Morality in the Modern world RMPS Intermediate 2 / 1 Medical Ethics 1. The use of Human Embryos 2. Euthanasia 1 Introduction This part of the course is called Morality in the Modern World. Our chosen topic is Medical Ethics. We are well aware of what we are talking about when we refer to the modern world, but what is morality about? Morality is about what we as individuals or as a society consider to be right ways to behave. It is about what we should or should not do because we regard certain actions or practices as right or wrong. In the past people and societies had their moral standards and codes of conduct, but things which they accepted then, such as slavery or child labour we now reject as wrong. So what we believe about right and wrong can change. There are issues today in the modern world that the ancient world did not even know about. For example we today debate about the rights and wrongs of having and using weapons of mass destruction. In ancient times they did not have such weapons so it was not an issue. There are two modern moral issues we are going to think about. The first is the use of human embryos in medical research. The second is euthanasia. Our first topic, the use of human embryos is very modern indeed, and only has been an issue for the past few years. It did not exist in ancient times. Our second topic euthanasia, which probably has been around much longer, but today there is taking place a lot of debate on this subject. It is a topic which is mentioned in the media quite often these days. Part 1 The use of human embryos What is a human embryo? A human embryo is a fertilized human egg which is developing (the word embryo literally means ‘that which grows’) and is less than 8 weeks old. Once it is past the 8 weeks stage the embryo is becoming more human in appearance and is developing more rapidly. It is from this point on referred to as a foetus. Human embryos can be created in two ways. Either in the natural way when a woman becomes pregnant after having sex, or by means of In Vetro Fertilization (IVF), when a woman’s egg is extracted from her ovaries by a 2 simple operation, and that egg is fertilized artificially with her partner’s sperm in a glass dish. The fertilized egg (the embryo) is then re-implanted in the uterus to grow to be born as her baby. The images below show what an embryo a few days’ old looks like when viewed through a microscope. Human Embryo 1 day old Human Embry 3 days old Human Embryo 5 days old 3 Some basic information about a human embryo A human embryo contains half the DNA from the mother and half from the father (see the picture of the one day old embryo above). Thus if the embryo is allowed to develop into the foetal stage and beyond until it is born, then the baby will have some of the characteristics of its parents. This is why we have some of our parent’s physical features and characteristics. Lisa Samson in the episode called ‘The Stupid Gene’ was afraid she had inherited her father’s dumbness. More about DNA DNA or Deoxyribonucleic acid, is the genetic material of all living organisms. Every cell in the growing embryo contains the genetic code from its DNA which will determine how the embryo will develop. DNA is the building blocks of life. It is the code within each cell that instructs that cell how to develop. That is why we are all different. But we are similar we all look like humans because much of our DNA is similar. Every species develops according to its own DNA. That is why humans grow to be humans and elephants grow to be elephants. All species share some common DNA. This indicates that we are biologically linked. Chimpanzees share 98% of our human DNA, they are the closest species to humans. This is evidence that we are related to chimps. To use some technical language and diagrams, DNA consists of two long polymers with backbones made of sugars. These two strands run in opposite directions to each other and are therefore are anti-parallel. Attached to each sugar is one of four types of molecules called bases. It is the sequence of these four bases along the backbone that encodes information. 4 The four bases can be represented by the letters A,B, C and D The letters below could represent one gene AADCBDCBCABCAACBBADADDCBABBDBBDAA So for what purpose do scientists use human embryos? So what would scientists want to use human embryos for? Our chosen modern moral topic is Medical Ethics. So these human embryos are used in medical research. In the world of medicine researchers are always trying to find out more about how the human body works To find cures for the illnesses and diseases that affect us. Human embryos have become an important part of this research in recent times. Especially since the amazing understanding and development in recent years in the area of genetics and stem cell research. So scientists using human embryos see this as essential to their work for a number of reasons. 