CANCER: PAEDIATRIC AND YOUNG ADULT November 2014 This bulletin is produced every two months and relates to both cancer and the young adult and paediatric oncology, and should be of interest to staff working in this area. Topics covered include symptom management, screening/pathology/staging, psychological and survivorship issues. Many of the following articles are available online via the NHS Scotland Knowledge Network. Please use the links where provided and your NHS Scotland ATHENS password. A complete list of available online journals and registration for ATHENS can be found at www.knowledge.scot.nhs.uk/ If the article you require is not available via the NHS Scotland Knowledge Network and you would like to request a print copy, please submit your request online at www.quest.scot.nhs.uk This bulletin contains a selection of material gathered from a search of the evidence base, and is not intended to be comprehensive. Professional judgment should be exercised when appraising the material. The Library takes no responsibility for the wording, content and accuracy of the information supplied, which has been extracted in good faith from reputable sources. NHSGGC is not responsible for the content of external internet sites. Contents: Communication and Decision Making ……………………………………………………………...2 Prognosis, Risk Factors and Incidence …………………………………………………………….3 Psychological Issues …………………………………………………………………………………5 Screening/Pathology/Staging/Biomarkers …………………………………………………………6 Survivorship Issues and Quality of Life …………………………………………………………….8 Symptom Management ………………………………………………………………………………11 Therapies ………………………………………………………………………………………………14 Working with Paediatric and Young Adult Patients ………………………………………………..18 Compiled by: Lorraine McLeod Assistant Librarian Level 0, Education Suite, Beatson West of Scotland Cancer Centre, 1053, Great Western Road, Glasgow G12 0YN 0141 3017283, lorraine.mcleod@ggc.scot.nhs.uk -1Cancer: Paediatric and Young Adult, September 2014 Lorraine McLeod, Assistant Librarian, NHSGGC Library Network Royal College of Nursing: Nutrition in children and young people with cancer. (Oct 2014) http://www.rcn.org.uk/__data/assets/pdf_file/0007/595177/RCN_Nutrition_2015_final.pdf Communication and Decision Making Anonymous (2014) Families wish to retain links with trial during which their child died. Nursing Children & Young People. 26(7), 7-7 Ångström-Brännström C, Dahlqvist V, Strandberg G, et al. (2014) Descriptions of comfort in the social networks surrounding a dying child. Nordic Journal of Nursing Research & Clinical Studies / Vård i Norden. 34(3), 4-8 Barnett ME, Shuk EM, Conway FP, et al. (2014) Cancer-related disclosure among adolescent and young adult cancer survivors: A qualitative study. Journal of Adolescent and Young Adult Oncology. 3(3), 123-129 Baxley S, M. and Daniels G. (2014) Adolescent participation in research: A model of Ethnic/Minority recruitment and retention. Journal of Theory Construction & Testing. 18(2), 3339 Breitwieser CL and Vaughn LM. (2014) "A day in my life" photography project: The silent voice of pediatric bone marrow transplant patients. Journal of Pediatric Oncology Nursing. 31(5), 284-292 Delebarre M, Macher E, Mazingue F, et al. (2014) Which decision rules meet methodological standards in children with febrile neutropenia? Results of a systematic review and analysis. Pediatric Blood and Cancer. 61(10), 1786-1791 Edwards D, Carrier J, Gillen E, et al. (2014) Factors influencing the provision of end-of-life care for adolescents and young adults with advanced cancer: A scoping review. JBI Database of Systematic Reviews and Implementation Reports. 12(7), 405-447 Gonzalez-Morkos B, Zavala O, Malogolowkin M, et al. (2014) The teen impact experience: A webcast pilot project for teens with cancer and blood diseases. Journal of Pediatric Oncology Nursing. 31(5), 272-276 Gray WN, Szulczewski LJ, Regan SMP, et al. (2014) Cultural influences in pediatric cancer: From diagnosis to Cure/End of life. Journal of Pediatric Oncology Nursing. 31(5), 252-271 Harris D, Patrick-Miller L, Schwartz L, et al. (2014) Human subjects protection: An event monitoring committee for research studies of girls from breast cancer families. Journal of Adolescent Health. 