REPORTS OF FERTILITY SOCIETY OF AUSTRALIA CONFERENCE 28-31 OCTOBER 2012 John Angus (Chair) and Nikki Horne attended the conference on behalf of ACART. John was also a presenter. Betty-Ann Kelly from the Secretariat also attended. John, Nikki and Betty-Ann have each provided reports. John Angus, Chair of ACART Introductory comments I attended the conference on the Monday, Tuesday and Wednesday, going to all the plenary sessions and several of the concurrent presentations. It was a large conference with many delegates from Australia. Presentation on NZ regulatory framework I presented a short paper in one of the concurrent sessions on some reflections on the current New Zealand regulatory framework for ART which was well received by an audience of 30 - 40 attendees. A copy is attached. Transborder reproduction I co-chaired one of the livelier sessions at the conference on Transborder Reproduction, which featured presentations from clinic representatives from the USA, Spain and Australia, and a New Zealand barrister, Margaret Casey. The session engendered considerable discussion about the provision of identifying information to children and young adults about their genetic parents, which is prohibited in Spain, voluntary in the USA and required in most Australian jurisdictions. Margaret Casey provided a case-based paper on the legal perils of transborder reproduction, in particular surrogacy. One case involved a New Zealand couple whose child, when DNA tested, revealed no genetic link to them or their donor, despite the couple having proved an embryo to the clinic involved. Other papers of interest to ACART The plenary papers included: an interesting survey by Dr Wayne Gillett of New Zealand’s contributions to infertility treatment John Peek on the development of public funding and the formulae he developed with Wayne Gillett that is used to determine service priorities an Australian health economist’s ( Dr Georgina Chambers) findings on value for money in Australia which demonstrated that, using common dollar values on the value of a life, ART was an effective use of public money 1 an interesting paper on the social and family impacts of infertility (Dr Christianne Verhaak from The Netherlands) which found that 70% of those treated coped well, 20% had some mild distress, and 10% severe; that it could be predicted; and that extra support should be offered Dr Ana Cobo from Spain who demonstrated that at the clinic in which she worked, vitrification of oocytes (rapid freezing) was leading to high success rates for thawing (93%). The paper also noted the use of oocyte freezing for social purposes (delaying reproduction while increasing the chances of a positive outcome: 15% in her sample). Dr Richard Scott from New Jersey on PGS testing of embryos showing advances in knowledge of the causes of infertility and of problems in ART. The concurrent papers I heard included: Rachael Varady on a Victorian surrogacy programme (have to apply through Patient Review Panel; includes criminal and child protection checks; do not use surrogate’s eggs; and do independent psychological tests). The sample included 3 same sex couples, 12 pregnancies. Sam Everingham of Surrogacy Australia on Australians’ use of commercial surrogacy overseas. Used 2009 survey data of 217 users; 53 % homosexual (mostly male couples and singles); well off; hetero couples had all had 3 years plus local treatment. Used USA and India clinics – big growth in latter because cheaper at $77,000 c.f. $176,000; much higher success rates than local; high numbers of multiple births. Reasons for going overseas were: perceived less risk of surrogate keeping child, more equal transaction, big ask of family or friend if done locally, complicated local regulatory framework. Child knowing identity of donor was not regarded as important at all. Concern about breaking the law (illegal to go overseas for commercial surrogacy in some states) was discounted because of desire to have a family, and belief that law would not be enforced. VARTA public awareness campaign about fertility Astrid Indekeu on disclosure to children and stage of ART process – arguing that it was a process and more relevant to parents as children got older IVF impact on subjective quality of life of children, based on Melbourne sample of 547 ART and 549 non ART matched young adult singletons born 1982 – 1992. Once adjusted for other variables data showed no significant difference. Use of surplus embryos in a rural Australian clinic (difficult decisions: out of 850 couples, 207 discarded, 26 donated to others, 20 to research) – very low rates of donation and more information about donation made no difference to the rate. Of those discarding without any live births (#67), the variety of 2 reasons included (for a third of them) fear of further treatment difficulties in particular ovarian hyperstimulation syndrome. General comments Overall there was a considerable emphasis on scientific and