5 The first two involve the procedure of cloning 1. Therapeutic Cloning. (creating an embryo clone of a person to heal that person) Scientists today are able to create an embryo that has the identical DNA of an existing fully grown adult. If that embryo was allowed to grow in the womb and be born then it would look just like the person at each stage of development. The way this clone is produced does not concern us here. What does concern us is why this procedure is being carried out. The reason it is being done is because an embryo of just a few days old has very special and unique cells which are called stem cells. These stem cells are special because they can develop into various types of human tissue, such as skin cells or brain cells. If someone has an injury that will not heal itself, stem cells can be implanted, and will grow to repair the damaged tissue. Thus providing a cure for an injury that was before medically impossible. The reason why the stem cells are taken from a cloned embryo is that these stem cells will be a perfect match for the person and there will be no problem with the body rejecting them. This process is legal in this country. 2. Reproductive Cloning (creating an identical person) This is when a person is cloned and the embryo implanted in the womb and allowed to develop and eventually be born. But why would you want to do this? It could be that you could replace a child who has died by using that child’s DNA to clone them. This is what the father of Jamie wanted in the documentary ‘How to Build a Human. It is the theme of the film ‘Godsend’. It could be in the future that the clone could be kept in storage and used to supply spare part organs for people if needed (as in the film The Island). in the event of a medical crisis. Clones it has been suggested could be used in our army, as a fighting machine. It must be noted that reproductive cloning is illegal in the UK. 6 The next two therapies involve the procedure of genetic modification As we mentioned above 3.Gene transfer therapy (removing a faulty gene and replacing it with a good gene) There are some medical conditions that can be passed on from parent to child because of the similarities in the genes. It is possible to remove a faulty gene in an embryo and replace it with a good one. A new gene can be administered through an injection or by simply inhaling it through an aerosol. By doing so inherited conditions are cured. An example would be cystic fibrosis, this procedure would prevent it from being genetically inherited. 4. Germline Therapy. (changing sex genes to stop inherited diseases from being passed on down the generation) In this case the change involves the sex genes. This means that the faulty gene will not be passed on to subsequent generations, through the normal reproductive process. Currently this procedure is not allowed. This last one only involves embryo testing and selection 5. Pre-Implantation embryo selection (selecting the best embryo out of several for implantation) This is the procedure in which embryos are produced through the IVF method. In IVF treatment more than one embryo is produced. So this is just a simple selection process. The embryos are tested for genetic disorders by extracting a single cell from them. If no genetic disorder is found then the embryo is implanted in the womb and allowed to develop to become the baby. This procedure is allowed in the UK. 7 The dangers of this research Although there great advances are being made in medical research as a result of the use of human embryos. Some people are against such research on the basis of religious grounds. Others are against the research because they are concerned about where all of this research might lead. In other words they believe that there are hidden dangers in carrying out this work. So what might these dangers be? 1. We may be trying to solve problems, but we may be creating other more frightening problems from this research that we are not yet fully aware of. 2. Like it or not, maybe nature has a good reason for illnesses and disease. Our messing about with genes could lead to some kind of imbalance in nature that would be worse than the benefits we think we are bringing. 3. The cost of individual treatments be it therapeutic cloning or gene transfer therapy is very expensive. Some believe that the resources could be better used to help more people who require more conventional treatments. 4. Although reproductive cloning is banned. If we allow therapeutic cloning, then we are opening the door which may lead to reproductive cloning in the future. 5. The whole process of using human embryos could lead our society to have less respect for human life. 6. Who knows where all this cloning of embryos and genetic engineering will lead in the future. Although what we see in films such as The Island, The Sixth day, Godsend, and Gatacca seem pure science fiction. All of this could become a reality. Do we really want to go down a road that could lead eventually to those kind of societies. Copying an individual, cloning for spare parts, designing babies. 8 What the law in the UK says about the use of Human embryos in medical research and treatments. In the UK the use of human embryos in research and treatments including the use of clones, is strictly controlled by the law. What the law says is set out in the Human Fertilization and Embryology Act of 1990. A government body called the Human Fertilization and Embryology Authority (HFEA) makes sure that these guidelines are kept. So what does the law say? What are the guidelines? The Law 1. It allows the use of human embryos up until 14 days. This point is chosen because after 14days the embryo begins to develop organs and may feel pain. 2. The research must be for a good purpose. To cure diseases or improving fertility treatments. 3. Research with no real aim is not allowed. 4. Embryos cannot be bought or sold. 5. A person must be asked permission before their embryo can be used. 6. Human and animal genetic material should not be mixed in experiments. 