55(3), 352-357 Jacques A, Udowicz M, Bayliss Y, et al. (2014) Thinking differently about the kids: An innovative approach to improve care provided to pediatric patients undergoing external beam radiation therapy. Journal of Medical Imaging & Radiation Sciences. 45(3), 269-275 Kelly D. (2014) Theory to reality: The role of the transition nurse coordinator. British Journal of Nursing. 23(16), 888-894 Kelly KP, Hooke MC, Ruccione K, et al. (2014) Children's oncology group nursing research framework. Seminars in Oncology Nursing. 30(1), 17-25 Laddie J, Craig F, Brierley J, et al. (2014) Withdrawal of ventilatory support outside the intensive care unit: Guidance for practice. Archives of Disease in Childhood. 99(9), 812-816 McCann L, Kearney N and Wengstrom Y. (2014) "It's just going to a new hospital ... that's it." or is it? an experiential perspective on moving from pediatric to adult cancer services. Cancer Nursing. 37(5), E23-E31 Meeneghan MR and Wood WA. (2014) Challenges for cancer care delivery to adolescents and young adults: Present and future. Acta Haematologica. 132(3-4), 414-422 -2Cancer: Paediatric and Young Adult, September 2014 Lorraine McLeod, Assistant Librarian, NHSGGC Library Network Nagler RH, Puleo E, Sprunck-Harrild K, et al. (2014) Health media use among childhood and young adult cancer survivors who smoke. Supportive Care in Cancer. 22(9), 2497-2507 Reed D, Block RG and Johnson R. (2014) Creating an adolescent and young adult cancer program: Lessons learned from pediatric and adult oncology practice bases. JNCCN Journal of the National Comprehensive Cancer Network. 12(10), 1409-1415 Rollins J, A. (2014) From the editor. smooth transitions to adult health care: Do all the rules have to change? Pediatric Nursing. 40(5), 216-217 Scollon S, Bergstrom K, Kerstein RA, et al. (2014) Obtaining informed consent for clinical tumor and germline exome sequencing of newly diagnosed childhood cancer patients. Genome Medicine. 6:69 Stegenga K. (2014) Impact of a teen weekend on the social support needs of adolescents with cancer. Journal of Pediatric Oncology Nursing. 31(5), 293-297 Wolach O and Ram R. (2014) Adolescents and young adults with non-Hodgkin's lymphoma: Slipping between the cracks. Acta Haematologica. 132(3-4), 279-291 Prognosis, Risk Factors and Incidence Aizer AA, Falit B, Mendu ML, et al. (2014) Cancer-specific outcomes among young adults without health insurance. Journal of Clinical Oncology. 32(19), 2025-2030 Ariffin H, Hainaut P, Puzio-Kuter A, et al. (2014) Whole-genome sequencing analysis of phenotypic heterogeneity and anticipation in Li-Fraumeni cancer predisposition syndrome. Proceedings of the National Academy of Sciences of the United States of America. 111(43), 1549715501 Bachas C, Schuurhuis GJ, Reinhardt D, et al. (2014) Clinical relevance of molecular aberrations in paediatric acute myeloid leukaemia at first relapse. British Journal of Haematology. 166(6), 902-910 Bailey HD, Fritschi L, Infante-Rivard C, et al. (2014) Parental occupational pesticide exposure and the risk of childhood leukemia in the offspring: Findings from the childhood leukemia international consortium. International Journal of Cancer. 135(9), 2157-2172 Bates J, E., Peterson C, R., Dhakal S, et al. (2014) Malignant peripheral nerve sheath tumors (MPNST): A SEER analysis of incidence across the age spectrum and therapeutic interventions in the pediatric population. Pediatric Blood & Cancer. 61(11), 1955-1960 Brisson B, Ayotte P, Normandin L, et al. (2014) Relation between dietary acrylamide exposure and biomarkers of internal dose in Canadian teenagers. Journal of Exposure Science & Environmental Epidemiology. 24(2), 215-221 Bunch KJ, Vincent TJ, Black RJ, et al. (2014) Updated investigations of cancer excesses in individuals born or resident in the vicinity of Sellafield and Dounreay. British Journal of Cancer. 111(9), 1814-1823 Chen JX, Kachniarz B, Gilani S, et al. (2014) Risk of malignancy associated with head and neck CT in children: A systematic review. Otolaryngology - Head and Neck Surgery (United States). 