research papers about treatment improvements and success rates, and less emphasis on social and ethical considerations. As usual, the interests of different occupational groups surfaced on occasions (clinicians, scientists, nurses, and counsellors). Things to follow up The information on the use of overseas commercial surrogacy by Australians was perhaps the most interesting information. The presenter linked it to the intended parents’ perception that the internal policy and regulatory regime in Australian and the culture in Australian services were inimical to their interests. The respondents saw the internal providers as oppositional and thought that sanctions were unlikely to be applied where what they were doing was illegal. The focus was on having a child. Issues of its genetic and cultural inheritance were well outweighed by the higher prospects of having a child. While the results are for Australia not New Zealand, the question should be asked of how different the responses of New Zealanders in similar circumstance might be. Margaret Casey’s description of the process and criteria used in applications to the Minister of Immigration on behalf of children born of surrogacy arrangements seeking to enter New Zealand was also useful information for ACART’s work on import/export of gametes and embryos. Nikki Horne (member of ACART able to articulate issues from a consumer perspective) I would like to acknowledge and thank the Ministry of Health for the funding which allowed me to attend this meeting. From a consumer’s perspective the conference was very well structured whereby a lot of the sessions were split into breakouts of clinical, scientific and psychosocial areas. I focused most of my time attending psychosocial type talks as they covered topics of interest to my consumer role with ACART, including surrogacy programmes, disclosure to and follow up studies of children conceived via IVF and donors, and the contentious and “hot” subject, of transborder reproduction. There was a very large programme of talks and below I have highlighted just a few of those that I attended which were of interest. 3 Wayne Gillett’s presentation of New Zealand’s Contribution to Reproductive Medicine This gave a very good background to reproductive medicine in New Zealand and the order of events leading to the first IVF baby born in Auckland in 1984. He also gave the background and insights into the setup of the current CPAC (Clinical Access Priority Criteria) funding system which still exists today for government funding of fertility treatment. In many areas New Zealand has led the world including in “openness”, particularly through the work of Joi Ellis and others such as Ken Daniels. This is of course one of the principles that underpins the work of ACART with strong consideration being given to the rights of any future child born through these processes. Rachael Varady talked about The Development and Implementation of a Victorian Surrogacy Program This was based around Melbourne IVF (MIVF) setting up an internal programme to support both patients and surrogates through the process. In Victoria the Assisted Reproductive Treatment Act 2008 states that all clinic assisted surrogacies must go through a Patient Review Panel for approval. Of interest, in Victoria, all surrogates must have previously carried a child and given birth and be 25+ in age. As part of the MIVF Surrogacy Program they have a dedicated Registered Nurse who provides ongoing pregnancy support for surrogates and commissioning parents from the start of treatment through the pregnancy until birth. Sam Everingham spoke on The Growth in Australians’ Use of Commercial Surrogacy as a means of Family Formation This talk covered a study recently done in Australia of 217 couples who have either done surrogacy recently or plan to do surrogacy in the future. The purpose of the questionnaire was to provide reliable insights into: the proportions of people undertaking surrogacy both at home versus overseas the barriers to people trying to undertake surrogacy in Australia the amounts of money spent on surrogacy locally versus overseas the attitudes to criminalisation laws and their impact on current and future behaviour. He reported some interesting facts/outcomes. The study cohort was made up 45% heterosexual couples and 55% gay male couples. 4 The mean age of participants was 40 and household income for 52% was over $156,000. 