National Committee on Infant Cremation Attendees Minister for Public Health Michael Matheson Chair - Gareth Brown Scottish Government David Baxter Association of Private Crematoria and Cemeteries (APCC) Society of Independent and Allied Funeral Directors (SAIF) Glasgow City Council Jim Brodie Alastair Brown (stand in for Brian Devlin) Cheryl Buchanan Marie Cochrane Dr Simon Cuthbert – Kerr Paul Cuthell Sarah Dillon Leeanne Evans Sara Fitzsimmons Dr Dawn Kernaghan Alison Kerr Natalie McKail Helena McLaren Ann McMurray Dr Mini Mishra Dr Edile Murdoch Jim Nicholl Jim Nickerson Rick Powell Mary Ross-Davie Bill Stanley Apologies Brian Devlin Susan Stewart Parent Representative Northern Ireland Scottish Government National Association of Funeral Directors (NAFD) Scottish Government (Secretariat support) Parent Representative SiMBA Royal College of Obstetricians and Gynaecologists (RCOG) Scottish Government City of Edinburgh Council Miscarriage Association Stillbirth and Neonatal Death Society (SANDS UK) Scottish Government Scottish Neonatal Consultants Group Facultatieve Technologies Association of Private Crematoria & Cemeteries (APCC) Federation of Burial and Cremation Authorities (FBCA) NHS Education Scotland Institute of Cemetery and Crematorium Management (ICCM) Society of Local Authority Chief Executives (SOLACE) NHS Heads of Midwifery Actions 1. Produce one page summary of all the current cremation forms and their uses – Simon Cuthbert - Kerr 2. Issue a short questionnaire to parents regarding their views on a memorial and to contact local authorities to establish what is happening at local level Scottish Government 3. Share the questionnaire used by Edinburgh City Council - Natalie McKail 4. All subgroups as a priority would be expected to check on progress of those actions from the Infant Cremation Commission which were considered immediate, or where progress could have been made quickly. This might require trawls of Cremation Authorities, NHS Boards or others. The next meeting of the National Committee would seek to record progress against these actions, or to recognise were recommendations had been completed. – All Subgroup Chairs Welcome and Introductions 1. Minister for Public Health Michael Matheson welcomed the Committee to the first meeting and began roundtable introductions. 2. The Minister confirmed Gareth Brown as Chair of the Committee and noted that the Committee was formed on the basis of recommendations made by Lord Bonomy and the Infant Cremation Commission. 3. The Minister stated that the Committee would respond directly to him, as Minister for Public Health and he in turn had a responsibility to the Scottish Parliament on the progress made. 4. The Minister made clear his expectation that the Committee would function as an active, working group and Committee members would be expected to join subgroups to take forward actions. 5. The Minister highlighted that the legislative changes recommended by Lord Bonomy would be addressed by the Burial and Cremations Bill. Dr Simon Cuthbert – Kerr is leading on this work and a consultation is expected by the end of the year. 6. The Minister noted his expectation he would receive a report following each Committee meeting and would expect feedback from each of the Sub-groups. A progress report is expected to be submitted by the Committee to Parliament one year from the date of the first meeting. 7. The Minister noted that the first meeting of the National Committee on Infant Cremation will be used to discuss how the work of the Committee will progress and establish Chairs for each of the Subgroups. 8. As Chair Gareth Brown outlined the plan for the meeting, noting that the majority of discussion would be around the work plan. Terms Of Reference 9. The Terms of Reference were agreed by the Committee subsequent to the addition of a line recognising the impact that historical practices have had on bereaved parents and expressing explicitly that this should never happen again. Draft Workplan 10. The Chair noted that the recommendations made by Lord Bonomy had been divided into themes, although this was not an exact science and there was some inevitable cross over between themes. He also noted his expectation that the majority of the recommendations could be achieved within a year. 11. The Chair emphasised that subgroups would be responsible for taking forward actions. It is anticipated that some actions arising from Lord Bonomy’s recommendations will already have been taken forward, for example Cremation Authorities publishing a policy statement on infant cremations. However, subgroups will be responsible for checking that these actions have been completed and providing reassurance to the National Committee at the next meeting. 