9 The Moral issues The use of human embryos in the ways that have been outlined above, raises moral and ethical issues. Remember morality is about right and wrong, and ethics is about what we have decided is right and wrong. In relation to the use of human embryos in medical research and treatments, people, both religious and non religious, have strong moral opinions about this practice. We will now turn our attention to what is being said. In doing this we will look at what Christians have to say about the issue. They will use the teaching of the Bible and the Church to help them in deciding their moral opinions and beliefs. Christians divide into two main groups Roman Catholics and Protestants. This is because they hold different beliefs about their faith. Not surprisingly therefore when it come to the issue of the use of human embryos in medical work, they do not all hold the exact same viewpoint. Yet all use religious principles to guide them. A Unitarian minister who gave up believing in God started an organisation which became know as Humanism. People belonging to this group became known as Humanists. Humanism represents people who have a non religious view on life. Humanism though, is much more than non belief in God. What it means to be a Humanist They do not believe in God. They believe that human beings are important, They believe that every person should live their lives working for their own happiness and that happiness of others. beliefs should only be based on evidence not religious teaching or stories from holy books. They believe that there is a right and wrong way for humans to behave. Humanists have a concern for all human beings and human life. Respect for others and tolerance are very important values. They tend to believe that a right action is what brings the greatest good for the most number of people. We will learn what they have to say about the issue of the use of human embryos. Again they might not all come to the same moral conclusion 10 1. The Humanist non religious point of view on the use of human embryos. Generally they see no problem with using human embryos. The embryos used come from fertility treatments. It is better to use them for some good rather than just destroying them. In deciding this they try to understand the facts, look at the dangers, consider the consequences of such medical work. Does the good that comes from this work outweigh the dangers? If so then it is right and acceptable. Some humanists may doubt whether good outweighs the dangers and therefore disagree withy the above. Some points that they may make are listed on page 8. Go back and check them out. But the general view of humanists is in favour of this research as set out by the British Humanist Association. ‘Almost all the potential benefits of genetic engineering have the potential to cause problems. Getting hold of and understanding the facts, assessing the risks realistically, and balancing the possible benefits against the possible harms, must be the basis of ethical decision making, www.humanist.org.uk They agree with the 14 day limit set by the HFEA. A human embryo up to this period is only a potential person it is not person in the full sense of the word, like you and I, or a baby, and therefore does not have rights. Richard Dawkins a well known scientist and humanist says that genetic engineering in itself is not wrong. It all depends on what you engineer. Humans have been breeding animals for a long time, dogs and race horses for example. That is a form of genetic engineering through a breeding programme. But that is not considered to be wrong. To say as some religious people do that the use of human embryos and genetic engineering is like ‘playing God’ and that makes it wrong. Humanist reply that genetic engineering is not playing God. Any medical help to cure an illness or prevent a disease could be described as ‘playing God’. 11 2. The Christian religious viewpoint on the use of human embryos Despite belonging to the one Christian religion, Christians can have different viewpoints on the use of human embryos. They have certain important beliefs that influence their moral opinions. One important belief is that all human beings are created by God. They believe that human beings are special and unique made in God’s likeness. This simple means that humans have characteristics which are like God. This may refer to our ability as humans to shape our own destiny, or our intellect, or our ability to know right from wrong. Whatever it means to be made in God’s likeness, for Christians every human being is special. There are two issues which Christians might think about when deciding what their view is on the use of human embryos. a. When does life begin? When should an embryo be classed a person or potential person with rights, valued and respected as created in the image of God? b. Should humans be interfering with embryos and genes, or should this be left to the natural processes put in place by God? Having thought about these two issues Christians might come to one of the following conclusions 1. Life begins at conception. We have a potential person created in the image or likeness of God that deserves protection. The embryo should not be interfered with. This means there should be no genetic modifications, and no producing of clones which are later destroyed. This applies even to therapeutic cloning. To destroy an embryo is murder. 