Discharge Advice Following Cardiac Surgery If you require a copy of this information sheet in Large Print please ask a member of staff. This information is not to replace the discharge chat with your nurse but to compliment it and to use as a reference when you go home. Discharge When you have been told by the Doctor you are medically fit for discharge home the following arrangements may need to be put in place before you can leave. This is to ensure that you return home safely. These arrangements do not apply to all patients and are adapted to individual needs. You may require: To be provided with any necessary equipment, medicines and dressings and given instructions of use An appointment to attend the Anticoagulant Clinic (Warfarin) A District Nurse Referral Transport home if you are going home by ambulance Any other support services if necessary (e.g. social services or dietician input) Advice regarding the Discharge Advice Line and Cardiac Rehabilitation Follow up arrangements Sick note Please note if you are told you are medically fit for discharge these arrangements may take a number of hours. The nursing staff will ensure these are put in place as soon as possible. If you have any concerns about your discharge please inform the nursing staff before leaving the ward. Version 4 CURRENT Reviewed June 2011 Next review June 2013 1 Leaving hospital After leaving hospital you will need to follow the advice of your healthcare team so that you can recover as quickly as possible. Everyone is individual and each person will respond differently to having had surgery. Your recovery will also be an individual process; however some generalisations can be made. The material presented here is to be used as a guide and in conjunction with what your healthcare team has advised. We hope you find it useful. The first phase of your recover \y lasts about 6 – 8 weeks as this is how long it generally takes for the breast bone to heal. Your scars should fade in approximately 6 months to a year. Tickling, itching and numbness are all normal sensations associated with surgical wounds and will eventually disappear. Resuming daily activities and taking regular exercise Your aim over the next three months should be to increase your activity level day by day. In order to achieve this, you will need to pace yourself. Regular activity is good for you, but keep in mind that you have probably been less active for some time and it will take a while to get back into a routine. You should expect to feel tired when you are recovering from heart surgery. You might find that a gradual return to physical activity will help you feel less tired. However if you find you are exhausted after certain activities, it probably means you are overdoing things and should cut back. It is best to have someone with you at home for the first week or two. Your GP will be sent a letter with details of your surgery and the medication that you are on. You can always contact your GP for advice or support following your operation. Everyone is different and these are general guidelines - please be guided by your own body. The following describes how you may want to progress over the forthcoming weeks. It is important to maintain and even increase your levels of activity daily, to continue the progress and achievements you have made whilst in hospital. It is up to you now to motivate yourself, and you will gradually feel the benefit: First two or three days at home Each morning from the day you go home, it is important that you get up out of bed and take your time having a wash. Get dressed and have a rest as even these activities may make you feel tired. Initially, this is to be expected. Remember the importance of having a breakfast, no matter how small, this is essential to help your wounds heal. Walk around as you did in hospital; set yourself two goals to achieve each day, such as climbing the stairs once in the morning and once in the afternoon even if you don’t need to. Make sure that you get plenty of rest and please don’t allow too many well wishers to visit you if you are easily tired. Version 4 CURRENT Reviewed June 2011 Next review June 2013 2 Please put on appropriate outdoor clothes and take a short walk outside; this is an excellent activity as it really exercises your lungs, which is so important after this operation. You can take a short walk outside if you feel confident, maybe around your garden at first, from the first day that you are home. During the first one or two weeks at home Walking is the best form of exercise at this stage and you should gradually increase the distance you walk in these two weeks. Activities like dressing, washing or shaving will be tiring at first. Gradually introduce light tasks such as dusting, washing up and cooking light meals into your daily routine. At this point you can resume non-strenuous hobbies. Getting enough rest is as important as exercise. It is a good idea to plan 30-60 minutes rest time each day during the first weeks at home. From three to eight weeks