Cystic Fibrosis Trust Clinical Conference
‘Moving forward together in a new era’
Manchester Conference Centre
Wednesday 25 September
A conference for cystic fibrosis clinicians and multidisciplinary team members
9.15am
10.00am
Registration, refreshments and networking
Welcome and introduction
10.10am
10.35am
10.55am
Ed Owen, Chief Executive, Cystic Fibrosis Trust
Transformational treatments – Correctors and potentiators in the pipeline
Sponsored by Vertex
Chair: Oli Rayner, Adult with cystic fibrosis
Professor Jane Davies, Reader and Honorary Consultant, Imperial College, London
Professor Stuart Elborn CBE, Adult Physician, Queen’s University, Belfast
Q&A
Increasing access to lung transplantation
11.20am
11.30am
12.30pm
Introduction: Claire Francis, Cystic Fibrosis Trust
Andrew Fisher, Professor of Respiratory Transplant Medicine, University of
Newcastle
Q&A
Workshops session 1
Lunch and opportunity to meet the sponsors
Workshops session 2 1.40pm
2.40pm Adherence – The importance of habit formation
Introduction: Janet Allen, Director of Research, Cystic Fibrosis Trust
Dr Martin Wildman, Honorary Senior Clinical Lecturer Health Services Research,
ScHARR, University of Sheffield and Consultant, Respiratory Medicine and Adult CF,
Sheffield Adult CF Centre, Northern General Hospital
Q&A 3.10pm
3.20pm Tea and coffee break
Hot topics
3.40pm
3.55pm
Staphylococcus aureus – is prevention better than cure?
Dr Matthew Hurley, Clinical Research Fellow, University of Nottingham
4.10pm
Modern assessment of lung disease
Dr Alex Horsley, NIHR Clinician Scientist, University of Manchester & Honorary
Consultant, Manchester Adult CF Centre
Mycobacterium abscessus – detecting and controlling infection
Dr Andres Floto, Wellcome Trust Senior Clinical Fellow and Honorary Consultant
Cystic Fibrosis/Lung Defence Unit, Papworth Hospital and Department of Respiratory
Medicine, Addenbrooke’s Hospital

4.25pm
4.40pm
TORPEDO project case study
Dr Simon Langton Hewer, Consultant Respiratory Paediatrician,
Bristol Royal Hospital for Children
Closing comments
Ed Owen
4.45pm
WORKSHOPS
1.
Close
Diagnosis and management of fungal disease
Weston Theatre
Dr Damian Downey, Consultant Respiratory Physician, Belfast City Hospital
Professor John Moore, Microbiologist, Belfast City Hospital
2. A new framework for transition
Cockroft Theatre
– Introducing Ready, Steady, Go
Judi Maddison, CF Nurse Specialist, University Hospital Southampton
Trish McGinnity, CF Nurse Specialist, University Hospital Southampton
3.
4.
Funding and managing high cost drugs in the new NHS
Conference Room 3
Paul McManus, Pharmacist Adviser, North of England Specialised Commissioning Group
Additional speakers tbc
Exercise testing
Conference Room 2
Dr Judy Bradley, Professor of Physiotherapy, University of Ulster
Lisa Kent, Research Associate, University of Ulster
Brenda O’Neill, Lecturer in Physiotherapy, University of Ulster
5. Managing appetite and nutrition in adolescence
Boardroom Level 6
Dr Mandy Bryon, Consultant Clinical Psychologist, Great Ormond Street Hospital
Alison Morton, Clinical Specialist Dietician, Regional Adult Cystic Fibrosis Unit, Leeds
Teaching Hospitals
6. The UK CF Registry
Conference Room 3A
Elaine Gunn, CF Registry Clinical Data Manager, Cystic Fibrosis Trust
Evening programme – open to all
Palace Hotel, Manchester
6.00pm
7.00pm
8.00pm
Drinks reception, networking and knowledge sharing
Dinner
After dinner-speaker with guest speaker Dalton Grant - GB High Jumper and
World Veteran Record Holder

Cystic Fibrosis Trust Clinical Conference
‘Moving forward together in a new era’
Manchester Conference Centre
Thursday 26 September
A meeting of the Cystic Fibrosis Trust and directors of specialist CF centres and clinics
Programme
10.00am
10.30am
10.45am
Registration, refreshments and networking
Welcome and introduction
Ed Owen, Chief Executive, Cystic Fibrosis Trust
Working in partnership – proposals for enhanced collaboration between the
Cystic Fibrosis Trust, patients and clinicians
Discussion, with:
Ed Owen, Chief Executive, Cystic Fibrosis Trust
Dr Diana Bilton, Chair, CF Clinical Reference Group and Consultant Respiratory
Physician, Royal Brompton Hospital
11.25am Improved interpretation of lung function data: the global lung function initiative
Janet Stocks, Professor of Respiratory Physiology, UCL Institute of Child Health
Q&A 12.05pm
12.20pm
1.30pm
Lunch and opportunity to meet the sponsors
Q&A
Expert review of the UK CF Registry – initial recommendations
Professor Kathy Rowan, Director, ICNARC
2.00pm
2.20pm Planning and funding in the new commissioning era
Chair: Iolo Doull, Consultant Respiratory Paediatrician, Children’s Hospital for Wales
Dr Diana Bilton, Chair, CF Clinical Reference Group and Consultant Respiratory
Physician, Royal Brompton Hospital
Kim Cox, National Programme Director (Internal Medicine), Medical Directorate, NHS
England
Mr David Turner, PPE representative, CF Clinical Reference Group
Gordon MacGregor, Consultant in Respiratory and Cystic Fibrosis medicine,
Gartnavel General Hospital
2.50pm
3.00pm
Q&A
The Registry and pharmacovigilance
Noreen Caine, Registry Consultant, Cystic Fibrosis Trust
Elaine Gunn, CF Registry Clinical Data Manager, Cystic Fibrosis Trust
3.15pm
3.30pm
3.40pm
Update on research plans
Closing comments
Ed Owen
Janet Allen, Director of Research, Cystic Fibrosis Trust
Close