2. Life begins at conception. Nevertheless, for the benefit of society embryos can be used up until the 14 day limit set by the HFEA. Human life it is said, has sometimes to be sacrificed for the benefit of all. As in the case of wars. 12 Many Protestant Christians in the Church of Scotland hold either of the two positions above. When officials of the Church of Scotland sat down to think about what guidelines they could give on this topic, they stated that it would be great if there were no need for this research, but we must face up to the reality of the benefits this research gives. They therefore said that in their opinion this research should be accepted, as long as the strict rules of the HFEA are kept. See page 9 for these rules., Individuals should make up their own minds about the issue following their conscience. Many may believe that this research should not go ahead because of the dangers outlined on page 8. Go back and check these out. (Pre-conceived Ideas – a Christian Perspective on IVF and Embryology 1996) This was updated in 2006 in light of the stem cell developments The update states that stem cell research is acceptable as long as the HFEA guidelines are kept. In the Roman Catholic Church the official view which all are expected to follow is opinion 1 above 1. Life begins at conception. This is a God given life, that deserves protection. The Roman Catholic Church has always been against abortion. It was pope John Paul II who said that abortion was ‘a grave violation of the law of God’ It follows naturally from this that to destroy embryos is regarded as equally wrong. ‘I knew you when you were in your mother’s womb’ Bible 2. God is the giver of life. It is wrong to create embryos or interfere with the embryos in any way. There are no benefits from embryo research that the Roman Catholic Church would accept as morally right. This is the official teaching of the church, though some individual members may privately disagree with this position. 13 Some quotes from official documents of the Roman Catholic Church on the issue of cloning ‘It alters the natural process of sexual reproduction’ ‘It possibly exploits women throughout the process’ ‘How valuable would a clone feel?’ ‘Using embryos in this technology is an abuse of the person’ What you need to be able to do to pass an assessment Explain what the word ‘morality’ means. Explain what the word ‘ethics’ means. Explain what a human embryo is. Explain simply what human genes are and their function in human cells. Explain what is meant by the following: Therapeutic cloning Reproductive cloning Gene Transfer Therapy State where medical researchers get their human embryos from State what the initials HFEA stand for State what the HFEA rules are on the use of human embryos. Give your opinion on when a human embryo / foetus should be regarded as a person with the right to protection. State some of the benefits to society that result from the work done with human embryos and genetic engineering (modification). State some of the dangers that people think might result from the work done with human embryos and genetic engineering (modification). State the views of the secular group known as Humanists on the whole issue of the use of human embryos in medical work and genetic engineering (modification). State the views of Christians (Protestant and Roman Catholic) on the use of human embryos in medical work and genetic engineering (modification). State your own opinion on the issue of the use of human embryos in medical work and genetic engineering (modification) 14 Part 2 Euthanasia Introduction Our second moral issue that relates to medical ethics is euthanasia, sometimes commonly referred to as mercy killing, or physician assisted suicide. We are aware that if an animal is suffering, if it is in pain, then you can take your pet along to a vet and have it as we say ‘put to sleep’ or ‘put down’. This it is believed is a kind thing to do for the suffering animal. Euthanasia is about giving humans the same painless and quick death if they are suffering terrible pain and do not have long to live, or if their quality of life is so poor, that they feel that life is not worth living. The word euthanasia is a word that comes from the Greek language and simple means ‘‘a good or gentle death’. Although it may seem the loving thing to do, in the United Kingdom euthanasia is not legal. If a doctor helps someone die peacefully, no matter how terrible their suffering may be, he or she will be committing a crime. It is not difficult to see how this topic relates to medical ethics. Euthanasia is a topic which has been discussed by doctors whose care people who suffer are in the hands of. It has been discussed by families who hate to see a loved one suffer. It has been discussed by politicians, who are lobbied by pro euthanasia groups to have the law changed. Voluntary and Involuntary Euthanasia. It is important to distinguish between these two forms of euthanasia. If you volunteer for something then you make your personal feelings clear and you chose to get involved. By voluntary euthanasia what is meant is that euthanasia is something that a person has thought about and has decided to agree to or have done to them if and when that person requires it. Involuntary euthanasia is when euthanasia is administered to a person without consulting them or knowing what they feel about