ACCOMMODATIONS FOR HIDDEN DISABILITIES ________________________________________________________________ Objectives: 1. Define and identify “hidden disabilities”. 2. Discuss current technologies and future trends of technologies. 3. Identify strategies and technologies that assist limitations associated with “hidden disabilities”. Presenter: Tony Gentry, PhD OTR/L Assistant Professor and Director, Assistive Technology for Cognition Laboratory Department of Occupational Therapy Virginia Commonwealth University (804) 828-2219 logentry@vcu.edu http://www.vcu.edu/partnership/pda 1 Linking Virginia’s Resources Together Woodrow Wilson Rehabilitation Center (Fall 06) Accommodations for “Hidden Disabilities” INTRODUCTION AND OVERVIEW WHAT ARE “HIDDEN DISABILITIES” Functional limitations caused by physical impairment not visible to the naked eye. Impairments may affect: o Thinking skills o Respiration/Circulation o Endurance/stamina Some Hidden Disability-related Conditions o o o o o o o o o Attention Deficit Hyperactivity Disorder (ADHD) Acquired Brain Injury Cardiovascular Conditions Asthma Autism Fibromyalgia Multiple Sclerosis Sleep disorders Schizophrenia Difficulties in Addressing Hidden Disabilities o o o o Overlooked Individuals seen as malingerers Difficult to accommodate, because need may vary in complexity Difficult to explain or convey functional issues SERVICES Rehabilitation Physicians and Therapists (OT, PT, SLP, etc.) DRS counselors and staff Specialized clinics for various symptoms/disorders Psychologists Job Coaches/Case Managers COMMON LIMITATIONS AND ACCOMMODATIONS Functional Cognition Deficits o Remove clutter, simplify environment o Teach pacing, doing one thing at a time 2 Linking Virginia’s Resources Together Woodrow Wilson Rehabilitation Center (Fall 06) Accommodations for “Hidden Disabilities” o Work in quiet setting, when possible o Utilize low-tech and high-tech memory/organization aids o Teach relaxation skills Decreased Stamina/Chronic Fatigue o o o o o o o Flexible scheduled with regular down-times Schedule in a daily nap, if possible Use cooling jacket, if fatigue related to overheating Work and shop from home (using Internet) Delegate responsibilities Keep fatigue diary, in order to pace oneself Consider sleep clinic assessment Emotional Stress o o o o o Relaxation and movement therapy Conflict resolution training Behavioral management training Collaborate with co-workers on task delegation Utilize Positive Behavioral Support strategies, as needed Reading/Writing/Speaking o o o o o Use accommodations software on PC or Mac Text-speech/Speech-text software, as needed Know your strengths and work from them Give yourself extra time for all tasks Work with co-worker for proofreading, rehearsal Sensory Defensiveness/Sensitivity o Occupational therapy assessment o Utilize AT to compensate for problem, such as glare guards for computers, ear plugs, etc. Pain o o o o Utilize pain diary/pain scale to pace oneself Relaxation strategies Avoid painful physical positions or postures Allow for rest 3 Linking Virginia’s Resources Together Woodrow Wilson Rehabilitation Center (Fall 06) Accommodations for “Hidden Disabilities” CASE STUDIES Case Study A: Barbie, an individual with a severe traumatic brain injury, seeking her first job, but facing difficulty due to difficulty in managing distractions, performing multi-step tasks and remembering appointments. Accommodation: Mentored workplace, quiet worksite, task-sequencing prompts on handheld computer, reminder alarms for daily activities, rest breaks during the day. Case Study B: Buck, an individual with heat-related fatigue due to multiple sclerosis, who is in danger of losing his job as a heavy equipment operator for VDOT. Accommodation: Cooling vest with exchangeable cool-paks, reorganize job to include time off machinery (in A.C.-equipped trailer, if possible), frequent iced drinks, awning over cab, fifteen minute nap at lunch-time in A.C.-equipped car, cool shower before and after work. Case Study C: Jeremy, a high school graduate with Asperger’s Syndrome, who has difficulty with non-routine tasks, social interactions and task organization. Accommodation: PDA for activity reminder prompts, behavioral management training to help in adjustment to changes in schedule, community theatre, simplification of work setting. Case Study D: Mary, a nurse’s aide with fatigue and reduced endurance related to obesity, diabetes and cardiovascular compromise. Accommodation: Education re diet/diabetes control, supervised goal-focused conditioning program (with P.T.), rest breaks during workday, strategies for utilizing Hoyer lift and other devices for lifting/transfer of patients. Consider rollator walker, when needed. 4 Linking Virginia’s Resources Together Woodrow Wilson Rehabilitation Center (Fall 06) Accommodations for “Hidden Disabilities” WEB RESOURCES www.vcu.edu/partnership/pda. Informational site on use of assistive technology for cognition. www.biausa.org. Catalog of cognitive prosthetic devices. www.enablemart.com. Online catalog of AT for individuals with visual, hearing, cognitive challenges. www.independentliving.com. cognitive issues. Online store with AT for visual, hearing and www.e-pill.com. Online store that sells a wide variety of tools for individuals with cognitive impairment. www.ablelinktech.com. Task-sequencing and scheduling software for Pocket PC. www.brainaid.com. Simplified reminder system (PEAT) for Pocket PC. In order to purchase this device, you must agree to a training seminar provided by vendor. www.nmss.org. National Multiple Sclerosis Society website, with information on accommodations for chronic fatigue, heat-related fatigue, cognitive AT, etc. 5