Please begin to gradually introduce more demanding tasks such as ironing, making beds, potting plants etc. You should also continue taking walks outside as this is one of the best activities you can do. From eight to twelve weeks You may now introduce other tasks such as vacuuming, shopping, cleaning the car, brushing the floor, light gardening. After week twelve You should now be able to do everything you were doing before you became ill. Please remember that any activity which needs repetitive or sustained arm movements puts an extra strain on your breastbone and makes your heart work harder. It is a good idea to build up gradually to performing such activities. Some general guidelines: Start slowly and introduce new activities gradually Set yourself realistic targets each week Slowly increase your level of activity each day Try and establish a balance between not doing anything and overdoing things Change an activity or rest if it makes you feel tired You should expect to feel a little short of breath while exercising but you should not become uncomfortably short of breath. A good estimate is the ‘walk and talk’ guide. This means you should still be able to hold a conversation while walking without gasping for breath. Version 4 CURRENT Reviewed June 2011 Next review June 2013 3 If you become too breathless you should rest for a short while until you recover before continuing to exercise at a slower pace. This breathlessness should improve as you recover, but if it continues you should talk to your GP. Please do not compare yourself to others Get into the habit of taking exercise regularly rather than in occasional bursts of activity. Lifting Please make sure that you do not lift, push or hold any objects that weigh more that ten pounds (e.g. a full kettle of water) for six-eight weeks after your operation. You should also avoid any sudden twisting movements. The reason for this is that during the early stages of recovery your breastbone must not be put under any strain or pressure. It takes time for the body to heal after surgery. Please remember not to lift small children, babies or pets, nor to push or pull heavy objects. Therefore you will need help to walk your dog, carry shopping or do the laundry. Emotional adjustment Immediately after your operation you may have days when you feel low. These feelings are known as ‘post–op blues’ and many people experience them while recovering from an operation. They are a natural reaction to all you have been through. It is important for you to express your feelings and to talk to someone about them. At home, you may have these mood swings, feelings of irritability, anxiety or unable to concentrate. You may also find that you suffer from loss of memory or blurred vision. These symptoms will pass with time. Your family/carers will need to understand this and be patient and supportive. It is a good idea to show them this guidance. Keeping yourself occupied and having a positive attitude will help you to overcome these feelings. Getting back to your hobbies or taking up new ones, planning a holiday, taking regular exercise with plenty of rest/relaxation in between, are all good ways to keep busy. Advice to your family/friends/carers Your relative/friend who has undergone surgery will be independent on leaving hospital and needs to be allowed to get back to normal activities gradually. It is perfectly alright for them to be left alone during the day – while you go shopping, for example. Please try not to be over- protective as this may not be beneficial. Please give your relative/friend time to recover emotionally from the operation. This is best done by being patient and supportive during any irritable or anxious moments. Try to be encouraging and helpful if your relative is trying to lose weight or give up smoking – perhaps by joining in. In the early stages please do not allow too many friends or relatives to visit at one time, as this can be very tiring. Version 4 CURRENT Reviewed June 2011 Next review June 2013 4 You may also find that you too can become tense or anxious. These are all normal feelings so please don’t worry. Some patients and their relatives find that joining their local support group can help. Medication Your medication may have changed following your surgery. Your Consultant or member of the medical team may have stopped medications like those used to control symptoms of angina. The strength of some of your medicines may also have been changed in hospital. You should continue to take your medication as you were advised when you left the hospital, until you are told otherwise either by your GP or by the doctor in the outpatient clinic. Please dispose of any medication that you are no longer prescribed following your surgery by taking it to your local chemist. When you go home you will have been given a 14 day supply of medication. You should contact your GP before you run out of this medication to arrange for a repeat prescription. Pain relief Good pain control is essential for a speedy recovery and