To be printed on headed paper PELVIC PAIN ASSESSMENT Form No. 02(b) – Patient re-entry This questionnaire is designed to help you describe your pain symptoms and your health, and how these impact on your life in general. Please read through the instructions at the beginning of each section carefully. For most questions, all you need to do is tick the appropriate box that best describes how you feel. There are no right or wrong answers. We are just interested in your own views about your health, your pain symptoms and how you feel about life in general. Try not to dwell too long on any question, and choose the answer that comes closest to how you have been feeling generally. Please try to answer as many of the questions as possible, even if some may seem repetitive or less relevant. There are some sensitive questions but you can choose to miss out any question you do not feel comfortable answering. Your doctor or nurse who looks at this may make some extra notes on the blank sections marked for them. If you have any queries about the form, your doctor or nurse will be able to help you with them. For any symptoms other than pain, be sure to discuss these with the doctor or nurse you are seeing. NHS Number GP’s Name GP Practice For completion by clinician: Recruited to MEDAL study YES / NO If Yes, Study Number: Hospital Name................................................ Clinician Name: .......................................................... Clinician Signature: .................................................... Date: PELVIC PAIN ASSESSMENT - Form 2(b) Patient re-entry D D Page 1 of 15 M M M Y Y Y Y Version 2.1 - 27th November 2012 1. ABOUT YOUR PAIN PROBLEMS Please describe your pain problems, with the most troublesome problem first. 1. __________________________________________________________ 2.___________________________________________________________ 3.___________________________________________________________ 4.___________________________________________________________ 5.___________________________________________________________ What do you think is causing your pain? ________________________________________________________________________________ ________________________________________________________________________________ ________________________________________________________________________________ ________________________________________________________________________________ Since your previous visit, overall has the pain? (please tick one box) Got a lot worse Got a little worse Not changed Got a little better Got a lot better Don’t know For approximately how long in total did you have pelvic pain in the last 3 months? (please tick one box) Less than one day a month One day a month 2 – 3 days a month One day a week More than one day a week Every day Space for Doctor’s notes 2 PELVIC PAIN ASSESSMENT - Form 2(b) Patient re-entry Version 2.1 - 27th November 2012 2. ABOUT YOUR PAIN Please shade areas of pain and write a number from 1 to 10 at the site(s) of the pain. (10 = most severe pain imaginable 1. Left upper back quadrant 2. Central upper back 3. Right upper back quadrant 4. Left lumbar back region 5. Central back 6. Right lumbar back region 7. Left lower back region 8. Central lower back 9. Right lower back 10. Left outer posterior thigh 11. Left inner posterior thigh 12. Right inner posterior thigh 13. Right outer posterior thigh 14. Right hypochondriac upper 15. Epigastric region 16. Left hypochondriac upper 17. Right lumbar 18. Umbilical region 19. Left lumbar 20. Right Iliac 21. Hypogastric/ Suprapubic 22. Left Iliac 23. Right outer anterior thigh 24. Right inner anterior thigh 25. Left inner anterior thigh 26. Left outer anterior thigh 27. Urethral region 28. Vuval 29. Perianal 30. Right inner thigh 31. Right buttock 32. Left inner thigh 33. Left buttock Vulval/Perineal Pain (Pain outside and around the Vagina and Anus) If you have Vulval pain, shade the painful areas and write a number from 1 to 10 at the painful sites (10 = most severe pain imaginable) Right Left Right Right Left Left Space for Doctor’s notes 3 PELVIC PAIN ASSESSMENT - Form 2(b) Patient re-entry Version 2.1 - 27th November 2012 3. ABOUT YOUR PAIN There are many types of pain. For each of those list below, please circle the number that best describes your average level of pain over the last month. Also say roughly how many months you have had each type of pain. For example Pain just before period No Pain Worst pain imaginable Duration (months) Now please consider your pain problems. How do you rate your pain, on average? Worst pain imaginable Duration (months) Worst pain imaginable Duration (months) Worst pain imaginable Duration (months) Worst pain imaginable Duration (months) Pain just before period No Pain Pain during period No Pain