EMAIL TEMPLATE TO DATA CUSTODIANS
[INSERT CUSTODIAN NAME, TITLE AND POSITION, if available]
Data Custodian
[INSERT COLLECTION NAME/S]
Attached please find a draft paper [NAME OF MS], which we
propose to submit to [NAME OF JOURNAL]. In accordance with
Population Health Research Network requirements for publishing
research material using linked data (http://www.phrn.org.au/forresearchers/data-access/publishing-research-material/) we are forwarding the
manuscript for your review. Access to this data was approved
under [INSERT HREC APPROVAL NUMBER]
We look forward to any comment or feedback you would like to
provide, if possible within two weeks.
Regards
[INSERT NAME]
If no response from data person, follow up email after two weeks:
[INSERT CUSTODIAN NAME, TITLE AND POSITION, if available]
Data Custodian
[INSERT COLLECTION NAME/S]
Two weeks ago we provided you with a draft publication [NAME OF
MS], which incorporated data from [INSERT NAME OF DATASETS]
and asked for any comments or feedback from you.
Please advise whether you would like additional time to comment,
or if you are satisfied that we submit this paper to [NAME OF
JOURNAL]?
Regards
[INSERT NAME]
STATE
ACT



NSW



VIC
WA




Collection name
Perinatal Data
Collection
Admitted Patient
Collection
HREC approval
ACT Health
ETH.6.13.148
Cancer Registry
As above
Perinatal Data
Collection
Admitted Patient
Data Collection
NSW Ministry of
Health
2011/11/357
Central Cancer
Registry
As above
Victorian Cancer
Registry (VCR)
Midwives
Notification System
Cancer Council
Victoria
1205
Department of
Health WA
2011/70 (to 2015)
2015/47 (2016)
Hospital Morbidity
Data Collection
As above
Cancer Registry
As above
Inpatient Hospital
Separations
SA Health
HREC/12/SAH/91
Perinatal Statistics
Collection
As above
SA Cancer Registry
As above
SA



Data custodian
To contact the custodians for these collections,
please email HealthInfo@act.gov.au
Chief Health Officer
ACT Government Health Directorate
via Director ACT Cancer Registry
Epidemiology Branch
PO Box 11, WODEN ACT 2606
Phone: 02 6205 2610
Email: cancerregistry@act.gov.au
Lee Taylor
Associate Director, Epidemiology and Biostatistics
Centre for Epidemiology and Research
NSW Ministry of Health, Locked Mail Bag 961,
NORTH SYDNEY NSW 2059
Phone: 02 9391 9223, Fax: 02 9391 9232
E-mail: ltayl@doh.health.nsw.gov.au
Director, Cancer Services and Information
Cancer Institute NSW,
PO Box 41, ALEXANDRIA NSW 1435
Email: DARenquiries@cancerinstitute.org.au
Phone: 02 8374 3551, Fax: 02 8374 3600
Cancer Council of Victoria and Department of Health
(TBA)
Maureen Hutchinson
Manager, Maternal and Child Health Unit
(08) 9222 2417
maureen.hutchinson@health.wa.gov.au
Vikki Mirosevich
Acting Manager Hospital Morbidity Data Collection
(08) 9222 4362
vikki.mirosevich@health.wa.gov.au
Tim Threlfall
Principal Medical Officer /
Manager WA Cancer Registry
(08) 9222 4022
tim.threlfall@health.wa.gov.au
Ms Tina Hardin
Director, Information Management
System Performance Division
PO Box 287, Rundle Mall, Adelaide, SA, 5001
08 8226 7329
DACRDataRequests@health.sa.gov.au
Dr Wendy Scheil
Head Pregnancy Outcomes Unit
Epidemiology SA Health
Epidemiology@health.sa.gov.au
Dr Katrina D’Onise
Epidemiology SA Health
Epidemiology@health.sa.gov.au
STATE
QLD 


Collection name
Perinatal Data
Collection
Qld Hospital
Admitted Patient
Data Collection
Qld Cancer Registry
HREC approval
Not required
Data custodian
Contact via Queensland Health - Health Statistics
Unit
hlthstat@health.qld.gov.au
The Registrar (Carly Scott)
Queensland Cancer Registry,
Locked Bag No. 1450,
Spring Hill Post Office QLD 4004
07 3634 5333
carly_scott@health.qld.gov.au
(generic: qcr@cancerqld.org.au)