63% had engaged in an Australian surrogacy arrangement at some point. The most commonly considered alternative to surrogacy was adoption (over 50%). When asked why they didn’t consider doing surrogacy at home 60 couples stated the risk of the surrogate keeping the child, 48 couples stated asking a surrogate to carry a child for love was an unfair exchange (i.e. felt more comfortable paying someone). Of those that went overseas there was 27% success for heterosexual couples, 48% success for gay couples. The average costs of surrogacy are $45,000 in Australia, $77,000 in India and $176,000 in USA. Figures show in 2011 there were 394 applications for Australian Passports for babies born in India, i.e. one baby a day being processed. India appears to be the main destination for overseas surrogacy with up to 4 times more couples heading there than to any other country. On average 2.6 embryos are transferred to a surrogate each time in USA versus 3.3 embryos implanted in India to achieve a successful outcome. When asked about the importance of egg donor characteristics, 28% placed the donor’s health at the top of their considerations; the lowest ranking of the list was willingness to be identified. The twin rate for those that returned to Australia after overseas treatment was 60%. Despite the criminalisation laws in some Australian states that apply to overseas arrangements, 82% said they would either move state or go ahead anyway and take the chance of not being prosecuted. Sam stated that the criminalisation laws are failing to stem the flow of families going offshore to access surrogacy. People had concerns about the lack of ability to compensate surrogates in Australia. There was concern about the emotional exploitation of potential known surrogates. The inability to advertise for a surrogate was a barrier. Bill Hummell, Ana Cobb and Kate Stern talked on their perspectives of Egg Donation in USA, Spain and Australia Bill Hummell opened with a talk about what they currently do in San Diego at his clinic and the laws in California. He outlined how the clinic goes about attracting donors and the process used to select donors. These donors are mainly women 5 aged 21 – 26 with low stress levels who have passed thorough medical and psychological screening tests. 6 He stated that they have a single embryo transfer success program available and that they also have known donors available through their clinics. Their success rates are exceedingly high, he stated them as being 82.2% with two embryos transferred and 52% with one embryo replaced. They use an aggressive antagonist approach and have miniscule amounts of hyperstimulation. Ana Cobo spoke next about egg donation in Spain. Spanish donors are paid EURO 800 per donation. Under the law donors must be anonymous and the donor cannot be selected by the recipient. Children born from donations are entitled to a small amount of general information about the donor but not entitled to any identifying information. There is a limit of six babies who can be born from the same donor including their own children. There is a national donor registry. A mandatory serological/psychophysical study is done on all donors. In 2010 there were over 5000+ cycle completed with 53.6% success rate. They bank most of the donor oocytes and use frozen eggs for intending parents as this process shortens the waiting time for recipients. A computer programme has been set up to make automatic matches between donors and intending parents. They have collected over 33,000 oocytes, so have a very large bank established. They have a 93% survival rate of oocytes after vitrification. When asked how the children deal with not being able to find out identifying information about their donors, Ana Cobo stated that in Spain donor children are often not told of their origins and that it was a “cultural/European” way of doing things. She did not seem concerned that children may find it difficult in later years to discover they were donor children but were unable to trace their heritage. Kate Stern from Melbourne talked last. Open disclosure to donor conceived offspring about their genetic origins is important. Surrogates and intending parents undergo extensive counselling. No commercial trading is allowed in New Zealand or Australia. Most people find surrogates through relatives, friends, on-line forums. 7 2.7% of all cycles in New Zealand/Australia are donor cycles. Approximately 50% of couples go overseas because they can’t find a donor. Average age of egg donors in New Zealand/Australia is 33.4 years. Average age of recipients is 40 – 44 years. Success rates were stated as 50%+ in USA, 40%+ in Spain and 24.1% in Australia. She saw risks in using younger donors as their motivation would be commercial rather than altruistic. Where to from here – accept the status quo, debate the ethics or look at commercial aspect and try to increase younger donors? Transborder reproduction There was a lot of discussion at the conference about transborder reproduction. This appears to be a fairly hot topic, particularly in New Zealand and Australia currently, with reported substantial increases in the numbers of people going overseas to find younger oocytes and in some cases surrogates. I also attended an interesting talk about legal issues in transborder reproduction by Margaret Casey. She highlighted the huge risks people are taking by going overseas to use surrogates in other countries. They are often under-prepared when they start