151(4), 554-566 Choi SJ, Kim EY, Kim HS, et al. (2014) Cumulative effective dose associated with computed tomography examinations in adolescent trauma patients. Pediatric Emergency Care. 30(7), 479-482 Del Risco Kollerud R, Blaasaas KG and Claussen B. (2014) Risk of leukaemia or cancer in the central nervous system among children living in an area with high indoor radon concentrations: Results from a cohort study in Norway. British Journal of Cancer. 111(7), 1413-1420 -3Cancer: Paediatric and Young Adult, September 2014 Lorraine McLeod, Assistant Librarian, NHSGGC Library Network Dewaraja YK, Schipper MJ, Shen J, et al. (2014) Tumor-absorbed dose predicts progressionfree survival following 131I-tositumomab radioimmunotherapy. Journal of Nuclear Medicine. 55(7), 1047-1053 Deziel NC, Rull RP, Colt JS, et al. (2014) Polycyclic aromatic hydrocarbons in residential dust and risk of childhood acute lymphoblastic leukemia. Environmental Research. 133 388-395 Elkaim E, Picard C, Galambrun C, et al. (2014) Peripheral blood cells chimerism after unrelated cord blood transplantation in children: Kinetics, predictive factors and impact on posttransplant outcome. British Journal of Haematology. 166(4), 557-565 Feltbower RG, Fleming SJ, Picton SV, et al. (2014) UK case control study of brain tumours in children, teenagers and young adults: A pilot study. BMC Research Notes. 7 14 Gorniak P, Pastorczak A, Zalewska-Szewczyk B, et al. (2014) Polymorphism in IKZF1 gene affects age at onset of childhood acute lymphoblastic leukemia. Leukemia and Lymphoma. 55(9), 2174-2178 Johnson JN, Hornik CP, Li JS, et al. (2014) Cumulative radiation exposure and cancer risk estimation in children with heart disease. Circulation. 130(2), 161-167 Karagas MR, Zens MS, Li Z, et al. (2014) Early-onset basal cell carcinoma and indoor tanning: A population-based study. Pediatrics. 134(1), e4-12 Long J, Liu S, Li K, et al. (2014) High proportion of CD34+/CD38-cells is positively correlated with poor prognosis in newly diagnosed childhood acute lymphoblastic leukemia. Leukemia & Lymphoma. 55(3), 611-617 Maretty-Nielsen K, Aggerholm-Pedersen N, Safwat A, et al. (2014) Prevalence and prognostic impact of comorbidity in soft tissue sarcoma: A population-based cohort study. Acta Oncologica. 53(9), 1188-1196 McNally RJQ, Basta NO, Errington S, et al. (2014) Socioeconomic patterning in the incidence and survival of children and young people diagnosed with malignant melanoma in northern England. Journal of Investigative Dermatology. 134(11), 2703-2708 Milani G, Rebora P, Accordi B, et al. (2014) Low PKCalpha expression within the MRD-HR stratum defines a new subgroup of childhood T-ALL with very poor outcome. Oncotarget. 5(14), 5234-5245 Moorman AV, Enshaei A, Schwab C, et al. (2014) A novel integrated cytogenetic and genomic classification refines risk stratification in pediatric acute lymphoblastic leukemia. Blood. 124(9), 1434-1444 Ohnstad H, O., Bruland Ø, S., Taksdal I, et al. (2014) Response to preoperative chemotherapy in patients undergoing resection of pulmonary metastasis from soft tissue sarcoma - a predictor of outcome? Acta Oncologica. 53(9), 1180-1187 Paulsson AK, Holmes JA, Peiffer AM, et al. (2014) Comparison of clinical outcomes and genomic characteristics of single focus and multifocal glioblastoma. Journal of Neuro-Oncology. 119(2), 429-435 Pauniaho S, Salonen J, Helminen M, et al. (2014) Germ cell tumors in children and adolescents in Finland: Trends over 1969-2008. Cancer Causes & Control. 25(10), 1337-1341 Pedersen C, Brauner EV, Rod NH, et al. (2014) Distance to high-voltage power lines and risk of childhood leukemia - an analysis of confounding by and interaction with other potential risk factors. Plos One. 9 (9) , 2014 ate of Pubaton: 26 Se 2014 Peters S, Glass DC, Greenop KR, et al. (2014) Childhood brain tumours: Associations with parental occupational exposure to solvents. British Journal of Cancer. 111(5), 998-1003 Rihani A, Van Maerken T, De Wilde B, et al. (2014) Lack of association between MDM2 promoter SNP309 and clinical outcome in patients with neuroblastoma. Pediatric Blood and Cancer. 