“Focus” on Vision Impairment & Blindness Conference Meeting the Needs of Individuals with Cognitive Disability & Vision Loss Wednesday, March 12, 2008 Holiday Inn Taunton, MA 8:00am – 3:30pm Welcome Remarks: Larry Tummino Assistant Commissioner for Field Operations, Massachusetts Department of Mental Retardation Keynote Speakers: Y.K. Gary Chu, OD, MPH Vice President, Community Collaborations, Associate Professor New England College of Optometry Barry S. Kran, OD, FAAO Chief, Individuals with Disabilities Service, Associate Professor New England College of Optometry, New England Eye Institute Optometric Director, NE Eye Perkins Low Vision Clinic "Progressive Vision Loss in Individuals with Cognitive Disability: Prevalence, Causes and Effects" A Very Special Thank You… Generous Sponsors: New England Eye Institute DMR Southeast Region Training Council New England Center Deafblind Project Massachusetts Commission for the Blind Friends: Lowell Association for the Blind Northeast Regional Center for Vision Education Perkins Training Center Partners: Shriver Clinical Services Corp. The Carroll Center for the Blind To Our Exhibitors Including: Literature Tables: Ablenet Independent Living Aids Maxi Aids National Eye Institute National Institute on Aging National Institute of Health National Keratoconus Foundation NOIR WGBH 2 A Very Special Thank You… Vendors: Adaptive Technology Consulting, Inc. Adapti Vision American Printing House for the Blind Assets Inc. Brain Injury Association of Massachusetts Department of Conservation & Recreation Universal Access Program Easter Seals Massachusetts Freedom Scientific, Inc. Helen Keller National Center - New England Region Lowell Association for the Blind Massachusetts Commission for the Blind Bridge Program Massachusetts Department of Public Health MAGNISIGHT NEAER New England Center Deafblind Project Northeast Regional Center for Vision Education / Institute for Community Inclusion Perkins Braille & Talking Book Library Perkins School for the Blind The Carroll Center for the Blind Wellspring Farm 3 A Very Special Thank You… Posters: Identifying the Best Places for Sighted Guide Outdoor Walks Bob Tracey, PT, EDCO Habilitative Services Project, Wrentham Developmental Center Classroom Accommodations for Students with Significant Multiple Disabilities & CVI Barbara L. White, M.Ed. Erin Blanchette, B.S. Ed. MA State CVI Advisors CAPS Educational Collaborative Patriots Rock! Ty Hill and Kathy Peters, People, Inc. Seeing the Future Through Physical Fitness... An Interactive Display Megan Lincoln-Hilberg, B.S., NSCA Certified Personal Trainer, Adapted Physical Education Instructor, WDC Claudia Burrill, B.S., AFAA Member, Adapted Physical Education Instructor, WDC/EDCO V.I.S.I.O.N.S. INK Jane R. Rosen, M.A. COMS Worcester Public Schools 4 Conference Agenda “At-a-Glance” 8:00 – 8:30 Registration / Vendors Open / Refreshments 8:30 – 8:45 Welcome Remarks 8:45 – 9:45 Keynote 9:45 – 10:00 Break / Vendors Open & Poster Session 10:00 – 11:00 1st Concurrent Session 11:00 – 11:15 Break / Vendors Open & Poster Session 11:15 – 12:15 2nd Concurrent Session 12:15 – 1:15 Lunch / Vendors Open 1:15 – 1:30 Break / Vendors Open & Poster Session 1:30 – 1:45 Remarks - MCB Commissioner Janet LaBreck 1:45 - 2:00 Break 2:00 – 3:00 3rd Concurrent Session 3:00 - 3:15 Break / Refreshments / Vendors Open 3:15 – 3:30 Closing Remarks / Raffle 3:30 – 4:00 Vendors Open / Networking / Poster Session Directions HOLIDAY INN - TAUNTON 700 MYLES STANDISH BLVD, TAUNTON, MA (508)823-0430 From Route 495, take Exit 9/Bay St. Take a left (if coming from Route 495 North) or right (if coming from Route 495 South) at end of exit. Follow Bay Street to the 1st traffic light. At light, take a right into Myles Standish Industrial Park. Holiday Inn will be on the right hand side. We look forward to seeing you on March 12th!!! 5 “Focus” on Vision Impairment & Blindness 8:00 – 8:30 Registration / Vendors Open / Refreshments 8:30 – 8:45 Welcome Larry Tummino Assistant Commissioner, DMR 8:45 – 9:45 Keynote Y.K. Gary Chu, OD, MPH, Barry S. Kran, OD, FAAO "Progressive Vision Loss in Individuals with Cognitive Disability: Prevalence, Causes and Effects" 9:45 – 10:00 Break / Vendors & Posters Open 10:00 – 11:00 Concurrent Sessions A. Why Your Patient May Not See: A Presentation of Ocular Diseases Commonly Seen in Patients with Mental Retardation and the Currently Available Treatments Presenter: Jean E. Ramsey, MD, Director, Pediatric Ophthalmology Service, Boston Medical Center Description: Ocular diseases to be discussed will include cataract, glaucoma, retinal detachment, diabetic retinopathy, macular degeneration, retinal vascular diseases, retinopathy of prematurity, strabismus, keratoconus, and cortical visual impairment. Treatment options will be discussed and will include the new anti-angiogenic drugs currently being used with dramatic results in vascular disorders. B. Facilitating Self Determined Life Styles for Individuals with Visual Impairment & Cognitive Disability Presenter: Betsy Bixler, Manager, Perkins Training Center Description: The support service provider is crucial to the actualization of self determination for the individual with cognitive disability and vision loss. Situations requiring the facilitation of decision making, risk taking and personal choice occur on a daily basis. Major life decisions such as the risks and impact of eye surgery on the individual's daily life, the element of risk in community based activities and other situations that require support for a high quality of life are confronted by the direct care staff continually. This hour long presentation will examine the principles and components of self determination such as self advocacy, decision making, risk, and personal choice for individuals with cognitive disability. The role of support staff in situations warranting the facilitation of self determination and strategies for developing and supporting an individual's right to a self determined life will be shared. 6 10:00 – 11:00 Concurrent Sessions (continued) C. Inclusive Art Programming Presenter: Melanie Rose-Zagwyn, Art Director, New England Village, Inc. Description: Inclusive art offerings can be both cost effective and profoundly enriching for the creator as well as the viewer/audience, despite the challenges cognitive and/or vision loss can pose. Participants will discover how multidisciplinary approaches to traditional art concepts provide outlets for creative self expression, as well as enhance activities for daily living. We will examine actual adaptive art materials and multisensory art works. D. Low Vision and Blindness Products for Individuals with Visual Impairments Presenter: Gayle Yarnall, President, Adaptive Technology Consulting, Inc. Description: Adaptive technology is hardware or software that allows someone to access and manipulate either print or electronic information. This can mean anything from reading a textbook to participating in an online chat room. People who cannot access or manipulate information in the usual way use these devices. This presentation will demonstrate various pieces of technology used by individuals who are visually impaired as well as offer a time for hands-on exploration. 11:00 – 11:15 Break / Vendors & Posters Open 11:15 – 12:15 Concurrent Sessions A. Charles Bonnet Visual Hallucinations: "Do you see things which are not there?" Presenter: Mary Lou Jackson, MD, Director, Vision Rehabilitation Service, Massachusetts Eye and Ear Infirmary Description: Recurrent visual hallucinations occur in over one third of patients who are referred for vision rehabilitation. This presentation, "Do you see things which are not there?" will discuss the characteristics of this unusual syndrome, other disorders that can cause visual hallucinations, and the clinical associations of visual hallucinations. In addition, this lecture will outline how discussing visual hallucinations is part of addressing "well-being" in a comprehensive model of vision rehabilitation. 