Pain when period is over No Pain Pain mid-cycle No Pain If you did not have sexual intercourse in the last month, please tick box and skip this section to go to the next page Worst pain imaginable Duration (months) Worst pain imaginable Duration (months) Worst pain imaginable Duration (months) Worst pain imaginable Duration (months) Pain at the point of vaginal penetration No Pain Deep pain during intercourse No Pain Burning vaginal pain during intercourse No Pain Pelvic pain lasting hours or days after No Pain Space for Doctor’s notes 4 PELVIC PAIN ASSESSMENT - Form 2(b) Patient re-entry Version 2.1 - 27th November 2012 Other types of pelvic pain in the last month By ‘Pelvic pain’ we mean any type of pain in the lower part of your belly (in the area from your navel down). Worst pain imaginable Duration (months) Worst pain imaginable Duration (months) Worst pain imaginable Duration (months) Worst pain imaginable Duration (months) Worst pain imaginable Duration (months) Worst pain imaginable Duration (months) Worst pain imaginable Duration (months) Pain when bladder is full No Pain Pain with urination No Pain Muscle/joint pain in pelvis No Pain Pain in pelvis when lifting No Pain Pain with sitting No Pain Backache No Pain Migraine headache No Pain 4. DESCRIBING YOUR PAIN The words below describe average pain. Place a tick ( ) in the box which represents the degree to which you feel that type of pain. Please limit yourself to a description of the pain in your pelvic area only. NONE MILD MODERATE SEVERE What does your pain feel like? 0 Throbbing Shooting Stabbing Sharp Cramping Gnawing Hot-burning Aching Heavy Tender Splitting Tiring-exhausting Sickening Fearful Punishing-cruel 1 2 3 Melzak R. The Short-form McGill Pain Questionnaire. Pain 1987;30:191-197. Space for Doctor’s notes 5 PELVIC PAIN ASSESSMENT - Form 2(b) Patient re-entry Version 2.1 - 27th November 2012 5. CURRENT MEDICATION Space for Doctor’s notes 6. TREATMENTS FOR PAIN What types of treatments have you tried in the past for your pain? (please indicate with a tick) No Yes If yes, was it helpful? No Yes No Acupuncture Massage Anti-seizure medications Antidepressants Meditation or relaxation exercises Strong painkillers Biofeedback Nerve blocks Botox injection Non-prescription medicine Nutrition/diet Contraceptive pills/patch/ ring Exercise, yoga or pilates Yes If yes, was it helpful? No Yes Physiotherapy Hormonal therapy for endometrisosis Herbal Medicine Psychological (talking) therapy TENS Homeopathic medicine Other – please state ................................. Space for Doctor’s notes 6 PELVIC PAIN ASSESSMENT - Form 2(b) Patient re-entry Version 2.1 - 27th November 2012 7. ABOUT YOUR PERIODS Are you still having menstrual periods? Date of first day of last period? DD DYYY D No M Yes M M Y Y Y Y Answer the following only if you are still having menstrual periods: (please tick one box in each section) In the last three months, have you had pelvic pain with your periods? No Occasionally (with 1 in 3 of my periods) Often (with 2 in 3 of my periods) Always (every period) In the last three months, have you had pelvic pain at times other than with periods or sexual intercourse? No Yes, just before a period Yes, just after a period How regular are your periods? Regular, I know when to expect my period Fairly regular, my period starts within a few days of when I expect Irregular, I cannot predict when my period will start I have bleeding on and off all the time My periods are: Light Moderate Heavy How many days of bleeding do you usually have each period? (We mean bleeding for which you need a tampon or sanitary pad, NOT discharge for which you needed a panty liner only) Bleed through protection _________ days How many days between the start of one period and the start of next, on average? Do you pass clots in menstrual flow? No Yes Does pain start the day flow starts? Yes No ________ days Pain starts ________ days before flow Space for Doctor’s notes 7 PELVIC PAIN ASSESSMENT - Form 2(b) Patient re-entry Version 2.1 - 27th November 2012 8. PREVIOUS DIAGNOSIS Has a doctor ever given you a diagnosis of any of the following? (please indicate with a tick) No Yes Endometriosis Adhesions Fibroids Adenomyosis Uterine Polyps Ovarian cysts Appendicitis Hernia Infertility or low fertility No Yes Uterine or bladder prolapse Vulva pain/Vulvodynia Irritable bowel syndrome Nerve entrapment in pelvis/pudendal neuropathy Fibromyalgia Painful bladder syndrome (interstitial cystitis) Sexually transmitted infection Female circumcision/cutting Space for Doctor’s notes 9. PREVIOUS TESTS Have you ever had a cervical screening (smear) test? No If yes, what the outcome? Normal Have you ever had a Chlamydia test? No Yes If yes, when was your last test (roughly)? Abnormal changes Yes If yes, when was your