Minutes For The Diabetes Patient Meeting 25Th

advertisement
Hounslow CCG Diabetes Patient Reference Meeting
Thursday 25th June 2015
Age UK, Montague Hall, Montague Road, Hounslow, TW3 1LD
Present:
Adeola Adeleke Diabetes Engagement Officer
Ifrah Hassan
Community Nurse
Calvin Archibald Local Diabetes Patient
Stella Oryang
Local Diabetes Patient/ Health Trainer
Amarjit Bahkshi Community Leader
Mohinder Batra Local Diabetes Patient
Mandy Batra
Local Diabetes Patient
Daya Deegodamana Local Diabetes Patient
Nagaret Naidu Local Diabetes Patient
Elaine Willams Local Diabetes Patient
AB
MB
MB
DD
NN
EW
In attendance:
Prabha Vijayakumar Clinical Project Manager and Mobilisation Lead Service-CLCH
PV
AA
IH
CA
Apologies:
Julia Tyson
Achla Thakore
Asha Bawa
Kaplana Lamichhane
ITEM
1
DISCUSSION
Introduction of all attendees
Adeola Adeleke welcomed group members and explained her role as Diabetes Engagement Officergoes into the community specifically BME communities.
People introduced themselves and explained why they were interested. n
Ifrah Hassan is a community nurse in Hounslow she works with diverse ethnic group of patients who
mainly have diabetes.
Elaine Williams is a level three health champion; also she sat on the CCG’s Steering group for the new
providers who commission the diabetes services in Hounslow. She is a member of Diabetes UK and
attends their conferences/meetings.
Amarjit Bahkshi volunteers within the community including being a member of the Patient Carers
group. She is also a member of her practice Patient Participation Group (PPG)
Calvin Archibald is a type 2 diabetic interested in what the group entails and is hoping to contribute.
Nagaret Naidu is a border line diabetic her GP diagnosed her. She is a qualified nurse and she has
been controlling her diet and lifestyle which has helped.
Daya Deegodamana is Sri Lankan and has type2 diabetes. She is a former IT officer in the Sri Lankan
High Commission for the United Kingdom (UK). She is also a carer for her partner and she was
diagnosed in April 2015.
1
Prabha Vijayakumar is the manager for the new intermediate diabetes service CLCH. The service
manages type 2 diabetes services. They also do some work around prevention and type1 diabetes.
2
Review around the Terms of Reference for the Group
AA went through the terms of reference and explained that the group had been created to gather
patient feedback and experiences of the diabetes services in Hounslow.
Everyone who is a member of the group are either a type 2 diabetic, represent a group of people who
are at high risk of diabetes or a carer for someone who has diabetes.
(An example of a community representative is Mrs Bahkshi who is involved with the multicultural
centre in the Gurdwara and other groups within Hounslow).
The group will be interactive and group members should share experiences and make suggestions
that can help Hounslow CCG better diabetes services in Hounslow.



All group members agreed to meet up once every three months in a year
All group members agreed that future meetings to be held at Heart of Hounslow
Suggestions made by the group is to include looking into the connection between depression
and diabetes
Actions:




3
The next meeting in September AA will invite Dr Raquel Delgado the Diabetes Lead for
Hounslow CCG
AA will email/send out a copy of a journal/article to all members of the group
Mental health and the link with Diabetes will be discussed at a future meeting
(AA to contact Mental Health Lead and Commissioners).
New Intermediate Diabetes Service in Hounslow- CLCH
The new providers for Hounslow intermediate diabetes service (CLCH) explained their services.








The team consists of consultants, diabetes specialist nurse, diabetes specialist dietician,
psychologist, diabetes specialist paediatrics and diabetes specialist educators
The target is helping patients to manage their type 2 diabetes effectively and the treatment
plans are tailored to the individual.
CLCH also provide a short programme called Holding Off Diabetes this programme is design to
help patients to reduce the risk of developing diabetes.
X-PERT is an award winning programme that meets the NICE guidelines for providing
structured diabetes education for patients with type 2 diabetes. It is a 6 week programme
that educates patients about diet, exercise, medicine and lifestyle choices.
CLCH provides conversations maps which are designed to engage patients in an informative
group discussion and help to improve diabetes self-management. There are 4 conversation
maps and each session lasts for three hours.
The difference between the X-Pert programme and the conversation maps is patients who are
pushed for time and are very compliant and already know exactly what they need assistance
with, the conversation maps is tailored to these patients more.
All services provided are being funded by the Hounslow CCG has commissioned CLCH to
provide these services in Hounslow.
The service will be delivered for 5 years
Actions

PV will send copies of the CLCH leaflets to AA
2

4
PV will send Self-referral Forms for educational programmes to AA
Overview of the Diabetes Public Meeting Report 18th March
Question asked to the group
1. Why is diabetes a priority in Hounslow
The group discussed and felt - The reason why diabetes is a priority in Hounslow is because we have a
large population who are from different ethnic backgrounds especially in the South Asian and afroCaribbean population. These are the people that are at a higher risk
Question asked to the groups
2. As a community and as individuals why do you think we have underperformed over the years
in relation to diabetes care
The group discussed and felt - The reason why is because some of the ethnic communities having
English as a second language plays a part in understanding the impact diabetes has. Now that the
communities in Hounslow are now aware of diabetes it is a good sign but still believes there should be
more education provided in different languages.
The group discussed and felt- Food, stress, physical activities have a role to play in people managing
their diabetes if patients are educated properly and are implementing these factors they can properly
manage their type2 diabetes.
Actions

5
AA will bring in information around healthy walks and activities taking place in Hounslow
Closing comments, agenda items and action points
Next meeting will be held in September and invites will be emailed/ sent to all members of the group.
Date of Next Meeting
10
All 10.30 – 12.00 Sovereign Court
24th September 2015
3
Download