Notes for SWHN seminar: 4th April 08 The Nearest Relative INTRODUCTION Introduce self Power point slide: Title of talk Name SCWRU What I want to do: Provide brief background history Describe it’s shaping up Explain some recent ‘past history’ and what will happen to the role under the new MHA Much of my talk relates to my PhD undertaken p/t 1995 – 2003 – deeply grateful to Professor Shula Ramon, Anglia Ruskin University and Professor William Bingley formerly of University of Central Lancashire for their support. My study contained historical and contemporary elements. The historical – trawl of official publications and literature – the contemporary – focus group interviews of service users, carers and ASWs. I’m focusing on the historical elements but will touch on my research findings later. WHAT IS THE NR? Power point slide: Current NR Can influence relative’s detention Legal hierarchy identifies Early origins: Madhouse Law Just as a starting point the current NR has serious powers to influence a close relative’s detention in hospital and is legally identified from a hierarchy of relatives. The evolution of NR and social work (ASW) roles are deeply intertwined. However, whilst the early origins of the Approved Social Work can be traced back to the Poor Laws, those of the nearest relative lie in laws to regulate private madhouses and inmate admissions. BRIEF HISTORICAL BACKGROUND 1 Power point Statute de Prerogativa Regis (medieval) Madhouses Act 1774 Madhouses Act 1828 Lunacy & Lunatics Asylum and Paupers Acts 1845 Lunacy Act 1890 Close relatives are almost inevitably involved if a family member has a mental health breakdown. Probably the earliest form of relative involvement in English Law derives from the Statute de Prerogativa Regis - Court of Protection’s origins and the need to look after a person’s estate - or safeguard one’s inheritance! This tranche of law entered ‘mainstream’ lunacy law in 1845, which also governed compulsion, survived until the MHA 1959 – heirs and relatives petitioned the Lord Chancellor – if satisfied of the case – the sheriff of the county would be required to try the case by Jury - anyone appointed to look after the Committee of the Person – often a relative – had huge powers – and could determine where the individual lived and even order his or her admission to and detention in hospital without certification or recourse to other admission procedures. However, the ‘Chancery Lunatics’ were a very small number. However, the origins of the nearest relative’s powers today are most clearly visible in the Madhouses Act of 1774 with the rapid growth of madhouses and concern about relatives being abandoned in establishments run for profit and condemned as being overcrowded, dirty and inhumane. This Act officially started the process of certification as a legal requirement for the admission of private ‘lunatics’. The certificate should identify the name of the person sending the patient – usually a relative – and the advising physician or apothecary. The Madhouses Act 1828 aimed to strengthen safeguards against illegal detention and protracted confinement. It required two medical certificates and a relative’s authorisation to sanction admission. A duty was imposed on an authorising relative to visit once every six months by proxy or in person. Under Lunacy laws of 1845 the welfare functions of relatives were extended to public asylums. Relatives could apply to regulatory bodies to visit the patient and permit his or her examination by an independent doctor. Under the Lunacy Act of 1890 a relatives was defined as a lineal ancestor not more remote than great grandparents (Section 341) – this was mirrored under Poor Law Regulations. This Act consolidated the Lunacy Acts of 1845 and subsequent amendments and brought private and state admissions together in one law. You can see the origins of the MHA 1959 – the 2 med certs – the non-medical legal application – safeguard potential of the NR – right to have the patient examined by an independent doctor – the beginnings of a hierarchy. All the time 2 these relatives were very powerful because they were paying for the patient’s admission. IT’S OFFICIAL BIRTH & AFTERMATH Pp Royal Commission Relatives different definitions & roles Tensions – problem relatives Standing Committee E Mental Health Act 1959 Admission via NR or MWO – court procedure abolished Royal Commission set up to review mental deficiency and lunacy laws Various means of identifying relatives under Lunacy and mental Deficiency and Criminal Insanity Laws Tensions re relatives – important safeguard versus troublesome people RC preferred relatives making application – Parliament the MWO Pp\Dr Summerskill quote Pp Hierarchy & groundrules The nearest relative was officially born under the Mental Health Act 1959. Percy – referred to a nearest relative – at this point Worked up by Standing Committee E Hierarchy and ground rules – hierarchy resembles Inheritance laws and table of kindred and affinity Common Prayer. Intentions – closest family tie – affection Pp Powers To make the application To object to a treatment section (civil cases) To seek discharge Powers drawn from previous Acts – NR on par with SW to make the application – (probably occurred because of parlous state of SW at the time) - power to object and seek discharge. 1960s 1960s theoretical development – or relevance to NR Pp AB SW influences: 3 Laingian Oppression/self-determination/autonomy Anti-discrimination Normalisation and SRV and advocacy NR mostly became associated with negatives of oppression and discrimination – will return to theoretical aspects later I don’t know the proportion of NR:MWO applications but first of 3 govt docs on MHA reform (DHSS, 1976) stated that by this time most applications were made by the MWO. Fast forward to 1983 Act Concerns – power of relatives combined with family Dr service – emergency Drs who didn’t know the patient - and emergency admissions – assessment being medicalised and a fait accompli. 