Central Lancashire Community Health Link (a Patient and Public Involvement Forum) Response to the Public Consultation on CATS implementation in Cumbria and Lancashire Preface This response is based upon evidence obtained from the following: meetings with senior directors of all acute NHS Trusts in Central Lancashire; verbal and written communications from patients and the public; opinions and issues raised during the arranged CATS public meetings; our research of Select Committees; Government reports; Department of Health publications; articles and letters in the press; CATS publications; attendances and presentations at Health Overview and Scrutiny Committee meetings, and, finally, feedback from the Link’s members and its patient and public networks. It is clear that the consultation document is extremely limited by restricting patient and public involvement to that of addressing the issues pertaining only to CATS site location and number of specialties. As a consequence, the questions asked in the response form are similarly limited and the analysis and conclusions that can be drawn from the answers to these questions must also be similarly limited. From the public and patient outpourings, it is clear that above all other matters the public and patients have most concerns about (i) taxpayers money being used to fund healthcare provision in the private sector, (ii) how the 18 week target can be achieved without compromising on the quality and standards of healthcare for patients, and (iii) serious consequential damage to the NHS hospitals in Central Lancashire. Moreover they see the limited scope of the consultation as having denied patients and the public full and proper consultation and engagement in the real issues. Denial of the opportunity for the public to have a full and proper consultation is evidenced by the many issues raised by them in the various public meetings, in the press and in correspondence with the Link. Furthermore, as a result of the restrictive involvement of the public in the consultation process, it has been necessary for the PCTs to provide further and detailed information on the proposals. Our response is based upon answering the questions posed in the consultation document in the order stated in the response form. We, however, have taken the opportunity to amplify aspects pertaining to key issues of concern which the public have manifested their desire to engage in. Central Lancashire Community Health Link Page 1 Section 1: Location of sites Question 1a - Do you consider the sites under consideration the most appropriate for Cumbria and Lancashire? The proposed sites within our area (Central Lancashire) are as follows: Ormskirk District General Hospital, L39 2AZ – appropriately sited for West Lancashire patients. Preston Healthport, PR2 8DW – not appropriately sited unless the recently proposed NHS CATS site at Chorley is implemented, because Preston Healthport is not central to the population it is proposed to serve. Question 1b – Are there other factors of which we should be aware in relation to the ability to access or use any of the sites identified above (eg transport, parking, availability of complementary facilities) or do you have another site preference? The impact on journey times for patients is significantly more acute for the majority of residents in Chorley and South Ribble, which the proposed CATS site at Chorley would resolve. We are concerned about the accuracy and independence of the information provided on the PCTs CATS website. For example, the Netcare model used to determine indicative workloads for each of the facilities based upon evidence provided by the ‘Netcare commissioned independent healthcare analysis agency’, summarised in table 4, is incorrect as regards the quoted data relating to Preston Healthport bus numbers. This raises doubts on the extent of the errors in the rest of the data and also on the validity of its analysis and independence. Section 2: Impact on the wider health service Question 2a – What issues do you consider will need to be addressed as a result of the introduction of CATS services (for local patients, hospitals and GPs) FOR LOCAL PATIENTS The diagnosis and treatment protocols followed in the CATS service should be like-for-like with those currently in operation in the NHS. All CATS centre clinicians should have training, skills and levels of clinical expertise and registered competence, based on a standardised, independent assessment system in accordance with the recommendations expressed in paragraph 76 (conclusion No. 10) of the House of Commons Health Committee ‘Independent Sector Treatment Centres’ Fourth Report of Session 2005-06, 25.07.06 HC934-1 Central Lancashire Community Health Link Page 2 Like-for-like governance arrangements should apply and be subject to like-for-like monitoring and assessment against standards by the NHS commissioners. Likefor-like clinical protocols, accountability and complaints procedures should be adopted for all CATS centres. The evidence we have gathered to date clearly indicates that the planned CATS service will not meet the above like-for-like requirements and this may seriously affect patient care. We have profound concerns about the omission of any reference in the document to the continuity