to enable you to return to normal activities. When you leave hospital you will have been given tablets for pain relief. You should take these as instructed. Taking them regularly after your operation is the key to successful pain control. If you still have pain after taking the tablets you should contact your GP to have your pain relieving medication reviewed. When you are feeling more comfortable and can exercise without discomfort you may gradually reduce the tablets you are taking for pain relief by leaving out a dose or taking one tablet instead of two. You may experience a few aches and pains in your chest and shoulders for a few months after your surgery. If there is any change in the type and location of the pain, please contact your GP. Wounds Most people’s wound(s) are clean and dry when they are discharged from hospital. If there is discharge from your wound ward staff will have arranged for you to be followed up by the community nursing team. You should check your wound(s) daily and look out for signs of infection, which are Redness Heat or swelling around the wound Change in wound pain Discharge from the wound An unpleasant smell Any opening or gaping of the wound Version 4 CURRENT Reviewed June 2011 Next review June 2013 5 Do not be afraid to get your wounds wet. Keeping them clean will encourage healing. However you should only use water and pat dry with a clean towel. Do not use any soap, flannel or sponge when cleaning your wounds as these may harbour infection. The scars may seem very noticeable at first but they will become less obvious over the next few weeks. They may look bruised, be itchy, numb or sore. If you have had a vein taken from you leg, you may notice that it swells up. This should go down within six weeks of your surgery. If you are concerned about your wound in any way you should contact your GP who can telephone the Tissue Viability Nurse Specialist at the hospital who will make arrangements for you to be seen in the Wound Clinic. The Tissue Viability Nurse is available Monday – Friday 8 am – 5pm. Should you require help outside these hours please contact your GP or attend your nearest A&E Department. Follow- up appointments You will be seen by your consultant or a member of his/her team approximately 6-8 weeks following your surgery. This appointment will either be given to you before you are discharged from hospital or sent to you in the post. If you are unable to attend this appointment you should call the number on the letter or appointment card to make alternative arrangements. Cardiac Rehabilitation Cardiac Rehabilitation is aimed at monitoring your progress and recovery and restoring you to a full and active lifestyle. Many people find that attending a cardiac rehabilitation programme can improve their overall quality of life and may reduce the likelihood of further heart disease. It can also help you to regain your confidence by knowing what you can do to help yourself and reduce the risk of further problems. Attending a group will allow you to meet other people who have been through similar experiences to yourself, which can be reassuring to you and your family / friends. Most patients receive the first phase of Cardiac Rehabilitation either at pre admission clinic or before they are discharged from this hospital. The next phase of rehabilitation will be provided by your nearest hospital and involve participating in a supervised exercise programme as well as information and advice on all aspects of healthy living, relaxation, medication and management of stress. A member of the cardiac rehabilitation team will contact you approximately 4-6 weeks after your surgery and invite you to join the programme. Version 4 CURRENT Reviewed June 2011 Next review June 2013 6 Driving You may recommence driving 4 weeks following your surgery. When driving a car or travelling as a passenger, you are not exempt from wearing a seat belt. If you find it uncomfortable, place a folded towel between your chest and the belt. Other rules apply for holders of LGV and PSV license. Contact the DVLA helpline for further information on relicensing rules following heart surgery 0870 600 0301. Bathing Take a shower or a bath daily; do not be afraid to get your wounds wet, showering or bathing will keep your wounds clean and encourage them to heal. Do not add anything to your bath, use water only. Do not get in or out of the bath on your own for the first 2-3 weeks following surgery. Apart from the danger of slipping, you will put too much pressure on your arms and therefore through to your breastbone. This will not help with the healing process, and may cause damage. If possible use a shower rather than a bath for the first five weeks, but if you do take a bath, remember to: Empty the water before you get out Use a non-slip mat or a towel before attempting to stand up Get assistance to get out of the bath Rest, Sleep and Relaxation During the first few weeks at home you will find that you tire easily so adequate rest and sleep are just as important for