these processes, with many not contacting a lawyer until after a child has been born. In many cases there are difficulties in getting passports for these children, and entry is at the discretion of the Minister of Immigration. I also enjoyed talks by my fellow ACART members, Andrew Shelling, John Angus and Karen Buckingham, on a variety of subjects. I felt it was very important to have a strong ACART presence at this meeting and it was invaluable to be able to network with people within the fertility industry and find out what current issues they are dealing with on a daily basis. The current work to advise the Minister of Health on the import and export of gametes and embryos is of high interest to a lot of different parties. Betty-Ann Kelly (Senior Policy Analyst, ACART Secretariat) High level impressions from presentations and conversations From a regulatory/policy perspective, the focus is generally on the generic description of a procedure e.g. embryo donation, egg freezing/vitrification, in vitro fertilisation. A number of presentations on clinical and research developments were a reminder that the generic descriptions do not capture the variety of protocols, approaches, debates, and changes both concurrently and over time. This raises the question of the extent of limitations on data about long term outcomes for children, given shifts over time in how procedures are carried out. 8 Transborder reproduction continues to be of interest in various jurisdictions, and is now an established fact of life given the ease of travel and access to information about fertility options in other countries. While the main focus in discussion at this conference and elsewhere was on surrogacy arrangements, import and export of gametes and embryos are part of the picture. We know little about the extent to which flows for one reason (e.g. surrogacy or for IVF using donated eggs) are substitutes for treatment in New Zealand (e.g. using imported gametes, impact of domestic shortage of donated eggs). Interest in fertility preservation in relation to oncology continues to grow. Clinics are anxious about the operation of the statutory 10-year limit on the storage of gametes and embryos, and of the extended storage guidelines. In particular, they are concerned about having to discard embryos and gametes where they have lost contact with the gamete providers. They are also concerned about what will count as “reasonable steps” to try to contact gamete providers for consent to extend storage. There is limited public knowledge about fertility and the extent to which treatments can overcome fertility challenges. Arguably, this is an area where improved knowledge could contribute to reduced pressure on public funding and also avoid for some people the financial and emotional costs associated with fertility treatment which in the end may not be successful. Transborder reproduction Margaret Casey (lawyer in Auckland) gave a stand out presentation on legal Issues in transborder reproduction that focused on New Zealanders entering overseas surrogacy arrangements. She reiterated many of the messages that underpin the advice prepared by CYF, DIA and Immigration New Zealand (available on ACART and ECART’s websites) – that this is a fraught area in regard to the different standards and regulatory requirements across countries. People should seek advice when considering an overseas surrogacy arrangement. Margaret described fertility treatment as a “results driven field” – the focus is on getting a baby, with a substantial denial of the challenges involved in getting a baby home. She is concerned that not enough people find out the legal requirements before they leave home. She made the point that whatever the legal parent-child relationship in the country where the child is born, New Zealand law always takes the position that the woman who gave birth is the legal mother. Intending parents should not rely on a birth certificate from another country that says they are parents. She described Australian arrangements for dealing with the entry of children born overseas from surrogacy arrangements as being more ‘streamlined” than 9 in New Zealand, where ministerial discretion plays a significant role in achieving the entry of children. I talked to one of the exhibitors, from the European Sperm Bank USA (based in Seattle) which in turn is associated with the Danish Cryobank (not to be confused with the Danish Cryos). He had been told anecdotally that he might face difficulties in New Zealand, though his sperm bank was exporting to some parts of Australia. He told me the sperm bank donors were identifiable and paid around $40 per sample, with frequent donations. Sam Everingham from Surrogacy Australia (a non-government organisation) presented on The Growth in Australians’ use of Commercial Surrogacy as a Means of Family Formation. The research he described had the aim of identifying the routes taken by Australians to achieve surrogacy