A LEGAL RESOURCE CENTRE FOR PERSONS WITH DISABILITIES 425 Bloor Street East, Suite 110 Toronto, Ontario M4W 3R5 www.archlegalclinic.ca (416) 482-8255 (Main) (416) 482-1254 (TTY) (416) 482-2981 (FAX) 1 (866) 482-ARCH (2724) (Toll Free) 1 (866) 482-ARCT (2728) (Toll Free) 1 (866) 881-ARCF (2723) (Toll Free) ARCH Submission to the Post-Secondary Education Review In Response to: Higher Expectations for Higher Education: A Discussion Paper November 2004 SUBMISSION TO THE POST-SECONDARY REVIEW COMMITTEE Table of Contents I. II. About ARCH: A Legal Resource Centre for Persons with Disabilities Overview About Disability III. Legal Obligations IV. Socio-Economic Data V. Accessibility-Barrier Removal VI. Student Funding Issues VII. Recommendations I. About ARCH: A Legal Resource Centre for Persons with Disabilities ARCH is an Ontario-based not-for-profit legal clinic that is dedicated to defending and advancing the equality rights of persons with disabilities from a crossdisability perspective. ARCH represents disability organizations and individuals in test case litigation at all levels of tribunals and courts, including appeals before the Supreme Court of Canada. We provide education to the public on disability rights and to the legal profession about disability law, and we make submissions to government on matters of law reform. We also offer a province-wide telephone summary legal advice and referral service, and it is through this service that we know of the concerns and complaints of students with disabilities trying to access and succeed in post-secondary studies. This submission is informed by these callers and by our on-going legal work in equality rights and human rights law. II. Overview In this submission, our limited purpose is to address certain issues identified in Higher Expectations for Higher Education: A Discussion Paper (“Discussion Paper”) released by the Postsecondary Review Committee. The first is “Accessibility”, and second is “Student Funding” in the context of disability. 1 It is crucial that any recommendations made by this Committee discuss strategies that consider the needs of persons with disabilities. ARCH submits that such recommendations must be guided by the following principles: To provide a place of learning free from attitudinal barriers. To engage proactively in the removal of barriers that limit the participation and affect the success of students with disabilities, including the revision of exclusionary and discriminatory rules, practices, and policies. To adopt principles of universal design wherever possible. III. About Disability Throughout this submission, the term “disability” is used to mean “disability” as defined in the Ontario Human Rights Code (“Code”). The definition includes but is not limited to: (a) any degree of physical disability, infirmity, malformation or disfigurement that is caused by bodily injury, birth defect or illness and, without limiting the generality of the foregoing, includes diabetes mellitus, epilepsy, a brain injury, any degree of paralysis, amputation, lack of physical co-ordination, blindness or visual impediment, deafness or hearing impediment, muteness or speech impediment, or physical reliance on a guide dog or other animal or on a wheelchair or other remedial appliance or device, (b) a condition of mental impairment or a developmental disability, (c) a learning disability, or a dysfunction in one or more of the processes involved in understanding or using symbols or spoken language, (d) a mental disorder, or (e) an injury or disability for which benefits were claimed or received under the insurance plan established under the Workplace Safety and Insurance Act, 1997; 1 This list is not exhaustive and has been broadly interpreted. Thus a broad interpretation of disability includes conditions that do not result in any functional limitation. Disability can include: non-evident disabilities; episodic disabilities; temporary disabilities; past disabilities; and a perception of disability. 1 Human Rights Code, R.S.O. 1990, c. H.19, s. 10 (1). 2 Non-evident disabilities A non-evident disability refers to those disabilities which are not apparent, such as environmental sensitivities and chronic fatigue syndrome. Barriers faced by persons with non-evident disabilities are amplified in the education context. A lack of understanding of such disabilities leads to many stereotypes and prejudices. Episodic disabilities Disabilities can be episodic in nature such as bi-polar disorder, multiple sclerosis, arthritis, and epilepsy. Episodic disabilities can remain hidden or non-evident because of their very nature. As noted above, a lack of understanding can lead to attitudinal barriers. For example, a student that experiences a reoccurrence of an episodic condition during the end of the semester, from a condition previously unknown to faculty, may be confronted with strong resistance to obtaining extensions for papers, or accommodations for examination writing. Temporary disabilities