61(10), 1867-1870 -4Cancer: Paediatric and Young Adult, September 2014 Lorraine McLeod, Assistant Librarian, NHSGGC Library Network Sundh KJ, Henningsen A-A, Kallen K, et al. (2014) Cancer in children and young adults born after assisted reproductive technology: A Nordic cohort study from the committee of nordic ART and safety (CoNARTaS). Human Reproduction. 29(9), 2050-2057 Takeuchi A, Lewis V, O., Satcher R, L., et al. (2014) What are the factors that affect survival and relapse after local recurrence of osteosarcoma? Clinical Orthopaedics & Related Research. 472(10), 3188-3195 Tarlock K, Alonzo TA, Moraleda PP, et al. (2014) Acute myeloid leukaemia (AML) with t(6;9)(p23;q34) is associated with poor outcome in childhood AML regardless of FLT3-ITD status: A report from the children's oncology group. British Journal of Haematology. 166(2), 254-259 van Laar M, Stark DP, McKinney P, et al. (2014) Population mixing for leukaemia, lymphoma and CNS tumours in teenagers and young adults in England, 1996-2005. BMC Cancer. 14:698 Veschi V, Petroni M, Bartolazzi A, et al. (2014) Galectin-3 is a marker of favorable prognosis and a biologically relevant molecule in neuroblastic tumors. Cell Death & Disease. 5 e1100 Wolfson J, Sun CL, Kang T, et al. (2014) Impact of treatment site in adolescents and young adults with central nervous system tumors. Journal of the National Cancer Institute. 106(8), ju166 Yadav R, Sharma MC, Malgulwar PB, et al. (2014) Prognostic value of MIB-1, p53, epidermal growth factor receptor, and INI1 in childhood chordomas. Neuro-Oncology. 16(3), 372-381 Yang L, Takimoto T and Fujimoto J. (2014) Prognostic model for predicting overall survival in children and adolescents with rhabdomyosarcoma. BMC Cancer. 14:654 Zhang L, Cao Z, Ruan M, et al. (2014) Monitoring the AML1/ETO fusion transcript to predict outcome in childhood acute myeloid leukemia. Pediatric Blood and Cancer. 61(10), 1761-1766 Psychological Issues Campanella F, Shallice T, Ius T, et al. (2014) Impact of brain tumour location on emotion and personality: A voxel-based lesion-symptom mapping study on mentalization processes. Brain: A Journal of Neurology. 137 2532-2545 Caprino D and Massimo LM. (2014) Coping with childhood cancer: Interaction and development of self-esteem and defense mechanisms. International Journal of Cancer Research and Prevention. 6(3-4), 425-433 Chen C-, Chen Y- and Wong T-. (2014) Comparison of resilience in adolescent survivors of brain tumors and healthy adolescents. Cancer Nursing. 37(5), 373-381 Deatrick JA, Hobbie W, Ogle S, et al. (2014) Competence in caregivers of adolescent and young adult childhood brain tumor survivors. Health Psychology 33(10), 1103-1112 Ehrentraut J, Harman, Kern K, Danielle, Long S, A., et al. (2014) Opioid misuse behaviors in adolescents and young adults in a hematology/oncology setting. Journal of Pediatric Psychology. 39(10), 1149-1160 Fletcher JM. (2014) Alternative approaches to outcomes assessment: Beyond psychometric tests. Pediatric Blood and Cancer. 61(10), 1734-1738 Ford JS, Kawashima T, Whitton J, et al. (2014) Psychosexual functioning among adult female survivors of childhood cancer: A report from the childhood cancer survivor study. Journal of Clinical Oncology. 32(28), 3126-3136 Foster RH and Stern M. (2014) Peer and romantic relationships among adolescent and young adult survivors of childhood hematological cancer: A review of challenges and positive outcomes. Acta Haematologica. 132(3-4), 375-382 -5Cancer: Paediatric and Young Adult, September 2014 Lorraine McLeod, Assistant Librarian, NHSGGC Library Network Gardner MH, Barnes MJ, Bopanna S, et al. (2014) Barriers to the use of psychosocial support services among adolescent and young adult survivors of pediatric cancer. Journal of Adolescent and Young Adult Oncology. 3(3), 112-116 Kolb B, Mychasiuk R and Gibb R. (2014) Brain development, experience, and behavior. Pediatric Blood and Cancer. 61(10), 1720-1723 Lehmann V, Grönqvist H, Engvall G, et al. (2014) Negative and positive consequences of adolescent cancer 10 years after diagnosis: An interview-based longitudinal study in Sweden. Psycho-Oncology. 23(11), 1229-1235 Razzano A, Revelli A, Delle Piane L, et al. (2014) Fertility preservation program before ovarotoxic oncostatic treatments: Role of the psychological support in managing emotional aspects. Gynecological Endocrinology. 