arrangements, the reasons for their choices, and the number of children born each year to Australian intended parents through surrogacy. Sources of data included: an online survey with 217 Australians who were considering surrogacy, in the surrogacy process, or already had a child via surrogacy 14 large overseas surrogacy agencies reporting on annual surrogate births to Australian intending parents Australian Department of Immigration & Citizenship data on the number of Citizenship by Descent applications for infants aged 0-2 months (2008 – 2011). The research concluded that “strict and onerous” domestic regulations re altruistic surrogacy mean there was no growth in numbers of local surrogacy arrangements, whereas there had been ”enormous” growth in Australians accessing overseas commercial surrogacy arrangements in recent years. Various data sources strongly suggest that well over 350 infants were born overseas in 2011 to Australian parents through commercial surrogacy. The key barriers to accessing altruistic arrangements were found to be the perceived risk of the surrogate keeping the child, discomfort with asking someone to carry for love alone, and the difficulty in locating a surrogate willing to carry altruistically. Conclusions were: many involuntarily infertile Australians are highly motivated to invest large amounts in creating a family Australian altruistic surrogacy processes fail to meet the needs of Australians wanting to create a family criminalisation laws in some Australian states fail to discourage Australians from entering overseas commercial surrogacy. 10 Egg Donation in Perspective from USA, Spain and Australia This presentation further highlighted differences between countries: Australia accepting the importance of the opportunity to access identifying information; Spain with donor anonymity and no access to identifying information; and a US clinic walking in both worlds. These differences become particularly salient where people cross borders to access procedures. Astrid Indekeu presented on Change and Consistency in the Views and Feelings of Parents about Disclosure over Time Astrid is a doctoral candidate from Belgium who has spent time in New Zealand because one of her supervisors is Ken Daniels from Canterbury University. Her presentation looked at the contribution of the offspring’s age and the stage of the family cycle in parents’ disclosure decision. Her preliminary results suggest that in the preconception phase of treatment, couples are focused on their position as future (social) parents. At that time, the donor is not seen as potentially meaningful to the offspring. Parents with young families seem to be growing in awareness that the donor could be of interest to the offspring. This awareness seems to strengthen when the offspring becomes an adult. As parents’ perspective on the donor changes, they also begin to see the donor from the offspring’s perspective. Donor anonymity was mostly experienced positively by the parents but created discomfort when they considered this from the offspring’s perspective. These imagined offspring perceptions strengthened or questioned the parents’ earlier disclosure decision. Parents wished for more guidance in this ongoing process after the offspring is born. In a context of anonymous donation, both offspring’s age and the family phase impact the way parents imagine the offspring’s perspective, which contributes to the parents’ decision-making process regarding disclosure. Preconception and familycounseling can actively help (future) parents in this process. Her research, together with other research by Ken Daniels (who did not present at the conference) indicates that people going overseas for treatment and who are currently either indifferent to non-identifiable donors/surrogates, or who prefer nonidentifiable donors/surrogates, may in time see access to information as important for their children. However, identifying information at that point may be either extremely challenging to access, or impossible. 11 Fertility preservation and oncology I attended three presentations on fertility preservation for oncology patients. With significantly improved survival rates for cancer, including for children and young people, the profile of fertility preservation before treatment is growing. While ACART has no specific role in this area, there is an interest in ensuring that its guidelines are well understood e.g. Guidelines on Extending the Storage Period of Gametes and Embryos. Young people storing gametes in early adolescence may not have an interest in using them during the 10-year statutory period, so need to know in good time that they have the option of applying to ECART to extend the storage period. Another factor that is part of the fertility preservation story is the improved outcomes from the use of frozen eggs. At the conference I learnt that the American Society for Reproductive Medicine’s Practice Committee has very recently issued a new report on egg freezing, replacing earlier guidance in 2008. The 2008 report said that the technique was experimental and should be offered only in that context. The new report says that the technique should no longer be considered experimental. Kate Bourne (Education officer, Victorian Assisted Reproductive Treatment Authority) gave a very good presentation Fertility Preservation in Young Cancer Patients: The Development of an Education Programme for Oncology Health Professionals. 