cancer Society and
the American Society of Clinical Oncology (ASCO) with the Journal of Clinical Oncology (JCO), and
Nursing among them the Oncology Nurses Society (ONS) with the American Journal of Nursing (AJN),
and the International Society of Nurses in Cancer Care (ISNCC).
A substantial cognitive and operative support has also been provided by the Centers of Disease Control
and Prevention (CDC) and by the Lance Armstrong Foundation.
Waiting for greater learning on the population and the problems of long-term cancer survivors in Europe
and Italy, in relation with the development of PIO7 Plan too, the National Research Program of the
Italian Ministry of Health, this Study Day, in spite of the cultural and of welfare differences between
American and Italian welfare policy, will analyze the more recent data from the American literature
about Cancer Survivorship of the aged patients, comparing them, if possible, with the reality of our
Country.
PUBLIC FORUM AND INTERVIEWS
Life beyond cancer
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May 6-2008
15.00 CME Participants Registration
CME Entrance Questionnaire
15.30 Cancer Survivorship: issues, barriers, challenges, and programs
Chairmen: Vittorio Mattioli, Angelo Paradiso
Welcome and Introduction
16.00 Testimony. My journey as patient, and survivor: a first-person perspective
Susan Leigh and Nicola Rondinone
16.45 Debate and Interviews
Panel: Nichi Vendola, Alberto Tedesco, Nicola Pansini,Giuseppe Colucci, Francesco Schittulli,
Pamela Haylock, Francesco De Lorenzo, Raffaella De Franco, Marilena Bongiovanni,
Rosanna Montanaro
Discussants: Silvia Godelli, Tommaso Fiore
19.30 Conclusions
MCE COURSE
Life beyond cancer
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May 7- 2008
Morning session 8.30 am
Chairmen: Giuseppe Colucci and Francesco Bruno
9.00 Survivorship: only a question of glossary? V. Mattioli
9.30 National Estimates of Cancer Patients Survival in Italy G. Colucci
10.00 Characteristics of Cancer Survivors in the U.S.A. P.J. Haylock
10.30 Coffee break
11.00 Pain, Neuropathy and others Medical Concerns of Cancer Survivors after treatment F.
Giotta
11.30 Psychosocial and Cognitive Concerns of Cancer Survivors M. A. Annunziata
12.00 Introduction of Italian Project PIO7 U. Tirelli
12.30 Discussion
13.00 Lunch
Afternoon session 14.30 pm
Chairmen: Pamela J. Haylock and Vittorio Mattioli
14.40 Cancer Survivorship: a limit or a success? R. De Franco
15.10 Cancer and Sexuality: the disease becomes a resource F. De Falco
15.40 Life beyond cancer: the rights of Cancer Survivors F. De Lorenzo
16.10 Discussion
16.30 Coffee break
16.50 National Coalition for Cancer Survivorship (NCCS): the start and the progress of the
Survivorship movement in the U.S.A S. Leigh
17.20 NCI of Bari, our early experience in Cancer Survivorship: work in progress G. Bradascio,
A. Di Lella, E. Rizzo
17.50 Lecture: The Cancer Survivor’s Prescription for Living P.J. Haylock
18.30 Conclusions
18.40 CME Exit Questionnaires
Host the Study Day: Sheraton Nicolaus Hotel
Via A. Ciasca, 27 – Bari (Italy)
Phone +390805682111
FACULTY
M. Antonietta Annunziata
Responsible Chief, D.O.U. Psychoncolgy, NCI CRO. Centro Riferimento Oncologico. Aviano
Marilena Bongiovanni
National President, Voluntary Association Angolo Onlus. Aviano
Grazia Bradascio
Department Critical Area and Surgery, NCI IRCCS “G. Paolo II” Bari
Francesco Bruno
Director, Institute Anaesthesiology and Reanimation, University. Bari
Giuseppe Colucci
Director, Department of Medical Oncology, NCI IRCCS “G. Paolo II”. Bari
Francesco De Falco
Director, O.U. Psychoncolgy and Psychotherapy, NCI IRCCS Foundation “G.Pascale”.Naples
Raffaella De Franco
Director, Chair of Bioethics. University. Bari
Francesco De Lorenzo
National President, Italian Federation of Voluntary Organizations in Oncology, FAVO. Rome
Antonia Di Lella
Department Citical Area and Surgery, NCI IRCCS “G. Paolo II”. Bari
Tommaso Fiore
Director, Institute Anaesthesiology and Reanimation, University. Bari
Francesco Giotta
Department Medical Oncology, NCI IRCCS “G. Paolo II”. Bari
Silvia Godelli
Regional Councillor of Mediterranean. Region Puglia. Bari
Pamela J. Haylock
Phd student, School of Nursing. University of Texas Medical Branch, Galveston. USA.
Susan Leigh
Founding Member of the NCCS. Tucson. USA
Marisa Longo
MCE Unit, NCI IRCCS “G. Paolo II”. Bari
Vittorio Mattioli
Director, Department Critical Area and Surgery NCI, IRCCS “G. Paolo II” Bari
Rosanna Montanaro
Department Critical Area and Surgery, NCI IRCCS “G. Paolo II”. Bari
Nicola Pansini
General Manager, NCI IRCCS “G. Paolo II”. Bari
Angelo Paradiso
Scientific Director, NCI IRCCS “G. Paolo II”. Bari
Cancer Care Consultant.