of care between different private CATS providers and NHS Trust providers. The document also fails to address the very important issues of confidentiality of patients’ medical records, the integrity of patients’ medical records and secure and accurate transfer of clinical data between different providers. FOR LOCAL GPS More than 50 GPs in Chorley, Preston and South Ribble have signed open letters to the press expressing their concerns about the impact of the proposed CATS services on Lancashire Teaching Hospitals NHS Foundation Trust. GPs’ fears that the CATS service will take funding away from the Lancashire Teaching Hospitals NHS Foundation Trust which will undermine its ability to provide key services, especially Accident and Emergency provision on both its hospital sites. GPs’ concerns over the weakened interaction with health care professionals staffing CATS schemes. Absence of mechanisms to demonstrate to GPs and local people how the CATS service will deliver improved services. Absence of reference or planning of continuance of the improved services on termination of the contract. Absence of reference to risk assessment to current NHS services upon termination of the contract. FOR HOSPITALS The evidence gathered from meetings with key NHS directors in Acute Hospital Trusts in Central Lancashire indicates: Concerns that the planned CATS activities will not be carried out by existing NHS providers even within existing resources. Concerns on the impact of the diversion of clinical activity and resources away from diagnosis and clinical assessment on the future training of NHS staff. Concerns over the future viability of existing specialties following the implementation of the CATS services, for example the diminution of ENT provision. Concerns over the non-inclusion of an additional NHS provided CATS service to enable a realistic comparison of the performance with the equivalent Netcare CATS service. Implementation of the Chorley NHS CATS centre would enable this comparison to be made. A better comparison would be between the ‘to be negotiated’ NHS CATS centre at Preston and the Preston Healthport centre. Central Lancashire Community Health Link Page 3 Question 2b – How do you think these issues can best be addressed? Our evidence is that there has been inadequate pre-consultation involving the NHS family, patients, carers and the public. We wish it to be known, specifically, that this Forum was not involved in any pre-consultation. Our evidence from meetings attended is that there are seriously publicly-expressed differences between Acute Hospital NHS Trusts, GPs and Primary Care Trusts as to what exactly is being proposed, due to the shifting positions of the PCTs prior to the last OSC meeting and in the interim. The consultation document basically lacks clarity and sufficient detail about the proposals, evidenced by: the addition of further information placed on the CATS dedicated website since publication of the consultation document the additional CATS leaflet published and distributed to clarify what CATS is and isn’t and complete absence of information about current waiting lists and predicted specialties and geographical areas where the 18 week target is not expected to be met by December 2008. In the light of all the complexity and unresolved issues to be addressed, we strongly advocate that proper consultation takes place between the NHS family, patients, carers, their representative bodies, voluntary/community organisations, and the general public in accordance with common sense and established good practice. Section 3: Referrals and Patient choice Question 3a - Do you agree that GPs should have a choice of whether to refer patients to CATS services? We agree that GPs should have a choice of whether to refer patients to CATS services but only in consultation with the patient. Question 3b – When should patients make their choice of preferred provider for any further treatment following initial attendance at a CATS centre? The patient should make the decision in consultation with their GP following CATS attendance. Question 3c – If GPs refer patients to CATS, should they be able to choose the specific elements of CATS services that they believe are required for their patient (eg direct access to diagnostic tests)? This question is ambiguous. GPs should choose the specific elements, in consultation with the patient, within their competence and professional responsibility. Central Lancashire Community Health Link Page 4 Question 3d – How should patients be informed about the availability of CATS services? All patients and members of the public should be informed by all means possible, including the media. Section 4: Specialties and clinical activities under consideration Question 4a: Are the selection criteria (long waiting times, limited capacity and suitability for community setting) and appropriate way of determining the clinical specialties for CATS? Yes. Question 4b – Are the specialties and clinical activities under consideration the right ones for Cumbria and Lancashire, particularly to ensure that no patients are waiting longer than 18 weeks from GP referral to treatment in any specialty? There is insufficient information in the document to give an informed opinion. The specialties under consideration