Data Linkage and Extract Service Mental Health Minimum Data Set (MHMDS) Data Form 1. Introduction The Health and Social Care Information Centre’s Data Linkage and Extract Service provides historical extracts for organisations that are not authorised to access record level MHMDS extracts via the Bureau Service Portal, or who have other requirements (e.g. a single extract for multiple organisations). Historical extracts are ad-hoc extracts for historical years of data in an annual extract delivered to a pre-determined specification, i.e. a set list of data fields only. The product is chargeable and subject to a contractual agreement to ensure the security of data that could, potentially, be considered disclosive. This data form must be submitted with an accompanying application form when requesting MHMDS data and/or the bridging file which enables linkage between MHMDS and Hospital Episode Statistics (HES) data. By completing this data form applicants indicate that they understand the specific conditions applying to use of MHMDS data (see section 3). Applicants who require ‘sensitive’ extracts will be required to submit additional information to support an application to the Data Access Advisory Group (DAAG). For further information, please visit the Data Linkage and Extract Service web page at www.hscic.gov.uk/dles 2. Description of the Products Historical extracts of MHMDS data provide annual extracts of historical data, with data available from 2006/07 to 2012/13. The HSCIC can supply either sensitive or non-sensitive extracts. Non-sensitive extracts DO NOT include any data about uses of the Mental Health Act. Sensitive extracts include information about uses of the Mental Health Act including detentions and community treatment orders. Other than the options for sensitive or non-sensitive data, the content of all extracts is the same. Historical extracts for annual files from 2011/12 are supplied as four, linked delimited files. Further information about the data specifications for MHMDS versions can be found on the MHMDS web page. 3. Specific Conditions of Use Payment will be required within 30 days of being invoiced. Invoices will be issued at the start of the service. The HSCIC has the right to refuse to grant you permission to publish information arising from Mental Health data on the grounds of information confidentiality. Any reports, papers or statistical tables that are published or released to other organisations must not identify individuals or enable individuals to be identified. The HSCIC publishes details of the way in which submissions are processed and provides regular information about the coverage and data quality of MHMDS and any known data quality issues that might affect the statistics being released. However, MHMDS is a rich and varied data set and packages of care vary widely. It is the responsibility of the user to assess the quality of the data for your intended purpose and the HSCIC cannot be held responsible for any shortfalls or duplications in the data that affect your intended purpose. You should give the HSCIC notice of your intention to publish Mental Health data and, where possible, a copy of the published work. Any published work containing Mental Health data must acknowledge the HSCIC as the source. The data must be stored with proper safeguards to prevent unauthorised access. Please note: this condition is subject to unannounced site inspections by HSCIC staff to make sure that measures are satisfactory. You must inform the HSCIC as soon as possible if custodianship of the data should change. The new data custodian must give assurances in writing that they will continue to follow the terms of this document. The data custodian must also report any relevant changes to the HSCIC. These changes might be changes in the personnel who have access to the Mental Health data, or to the systems on which the data is held. 4. Product(s) Requested By submitting this data form with an application form you are requesting either cumulative data from the start of the year (April) to the current month with update files to be provided on a monthly basis until and including the final month of the year (March) or an ad-hoc historical/year to date extract delivered once to a standard specification. 4.1 Required Data Please indicate below whether sensitive or non-sensitive data is required. For a definition see section 2. Description of the Service (above) I require non-sensitive psuedonymised ☐ extracts I require sensitive psuedonymised extracts* ☐ *If sensitive data items are required, you must ensure that in section 2.1 Purpose, Aims and Intended Reuse of the Application Form you explain the reasons why sensitive data items are required and describe how each item is to be used. 4.2 Historical Extract Data Years The MHMDS is a nationally approved data set which has gone through a number of changes since it was introduced in 2003/04. There were significant changes between 2010/11 (version 3.5) and 2011/12 (version 4) including changes to the way the data is processed and the overall format of the extracts. A full history of changes to the Data Specification can be found from this page: www.hscic.gov.uk/mhmds/spec. These changes mean that like-for-like time series analysis across these years is technically difficult and may be unreliable. Historical Extracts are available by year in an annual extract. Please indicate any required: 2006/07 2008/09 2010/11 2012/13 ☐ ☐ ☐ ☐ 2007/08 2009/10 2011/12 ☐ ☐ ☐ 4.3 Linked HES-MHMDS Data A bridging file is now available that links the pseudonymised MHMDS person ID to the pseudonymised HESID. Further information about the linkage bridging file is available at www.hscic.gov.uk/hesmhmds The bridging file is updated monthly using the most recent HES and MHMDS data but covers the full history of submissions. For MHMDS the data available for linkage goes back to 2006/07. The data available for HES goes back to 1997/98. Matches between the data sets may occur at any time, for example linking a person seen in MHMDS in 2006/07 to a person seen in HES in 2013/14. For this reason the matched records identified in the bridging file will be subject to change as the underlying HES and MHMDS indexes are updated. Please indicate below if you require this file. I require the HES-MHMDS bridging file ☐ If you require the associated HES data, you should complete the relevant HES data forms and submit them along with your application form and this data form. Further guidance and all of our application forms can be found at www.hscic.gov.uk/dlesapplications If you already possess the associated data and wish to use the bridging file to link MHMDS data to your existing data set, you must provide the extract specification reference number (ET###/TDLS###/DLS####) for the original extract (see the relevant Data Reuse Agreement/Data Sharing Contract). This will enable us to pseudonymise the bridging file using the same key as your previous HES extract. I require this to be pseudonymised using the same key as a previous extract. The extract specification reference number for the original extract is: 5. For Internal Use Only 5.1 Reference Number 5.2 Date Received If you experience any difficulties completing this form or would like to speak to us about making an application, please contact the HSCIC contact centre on tel: 0845 300 6016 or email: enquiries@hscic.gov.uk