Elisabetta Rizzo
Department Woman, NCI IRCCS “G. Paolo II”. Bari
Francesco Schittulli
National President, Italian League Fight Against Cancer. LILT. Rome
Alberto Tedesco
Regional Councillor of Health Politics. Region Puglia. Bari
Umberto Tirelli
Director, Department Medical Oncology, NCI CRO. Aviano
Nichi Vendola
President of Region Puglia. Bari
ORGANIZATION
NATIONAL CANCER INSTITUTE IRCCS “GIOVANNI PAOLO II” Via S. Hahnemann, 10 – 70126 - BARI
website
www.oncologico.bari.it
General Manager, Nicola Pansini, MD
DEPARTMENT CRITICAL AREA AND SURGERY
Director, Vittorio Mattioli, MD
Phone/fax +390805555387
email v.mattioli@oncologico.bari.it
SCIENTIFIC COMMITTEE
Vittorio Mattioli
Director, Department Critical Area and Surgery, NCI IRCCS “G. Paolo II” Bari
Giuseppe Colucci
Director, Department Medical Oncology, NCI IRCCS “G. Paolo II”. Bari
Angelo Paradiso
Scientific Director, NCI IRCCS “G. Paolo II”. Bari
Umberto Tirelli
Director, Department Medical Oncology, NCI CRO. Aviano
Pamela J. Haylock
Cancer Care Consultant, and Doctoral Candidate, University of Texas Medical Branch, Galveston. USA.
CME ORGANIZATION
Patrizia Nardulli
IRCCS NCI “G. Paolo II”. Bari. Phone/fax +390805555141
m.longo@oncologico.bari.it,
v.ponzio@oncologico.bari.it
Marisa Longo
Vittoria Ponzio
DEPARTMENT SECRETARIAT
Cinzia Romanello
NCI IRCCS “G. Paolo II”. Bari Phone/fax +390805555384
email criticare@oncologico.bari.it
EXECUTIVE SECRETARIAT
AGORÀ ‘’
Via C. Rosalba 41/A, 70124 Bari. website www.organizzazioneagora.it
Phone/fax +390805093954 fax +390805093974
email info@ organizzazioneagora.it
AEGIS, ENDORSEMENTS, AND ACKNOWLEDGMENTS
Ministero Italiano della Salute
Italian Ministry of Health
Presidenza Regione Puglia
President of Region Puglia
Assessorato Regione Puglia alle Politiche della Salute
Regional Councillor of Health Politics. Region Puglia
Assessorato Regione Puglia Trasparenza e Cittadinanza Attiva
Regional Councillor of Transparency and Active Citizenship. Region Puglia
Assessorato Regione Puglia alla Cultura ed al Mediterraneo
Regional Councillor of Mediterranean. Region Puglia
Associazione Italiana Oncologia Oncologica – AIOM
Italian Association of Medical Oncology
Gruppo Oncologico Italia Meridionale – GOIM
Oncology Group of Southern Italy
Mediterranean Oncology Society - MOS
Società Italiana di Psiconcologia – SIPO
Italian Society of Psychoncolgy
Società Italiana di Anestesia Analgesia Rianimazione Terapia Intensiva – SIAARTI
Italian Society of Anesthesia Analgesia Reanimation and Intensive Care
Istituto Superiore di Sanità – ISS
Italian National Institute of Health
Sbarro Health Research Organization - SHRO
Human Health Foundation - HHF
Infermieri Professionali Assistenti Sanitari e Vigilatrici d’Infanzia – IPASVI
Italian Federation of Nurses’ Colleges
Lega Italiana per la Lotta contro i Tumori - LILT
Italian League Fight Against Cancer
National Coalition for Cancer Survivorship - NCCS
Oncology Nursing Society – ONS
Ordine dei Medici Chirurghi ed Odontoiatri Provincia di Bari
Medical Register of Physicians and Dentistry. District of Bari
Circolo della Sanità di Bari
Healthcare’s Club of Bari
Federazione Associazioni Volontariato Oncologico – FAVO
Italian Federation of Voluntary Organizations in Oncology
Associazione Italiana Malati di Cancro – AIMaC
Italian Association of Cancer Patients
International Society of Nursing in Cancer Care - ISNCC
Associazione Nazionali Guariti o Lungoviventi Oncologici – ANGOLO
National Association of Cancer Cured or Long-term Survivors
CME CREDITS
The Study Day is in process of obtaining accreditation by the Italian Ministry of Health in compliance
with the national CME regulations.
FEE/REGISTRATION
The participation at the CME event is free, while the registration is obliged.
Once the maximum number of participants has been reached, registration will be closed and the
organizing secretariat will promptly contact those participants exceeding.
The number of participants is 60 therefore sharing out:
n.30 Oncologists/Anaesthesiologists
n.10 Psychologists
n.20 Nurses
SERVICES FOR PARTICIPANTS
During the Congress the translation will be provided from English into Italian and vice versa for the
scientific sessions indicated in the program.