30(11), 822-824 Rosenberg RS, Lange W, Zebrack B, et al. (2014) An outdoor adventure program for young adults with cancer: Positive effects on body image and psychosocial functioning. Journal of Psychosocial Oncology. 32(5), 622-636 Salavati B, Seeman MV, Agha M, et al. (2014) Which siblings of children with cancer benefit most from support groups?. Children's Health Care. 43(3), 221-233 Stegenga K. (2014) Impact of a teen weekend on the social support needs of adolescents with cancer. Journal of Pediatric Oncology Nursing. 31(5), 293-297 Zebrack B, J., Corbett V, Embry L, et al. (2014) Psychological distress and unsatisfied need for psychosocial support in adolescent and young adult cancer patients during the first year following diagnosis. Psycho-Oncology. 23(11), 1267-1275 Screening/Pathology/Staging/Biomarkers Anonymous (2014) Imaging pediatric spine tumors. Applied Radiology. 26-40; 15p Akino T, Han X, Nakayama H, et al. (2014) Netrin-1 promotes medulloblastoma cell invasiveness and angiogenesis, and demonstrates elevated expression in tumor tissue and urine of patients with pediatric medulloblastoma. Cancer Research. 74(14), 3716-3726 Alazraki AL and Braithwaite KA. (2014) Gender-based differences in pediatric nuclear medicine. Seminars in Nuclear Medicine. 44(6), 451-460 Arnold MA, Schoenfield L, Limketkai BN, et al. (2014) Diagnostic pitfalls of differentiating desmoplastic small round cell tumor (DSRCT) from Wilms tumor (WT): Overlapping morphologic and immunohistochemical features. American Journal of Surgical Pathology. 38(9), 1220-1226 Au A, Baba AA, Azlan H, et al. (2014) Clinical impact of ABCC1 and ABCC2 genotypes and haplotypes in mediating imatinib resistance among chronic myeloid leukaemia patients. Journal of Clinical Pharmacy & Therapeutics. 39(6), 685-690 Bhatnagar R, Olson MT, Fishman EK, et al. (2014) Solid-pseudopapillary neoplasm of the pancreas: Cytomorphologic findings and literature review. Acta Cytologica. 58(4), 347-355 Braakhuis BJM, Rietbergen MM, Buijze M, et al. (2014) TP53 mutation and human papilloma virus status of oral squamous cell carcinomas in young adult patients. Oral Diseases. 20(6), 602-608 Ciarapica R, De Salvo M, Carcarino E, et al. (2014) The polycomb group (PcG) protein EZH2 supports the survival of PAX3-FOXO1 alveolar rhabdomyosarcoma by repressing FBXO32 (Atrogin1/MAFbx). Oncogene. 33(32), 4173-4184 Cohen-Gogo S, Cellier C, Coindre J, et al. (2014) Ewing-like sarcomas with BCOR-CCNB3 fusion transcript: A clinical, radiological and pathological retrospective study from the Société Française des Cancers de L'enfant. Pediatric Blood & Cancer. 61(12), 2191-2198 -6Cancer: Paediatric and Young Adult, September 2014 Lorraine McLeod, Assistant Librarian, NHSGGC Library Network Dall'Igna P, Virgone C, De Salvo GL, et al. (2014) Adrenocortical tumors in Italian children: Analysis of clinical characteristics and P53 status. data from the national registries. Journal of Pediatric Surgery. 49(9), 1367-1371 DeMarchis EH, Swetter SM, Jennings CD, et al. (2014) Fluorescence in situ hybridization analysis of atypical melanocytic proliferations and melanoma in young patients. Pediatric Dermatology. 31(5), 561-569 Hall AE, Chowdhury S, Pashayan N, et al. (2014) What ethical and legal principles should guide the genotyping of children as part of a personalised screening programme for common cancer? Journal of Medical Ethics. 40(3), 163-167 Heo S, Hee, Kim J, Woong, Shin S, Soo, et al. (2014) Review of ovarian tumors in children and adolescents: Radiologic-pathologic correlation. Radiographics. 34(7), 2039-2055 Hervey-Jumper SL, Garton HJ, Lau D, et al. (2014) Differences in vascular endothelial growth factor receptor expression and correlation with the degree of enhancement in medulloblastoma. Journal of Neurosurgery.Pediatrics. 14(2), 121-128 Hishiki T, Horie H, Higashimoto Y, et al. (2014) Histological features of primary tumors after induction or high-dose chemotherapy in high-risk neuroblastoma. Pediatric Surgery International. 