1976 – report notes most applications made by the MWO (increasingly professionally qualified tho’ not necessarily in MH). I don’t know what the SW:NR applications ratio immediately following the 1959 Act and certainly no formal statistics exist for the 1983 Act. B Faithfull BASW and MIND lobby for early social assessment to seek viable alternatives to hospital – emphasis on MWO application – wanted NR removed from this role – problems of vested interests – SW better alternative as qualified. ADDS – some relatives would prefer to make application NSF – anxious not to lose power to apply – concern that SW 24 hour emergency duty systems not up an running in all areas – in spite of ADSS assurances. NR survived – but by a narrow margin. Pp New power to seek assessment via SSD ID additions: Relative who ‘cared for’ the pt prioritised 5-year relationship added to NR list Clever additions S13(4) – NR could ask the LA to co-ordinate a MHA assessment – this gave the message NRs were under no obligation to make the application and should have enabled ASWs to make an early social assessment of the case to maximise the potential for hospital alternatives – this failed because the power was never publicised. Change to NR ID – relative who ‘cared for’ the patient – added 5 yr relationship – tho’ homosexual relationships still not recognised on a par with heterosexual. 1990s and run up to MHA reform 4 Pp MHAC 1991 Case law hot spots – 1) sexual abuse 2) way of challenging legality of detention (essentially because of wrongful ID or inattention to procedures) Problems of sexual abuser relatives – MHAC 1991 ECCHR – NR incompatible with Art 8 – JT and FC MHAC’s recommendations re procedure to remove bad relatives – ignored! Courts eventually found a way of overcoming legal technicalities re NR and detention by finding in favour of the patient and giving the authorities time to reassess the case. Case law dried up on this score. Problems of removing relatives deemed to be objecting unreasonably to detention – case law sanctioned the displacement of such NRs under a county court procedures – as it stands – an emergency application can be made to the county court and the relative can be displaced without being present (personally I think there is much more thinking that needs to go on here – but it shows the power of professional judgement). Case law also found against the discrimination in respect of same sex relationships. Rise of the carer – hints of NR demise Pp Carer movement Community care – shortage of carers 1995 Carers Act – right to own assessment of need Psychiatric homicides 1995 MHA amendment – supervised discharge 1995 – after a lobby from a growing carer movement – carer right to assessment of own needs – followed by additional carer policy and legislation supporting the carer role. Spate of highly publicised homicides (tho’ research has shown there has been NO increase over last 40 years) – led to government’s increasing focus on public safety which has dogged MHA reform. Supervised discharge – the NR lost the power of application – and only retained the right to be consulted when danger to the NR was envisaged (and this placed the minister on a ‘tightrope’) – the ASW was relegated to making the recommendation. MHA reform – late 1990s 5 Pp Proposals to remove NR Replace with NP and carer NP appointed by pt – rights to be involved in care plans Carer – rights to be involved if pt agreed Carer and NP probably same person Following the recommendations of the Richardson Committee and Two draft MH Bills: NR to be replaced by the NP nominated by the pt and the carer. The hope was that the NP and the carer would have been one and the same person In principle right – but in practice highly complex – but it would have caused professionals to think much more about relationship issues! Pp – e.g. if conflict quote But I have very great concern re lack of understanding about family issues and MH on part of drafters. Pp Main findings: NR little known by S/us and carers Powers seldom used Potential for ASW/NR reciprocation Positive potential overlooked Major problem with ID NR – tarnished by political neglect – inappropriate relatives more heard about – MHAC’s recommendations ignored. NR associated with negatives – discrimination – oppression. But my contention – when the role was being fleshed out under the 1983 Act – giving the potential for ASW and NR to work together – advocacy, normalisation and social role valorisation theories were in the ether. The NR has vast powers – the ASW and NR by working reciprocally can be a formidable force to counterbalance medical hegemony. After analysing my data from focus groups of carers, service users and ASWs – and using the Grounded Theory method – I developed the theory of Reciprocal Role Valorisation as the positive underpinnings of the NR role. My PhD was used by the MH Alliance – drafting carer paper Pp MHA amendment MHA 2007 NR survival Inappropriate NR 6 Same sex relationships parity The third draft MH Bill – now law – govt decided against radical reform in favour of amending MHA 1983 - NR has survived again – intact – save improved on removing inappropriate NRs – and giving pts the right to choose a replacement – same sex relationships are now acknowledged. Practice issues – compare and contrast Pp Professional prejudices Assessment of care and social context Carer information and risk assessment Person-centred care Bristol case NRs are often being ignored – professional prejudices – lack of insight in need to assess relationships rather than taking things at face value – poor understanding of data protection and the care context – or even how carer information can inform risk assessments (carers being those most at risk) – problem interpretations of person- centred care which seems to focus entirely on the pt – simplistic interpretations of case law (the Bristol case) where it’s deemed impractical to contact the NR if doing so may harm the pt – but it’s often on the patient’s say so. So the family basis of MH care is under threat – the bread and butter of good social work – family dynamics – roles are being split – carer support workers are often deputed to the family (who are not usually professionally qualified) whilst the other professionals look after the patient – although carer education and carer support are at least on the map. END So I’ve rushed over the NR’s lengthy evolution, it’s birth and near demise and resurrection. The role still has potential – but it will take more than august powers to achieve this. And just as an end note – if I’d been doing this research now it would never have got off the ground – there is so much professional prejudice against the NR – particularly amongst SW managers – I don’t think it would ever have been passed by the new Ethics’ committees. 7