30-60% of cancer patients are not told about fertility preservation options or don’t recall such a conversation. Fewer than 50% of oncologists in Melbourne routinely refer patients for a fertility preservation consultation. Barriers include: o ethical concerns about the appropriateness of such discussions with very sick people or where the prognosis is poor o discomfort with the issue o knowledge gaps o the pressure of time to begin treatment o patient’s age and partner status. The programme was an initiative between VARTA, the Youth Cancer network, and cancer services in Victoria. It aimed to raise awareness of health professionals caring for young people with cancer about the importance of discussing fertility preservation and making referrals. The programme promoted the existing fertility preservation guidelines. Nine education sessions conducted across Victoria were attended by 230 health professionals from a range of backgrounds. 12 The presentations talked about the guidelines and options available with and without fertility preservation before treatment. The programme did not include any invitations to talk to paediatric oncologists. It was concluded that this group found the topic particularly challenging. The education programme was extremely well received and achieved the aim of raising awareness of the importance of discussing fertility preservation before cancer treatment. An outcome was a recommendation that fertility preservation is included in regular clinical education programmes in oncology health services to ensure that those working in cancer care remain up to date with current fertility treatments and practice. Collaboration between fertility services and oncology services is also recommended to encourage ongoing fertility preservation education. The future of the programme depends on the availability of funding. Clare Garrett from Melbourne IVF presented on the Uptake of Fertility Preservation Options, looking at the characteristics of patients by age, diagnosis and treatment regime. The population reviewed was 868 patients 2006-2010 consulting on fertility preservation options. Options included cryopreserving ovarian tissue, embryos, eggs and also using gonadotropin-releasing hormone agonist (GnRHa) during chemotherapy. Seventy-two percent of the patients sought fertility preservation were oncology patients, with a mean age of 30.5. Nearly half used GnRHa, 15% stored embryos, 10% stored eggs, and 14% stored ovarian tissue. The oncology treatment and the type of cancer were often related to the fertility preservation option used. The research concluded that despite the limited evidence of efficacy of GnRHa and the experimental aspects of tissue cryopreservation/autograft, a large proportion of patients at high risk of treatment-induced ovarian failure are prepared to try these options instead, or in conjunction with, established oocyte/embryo cryopreservation. Manuela Toledo from Melbourne IVF presented on Female Fertility Preservation in Oncology Patients. In Australia almost 1 in 600 women of reproductive age will be affected by cancer. Many of these women will survive their disease and go on to lead normal lives which often includes the desire to have children. Increasingly the discussion about the potential impact of cancer treatment on fertility is becoming commonplace prior to chemo- and radiotherapy. 13 14 This presentation gave an overview of the established fertility preservation techniques (such as egg and embryo freezing) and less proven treatments including the use of gonadotrophin releasing hormone analogues and ovarian tissue cryopreservation. Knowledge about fertility Dr Karin Hammarberg presented on Fertility Awareness Among Australian Women and Men of Reproductive Age. A telephone survey of a representative sample of Australians aged between 18 and 45 explored the extent of fertility awareness. The majority of the 462 participants underestimated, by about 10 years, the age at which male and female fertility starts to decline. Only one in four respondents correctly identified that female fertility starts to decline before age 35 while 42% believed this occurs after age 40. A significantly higher proportion of men than women thought female fertility decreases after age 40 (51% vs. 33%). One in three respondents correctly stated that male fertility starts to decline before age 45 but 58% thought this occurs after age 50 or that male age does not affect