last test (roughly)? If yes, what the outcome? No Chlamydia 10. Treated for Chlamydia Chlamydia but was not treated PREVIOUS INVESTIGATIONS/OPERATIONS Which of the following previous investigations have you had for pelvic pain? (please indicate with a tick) No Yes No Yes Laparoscopy (telescope examination through belly) Laparotomy (open surgery) Cystoscopy (telescope examination of the bladder) Ultrasound via vagina Colonoscopy (telescope examination of the bowel) Ultrasound on abdomen Hysteroscopy (telescope examination via the vagina) Nerve transmission test Magnetic resonance (MRI) scan Allergy tests Other – please state........................... Space for Doctor’s notes 8 PELVIC PAIN ASSESSMENT - Form 2(b) Patient re-entry Version 2.1 - 27th November 2012 11. ABOUT CONTRACEPTION Are you sexually active? Are you trying for a baby? No No Yes Yes If yes, please answer the question about contraception If yes, please go to section 14 If you are using contraception, please tick all the methods of contraception you use: No Yes Patch Female sterilisation (clips) Implant Female sterilisation (implants) Coil (Mirena) Male partner sterilisation Condom Contraceptive pill Diaphragm/cap Mini-pill Vaginal ring Injection Natural method 12. No Yes FERTILITY Are you currently trying to get pregnant? (please tick one box) No Yes, trying for less than a year Yes, trying for more than a year 13. OTHER RECENT MEDICAL HISTORY Space for Doctor’s notes 9 PELVIC PAIN ASSESSMENT - Form 2(b) Patient re-entry Version 2.1 - 27th November 2012 14. BOWEL SYMPTOMS Do you ever experience rectal bleeding or blood in your stool during your period Yes No Do you have problems with recurrent pain or discomfort in your abdomen? (please indicate/ tick More than 1 year More than 6 months Last month only No ) Considering the past 3 months, how often have you had pain or discomfort in the abdomen? (please indicate/ tick All of the time ) Most days of the month At least 3 days per month 1 day per month Never If you have had abdominal pain or discomfort, is this associated with any of the following Improvement on going to the toilet to pass stool Yes No A change in how often you go to the toilet Yes No A change in the appearance (form) of the stool: Yes No Rome Foundation Inc. Gastroenterology 2006;20(5):1377-90. Space for doctor’s notes 10 PELVIC PAIN ASSESSMENT - Form 2(b) Patient re-entry Version 2.1 - 27th November 2012 15. URINARY PROBLEMS The following questions are about going to the toilet for a wee. This is also called voiding. Some women sometimes feel a sudden, overwhelming need to go to the toilet. This is called urgency. For each of the following questions, please circle the answer that best describes how you feel. 1 2a 2b 3 4a How many times do you void (go for a wee) during waking hours? How many times do you void at night? If you get up at night, to what extent does it usually bother you? Are you currently sexually active? Yes No IF YOU ARE SEXUALLY ACTIVE, do you now, or have you ever had, pain or urgency to urinate during or after sexual intercourse? 4b Has the pain or urgency ever made you avoid sexual intercourse? 5 Do you have pain associated with your bladder or in your pelvis, vagina, lower abdomen, urethra (the opening from which you wee) or perineum (the area between your front and back passage)? 6 Do you still have urgency shortly after urinating? 7a When you have pain, is it usually? 7b How often does this pain bother you? 8a When you have urgency, it is usually? 8b How often does this bother you? 0 1 2 3 4 3-6 7-10 11-14 15-19 20+ 0 1 2 3 4+ Never Mildly Moderate Severe Never Occasionally Usually Always Never Occasionally Usually Always Never Occasionally Usually Always Never Occasionally Usually Always Mild Moderate Severe Occasionally Usually Always Mild Moderate Severe Occasionally Usually Always Never Never Parsons C.L. J Reprod Med 2004;49(Supplement 3):235-42. Yes No Do you suffer from pain when your bladder is filling? Space for doctor’s notes 11 PELVIC PAIN ASSESSMENT - Form 2(b) Patient re-entry Version 2.1 - 27th November 2012 16. ASSESSMENT OF SEXUAL ACTIVITY Although the following questions are sensitive and personal, they are important in determining how different tests and treatments affect this part of your life. Please be assured that your responses to these questions will remain confidential. We understand if you would rather not answer these. Yes No A) Are you currently married or having an intimate relationship with someone? Have you changed your sexual partner in the last 6 months? Do you engage in sexual activity with anyone at the moment? If no to this question, please answer section B) If yes to this question, please go to the section C) B) I am not sexually active at the moment because: (Please tick as many of these items as