Strengthening Responses in Tayside to People who Present Following an Incident of Self Harm – Further Briefing For Stakeholders on an Improvement Programme Background: The Mental Health Strategy for Scotland 2012 – 2015 includes four “Key change areas” the second of these “rethinking how we respond to common mental health problems” discusses among other things people who experience distress and how this is responded to. In recognition of the challenge this presents and the need to explore and develop improved ways of responding commitment 19 of the strategy is as follows. “We will take forward work, initially in NHS Tayside, but involving the Royal College of General Practitioners as well as social work, the police and others, to develop an approach to test in practice which focuses on improving the response to distress. This will include developing a shared understanding of the challenge and appropriate local responses that engage and support those experiencing distress, as well as support for practitioners. We will develop a methodology for assessing the benefits of such an approach and for improving it.” A previous briefing was circulated to stakeholders in September 2012 outlining the background to the improvement project being developed in response to commitment 19 of the mental health strategy for Scotland. Set out below is a summary of the subsequent progress with the project and an outline of the future work. 1. Partnership working and project management. A small project group has been established with membership drawn from Tayside Police, Dundee City Council Social Work, Dundee voluntary Action, and NHS Tayside A reference group of stakeholders with a wide membership representing a range of statutory and voluntary organisations has been consulted with and received a presentation on initial progress with the project. A further discussion with this group is scheduled for 27th February 2013 An improvement panel comprising senior staff from Scottish Government, NHS Tayside, Dundee City Council, Tayside Police and Dundee Samaritans has been convened twice. The purpose of the panel is to monitor progress; review proposals challenge assumptions, and confirm that the project is able to continue to the next stage. 2. Understanding the current state. An early challenge to resolve was to have a common understanding of the relationship between, distress /self harm and suicide. In the absence of data on distress the proxy of self harm was adopted. It is our proposal that distress as a broader concept of poor mental health/ wellbeing sits below this model and includes an even larger proportion of people in need of support. 1 Work was undertaken to review the literature relating to distress and self harm. This preliminary review of the literature revealed minimal yield on distress specifically. However it is reasonable to adduce from the literature that - Distress is known to sit on a continuum of mental wellbeing and mental illness - Self- harm is commonly understood as a behavioural response to, or reflection of emotional or psychological need - It is people’s best efforts in alleviating emotional pain/ distress To develop a good understanding of where people present to services following an incident* of self harm and what happens to them thereafter data from NHS Tayside, Tayside Police and Dundee City Council has been collated and analysed; detailed process mapping has been undertaken to help understand what happens after people come into contact with a service and people have been asked about their experiences. (* An incident of self harm included people expressing an intent to self harm, attempts at self harm and actual harm to self of varying severity) Some of this extensive work is summarised below. Data collected over a three month period relating to people whose contact or presentation had been coded or described as relating to an incident of self harm by Tayside Police, NHS Tayside Accident and Emergency, Liaison Psychiatry service, the mental health acute response service was examined and analysed. This demonstrated that a large number came into contact with one of those services during the three month period. (See Figure 1 below) Most (702 people) only presented once but some people presented four or more times in that period. Figure 1. No of people and frequency of contact. 2 Number of new presentations per person : Jan – Mar 12 Total: 1005 people 5 presentations or more, maximum 20 1 presentation 38 We also looked at how many agencies each person came into contact with and this is set out in figure 2 below. Figure 2 No. of services attended per person Services attended per person Jan – Mar 12 5 agencies Range, per person: 1 – 20 presentations. 1 – 4 services. 1 – 20 presentations per service per person. Total: 1002 people 1 agency 39 Examining what happened to people following a presentation at any of the services revealed that there was a wide range of responses ranging from urgent admission to hospital, referral on to a specialist service to no further intervention. This varied pathway was mapped and the “journeys” of a number of people were examined to check whether what happened with people was what the data was telling us. This complex picture is represented in figure 3 below. Figure 3 pathways map. 3 High Level Process Map for Person in Distress In Hours Referral Triage Assessment Police Decline support Treatment Outcome CAMHS CAMHS AMHRT Support AMHRT (ESD) Public Friends Ambulance Informal care support CMHT Individual CMHT NHS 24 GP A&E A&E Psychiatric Admission Family Social Work GP Vol. Agencies Carers Hot Chocolate Xplore Corner Primary Care Nurses (open case) Social work (Open Case) Liaison Psychiatry GP Informal Care General Admission Signposting AMHRT Voluntary Agencies Decline support 25 Most importantly we sought the views and experiences of people who described themselves as having previously experienced distress that led them to contemplate or cause an act of self harm. This information was gained from people attending “choose Life” information stands and through targeted questionnaires and focus groups. The main themes of what people told us were that:- People go to a variety of places when they are in distress. - They are frequently looking for a safe, confidential, compassionate and understanding response. - They want to be taken seriously, listened to and not dismissed but this was often not what they experienced 3. Tests of change Having gained a clearer understanding of our “current state” a number of small tests of change were initiated to help identify improvements. These can be described briefly as follows:i) Is providing opportunistic advice & support taken up by people. If so do the location/ time matter? This followed on a pre-planned information stall set up under the aegis of Choose Life in the concourse of Ninewells Hospital. Further information stalls have been run or are scheduled in a variety of locations including shopping centres, libraries, community centres and a supermarket. To date the results have been inconclusive. 4 ii) Does the process map accurate reflect people’s journey through services? The high level map was devised using an amalgamation of cases and the various scenarios that may have happen to people dependant on where they seek help and what the particular issue is. This test of change was devised to ensure the map accurately reflects people’s journeys. Case studies were randomly selected from the police and the Social Work department to test their journey through the process. This work indicated that there was often poor communication between crises services and mainstream services. iii) Identify & measure the content of current training for its compassionate/ understanding response. Over the past four years there has been significant investment in training for staff in the identification of and response to people who are at risk of suicide and self harm. However, people told us that they did not feel that staff responded to them in a caring and helpful manner. Strengths and weaknesses were identified in each of the training. The outcome of this needs to be considered by the local choose life groups and NHS Tayside who currently commission or deliver the training. iv) Is it possible to establish a minimum data set to understand people’s journeys throughout various services? The project quickly discovered that although we were able to access anonymised data from a number of agencies datasets were difficult to compare directly as indicators were too diverse. Information was categorised in different ways by different agencies. A minimum dataset was established and from this a clearer understanding of our current state and the capability to measure change over time has been established. Some of the outcome of this is shown in the earlier tables. 4. Next steps At the end of January 2013, following endorsement by the improvement panel, the project team are exploring and establishing further “test of change” We have therefore proposed that there are three improvements that need to be made to improve services response for people in distress. 1) Arrangement in place that bring the “at risk” in to structured care & treatment to meet their needs 2) Those who don’t meet this criterion are given the offer & support to access a listening & emotionally supportive approach and may include practical support to access existing supports and services. 3) A qualitative approach aimed at improving the nature of the response individuals receive when in distress from services who are often feel ill-equipped, not the appropriate place to help people in distress.- A caring, compassionate, understanding & informing response through the services 5 There is much other work, locally and nationally that will also provide learning or the project and the outcomes and learning from of these will be used to inform the work. These test of changes have been developed and are in progress and will be reported to an improvement panel at the end of April 2013, following this a further briefing note will be prepared & distributed. 6