fertility. Overall 59% of respondents recognised that female obesity and smoking adversely affect fertility but few believed that male fertility is affected by obesity (30%) or smoking (36%). Higher proportions of men than women believed that male obesity (25% vs. 13%) and smoking (15% vs. 7%) do not influence fertility at all. One third of respondents correctly identified the fertile window in the menstrual cycle. The knowledge gaps identified in the survey are being used to inform the development of educational materials produced by ‘Your Fertility’, a government funded public education campaign to improve awareness of potentially modifiable factors that affect fertility [see next presentation report]. Louise Johnson from the Victorian Assisted Reproductive Treatment Authority (VARTA) presented on Your Fertility: Development of a Public Awareness Campaign. VARTA’s functions include a public education role. VARTA received a federal government family planning grant, and established a partnership with three other bodies to undertake the ‘Your Fertility’ education campaign. 15 Based on the findings of research (see above), evidence-informed material about the adverse effects of age, smoking, obesity, and excessive alcohol consumption on fertility and information about the fertile time during the menstrual cycle are disseminated through a dedicated website, social marketing, and the media. The Your Fertility website and campaign launch in March 2012 received substantial media coverage, potentially reaching 4,933,000 people throughout Australia (based on viewer and readership numbers). On the launch day there were 905 visits, 7363 page views, and 175 attempts at the fertility quiz on the Your Fertility website. In its first two months the website received over 4,000 visits and 24,000 page views. Louise concluded that the formative community research and positive response to the Your Fertility campaign confirm the need for public education about the impact of age and lifestyle factors on fertility. The New Zealand environment Wayne Gillett (Medical director, Otago Fertility Services) presented on New Zealand’s Contribution to Reproductive Medicine. New Zealand has always had a close relationship and bond with Australia. Much of what has been achieved in reproductive medicine in Australia has also been realised in New Zealand. He noted that some of Australia’s pioneers were New Zealanders. Since New Zealand’s first IVF service was first established in 1983 by Freddie Graham and the academic department at National Women’s Hospital, New Zealand clinics have contributed to providing ARTs to a high standard. Arguably New Zealand’s most important contribution has been leading the world in openness around gamete donation. Clinic policy initiated by Joi Ellis in Auckland in the early 1980s led other clinics to adopt this practice. Both clinical practice and psychosocial research contributed to policy and shaped legislation that came into being 20 years later. The HART Act in large part followed established practice. Ken Daniel’s contributions have had direct influence on policy and legislation in at least 10 jurisdictions, most notably UK, Canada, Sweden and USA. Other New Zealand contributions include the role of prioritisation tools in defining access to public funding for ART [see next report of a presentation] and leadership in evidence based practice, especially with the Cochrane menstrual disorders and subfertility group led by Cindy Farquhar at Auckland University. A strong relationship with reproductive scientists including Ken McNatty and Allan Herbison will mean New Zealand’s contribution has a strong future. 16 John Peek gave a very clear presentation about Fertility Funding in New Zealand – How to Allocate? This included a history of the access criteria which he and Wayne Gillett were closely involved in developing. Other New Zealand presentations included: Mary Birdsall (Medical Director, Fertility Associates, Auckland) gave a thoughtful presentation on the clinic’s experiences and learnings when things go wrong in the embryology laboratory, describing two different major events in the clinic’s history. A key message she wanted to give was that laboratory events go unreported and there is no forum for sharing experience. A repository of information would help technical trouble shooting by the lab and care of patients by doctors. With over a million IVF cycles annually worldwide, there is urgent need to start talking about lab incidents and to develop guidelines. Greg Phillipson (Medical Director, Fertility Associates, Christchurch) presented on the experience of his clinic over the period of the Christchurch earthquakes. This was a moving account of the impact on staff as they managed their professional obligations while dealing with the personal impacts. One key learning was that cellphones and handheld phones are useless when the power goes off: old fashioned plug in phones will continue to work. 17