Disabilities can also be temporary such as back pain, injury, or short-term illness. Past conditions Discrimination based on a past condition takes place when a person continues to be treated unfairly due to a condition they have since recovered from. Perceived disabilities Disability includes the perception that one has a disability or limitation. The Supreme Court of Canada endorsed the following approach to defining disability: Instead, a multi-dimensional approach that includes a socio-political dimension is particularly appropriate. By placing the emphasis on human dignity, respect, and the right to equality rather than a simple biomedical condition, this approach recognizes that the 3 attitudes of society and its members often contribute to the idea or perception of a "handicap". In fact, a person may have no limitations in everyday activities other than those created by prejudice and stereotypes.2 The broad interpretation of “disability” reflects the conceptual shift of understanding disability, from a medical model, where it was considered to be an individual pathology needing treatment, to a social model, where a person with a disability is seen as restricted from performing activities of daily living due to a complex set of interrelated factors. Inherent in this understanding of disability is the recognition that society has constructed barriers that affect a person with a disability. It is incumbent upon the administration of higher education to examine constructed barriers with respect to the many forms of disability. Inclusive Design Principals of inclusive design refer to the creation of a fully inclusive environment from the outset, alleviating constructed barriers and incorporating accommodations on a regular basis. Ultimately, the aim is to alleviate the need for individual accommodation requests. In the context of designing education programs: course curriculum, delivery methods, and evaluation methodologies should be designed inclusively from the outset. This may mean providing a variety of ways for demonstrating knowledge and skills – for example, by giving students the option of writing a paper or making a presentation. It may mean creative use of technology, such as putting materials online, or selecting software that is compatible with screen readers.3 Inclusive design principles offers benefits to all students, not only students with disabilities. 2 Quebec (Commission des droits de la personne et des droits de la jeunesse) v. Montréal (City); Quebec (Commission des droits de la personne et des droits de la jeunesse) v. Boisbriand (City), [2000] 1 S.C.R. 665 at para. 77. [Mercier] 3 Ontario Human Rights Commission, The Opportunity to Succeed: Achieving Barrier-free Education for Students with Disabilities, (Toronto: Ontario Human Rights Commission, 2003) at 62. 4 IV. Legal Obligations Unlike the elementary and secondary education framework under the Education Act,4 the post-secondary framework does not provide a detailed scheme specifically for students with disabilities. However, any revisions of the current post-secondary education framework must respect all obligations imposed by the Canadian Charter of Rights and Freedoms and the Ontario Human Rights Code. Of particular relevance in the decision of Eldridge v. British Columbia (A.G.) is the Supreme Court of Canada’s pronouncement that: once the state does provide a benefit, it is obliged to do so in a nondiscriminatory manner… In many circumstances, this will require governments to take positive action, for example by extending the scope of a benefit to a previously excluded class of persons.5 Principles of Accommodation Post-secondary service providers have the legal duty to accommodate students with disabilities to the point of undue hardship. Two key principles informing the duty to accommodate are: individualization and human dignity. Individualization Approaches to accommodating students must be individualized. “Because abilities and functional limitations are individualized, so too must be approaches to accommodation; there is no single formula. In each case, there will be a different approach that is appropriate for each individual’s accommodation.”6 The Supreme Court of Canada stated that: the [impugned] standard, if it is to be justified under the human rights legislation, must accommodate factors relating to the unique capabilities and inherent worth and dignity of every individual… . 7 4 Education Act, R.S.O. 1990, c. E 2. [Education Act] Eldridge v. British Columbia (A.G.), [1997] 3 S.C.R. 624 at para. 73. [Eldridge] 6 Bill Holder, “Accommodation of Disability in Ontario” in A Disability Law Primer: A Continuing Legal Education Program for Ontario Lawyers, 2003, see online: ARCH <http://www.archlegalclinic.ca/publications/index.asp>. 7 British Columbia (Public Service Employee Relations Commission) v. BCGSEU, [1999] 3 S.C.R. 3 at para. 62. 