7 11:15 – 12:15 Concurrent Sessions (continued) B. Paratransit, Mobility and You Presenters: Jane R. Rosen, M.A., Orientation & Mobility Specialist Brenda Ozan-Pitts, Director, PTM Brokerage Services/ Worcester Regional Transit Authority Description: Learn how to assist individuals with cognitive impairments and vision loss become more independent in their travel skills while accessing public transportation. Paratransit transportation is an UNDER utilized federal program offered by transit authorities across the nation. Meet two individuals with cognitive impairment and legal blindness and hear about their successes! C. Teaching Personal Care Skills Presenters: Sue Shannon, OT, Perkins School for the Blind Kathy Bull, B.S. Ed., Perkins School for the Blind Description: The philosophical groundwork will be laid for teaching personal care skills in a manner that is empowering to the learner. Personal care techniques appropriate for individuals with visual and cognitive impairments will be presented, including ways to support organization and memory. D. Reframing Universal Design (or, rethinking design itself) Presenters: Barbara Knecht, Director of Design, Adaptive Environments Description: Universal design is not a fresh name of old accessibility but a framework for the design of everything that presumes the power of design to shape human experience. Knecht offers a perspective on the potential of inclusive design to shape a humanist vision for a potent role for design in the 21st century. She'll suggest reframing of the movement through strategic infiltration and partnering with the new UN Treaty, with the new definition of disability from the World Health Organization, with sustainable design and with neuroscience. 12:15 – 1:30 Lunch / Vendors Open 1:30 – 1:45 Remarks: Commissioner LaBreck 1:45 – 2:00 Break / Vendors & Posters Open 8 2:00 – 3:00 A. Concurrent Sessions Alzheimer's Disease and Vision Presenter: Clifford Scott, OD, MPH, Chair, Department of Community Health, New England College of Optometry Description: Alzheimer's disease not only can cause loss of vision directly from the pathophysiologic process of the condition but also may be implicated in the progression of other treatable eye conditions due to lack of routine eye examinations. This presentation addresses the medical, optical, and social factors that impact the vision of individuals with dementia. B. Neuropsychological Evaluation of the Visually Impaired Presenter: Mark H. Keeler, Ph.D., Neuropsychologist, Independent Consultant affiliated with New England Rehabilitation Hospital Description: This presentation will help clinicians, counselors, educators and others involved in the care of visually impaired individuals with neurocognitive issues to develop a basic understanding of neuropsychological evaluation. Participants will learn the basic areas of cognition, behavior, and personality that a neuropsychologist can assess and how the results may assist in diagnosis, treatment, education, and vocational planning. The visually impaired client presents special challenges to the neuropsychologist. In his presentation, Dr. Keeler will describe some of these challenges and explain the techniques he uses to work around these issues. After hearing this presentation, participants will have a clearer idea of what information can be obtained from the neuropsychologist, when it may be helpful to refer a particular client for an evaluation, and some of the limitations of the neuropsychological evaluation with visually impaired clients. C. Planning Day Habilitation Activities for Individuals with Vision Impairments Presenter: Kathy Stoffel, Adult Education Instructor, WDC Description: This presentation will focus on how to plan and structure day services for individuals with vision impairments. Emphasis will be placed on planning, selection and implementation of day services based on themes. 9 2:00 – 3:00 D. Concurrent Sessions (continued) The Usefulness of WGBH's Accessible Multi-Media for Science: Teachers' Domain in Group Homes and Workshop Settings for Adult Learners who have Vision Impairment and Cognitive Disabilities Presenter: Bryan Gould, Describer, Carl and Ruth Shapiro Family National Center for Accessible Media at WGBH Description: Come and learn to use WGBH's Teachers' Domain digital library with the adults you serve in group homes, workshop settings and/or adult education classes. Through a grant from the National Science Foundation, WGBH's National Center for Accessible Media (NCAM) is adding accessibility features or students of all ages with disabilities to Teachers' Domain. Teachers' Domain is a popular K-12 library of free multimedia science resources that support standards-based teaching and learning. Come and learn about how you can use the Teachers' Domain lesson plans and multimedia resources; complete with background essays, discussion questions, and suggested activities; for day program activities, adults education classes or to enhance community outings. NCAM is making Teachers' Domain resources accessible to people who have difficulty hearing audio, seeing the screen and/or using a mouse. 