12. It was confirmed that each subgroup should be chaired by a member of the National Committee, and that while much of the business could be conducted by correspondence groups should come together in person at leastonce. 13. The Chair noted that Scottish Government can assist in finding rooms for subgroup meetings and that every meeting should be recorded to indicate what had been agreed. 14. The Chair noted progress on the appointment of an Inspector of Crematoria under current legislation. Adverts for applicants had already been published and interviews were expected to take place in December or January. The role was intended to provide quality assurance, to promote best practice, and to ensure crematoria were operating in line with legislative requirements and guidance. The Inspector would report to Ministers any particular concerns in relation to crematoria practice. Changes to the current legislation were required in order for the role to be broadened to possibly include the work of Funeral Directors. 15. The Chair confirmed that, once employed the Inspector would become a member of the National Committee. Working Groups Policy and Code of Practice 16. The Chair noted that the intention was that a Code of Practice would be developed setting out principles covering the entire pathway, from the point of bereavement through to cremation. The Recommendations from Lord Bonomy relate specifically to infant cremation, but it would be for the group to decide if the proposed principles could be applicable more generally.. It was noted that the development of a Code of Practice is the most significant task and that the work of the other subgroups would aggregate up to this group. 17. The Committee was content with the Policy and Code of Practice Subgroup drafting high level principles, but also recognised that there would be a need for potentially more detailed or technical guidance for each sector to sit beneath it. 18. The Chair noted that the Code of Practice should be regularly reviewed and updated, at least annually, to ensure it did not stagnate. It is expected that the Inspector of Crematoria would have a role in future in updating and reviewing the Code of Practice, but the National Committee would retain ownership of the document. It was noted that it would be possible to make it a legal requirement for Cremation Authorities to comply with the Code of Practice and for them to be inspected against it. 19. It was proposed that Scottish Government co-chair this subgroup. In addition to those who volunteered it was agreed a representative from the third sector should be identified. It was proposed that a representative from a cremation authority at operative level would provide helpful insight. 20. Secretariat support to this group would be provided by the Scottish Government and the group would aim to hold its first meeting before the end of 2014. Cremation Practice 21. The Chair noted that as per Lord Bonomy’s recommendation an interim working group had been established to look at what steps could be taken by crematoria in order to prevent the loss of ashes. The interim group has now met once, chaired temporarily by the Scottish Government, and the membership includes the Scottish Government, FBCA, ICCM and lay persons John Birrell and Willie Reid. 22. It was proposed this group was maintained, with a change in Chair, and its membership widened to include cremation authorities. As the group has a technical focus, representation from manufacturers would be welcome. Natalie McKail agreed to work with colleagues in Glasgow in order to establish membership for this group from the Cremation Authority field. Jim Nickerson noted he was keen to join this group given the work carried out in this area at Seafield and Warriston crematoriums. 23. The Chair noted that recommendations 4,2,7 and 43 could be checked quickly and both the FBCA and ICCM updated on the changes they have made based on the recommendations including updates to their members, the inclusion of questions on infant cremations within the critical friend audit and the introduction of an updated training scheme. Shared Cremations 24. The Chair noted the inaccuracies within the existing CMO guidance on the sensitive disposal of pregnancy loss less than 24 weeks gestation and noted work is underway to revise these. 25. The committee agreed that this subgroup would be best chaired by a representative from the NHS, specifically midwifery. In addition to those who volunteered it was agreed a representative from cremation authorities should be on the group. It was also agreed that parents should be represented and work will be undertaken to identify a suitable representative. Records and Forms 26. The Chair noted that the majority of these recommendations are legislative and therefore Dr Simon Cuthbert Kerr would be the most appropriate Chair. 