5 5 Human Dignity The accommodation process must also be consistent with human dignity. The Ontario Human Rights Commission explains this as follows: Human dignity encompasses individual self-respect and self-worth. It is concerned with physical and psychological integrity and empowerment. It is harmed when individuals are marginalized, stigmatized, ignored or devalued. Privacy, confidentiality, comfort, autonomy, individuality and self-esteem are important factors as well as to whether an accommodation maximizes integration and promotes full participation in society. Different ways of accommodating the needs of persons with disabilities should be considered along a continuum from those ways which are most respectful of privacy, autonomy, integration and other human values, to those which are least respectful of those values. Perhaps the most common example of an accommodation that demonstrates little respect for the dignity of a person with a disability is a wheelchair entrance over a loading dock or through a service area or garbage room. Persons with disabilities should have the same opportunity as others to enter a building in a manner that is as convenient for them as it is for others.8 The duty to accommodate therefore must meet the needs of the individual student in a respectful manner. Ontarians with Disabilities Act Under the Ontarians with Disabilities Act,9 colleges and universities are required to review their policies, programs and services and identify existing barriers through the development of accessibility plans. 8 Policy and Guidelines on Disability and the Duty to Accommodate, approved on 23 November 2000, available in the following published format: Ontario Human Rights Commission, Human Rights Policy in Ontario (Toronto: CCH Canadian Limited, 2001) at 197, citing at 205. See also online : OHRC <http://www. ohrc.on.ca>. 9 Ontarians with Disabilities Act, 2001, S.O. 2001, c. 32. 6 Accessibility for Ontarians with Disabilities Act, Bill 118 The post-secondary education sector will fall under the jurisdiction of the Accessibility for Ontarians with Disabilities Act (Bill 118), if passed, and will be subject to accessibility standards. College and University Disability Centres Most, if not all, universities and colleges have established support centres for students with disabilities, offering a range of services. As well, universities and colleges have developed, or are in the process of developing equity initiatives. ARCH applauds these efforts and encourages all institutions to develop policies and practices on disability and equity generally. V. Socio-Economic Data The Participation and Activity Limitation Survey (“PALS”), conducted between September 2001 and January 2002, estimates that 13.5% of Ontarians have a disability. It is reported that 36.5% of Ontarians with disabilities aged 15-64 have less than a high school education compared to 24% of persons without disabilities. The Discussion Paper acknowledges the poor representation of persons with disabilities accessing post-secondary education, stating that only 11% of persons with disabilities in Ontario have a university degree. In comparison, 22% of persons without disabilities obtained a university degree. PALS data also illustrates a disparity between persons with and without disabilities in the context of employment and income. Of persons with disabilities aged 15-64 in Ontario, 41% are employed, 26% are unemployed and 30% are not in the labour force. Of persons without disabilities in the same age group, 76% are employed, 4.6% are unemployed, and 19% are not in the labour force. The average annual income of persons with disabilities aged 15 and over, in Ontario is $21,716. The average annual income of persons without disabilities is $32,316. 7 VI. Accessibility − Barrier Removal In its Discussion Paper, the Committee acknowledges a lack of funding as the most common barrier to post-secondary education. Callers to ARCH confirm this perception. The Committee further comments that “[p]ersons with disabilities experience negative attitudes and stereotypes, a varying degree of support services and face actual physical access and complicated transportation barriers”.10 Barriers in Transition from Secondary to Post-Secondary Issue: Students with disabilities are not provided sufficient support to succeed and continue onto post-secondary studies. Recommendation: Examine ways of encouraging and facilitating the transition from secondary to post-secondary education. ARCH regularly receives calls from students and parents advocating for appropriate accommodations in primary and secondary schools who have had little success. Their frustration is coupled with the inability to appeal decisions on programs and services and accommodations within the Education Act framework. Students with disabilities are subjected to labeling, bullying and taunting, exclusion from school for disability related behavior under the Safe Schools Act, and face a special education funding system that does not meet the needs of all students. Ultimately, this reality facilitates failure. It instills an assumption of limitation rather than an aspiration of reaching one’s full potential. Many callers report to ARCH that their children are repeatedly told by educators and school staff that post-secondary education is out of their reach. What is needed is increased sensitization of school staff, particularly of guidance counsellors, on the capacity of students with disabilities to achieve success at 10 Higher Expectations for Higher Education: A Discussion Paper at 15 . 