your recovery as exercising. Tell your friends and relatives when you are planning to rest; this will help cut down the amount of disturbance you get during this time. Try to get eight to ten hours sleep each night. You may find it difficult for the first week after leaving hospital, as your usual sleep pattern will have been disturbed. You may also find it uncomfortable. If you do, make sure you are taking your painkillers. You may also be more aware of your heartbeat at night, especially if you have had a mechanical valve replaced. You may hear it as a ticking sound. You will get used to this over time and eventually not notice it. Alcohol You may take alcohol after your surgery, but there are important notes to remember first. You should avoid it whilst taking painkillers as it increases the potency of the drug. You should limit the amount whilst taking Warfarin as it increases sensitivity and will disrupt your clotting factor and affect the dosage you receive. Alcohol can also irritate your stomach and this, along with a disrupted clotting factor in your blood may cause stomach problems. Heavy drinking or binge drinking is more harmful than small regular amounts. It is recommended that alcohol intake should not exceed 21 units a week for men and 14 for women. 1 pint = 2-3 units 1 short (pub measure) = 1 unit Version 4 CURRENT Reviewed June 2011 Next review June 2013 7 1 small glass of wine = 1 unit 1 medium glass of wine = 2-3 units If you feel your intake is too high, or you would like help, than you can contact your General Practitioner or Alcoholics Anonymous. The National help line number is 0845 7697555 The Merseyside, Lancashire and Cheshire Council for Alcoholism is situated on the First floor, Fruit Exchange, Victoria Street, Liverpool L2 6QU Telephone: 0151 707 1221 or 0151 707 1300 or 0151 263 0300 If you use the internet www.aa-uk.org.uk Sexual Relations Many patients that have undergone cardiac surgery experience anxiety about resuming sexual relationships. It is quite safe to have sex after the operation. However, we generally advise that you wait between 2 and 4 weeks, to give your wounds a chance to heal. You may resume whenever you feel ready to do so but don’t be too energetic. Some of the tablets you take may make you feel disinterested in sex. These are known as beta-blockers. If the problem persists, you should make an appointment with your G.P. Do not expect too much of each other, take sensible measures and avoid putting any strain on your arms. Holidays and flying You can holiday in this country whenever you feel well enough to travel. If you are thinking of going abroad, we advise you to wait until after your outpatient appointment. If you are thinking of a long haul flight, then you should leave it longer, check with your consultant at your follow up appointment. If you are taking Warfarin, you need to let your anti-coagulant clinic know, as they may need to adjust your dose. Cover the scars with complete sun block when sunbathing in the first six months. It is also important to clarify your holiday insurance. Returning to work You will need time to make a complete physical and emotional recovery before returning to work. If your job involves heavy manual work or is stressful, you will need 3 months to recover before going back. When you first return to work you should try to avoid any Version 4 CURRENT Reviewed June 2011 Next review June 2013 8 strenuous physical tasks. It may be a good idea to resume your employment on a part-time basis at first, working only a few hours each week. How to protect your heart How can I reduce my risk of further heart disease? The major risk factors for heart disease which you can do something about are: Smoking High blood pressure High blood cholesterol Lack of physical activity Being overweight Drinking too much alcohol Excessive salt intake Your risk of further heart disease will depend on how may of the above risk factors you have, as well as your individual risk factors. Knowing about risk factors can help you to deal with them and gain some control over your heart disease. Please ask staff for a copy of the leaflet ‘Cardiac Rehabilitation’ for more information about reducing risk factors for heart disease. Smoking – If you smoke now is the time to stop! Stopping smoking is the single most effective step you can take to help yourself. From the moment you stop smoking the risk of a heart attack is reduced and is halved after 1 year of stopping. Within 24 hours of stopping, carbon monoxide is eliminated from the body, the lungs start to clear out the build up of tar and taste and smell is greatly improved. Within 2 – 12 weeks circulation improves and the lungs have room for up to 10% more oxygen. If you would like help to stop smoking contact our smoking cessation advisor on 0151 600 1455 or speak to your GP. Healthy eating and weight – Following a sensible low fat eating plan and eating the recommended daily intake of five portions of fruit and vegetables per day can help you to remain healthy