27. In addition to those who volunteered, Ann McMurray noted that third sector organisations should be consulted on the proposed wording of forms. Action - The Chair noted it would be useful to have a one page summary of all the current cremation forms and their uses. Training and Communication 28. Mary Ross – Davie was agreed as Chair / Co- chair of the group with volunteer group members from across the cremation and funeral industry as well as third sector . 29. It was agreed that as communication will be a big part of the group’s work, a representative from Health Scotland would be useful as would input from the NES bereavement hub. Parent Representation should also be sought. 30. It was agreed that clarity and consistency was critical to this work-stream as all bereaved parents should have access to the same level of information from well trained staff. 31. It was noted that the messages / solutions produced by this group were dependent on the work of the Code of Practice group. Memorials 32. Natalie McKail noted the positive work being carried out by Edinburgh City Council to engage with parents regarding a memorial, particularly a questionnaire that had been issued to all parents. 33. The committee discussed the difficulties involved and what was currently being offered at local level. Action – The Scottish Government agreed to issue a short questionnaire to parents regarding their views on a memorial and to contact local authorities to establish what is happening at local level. Action – Natalie McKail agreed to share the questionnaire used by Edinburgh. Conclusion 34. The Chair noted he was keen for subgroup chairs to start moving forward as soon as possible and make good progress before the next meeting. He expected that every subgroup would be established quickly, and would meet at least once before the end of the year to agree key actions. 35. All subgroups as a priority would be expected to check on progress of those actions from the Infant Cremation Commission which were considered immediate, or where progress could have been made quickly. It was recognised that this might require trawls of Cremation Authorities, NHS Boards or others. The next meeting of the National Committee would seek to record progress against these actions, or to recognise were recommendations had been completed. Date of Next Meeting 36. The Committee agreed that the next meeting should take place in January, in Edinburgh. AOB 37. The Chair reiterated that the Committee would operate as transparently as possible. A short update would be published on the SG website following each meeting and minutes would be published once agreed by the Committee at subsequent meetings. Committee members were encouraged to disseminate the information widely amongst their colleagues. 38. The Committee agreed that they were content to be contacted on an individual basis by members of the Committee. Subgroup Membership Policy and Code of Practice Chair – Gareth Brown, Scottish Government Secretariat - Scottish Government Cheryl Buchanan Parent Representative Leeann Evans Parent Representative Jim Brodie Society of Independent and Allied Funeral Directors (SAIF) Natalie McKail City of Edinburgh Council Dr Dawn Kernaghan Royal College of Obstetricians and Gynaecologists (RCOG) Jim Nickerson Association of Private Crematoria & Cemeteries (APCC) To be identified Third Sector Representative To be identified Crematorium Operative Cremation Practice Chair – To be Confirmed (Cremation Authority Representative?) Secretariat - Scottish Government Rick Powell Federation of Burial and Cremation Authorities (FBCA) Tim Morris Institute of Crematoria and Cemetery Management (ICCM) John Birrell Lay Person / Bereavement hub Willie Reid Parent Jim Nickerson APCC Jim Nicholl (tbc) Facultatieve ltd To be identified Cremation authority Shared Cremations Chair - Susan Stewart, NHS Heads of Midwifery Secretariat - Dawn Kernaghan to identify Helena McLaren Miscarriage Association Dr Edile Murdoch, Scottish Neonatal Consultants Group Dr Dawn Kernaghan RCOG Paul Cuthell NAFD To be identified Cremation authority To be identified Parent Representative Records and Forms Chair – Dr Simon Cuthbert – Kerr Secretariat – Scottish Government Rick Powell FBCA Jim Brodie David Baxter Marie Cochrane Natalie McKail Third Sector SAIF APCC Northern Ireland City of Edinburgh Council Consultation on wording of forms Training and Communications Chair / Co Chair - Mary Ross – Davie Secretariat - NES Rick Powell Bill Stanley Paul Cuthell (or NAFD Representative) Jim Brodie Sara Fitzsimmons Ann McMurray Jim Nickerson To be identified To be identified FBCA ICCM NAFD SAIF SiMBA SANDS UK APCC Health Scotland Parent Representation