apply) I do not have a partner at the moment I am not interested in sex I am too tired My partner is not interested in sex My partner is too tired I have a physical problem which makes sexual relations difficult or uncomfortable My partner has a physical problem which makes sexual relations difficult or uncomfortable Other reasons (please describe) ………………………………… C) Please complete this section if you are sexually active. Please read each of the following questions carefully and tick the box that best indicates your sexual feelings and experiences during the past month. Very Somewhat A little Not at During the past month: much all Was ‘having sex’ an important part of your life this month? Did you enjoy sexual activity this month? In general, were you too tired to have sex? Did you desire to have sex with your partner(s) this month? During sexual relations, how frequently did you notice dryness of your vagina this month? Did you feel pain or discomfort during penetration this month? In general, did you feel satisfied after sexual activity this month? 5 times or more 3-4 times 1-2 times Not at all How did this frequency of sexual activity compare with what is usual for you? Much more Somewhat more About the same Less than usual Were you satisfied with the frequency of sexual activity this month? Very much Somewhat A little Not at all How often did you engage in sexual activity this month? Stead M.L. et al. Br J Obstet Gynaecol 1999;106(1):50-4. Space for doctor’s notes 12 PELVIC PAIN ASSESSMENT - Form 2(b) Patient re-entry Version 2.1 - 27th November 2012 17. HOW DO YOU COPE WITH PAIN? Over the last month, how often have you: Found it difficult to walk because of the pain Felt as though symptoms were ruling your life Have had mood swings Felt others do not understand what you are going through Felt your appearance has been affected Never Rarely Sometimes Often Always Jones et al. Quality of Life Research 2004; 13:695 -704 Of all the problems and stresses in your life, how does your pain compare in importance? Please make a mark on the line to describe your pain Just one of The most important thing many problems Over the last two weeks, how often have you been bothered by the following? (please indicate 0 1 2 3 Not at all ) Several days More than half the days Nearly every day Little interest or pleasure in doing things Feeling down, depressed or hopeless Kroenke et al Med Care 2003,41:1284 - 1292 Space for Doctor’s notes 13 PELVIC PAIN ASSESSMENT - Form 2(b) Patient re-entry Version 2.1 - 27th November 2012 18. GENERAL QUALITY OF LIFE By placing a tick in one box in each group below left, please indicate which statements best describe your own health state today. Mobility I have no problems in walking about I have some problems in walking about I am confined to bed Self-Care I have no problems with self-care I have some problems washing or dressing myself I am unable to wash or dress myself Usual Activities (e.g. work, study, housework, family or leisure activities) I have no problems with performing my usual activities I have some problems with performing my usual activities I am unable to perform my usual activities Pain/Discomfort I have no pain or discomfort I have moderate pain or discomfort Please draw a line on the thermometer to show how you rate your state of health today I have extreme pain or discomfort Anxiety/Depression I am not anxious or depressed I am moderately anxious or depressed I am extremely anxious or depressed The EuroQol Group. Health Policy 1990;16(3):199-208. 14 PELVIC PAIN ASSESSMENT - Form 2(b) Patient re-entry Version 2.1 - 27th November 2012 By placing a tick in one box in each group below, please indicate which statements best describe your own health state today: 1. Mobility I have no problems in walking about I have some problems in walking about I am confined to bed 2. Self-Care I have no problems with self-car I have some problems washing or dressing myself I am unable to wash or dress myself 3. Usual Activities (e.g. work, study, housework, family, leisure activities) I have no problems with performing my usual activities I have some problems with performing my usual activities I am unable to perform my usual activities 4. Achievement and progress I can achieve and progress in all aspects of my life I can achieve and progress in many aspects of my life I can achieve and progress in a few aspects of my life I cannot achieve and progress in any aspects of my life 5. Enjoyment and pleasure I can have a lot of enjoyment and pleasure I can have quite a lot of enjoyment and pleasure I can have a little enjoyment and pleasure I cannot have any enjoyment and pleasure ICECAP-A measure V2 © 2010 Hareth Al-Janabi and Joanna Coast 15 PELVIC PAIN ASSESSMENT - Form 2(b) Patient re-entry Version 2.1 - 27th November 2012