8 post-secondary levels. In support of this, counsellors should be familiar with the issues and concerns facing students with disabilities accessing post-secondary education. For example, this includes providing assistance to navigate the numerous funding programs available. Regulation under the Education Act provides that transition plans be prepared for students with disabilities. These can be used as a vehicle to articulate and plan for the goals of higher education at an early stage in the student’s life . Attitudinal Barriers Issue: There are significant attitudinal barriers which impede students with disabilities from obtaining an equal opportunity within post-secondary programs. Recommendation: Review the current training programs undertaken for university and college staff and make recommendations to ensure ongoing training on accessibility issues and accommodation requirements. Recommendation: Identify what procedures are established by each institution to identify and address possible barriers. Attitudinal barriers refer to the negative attitudes and stereotypes about people with disabilities. Negative attitudes towards people with disabilities exist throughout many parts of post-secondary education, and have the devastating effect of preventing individuals with disabilities from achieving their potential. Stereotypes about the intellectual capacity of persons with disabilities inform many decisions and assessments, and result in attitudinal barriers that have an impact on service delivery. Discrimination on a systemic level is often caused by structuring post-secondary education in a way that does not allow for the unique needs and abilities of different individuals. Students may face uncooperative and inadequate responses to accommodation requests and accessibility issues. A major source of attitudinal barriers is 9 ignorance about the capacities and abilities of persons with disabilities and a lack of knowledge of the need to accommodate students with disabilities. Thus, a large part of creating an accessible and progressive post-secondary institution involves actively promoting attitudinal accessibility. Attitudinal accessibility is defined here in a broad sense to mean the combating of prejudices and stereotypes in the post-secondary environment. Attitudinal accessibility can be achieved in many ways, including the training of faculty and staff, public awareness campaigns, and ensuring inclusive extra-curricular activities. It is recommended that training programs on disability issues, including accessibility and accommodation requirements, be made mandatory for university and college staff. This includes information on various types of accommodations students may require with reference to practical ways that staff and faculty can accommodate students, both proactively and upon request. Also necessary is a clear communication of guidelines outlining the roles and responsibilities of faculty and staff with reference to legal obligations. Flexibility in decision-making needs to be encouraged. Moreover, decision making practices, rules, and policies need to be reviewed to ensure the removal of possible barriers. Ensuring success Issue: Students with disabilities face significant barriers to accessing adequate accommodations which prevent their full inclusion in post-secondary education. Recommendation: Develop comprehensive and efficient service delivery that seeks to promote inclusion. The Ontario Human Rights Commission report on education titled The Opportunity to Succeed: Achieving Barrier-free Education for Students with Disabilities, states the following regarding the duty to accommodate under the Code: 10 [accommodation processes] must respect the dignity of persons with disabilities; they must consider, assess and accommodate persons individually; and they must promote the integration and full participation of persons with disabilities. At the heart of the accommodation process is the responsibility, shared by all parties, to engage in meaningful dialogue about accommodation, and to seek out expert assistance as needed.11 The following are examples of possible accommodations: Physical accessibility Examples: Lowering kitchen cupboards in student housing; ensuring sufficient space for wheelchair mobility on campus; ensuring accessible laboratory tables and library work stations. Communication accommodations Examples: Providing American Sign Language interpreting services, visual aids, and captioned videos. Alternate testing and exam