30(9), 919-926 Kembhavi S, A., Rangarajan V, Shah S, et al. (2014) Prospective observational study on diagnostic accuracy of whole-body MRI in solid small round cell tumours. Clinical Radiology. 69(9), 900-908 Kim AH, Thompson EA, Governale LS, et al. (2014) Recurrence after gross-total resection of low-grade pediatric brain tumors: The frequency and timing of postoperative imaging. Journal of Neurosurgery: Pediatrics. 14(4), 356-364 Lamora A, Talbot J, Bougras G, et al. (2014) Overexpression of Smad7 blocks primary tumor growth and lung metastasis development in osteosarcoma. Clinical Cancer Research. 20(19), 5097-5112 Law JK, Stoita A, Weaver W, et al. (2014) Endoscopic ultrasound-guided fine needle aspiration improves the pre-operative diagnostic yield of solid-pseudopapillary neoplasm of the pancreas: An international multicenter case series (with video). Surgical Endoscopy and Other Interventional Techniques. 28(9), 2592-2598 Lee AF, Pawel BR and Sullivan LM. (2014) Significant immunohistochemical expression of human chorionic gonadotropin in high-grade osteosarcoma is rare, but may be associated with clinically elevated serum levels. Pediatric & Developmental Pathology. 17(4), 278-285 Lin CH, Ji T, Chen CF, et al. (2014) Wnt signaling in osteosarcoma. Advances in Experimental Medicine & Biology. 804 33-45 Littooij AS, Kwee TC, Barber I, et al. (2014) Whole-body MRI for initial staging of paediatric lymphoma: Prospective comparison to an FDG-PET/CT-based reference standard. European Radiology. 24(5), 1153-1165 Liu Y, Zhao L, Ju Y, et al. (2014) A novel androstenedione derivative induces ROS-mediated autophagy and attenuates drug resistance in osteosarcoma by inhibiting macrophage migration inhibitory factor (MIF). Cell Death and Disease. 5 (8) Liu Z, Lv X, Wang W, et al. (2014) Imaging characteristics of primary intracranial teratoma Acta Radiologica. 55(7), 874-881 Massad LS. (2014) Developing guidelines for cervical cancer prevention in the face of diagnostic complexity. Journal of the National Comprehensive Cancer Network. 12(3), 349-353 Maurer K. (2014) Musculoskeletal ultrasound in childhood. European Journal of Radiology. 83(9), 1529-1537 McDaniel LD and Maris JM. (2014) The promises and pitfalls of genetic epidemiologic -7Cancer: Paediatric and Young Adult, September 2014 Lorraine McLeod, Assistant Librarian, NHSGGC Library Network approaches to pediatric cancers: Lessons from MDM2. Pediatric Blood and Cancer. 61(10), 1717-1718 Mullassery D, Sharma V, Salim A, et al. (2014) Open versus needle biopsy in diagnosing neuroblastoma. Journal of Pediatric Surgery. 49(10), 1505-1507 Ozcan HN, Oguz B, Sen HS, et al. (2014) Imaging features of primary malignant pancreatic tumors in children. AJR.American Journal of Roentgenology. 203(3), 662-667 Preuss M, Werner P, Barthel H, et al. (2014) Integrated PET/MRI for planning navigated biopsies in pediatric brain tumors. Child's Nervous System. 30(8), 1399-1403 Roberts KG, Li Y, Payne-Turner D, et al. (2014) Targetable kinase-activating lesions in ph-like acute lymphoblastic leukemia. New England Journal of Medicine. 371(11), 1005-1015 Rodriguez FJ, Tihan T, Lin D, et al. (2014) Clinicopathologic features of pediatric oligodendrogliomas: A series of 50 patients. American Journal of Surgical Pathology. 38(8), 1058-1070 Sugalski AJ, Jiwani A, Ketchum NS, et al. (2014) Characterization of localized osteosarcoma of the extremity in children, adolescents, and young adults from a single institution in South Texas. Journal of Pediatric Hematology/Oncology. 36(6), e353-8 van der Sligte NE, Krumbholz M, Pastorczak A, et al. (2014) DNA copy number alterations mark disease progression in paediatric chronic myeloid leukaemia. British Journal of Haematology. 166(2), 250-253 Vitanza NA, Zaky W, Blum R, et al. (2014) Ikaros deletions in BCR-ABL-negative childhood acute lymphoblastic leukemia are associated with a distinct gene expression signature but do not result in intrinsic chemoresistance. Pediatric Blood and Cancer. 61(10), 1779-1785 Wildhaber BE, Montaruli E, Guerin F, et al. (2014) Mesenchymal hamartoma or embryonal sarcoma of the liver in childhood: A difficult diagnosis before complete surgical excision. Journal of Pediatric Surgery. 