3:00 – 3:15 Break / Refreshments / Vendors & Posters Open 3:15 – 3:30 Closing Remarks / RAFFLE!!! 3:30 – 4:00 Vendors & Posters Open / Networking Additional Copies of this Registration Brochure: Registration Brochure and Form can be downloaded from "Regional Training" or "Happenings" sections of the NERCVE website: www.nercve.umb.edu 10 Registration Information 1. Please fill out the attached form and return BY FEBRUARY 25, 2008 to: Ann Flynn Shriver Clinical Services Corporation 607 North Ave. Door 14 Wakefield, MA 01880 2. For questions regarding Registration, please contact Ann Flynn: AEFLYNN@aol.com or phone 781-279-3141. 3. Please make check payable to: Shriver Clinical Services Corporation 4. Continuing Education Information: An application has been made to ACVREP for CEU's. An application has been made to Commission on Rehabilitation Counselor Certification (CRCC) for 4 lecture hours. This program has been approved for 4 Category I CEU Credits (CECs) for relicensure in the period of 10/1/06 - 9/1/08, in accordance with 258 CMR. Boston University School of Social Work. Authorization Number B-08-467. Questions, please contact: Lisa.DiBonaventura@state.ma.us An application has been made to MA Board of Registration in Nursing for nursing continuing education. Questions, please contact: Colleen.E.Ryan@state.ma.us NECO/NEEI has applied for 4 hours of COPE approved credits. Questions, please contact Dr. Barry S. Kran @ Kranb@neco.edu Perkins Training Center will award 5 Professional Development Points (PDPs) Questions, please contact: Betsy.Bixler@perkins.org Please indicate your choice of CEU's on the registration form. 5. Scholarships are available for individuals with cognitive disabilities and families. Scholarships offered by DMR Regional Training Council. For information: Colleen.E.Ryan@state.ma.us or 508-866-5000, ext. 318 6. Reduced room rates of $89.95 per night will be available at the Holiday Inn Taunton, phone: 508-823-0430. Please mention Shriver Clinical Services. Rooms at this rate will be held until 3 weeks prior to the conference. 7. Registration Brochure and Form can be downloaded from "Regional Training" or "Happenings" sections of the NERCVE website: www.nercve.umb.edu 8. Questions please contact: Lisa.DiBonaventura@state.ma.us or 508-384-5539. Please Register Early!!! 11 Registration Form “Focus” On Vision Impairment & Blindness Meeting the Needs of Individuals with Cognitive Disability and Vision Loss Wednesday March 12, 2008, Holiday Inn, Taunton, Massachusetts Name: _______________________________________________________ Agency Name: _______________________________________________________ Address: _______________________________________________________ _______________________________________________________ _______________________________________________________ Email: Phone: __________________________________________________ Can we share your contact information with sponsors? yes ____ no____ Can we share your contact information with vendors? yes ____ no____ Conference Rate with Lunch: General Admittance post marked by February 1st: General Admittance post marked after February 1st: Physician (MD, DO, OD): $40.00 $50.00 $110.00 Lunch Choice: Lemon Chicken____ or Vegetable Primavera____ Special Accommodations Needed:_____________________________________ ________________________________________________________________ ________________________________________________________________ Concurrent Session Selection: (please circle the sessions 10:00 - 11:00 A B C 11:15 - 12:15 A B C 2:00 - 3:00 A B C you plan to attend) D D D Please circle the one type of CEU's you will be requesting: ACVREP CRCC CEC's Nursing CEU's COPE Educator PDP's Check enclosed:__________ Amount: __________ Please write check payable to: Shriver Clinical Services Corporation PLEASE RETURN THIS FORM BY FEBRUARY 25, 2008 to: Ann Flynn Shriver Clinical Services Corporation 607 North Ave. Door 14 Wakefield, MA 01880 Thank you so very much for your support!!! 12