and stay at a sensible weight. Keeping close to the recommended weight for your height can help to control your blood pressure and reduce the amount of work your heart has to do. Eating a low fat diet will help to control your cholesterol which is a fatty substance that can build up in your arteries and cause them to narrow. It is important to remember however that you should wait until your wounds have healed before considering weight loss and making any changes to your eating pattern. While your wounds are healing (approximately 6-8 weeks after surgery) your body needs extra nutrients. Exercise and physical activity –Exercise can help to reduce blood pressure and cholesterol and help to maintain a healthy weight. (Please refer to the advice given about resuming activity after your stay in hospital before beginning exercise). Stress – Stress can have a negative impact on health, affecting us both physically and mentally. Although it is not always possible to remove stress from our lives, Version 4 CURRENT Reviewed June 2011 Next review June 2013 9 there are many methods which can be used to aid relaxation, relieve stress and promote a positive healthy recovery including: Finding ways to relax - it is important to unwind. Each person has their own way of relaxing including deep breathing, listening to music or reading a book. Make some time for yourself. Eating right - eating a sensible low fat diet can give you energy, aid wound healing and promote well being. Sleeping - getting enough sleep is an important part of your recovery. Get moving - Your body makes certain chemicals called endorphins during exercise. They can help to relieve stress and improve your mood. Talk to friends or get help from a professional - talking to friends can help you work through your problems or concerns. For more serious stress related disorders it may be helpful to talk to a health care professional. Speak to your GP for more information. It is not uncommon to feel a bit low following discharge from hospital. These feelings usually resolve as you recover. Blood pressure – High blood pressure can increase the risk of heart attacks and strokes. If you have high blood pressure it is important to have it checked regularly and continue with any medication you may be on to control it. Avoiding salt in your food can help to control blood pressure too. Who do I contact if I have any problems after I go home? The hospital has a Discharge Advice Line for patients, relatives and carers for information and advice following discharge. A member of the nursing team will either take your call, or call you back if you leave a message with your name and telephone number. This service is available Monday to Friday. We aim to return all calls the same or next day. Please note that calls will not be returned after 4pm or at week-ends. For help out of these hours please contact your GP or NHS Direct. Discharge Advice Line – Telephone - 0151 600 1056 There is a Discharge Advice Line available at the hospital Monday – Friday 8 am – 4pm (excluding bank holidays) This advice line is available for patients, relatives and carers for information and advice following discharge. Version 4 CURRENT Reviewed June 2011 Next review June 2013 10 The Discharge Advice Line can give advice on: Recovery after a procedure or operation Mobility and activity Wound care Medication Driving Stopping smoking Healthy Eating Alcohol Intake Relaxation & Stress Management If you are in need of immediate help – for example are having chest pain, breathlessness, palpitations, dizziness, please do not hesitate to contact your GP for assessment or go to an A&E department or ring 999. We would like to take this opportunity to wish you well in your recovery. For further information visit; www.lhch.nhs.uk www.nhsdirect.nhs.uk www.bhf.org.uk www.dipex.org Or contact: The British Heart Foundation information line on 0845 070 80 70 Version 4 CURRENT Reviewed June 2011 Next review June 2013 11 If you require a copy of this information in any other format (eg. Large print) or language please contact us on 0151 600 1517 quoting the name of the information leaflet you require. إذا لديك الرغبة فى الحصول على نسخة من هذه المعلومات بأي ِّ لغة أخرى أو بشكل آخر ( على سبيل المثال موضحا ً الشكل او اللغة التى ترغب0151 600 1257 الرجاءاالتصال علينا على الرقم، )بخطوط كبيرة .فيها 如果您想索取一份以其他語文或形式(如大字體)編印成的資料傳單,請致電 0151 600 1257向我們查詢,並說明您所需要的形式和語文。 ئةطةر ئةم زانياريانةت بةهةر زمانيَكى تر ياخود شيَوازيَكى تر دةويَت (بؤ نموونة بة ضاثى طةورة) ئةوا ثةيوةنديمان ث َيوة بكة و ئاماذة بدة بةو زمانةى ياخود شيَوةيةى0151 600 1257 تكاية بة ذمارة تةلةفؤنى كة دةتةويَت W celu uzyskania niniejszej informacji w innym języku lub formacie (np. dużym drukiem), prosimy o kontakt z nami pod numerem 0151 600 1257 podając wymagany format lub język. Haddii aad u baahan tahay koobiga wargelintan oo luqad ama qaab kale (sida far waaweyn) fadlan nagala soo xiriir 0151 600 1257 adiga oo noo sheegaya luqadda ama qaabka aad wax ku rabtid. 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