49(9), 1372-1377 Wu D, Chen K, Bai Y, et al. (2014) Screening of diagnostic markers for osteosarcoma. Molecular Medicine Reports. 10(5), 2415-2420 Yeom KW, Mitchell LA, Lober RM, et al. (2014) Arterial spin-labeled perfusion of pediatric brain tumors. Ajnr: American Journal of Neuroradiology. 35(2), 395-401 Survivorship Issues and Quality of Life Barnes MA and Raghubar KP. (2014) Mathematics development and difficulties: The role of visual-spatial perception and other cognitive skills. Pediatric Blood and Cancer. 61(10), 17291733 Batra V, Sands SA, Holmes E, et al. (2014) Long-term survival of children less than six years of age enrolled on the CCG-945 phase III trial for newly-diagnosed high-grade glioma: A report from the children's oncology group. Pediatric Blood and Cancer. 61(1), 151-157 Bruzzi P, Predieri B, Corrias A, et al. (2014) Final height and body mass index in adult survivors of childhood acute lymphoblastic leukemia treated without cranial radiotherapy: A retrospective longitudinal multicenter Italian study. BMC Pediatrics. 14:236 Bujons A, Caffaratti J, Garat JM, et al. (2014) Long-term follow-up of transitional cell carcinoma of the bladder in childhood. Journal of Pediatric Urology. 10(1), 167-170 Caglar AA, Oguz A, Pinarli FG, et al. (2014) Thyroid abnormalities in survivors of childhood cancer. JCRPE Journal of Clinical Research in Pediatric Endocrinology. 6(3), 144-151 Cataudella D, Morley TE, Nesin A, et al. (2014) Development of a quality of life instrument for children with advanced cancer: The pediatric advanced care quality of life scale (PACQoL). Pediatric Blood and Cancer. 61(10), 1840-1845 -8Cancer: Paediatric and Young Adult, September 2014 Lorraine McLeod, Assistant Librarian, NHSGGC Library Network Cherven B, Mertens A, Meacham L, R., et al. (2014) Knowledge and risk perception of late effects among childhood cancer survivors and parents before and after visiting a childhood cancer survivor clinic. Journal of Pediatric Oncology Nursing. 31(6), 339-349 Choi DK, Helenowski I and Hijiya N. (2014) Secondary malignancies in pediatric cancer survivors: Perspectives and review of the literature. International Journal of Cancer. 135(8), 1764-1773 Christiansen JR, Hamre H, Massey R, et al. (2014) Left ventricular function in long-term survivors of childhood lymphoma. American Journal of Cardiology. 114(3), 483-490 Cohen J, Laing DG, Wilkes FJ, et al. (2014) Taste and smell dysfunction in childhood cancer survivors. Appetite. 75 135-140 Crom DB, Li Z, Brinkman TM, et al. (2014) Life satisfaction in adult survivors of childhood brain tumors. Journal of Pediatric Oncology Nursing. 31(6), 317-326 Denbo JW, Zhu L, Srivastava D, et al. (2014) Long-term pulmonary function after metastasectomy for childhood osteosarcoma: A report from the St Jude lifetime cohort study. Journal of the American College of Surgeons. 219(2), 265-271 Dryden A, Ussher JM and Perz J. (2014) Young women's construction of their post-cancer fertility. Psychology & Health. 29(11), 1341-1360 Essig S, Li Q, Chen Y, et al. (2014) Risk of late effects of treatment in children newly diagnosed with standard-risk acute lymphoblastic leukaemia: A report from the childhood cancer survivor study cohort. Lancet Oncology. 15(8), 841-851 Gan H- and Spoudeas HA. (2014) Long-term follow-up of survivors of childhood cancer (SIGN clinical guideline 132). Archives of Disease in Childhood: Education and Practice Edition. 99(4), 138-143 Gilg MM, Wibmer C, Andreou D, et al. (2014) Paley's multiplier method does not accurately predict adult height in children with bone sarcoma. Clinical Orthopaedics & Related Research. 472(8), 2506-2513 Gramatges MM, Liu Q, Yasui Y, et al. (2014) Telomere content and risk of second malignant neoplasm in survivors of childhood cancer: A report from the childhood cancer survivor study. Clinical Cancer Research. 20(4), 904-911 Green DM. (2014) The twelfth international conference on the long-term complications of treatment of children and adolescents with cancer. Pediatric Blood and Cancer. 61(10), 17191719 Howard AF, Tan de Bibiana J, Smillie K, et al. (2014) Trajectories of social isolation in adult survivors of childhood cancer. Journal of Cancer Survivorship. 