O33 ‘I wouldn’t wish this on anyone.’ An exploration of the lived experience of young adults with immune mediated kidney disease Logan S, Peracha J, Hewins P, Morgan MD, Harper L. University Hospitals Birmingham NHS Foundation Trust, Queen Elizabeth Hospital Birmingham Objectives: To explore the experience and perspective of young adults with immune-mediated systemic conditions involving kidney disease, including their adaptation to chronic illness and their experience of health care provision. To inform the provision and development of age appropriate health care for young people with long-term conditions. Methods: Pilot qualitative study with two focus groups of young adults (16-25years) with a diagnosis of immune-mediated systemic condition (SLE/ANCA associated Vasculitis). A total of 7 young adults participated (4 males, 3 females, age ranges (18-24), median age 21, 3 patients with SLE and 4 patients with ANCA associated Vasculitis) Results: All participants described the process of adapting to loss of good health status as a journey requiring adaptation of their previously perceived ‘normal’ state and functioning in order to, ‘re-learn who I am,’ and cope with the impact of the condition. Participants described anxiety about the future, particularly around the time of diagnosis and feeling overwhelmed with information, treatment and medication regimes. Over time coping strategies are developed however awareness of having an ‘invisible illness’ and lack of understanding of peers and the impact of symptoms including fatigue can negatively affect young people. Living with immune mediated disease may result in missing out on usual young adult activities such as going out and socialising. Young people value continuity of care and provision of age-appropriate health care facilities, describing feeling isolated when cared for within mainstream adult out-patient health care setting. Young adult clinics also allow young people to meet others of similar ages with similar conditions, thus also offering a means of peer support and shared experience to develop. Young people prefer a ‘one-stop’ clinic approach where information and advice can be sought on all aspects of their healthcare needs and health promotion advice. Young people are keen to develop peer support for others newly diagnosed with immune mediated kidney disease and to have access to clear easily understood information. The clinical nurse specialist role is valued by young people as an accessible point-of-contact, someone who is easy to talk to and a reliable source of information, advice and support. Conclusions: Young people with immune-mediated conditions face complex challenges in adjusting to living with a long-term condition whilst also completing the developmental tasks of young adulthood, moving from dependence upon parents to independent living and developing independent relationships. Young adult clinics are a valued means of providing age-appropriate care for young adults.