New York State Speech-Language-Hearing Association Comment Regarding the Proposed Rulemaking for the Early Intervention Program May 7, 2010 The New York State Speech-Language-Hearing Association made significant public comment regarding our concerns about the proposed changes in the regulations governing the Early Intervention program. We continue to remain very concerned that the proposed criteria for initial and continued eligibility for communication services will exclude some children with significant delays from receiving critical EI services. In addition we strongly recommend that the current practice of utilizing personnel who have only a bachelor’s degree in communication disorders be discontinued because the individuals do not have any direct clinical experience, professional course work or clinical practice hours in working with children under the age of three. In addition we remain very concerned that children with feeding disorders, which may be severe, will not qualify for EI services. As always our concerns and recommendations on the proposed regulations are intended to ensure that disabled children receive the EI services they need from the highest qualified providers and that access to quality services is preserved. Eligibility for Communication Services We continue to be concerned that children ages birth to three with speech-language disabilities are being held to a different standard than children with disabilities in other domains. It appears to be discriminatory to require a different and a more severe level of disability for children with communication-only disabilities at a time when the American Speech-Language-Hearing Association is indicating that current data on “later talkers” shows that these problems do not resolve on their own. The new research indicates that children with speech impairments are more likely to have reading and social problems later. “We know the earlier the intervention, the better the brain can reorganize.” (Dr. Diane Paul-Brown, director of clinical issues, ASHA) In addition, in the field, it has been the experience of many providers that Early Intervention Officials and county-employed service coordinators do not accept informed clinical opinion or reference to the clinical indicators as described in the Clinical Practice Guidelines for Communication Disorders to assist in determining eligibility, making it a greater concern that children with speech and language disorders will not have access to needed services. Many service coordinators are not aware of the enhanced surveillance as outlined in the Clinical Practice Guidelines and will accept children as eligible or not eligible, losing the opportunity to follow children over a period of time to better assess the need for communication services. We also continue to have grave concern for children with feeding and swallowing disorders. When these children have severe feeding needs but lack other developmental delays the feeding disorder alone will not create enough of a delay to pull down the motor domain to a level of eligibility. Children with G-tubes due to previous medical problems and children with food refusal may not have a significant developmental delay in a domain and they will not qualify for services. Is it the intention of the Department to have these infants and toddlers be ineligible for EI services? Children with Childhood Apraxia of Speech , a speech motor disorder the severely impacts a child’s ability to speak will not be eligible to receive speech therapy services through the Early Intervention Program because it impacts expressive language and will not meet the eligibility standard. These children generally require many years of speech therapy services to speak intelligibly and the best progress is for children who receive therapy to communicate effectively as early as possible. Children with syndromes, such as Prader-Willi, have an abundance of expressive language but have severe delays in receptive language, thus, making standardized evaluations invalid. Continuing Eligibility A child with a communication disorder at 1 Standard Deviation below the mean would still be functioning well below the expected level as same aged peers. A child with less than 1 standard deviation below the mean when a child’s age is counted in months can translate to years when a child’s age is over 3 years of age. This form of criteria is less valid for younger children. To drop a child with a history of a communication disorder from EI when the child has only partially improved puts them at a high risk for continued delay as they will not be able to achieve skills in a normal range without continued support. Some municipalities required formal testing scores every six months (which is not consistent with practice standards). When children make mild progress they may “test out” of eligibility within a few months of services being started and this is not a valid criterion for discharge from speech therapy services. If the EIP has billed the family’s insurance they may have used the entire benefit available for the family leaving the family with no means to access speech therapy for their child. Use of TSSLD/TSHH NYSSLHA continues to oppose the use of individuals who do not hold nor are eligible for a license in NYS as a speech-language pathologist. The teaching credential issued by NYSED (TSSLD/TSHH) does not extend to the birth to three population; it only extends to children 3 years of age. EI is not a school setting as is the intended use of the TSSLD and TSHH credential and has no validity in the birth to three population. A child who has been identified as having -2 standard deviation performance in the communication domain is not a child who requires language enrichment but a child who qualifies for and is in need of speech and language therapy by a qualified speech-language pathologist (originally PL94-142 stated speech therapy can be delivered only by a speech-language pathologist). The TSSLD/TSHH has no experience to deal with delays caused by severe medical conditions such as Cleft Palate, Pierre Robin, Cerebral Palsy, Prader-Willi and Autism Spectrum Disorders. Providing special instruction is not providing speech and language therapy and the child is being denied access to the appropriate service by the appropriate professional. Personnel who have a bachelor’s degree in communication disorders and initial certification have no EI-related coursework or clinical practicum hours working with children under the age of three. In fact, the teacher certification program is geared toward preparing students to work in a public school setting with minimal relevance to treating children age birth to three. Despite the lack of relevant coursework and clinical experience, they are permitted to provide EI services in the community if employed by an agency -- even if they are fresh out of undergraduate school. I have submitted charts with this testimony that compare coursework and clinical requirements at the bachelor and masters level. NYSSLHA would also like to emphasize that the current EI standards are less restrictive than the 4410 program regulated by the State Education Department (SED). Under 4410, the TSSLD and TSHH work as employees and provide services in a school program. They are not allowed, even as an employee, to provide professional services in a community setting. Again, in the EI program, the TSHH and TSSLD are providing services to children in the community with no immediate supervision and no experience or clinical practice hours in providing care to children under age three. In addition, the American Speech-Language-Hearing Association does not accredit the bachelor’s level programs and does recognize the TSSLD or TSHH as a viable credential for the practice of speech and language therapy. New York only recognizes the TSSLD/TSHH credential for the provision of speech therapy services by employees working in an exempt setting (schools serving children age three to twenty-one and government employees are the only exempt settings.) However, children from three to five serviced outside a school setting must be treated by an individual that possesses a NYS license in speech-language pathology. Under current State Law, any individual who is contracting to provide services in speech-language pathology must have a New York State license in speechlanguage pathology as required when engaging in private practice and when third party billing occurs. There is no rationale for placing new, stringent work experience requirements on the highest qualified providers, and continuing to allow inexperienced, untrained individuals to provide care to disabled children. Referrals Based on Medical/Biological Risk Factors NYSSLHA is concerned that the language regarding referrals for children with possible hearing loss continues to not be inclusive enough to insure that children at risk for a hearing loss will be referred to the Early Intervention program. We recommend that the proposed regulations be modified to read: Suspected hearing impairment (e.g. delayed speech-language development, suspicion based on gross screening measures) or risk of hearing loss based on familial history, syndromal presentation, or failure of new born infant hearing screening for which follow up testing has not yet been conducted. If you have any questions or would like additional information, please contact the NYSSLHA office at (518) 786-0947.