8(1), 80-93 Imbert R, Moffa F, Tsepelidis S, et al. (2014) Safety and usefulness of cryopreservation of ovarian tissue to preserve fertility: A 12-year retrospective analysis. Human Reproduction. 29(9), 1931-1940 Jervaeus A, af Sandeberg M, Johansson E, et al. (2014) Survivors of childhood cancer report high levels of independence five years after diagnosis. Journal of Pediatric Oncology Nursing. 31(5), 245-251 Kim J, Kim M, Lee JH, et al. (2014) Ovarian function preservation with GnRH agonist in young breast cancer patients: Does it impede the effect of adjuvant chemotherapy?. Breast. 23(5), 670-675 Kishtagari A, Tavakkoli M and Park JH. (2014) Survivorship in adolescents and young adults. Acta Haematologica. 132(3-4), 383-390 Lopez AD, Bradley-Klug KL, Quinn GP, et al. (2014) Adolescent survivors of childhood cancer and their perspectives of the transition to early survivorship: An exploratory qualitative investigation. 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(2014) Anticipated intraoperative electron beam boost, external beam radiation therapy, and limb-sparing surgical resection for patients with pediatric soft-tissue sarcomas of the extremity: A multicentric pooled analysis of longterm outcomes. International Journal of Radiation Oncology, Biology, Physics. 90(1), 172-180 Srinivasan A, Panetta JC, Cross SJ, et al. (2014) Phase I study of the safety and pharmacokinetics of plerixafor in children undergoing a second allogeneic hematopoietic stem cell transplantation for relapsed or refractory leukemia. Biology of Blood and Marrow Transplantation. 20(8), 1224-1228 Stein EM and Tallman MS. (2014) Acute promyelocytic leukemia in children and adolescents. Acta Haematologica. 132(3-4), 307-312 Szychot E, Brodkiewicz A and Peregud-Pogorzelski J. (2014) How have advances in our understanding of the molecular genetics of paediatric leukaemia led to improved targeted therapies for these diseases? 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(2014) A study of docetaxel and irinotecan in children and young adults with recurrent or refractory Ewing sarcoma family of tumors. BMC Cancer. 14, 622 Working with Paediatric and Young Adult Patients Anonymous (2014) Nurse training to benefit from teen patient's legacy. Nursing Times. 110(39), 5-5 Anonymous (2014) Typical roles and banding in teenage and young adult cancer care. Cancer Nursing Practice. 13(7), 8-8 Anonymous (2014) Teenage cancer care model sets nursing competencies. Nursing Children & Young People. 26(7), 7-7 Dreyer J and Schwartz-Attias I. (2014) Nursing care for adolescents and young adults with cancer: Literature review. Acta Haematologica. 132(3-4), 363-374 Golden JR. (2014) A nurse practitioner patient care team: Implications for pediatric oncology. Journal of Pediatric Oncology Nursing. 31(6), 350-356 - 18 Cancer: Paediatric and Young Adult, September 2014 Lorraine McLeod, Assistant Librarian, NHSGGC Library Network McLaughlin CA, Hockenberry MJ, Kurtzberg J, et al. (2014) Standardization of health care provider competencies for intrathecal access procedures. Journal of Pediatric Oncology Nursing. 31(6), 304-316 Rodgers C, Withycombe JS and Hockenberry MJ. (2014) Evidence-based practice projects in pediatric oncology nursing. Journal of Pediatric Oncology Nursing. 31(4), 182-184 Triggle N. (2014) Framework for care of young people outlines skills needed. Cancer Nursing Practice. 13(7), 8-9 Please note that the journal articles you are accessing are subject to the terms and conditions imposed by the publisher, so there will be a limit on the number of articles an individual may download or print from a single issue of a journal. You can consult your local NHSGGC library with any queries. If you have any questions regarding this or any other library services please contact Library staff – contact details are at the beginning of the bulletin. Sources used for this bulletin : OVID MEDLINE and MEDLINE in process, EMBASE, CINAHL Journal of Adolescent and Young Adult Oncology Journal of Pediatric Oncology Nursing - 19 Cancer: Paediatric and Young Adult, September 2014 Lorraine McLeod, Assistant Librarian, NHSGGC Library Network