arrangements Examples: Providing examinations in electronic format with screen reader software; providing trained readers and scribes; and providing extra-time for completion. Materials in alternate formats Examples: Providing handouts and materials in large print, and providing textbooks in audio format. Note taking Examples: Providing trained and skilled peer notetakers, and facilitating access to copies of course notes. There are a broad range of accommodations that may be appropriate, of which these are but very few examples. Many callers have told us that every semester presents a new challenge, a new battle, due to socially constructed barriers. Currently, individual requests from 11 Ontario Human Rights Commission, The Opportunity to Succeed: Achieving Barrier-free Education for Students with Disabilities, (Toronto: Ontario Human Rights Commission, 2003) at 57. 11 students for accommodations can create an adversarial relationship between the student and professor, and the student and the university. What must be achieved is an environment conducive to learning, where as much as possible, potential barriers are completely removed, thus alleviating the need for students to focus their energy on constantly proving their disability, and advocating for their equality rights. Timeliness of Accommodations Issue: Course materials in alternate formats are sometimes provided late into the semester. Recommendation: Recommend that faculty is required to have syllabi prepared sufficiently in advance so that requests can be made for materials in alternate formats and that the university or college can produce the requested materials in a timely manner. The need for accommodations must not only be satisfied, but done so in a timely fashion. The receipt of needed course materials in alternate formats in midNovember, just a few weeks before examinations, defeats the purpose of providing accommodations. Our callers repeatedly report similar situations. Students who had requested materials in alternate formats in July had still not received them in November. Faculty must be required to decide upon their course materials in advance so that there is sufficient time for the materials to be ordered and received. Co-ordination of Services and Accommodations Issue: Students often are unaware of various services offered by numerous Ministries, or experience difficulty in accessing and coordinating the different programs or services. Recommendation: Examine the possibility of coordinating the different services offered by various Ministries in facilitating the transition from secondary to postsecondary education. A further issue with accessing accommodations are the various services offered by different ministries. It becomes difficult for the student to navigate this 12 potentially complex system. Many callers have told us that if an accommodation is summarily denied by the disability office, they receive little assistance to access the necessary services through various ministerial programs. The transition from secondary to post-secondary results in many services, such as attendant care and nursing care, to come to an end. The onus is unjustly on him or her to seek the similar needed assistance from other service providers. An integration of services funded by various service providers and Ministries for persons with disabilities needs to take place. Economic Barriers Issue: Students with disabilities face additional costs due to their disability. Recommendation: Provide bursaries and loans in a manner that respects and considers the individual needs of student with disabilities, and is sensitive and flexible to the socio-economic reality this population faces. For many students with disabilities, post-secondary education is out of reach due to financial constraints. As seen in the socio-economic context above, persons with disabilities are more likely to be underemployed or unemployed than persons without disabilities. Costs related to disability can also pose a significant added financial burden. This can include interpretation services, home modifications, increased transportation costs, special diets, and medication. These costs, coupled with the increase of tuition, costs of books and costs of housing needs for out of town students, makes higher learning practically inaccessible. An appropriate student funding assistance model must consider the unique needs of persons with disabilities. 