Regional Maternity Survey Office NORCAS ANNUAL MEETING Northern Congenital Abnormality Survey MONDAY 9TH FEBRUARY 2015 THE DURHAM CENTRE, DURHAM, DH1 1TN 30 YEARS OF NORCAS SURVEILLANCE 09.15 Coffee and registration 09.45 Welcome – NorCAS Achievements and legacy Martin Ward Platt Clinical Director, Regional Maternity Survey Office. Consultant Neonatal paediatrician, Newcastle Hospitals NHS Foundation Trust 10.20 Recurrence of congenital anomalies in successive pregnancies Judith Rankin Academic Director, Regional Maternity Survey Office. Professor of Maternal and Perinatal Epidemiology, Newcastle University 10.40 Epidemiology of partial urorectal septum malformation sequence (or ‘persistent cloaca’) in England and Wales Peter Tennant Research Associate, Newcastle University 11.00 Coffee 11.15 Keynote: Non-Invasive Prenatal Testing (NIPT) and chromosomal microarrays - new approaches to prenatal testing Diana Wellesley Consultant in Clinical and Prenatal Genetics, Southampton University Hospital, Register lead, Wessex Congenital Anomaly Register. 11.55 Changes in diagnostic testing – Implications for clinical practice. Sheila MacPhail. Consultant in Fetal Medicine and Obstetrics, Newcastle Hospitals NHS Foundation Trust. 12.20 Negotiating acceptable termination pf pregnancy for non-lethal fetal anomalies; health professional and social care professional views Lisa Crowe Research Associate, Newcastle University. 12.50 Public Health England – National congenital anomaly and rare disease registration. Sarah Stevens Consultant in Public Health, Public Health England 13.15 Lunch 14.00 Pulse oximetry and the identification of congenital heart defects: results Sundeep Harigopal Consultant Neonatal Paediatrician, Newcastle Hospitals NHS Foundation Trust 14.20 A Systematic review of survival in children born with congenital heart disease Kate Best PHD Student, Newcastle University 14.50 Trisomy 21 and the incidence of congenital heart disease Joan Morris Professor of Medical Statistics, Wolfson institute, Director of the National Downs Syndrome Cytogenetics Register (NDSCR) 15.20 Workshop choice Congenital Talipes: Antenatal Diagnosis, Management, Postnatal Management and Outcome Dr Karen Lincoln Consultant Obstetrician; Dr Kumar Kumarendran Consultant obstetrician ; Kendra Exley specialist sonographer; Amanda Trees, senior physiotherapist James Cook University Hospital Examination of the Newborn Rob Bolton Associate Specialist Paediatrician, South Tyneside NHS FoundationTrust Fetal anomaly screening programme: regional results Nicola Miller: Co-ordinator Regional Maternity Survey Office , Public Health England 16.00 Close Regional Maternity Survey Office NORCAS ANNUAL MEETING Northern Congenital Abnormality Survey MONDAY 9TH FEBRUARY 2015 THE DURHAM CENTRE, DURHAM, DH1 1TN To book a place at the meeting please fill in this form and enclose a cheque for £30 (£20 for students) payable to Public Health England and return to RMSO, 1-2 Claremont Terrace, Newcastle NE2 4AE Tel (0191) 233 1658, info@rmso.org.uk Name: ______________________ Job Title:_____________________ Address:___________________________________________ _____________________________________ Postcode:___________ Email: ____________________________________________________ Workshop preference __________________________________________________ Regional Maternity Survey Office NorCAS - Northern Congenital Abnormality Survey NorSTAMP - Northern Survey of Twin and Multiple Pregnancy NorDIP - Northern Diabetes in Pregnancy Survey PMS - Perinatal Mortality Survey NNN - Northern Neonatal Network NECCPS - North of England Collaborative Cerebral Palsy Survey