it. In Hitler’s Nazi Germany involuntary euthanasia was carried out on people whom it was felt were too old or too ill to be of any use. Their lives were simple ended without any consultation. In this topic it is voluntary euthanasia that we are 15 mainly concerned with since no one thinks that involuntary euthanasia is a good thing. Passive and active euthanasia The word passive when used to describe someone, means that that person is not doing anything, it is the opposite from active. Passive euthanasia is when nothing is physically done too someone to end their life, such as giving them an injection, rather something is not done which will end in a person’s death. For example if medicine is withheld from a patient or food is not given to them, then that would result in their death. Active euthanasia is when something is done to the patient which will end their life. For example tablets are given to them or they are given an injection to stop their heart beating. There is an important distinction here. Some people regard withholding medicine or not giving a dying person some other form of treatment that will unnecessarily prolong their life as an acceptable way to proceed, while being against active euthanasia, which involves directly killing a person. Situations in which someone may wish or request voluntary euthanasia. 1. If someone is ill and has no hope of recovering, maybe in pain, or their quality of life has deteriorated. 2. If someone is ill and their illness might end up leaving them in a vegetative state, from which there is no recovery. 3. If someone is ill and they need constant care and they do not want to be a burden to society or their family. 16 So what might be the benefits of voluntary euthanasia? 1. It gives people control over all aspects of their lives, including when to die. 2. It would free up health resources being used on people who do not want to live. 3. It stops people taking their own life without medical help, which can sometimes lead to more suffering. 4. If it is legal then we take the pressure off relatives who might want to help us die but are breaking the law. 5. It allows a person to die with dignity, rather than enduring a long drawn out life of pain with no quality. 6. It would mean that no one need fear the future because if something terrible happened that destroyed you quality of life, there would be a way out. This will make society a much happier place. So what could be the fears of allowing voluntary euthanasia? 1. Doctors take a vow to cure people and help them. Is it right to put doctors in the position where they are asked to take a life? 2. Society has a duty to protect people, maybe even from themselves. Someone may chose euthanasia just to save their families any trouble but not really want it for themselves. 3. Will euthanasia not cause our society to have less respect for human life? 4. It could leave a patient who did not want euthanasia, but needed a lot of care, feeling guilty that they are a burden on the health resources. A doctor may even suggest it to a patient who does not want it. 17 5. People who say they would like voluntary euthanasia may change their mind but be unable to communicate this. Euthanasia and the moral issues. Remember by a moral issue we mean a topic that people have strong opinions on about what is right and wrong. Individuals will either believe that euthanasia is right while others might consider it to be wrong for a variety of reasons. So what are the issues relating to euthanasia? 1. We respect and value human life. But does there ever come a point when a life is no longer worth living? If you are no longer a conscious thinking person. Is this still you? Is this a life to be saved at all costs? a. Some people would argue that it is not just life which is important but the quality of life. If your life is not worth living then euthanasia should be an option open to you. b. Others would argue that life is a sacred and precious thing no matter what the quality. So life should always be respected and protected. 2. Whose life is it anyway? Some people would argue that euthanasia is an issue of personal freedom. If a person wants to end their life they should have the human right to do so. a. Some would agree with this. They sate that euthanasia should be allowed with proper safeguards in place which would protect others from a misuse of euthanasia. b. Others would disagree. Every life they would say belongs to God, it is no your own. God gives life and only God should take it away. 3. What would the consequences be on a society that agreed with voluntary euthanasia? 18 a. Some people believe that if the consequences are good for the majority of people then euthanasia should be allowed, but if the consequences can be shown to be not so good, for example producing a society with less respect for life then it should not be allowed. Voluntary Euthanasia and the law in the UK. The law states the following: 1. Intentional killing of a person even at their own request is a serious Criminal offence. 2. Assisting someone in a suicide carries a punishment of a maximum 14 year prison sentence. This applies to doctors too. 3. In England and Wales suicide is not regarded as illegal. But to assist someone in a suicide is against the law. There is no similar laws in Scotland on suicide. It is not true that a physician assisted suicide is legal in Scotland. Voluntary Euthanasia and the law in the Netherlands. 19