13 VII. Student Funding Issues Issue: The student assistance framework is complex, insufficient, and does not consider the needs of students with disabilities. Recommendation: That OSAP be reviewed to ensure that students with disabilities are not inadvertently or directly penalized due to their disability. Recommendation: That all OSAP eligibility rules and policies be made public and available on the Ministry website. Recommendation: That the interaction between various programs, and their different rules, be clearly presented on the Ministry website. The Ontario Human Rights Commission noted that “[t]he funding structure for students with disabilities at the post-secondary level is complex, as there are a multitude of programs, with varying benefits and eligibility requirements”.12 The complex interaction between different sources of funding is coupled with the inaccessibility of various rules and procedures that guide the Ontario Student Assistance Program (“OSAP”) decision making process. The numerous funding and financial assistance programs include: the Ontario Student Assistance Program, the Bursary for Students with Disabilities, Ontario Special Bursary Plan, Canada Study Grants for High Need Students with Permanent Disabilities, Canada Study Grant for High Need Part-time Students, Bursary for Deaf Students Attending Out-of-Country Post-Secondary Institutions, the Ontario Disability Support Program, and Ontario Works. Some issues that arise from the interaction of various programs can be remedied by making available easily accessible information. A reduction in Ontario Disability Support Program (ODSP) benefits will occur if the recipient receives the living allowance top-up portion from OSAP. Crucial information such as knowing that the OSAP living allowance portion can be opted out from if 12 Ontario Human Rights Commission, The Opportunity to Succeed: Achieving Barrier-free Education for Students with Disabilities, (Toronto: Ontario Human Rights Commission, 2003) at 48. 14 requested, can resolve potentially severe consequences for the individual in the future. ARCH submits that a better integrated student funding model be adopted; one which provides for, and acknowledges, the unique concerns of students with disabilities at the post-secondary level. Below are some of the concerns that students have reported. The Ontario Student Assistance Program If a student is in an overpayment position, then OSAP is not renewed until the overpayment has been repaid. For students with disabilities and health problems, this poses a significant barrier. If a student needs to reduce his or her academic course load during the year, then an overpayment is created. Therefore, the student will only be able to continue studying after the overpayment is repaid. This poses a significant barrier, especially to students with episodic disabilities. A process that considers disability-related causes for the withdrawal and reduction of course loads needs to be adopted, without the student incurring significant overpayment. A number of our callers have also expressed concerns over the granting process of forgiveness for an OSAP loan for medical reasons. Once a condition is manageable and a student feels they can return to pursue their studies, OSAP is denied due to the previous loan forgiveness. Unless payments are repaid in full, the student will not receive OSAP funding. This policy penalizes persons whose condition later improves. The Bursary for Students with Disabilities The Bursary for Students with Disabilities (“BSWD”) is aimed at assisting students to meet the additional disability-related costs during their postsecondary studies, and is the only such bursary. The BSWD is not available to all students with disabilities as its eligibility criteria is contingent upon meeting OSAP 15 eligibility. Thus, if a student is denied OSAP due to their parents’ income, they would be denied BSWD but the family income may not be sufficient to cover the disability related costs in addition to tuition and living costs. The eligibility requirements for the BSWD must be independent from OSAP. 16 VIII. SUMMARY OF RECOMMENDATIONS Examine ways of encouraging and facilitating the transition from secondary to post-secondary education. Review the current training programs undertaken for university and college staff and make recommendations to ensure ongoing training on accessibility issues and accommodation requirements. Identify what procedures are established by each institution to identify and address possible barriers. Develop comprehensive and efficient service delivery that seeks to promote inclusion. Recommend that faculty is required to have syllabi prepared sufficiently in advance so that requests can be made for materials in alternate formats and that the university or college can produce the requested materials in a timely manner. Examine the possibility of coordinating the different services offered by various Ministries in facilitating the transition from secondary to postsecondary education. Provide bursaries and loans in a manner that respects and considers the individual needs of student with disabilities, and is sensitive and flexible to the socio-economic reality this population faces. That OSAP be reviewed to ensure that students with disabilities are not inadvertently or directly penalized. That all OSAP eligibility rules and policies be made public and available on the Ministry website. That the interaction between various programs, and their different rules, be clearly presented on the Ministry website. 17