Running head: FOOD ALLERGIES AND PARENTAL RESPONSIBILITY Food Allergies and Parental Responsibility Grace E. Trice University of California, Davis 1 FOOD ALLERGIES AND PARENT RESPONSIBILITY 2 Food Allergies and Parental Responsibility Food allergies affect approximately eight percent of children in the United States (Branum & Lukacs, 2009). While this is a relatively small percentage, the number is rising, and food allergies are constantly creating new obstacles for parents of suffering children. These parents suddenly have to rearrange their lives to revolve around protecting their newly diagnosed child from harm (King, Knibb, & Hourihane, 2009). Despite the difficulties food allergies create for parents and children, it is the sole responsibility of the parents to understand how to manage food allergies in order to keep their children out of danger. This paper will discuss food allergy diagnosis, parental responsibility regarding food allergies, and food allergy treatment. Since parents are usually their child’s first point of contact, it is the parents’ responsibility to recognize potential allergy symptoms and options available for food allergy testing. Food allergies occur when the immune system fights against what it recognizes as a damaging food protein, or allergen (Food Allergy Education & Research, 2014a). Food allergies are indicated by symptoms that originate from immune system reactions that appear repeatedly when encountering certain foods (Vickery, Chin, & Burks, 2011). Common allergy symptoms consist of difficulty breathing or swallowing, coughing, dizziness, confusion, swelling, hives, itchiness, vomiting, diarrhea, or stomach cramps (Gupta, Dyer, Jain, & Greenhawt, 2013). Once symptoms arise and there is reason to suspect a food allergy, it is important for parents to take their child in to be tested. It is the parents’ responsibility to understand how to recognize these symptoms in order to ensure their child receives proper medical attention and food allergy diagnosis. The most common types of testing used to diagnose food allergies are skin tests, blood tests, oral food challenge tests, and trial elimination diet tests (Food Allergy Research & FOOD ALLERGIES AND PARENT RESPONSIBILITY 3 Education Inc, 2014c). During a skin test, a doctor puts a small dose of the suspected allergen on the patient’s arm or back. Then, the doctor either pricks or scrapes the skin to let a trace amount of the allergen get underneath the skin, and the doctor observes whether a reaction occurs (Food Allergy Research and Education Inc, 2014f). During a blood test, a doctor or nurse takes a sample of the patient’s blood and sends it to a lab, where blood specialists examine the amount of allergy symptom triggering antibodies, IgE, in the sample (Food Allergy Research & Education Inc, 2014b). In the oral food challenge test, the doctor has the patient ingest incrementally larger doses of the allergen over time, and the doctor observes how the patient reacts (Food Allergy Research & Education Inc, 2014e). With the trial elimination diet test, the doctor has the patient remove the allergen from his or her diet for a period of two weeks, while the doctor documents the patient’s reactions (Food Allergy Research & Education Inc, 2014d). An alternative form of allergy testing is muscle testing, done through applied kinesiology. In muscle testing, the doctor places a pinch of the allergen in the patient’s mouth, and then the doctor tests the strength of the patient’s muscles while tasting the supposed allergen. If the muscles prove weak, this signifies that the patient is allergic (Schmitt & Liesman, 1998). The complexity of allergy diagnosis can sometimes be difficult for parents of sufferers to fully understand which can cause stress and anxiety because parents are sometimes uncertain of how to begin the process. Parents of children with allergies need to be aware of the process of diagnosis so that they can reduce this stress and anxiety in order to properly care for their children. From the moment parents find out their child has a food allergy, they need to start making several changes within the family. Food allergies require parents to make plans to restructure the family’s way of life in order to protect the allergic child (King et al., 2009). News FOOD ALLERGIES AND PARENT RESPONSIBILITY 4 of an allergy can be difficult to process, and it can take time to become accustomed to this change. Parents often experience distress at the news of their child’s food allergy (Gillespie, Woodgate, Chalmers, & Watson, 2007). The period of reorganization, when the allergy diagnosis is new and everything in the family is still being sorted out, can be extremely challenging because the presence of a food allergy affects the entire family (Rouf, White, & Evans, 2012). Despite the pressure parents face in making changes within the family, and overcoming the challenges these changes create for families, parents need to remain strong and understand that their main priority is in protecting their child who is a significant member of the family. Depending on the type of the allergy and its severity, the amount of responsibility parents have in protecting their allergic child can be enormous (Cummings, Knibb, King, & Lucas, 2010). This responsibility can force parents to make difficult decisions regarding the safety of their child. For example, parents need to remember to look at food labels and decipher whether certain foods are safe for their child (Cummings et al., 2010). They also have to make sure they are always aware of their child’s condition, and that they carry medicine with them at all times, in case anything happens (Stjerna, Vetander, Wickman, & Olin, 2014). If the parents are unable to be with their child, they have to make sure that the child is under the supervision of a trusted adult who knows how to administer the medicine if necessary (Roy & Roberts, 2011). In addition, parents deal with a significant amount of stress when trusting others around their allergic child. Furthermore, parents’ fears for their child’s safety cause them to want to supervise their child even past the age when their child’s peers without allergies would need supervision (Mandell, Curtis, Gold, & Hardie, 2005). Parents worry about how this extra supervision affects their child (Mandell et al., 2005). However, sometimes parents do not know how else to provide FOOD ALLERGIES AND PARENT RESPONSIBILITY 5 protection, and it is the primary responsibility of the parents to make sure they know how to provide protection in order to keep their child safe. Allergies do not only affect the allergic child and the parents, but they also affect the family as a whole. The risk of social events on an allergic child’s safety forces parents to decide whether or not to allow their child to participate in