in the document have been variously reduced in number in different PCT areas following publication. Two cases, for example, are, at the Lancashire County Council Adult Health and Social Care Committee meeting on 13 February 2007, the PCT Chief Executive informed the Committee that in East Lancashire only 3 specialties were being considered and, in our area, only five specialties were referred to in the Central Lancashire PCT’s staff newsletter published recently on their website. Section 5: Any other comments As regards the consultation document, we are gravely concerned that the consultation document is essentially a promotional vehicle for the merits of the preferred bidder (Netcare) CATS services only. We also regret the constraints enforced on the PCTs by the Department of Health CATS policies that prevented the PCTs engaging properly, as they would normally, with patients and the public on the key issues of concern. We believe that the consultation process is inadequate, based upon the following evidence: pre-consultation, including pre-consultation with patients and the public and representative patient and public involvement organisations, did not occur in accordance with established good practice; Central Lancashire Community Health Link Page 5 the 8 week consultation period is too short and flouts the minimum 12 week consultation period advised and stated in the Cabinet Office Code of Practice on Consultation (criterion 1); lack of clarity of the proposals, balance and absence of key information in the consultation document to enable an informed understanding of the proposals, the real issues affecting patients and the arguments for and against, all of which necessitated the PCTs having to provide additional clarifying leaflets, 2 clarifying reports to the Joint Health Overview and Scrutiny Committee, clarifying advertisements in local press, and finally, continual clarifying information on the dedicated CATS website - available only to a restricted cross-section of the public; restricted distribution of the consultation document in omitting to send the consultation document to key organisations, for example, parish councils. insufficient time to enable adequate consultation meetings to be arranged; proposing policy changes ‘on-the-hoof’, during the consultation period, for example, by introducing the principle of Plurality, and the further example, of agreeing to operate NHS-run CATS facilities within NHS hospital settings, all within the consultation period. We include here a small sample of the comments we have received from patients and the public which illustrate the public’s concerns about the consultation process: “I went to the public meeting re: Clinical Assessment and Treatment Services but was unable to get into the hall. I think that the hospital should be allowed to run the service with the funding going to them not the private sector.” “We wish you to tell us the full details and stop this cover up.” “We feel very strongly that the CATS scheme is a dreadful mistake unless carried out within the NHS. To say that it will only draw on “new” money (whatever that means!) is just a way of obfuscating. Why not use this money within the NHS to improve problem areas?” “I am in favour of the new CATS centres. But employ NHS staff. There are newly qualified doctors/nurses unable to find work. PS. I do not work for the NHS.” “We want a public vote not just a “sham” public consultation about the PCTs plans in regards to the CATS.” “Who decided to go independent sector Netcare? I have my grave doubts over how this has been handled. Why have the patients not been consulted before now? The publicity re: consultation has been terrible. The public do not realise what is going on! PCT = Mr Blair’s/Mr’s Hewitt’s puppets. PCT should question policy- not just go along for ride like sheep.” Central Lancashire Community Health Link Page 6 “We are very concerned about CATS arrangements – these have already been set up and the so-called “consultations” are not so – we are just being told what has been set-up – this is scandalous on such an important subject. The public must be consulted first by these public servants. “ “This is not consultation. This is information giving i.e. This is what we are going to do! Wrapping it up as ‘Patient’s Choice’ is a farce. This is privatisation of the NHS.” “The CATS consultation is CAT! I get the feeling that the public are being made fools of by the PCT, SHA and Government because they are not being listened to.” Section 6: About you This response is from an organisation: Central Lancashire Community Health Link (a PPI Forum) c/o Black Health Agency, Farington Business Park, Golden Hill Lane, Leyland PR25 3GG We would like to receive a full version of the consultation report sent to our Coordinator, Pauline Blackie at the above address. For further information about this response or the Central Lancashire Community Health Link please contact our Forum Support Office, details below: Central Lancashire Community Health Link c/o Black Health Agency Farington Business Park Golden Hill Lane Leyland PR25 3GG Tel. 01772 431195 Email: ppil@blackhealthagency.org.uk Central Lancashire Community Health Link Supporting Patient and Public Involvement Forums in Central Lancashire Page 7