family activities and school events. Many parents do not allow their child to attend these events in order to reduce safety risks. Some of the activities that are often missed are social events, fieldtrips, parties, sleepovers, and play dates (Bollinger, Dahlquist, Mudd, Sonntag, Dillinger, & McKenna, 2006). Parents need to learn how to protect their child, but also how to allow their child to have social experiences while growing up (Rouf et al., 2011). In addition, parents need to know how to teach their child about food allergies so that the child can take on more of the responsibility of controlling their own allergies (Akeson, Worth, & Sheikh, 2007). Parents not only need to be able to manage their child’s food allergy, but as their child gets older, parents need to know how to teach their child how to manage his or her own allergies. In order to be able to teach their child, parents need to make sure they are well informed about food allergies and become competent at controlling their child’s specific food allergy. Another significant impact of food allergies comes from the challenges arising from other people’s attitudes and opinions. An affected child’s identity is greatly influenced by a food allergy. When addressing this issue, parents must consider how to allow their child’s allergy to make up a part of their child’s identity, while preventing the allergy from being the single factor to characterize their child. Most parents try to allow their child to have as normal a childhood as possible, despite the existence of the allergy, and try to prevent the allergy from dominating their child’s life (Knafl, Breitmayer, Gallo, & Zoeller, 1996). Although children should not be FOOD ALLERGIES AND PARENT RESPONSIBILITY 6 distinguished by their allergy, children are often strongly affected by the attitudes and opinions of others. Parents are constantly discouraged by the way others treat their children because people judge their children based on having an allergy (Mandell et al., 2005). Some people do not even believe that children actually have allergies, and this is difficult for parents because they need to make sure their children are always in a safe environment (Munoz-Furlong, 2003). If people do not believe that the child has allergies, they might expose the child to life threatening foods. Parents must make sure that they know with whom their child comes in contact and whether their child is safe around those people. The resistance to believing in or to taking seriously the existence of food allergies in children is a huge problem for parents. Since the awareness of the existence of the allergy and the attitudes toward the allergy can affect how the allergy is controlled, there are implications for children and families in general but specifically in the school setting (Mandell et al., 2005). Some schools are more willing to accommodate these allergic students than others. For example, if a teacher is not familiar with accommodating students with allergies, the teacher might be concerned about the liability and extra burden the situation creates for him or her (Deutsch, 2013). Parents have reported being discouraged by others opposing the accommodation of their children’s allergies, especially from school employees (Mandell et al., 2005). However, if teachers get support from the school staff and families, then they can strive to provide safe settings for these students with food allergies. In order for this to be successful, the school and the family need to work together to ensure that both the home and the school are safe for the student (Deutsch, 2013). The parents gain enough knowledge regarding food allergies in order to take the initiative in informing the school about their child’s allergy and to maintain communication with the school to continue effectively monitor their child’s safety. FOOD ALLERGIES AND PARENT RESPONSIBILITY 7 The number and quality of allergy treatments that might reduce the stress placed on parents and families of allergy-diagnosed children are somewhat limited, however, parents of affected children need to have knowledge of these treatment options. One option is the use of antihistamines and epinephrine (Gupta et al., 2013). However, these medications may not be entirely effective, and will only temporarily fix the problem. Another option, which is probably the most common option for treatment is to eliminate the allergen containing foods from the child’s diet (Gupta et al., 2013). This is sometimes challenging because it is often hard to avoid certain foods entirely. Another treatment option is oral immunotherapy, where the child takes doses of the food allergen and increases the dosage over time to build up their immune system in an effort to reduce the symptoms caused by an allergic reaction (Gupta et al., 2013). A final experimental treatment option is Chinese medicine, which involves the use of Chinese herbs to treat a food allergy (Gupta et al., 2013). None of these options are foolproof, meaning 100 percent success every time. This uncertainty in effectiveness can create distress in parents who are considering treatment options for their allergic children because there is no guarantee the treatment will be effective and the possible side effects are unpredictable. Despite this uncertainty, the more a parent becomes educated about the various options, the better he or she can decide on an option and develop a plan for treatment. It is important for parents to be aware of the existence of food allergies and their effects. In understanding allergy diagnosis and allergy treatment options, parents can better understand how to reduce the amount of stress experienced from the existence of the food allergy and figure out the best way to provide a safe, but natural, environment for their child. It is also important for parents to understand allergy management in order for them to be able to teach their children about how to handle their own allergies, inform others about food allergies, and be able to keep FOOD ALLERGIES AND PARENT RESPONSIBILITY their family happy, despite the time and energy it takes to manage a food allergy. By educating themselves, parents can be more successful in the management of their child’s food allergy, and have a better chance of ensuring their child’s safety. 8 FOOD ALLERGIES AND PARENT RESPONSIBILITY References Akeson, N., Worth, A., & Sheikh, A. (2007). The psychosocial impact of anaphylaxis on young people and their parents. Clinical and Experimental Allergy, 37(8), 1213-1220. Bollinger, M. E., Dahlquist, L. M., Mudd, K., Sonntag, C., Dillinger, L., & McKenna, K. (2006). The impact of food allergy on the daily activities of children and their families. Ann Allergy Asthma Immunol, 96(3), 415–421. Branum, A. M., & Lukacs, S. L. (2009). 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