CONFIDENTIALITY IN CLINICAL WRITING 1 Confidentiality in Clinical Writing: Ethical Dilemmas in Publishing Case Material from Clinical Social Work Practice Susanne Bennett The Catholic University of America Author Note Susanne Bennett, PhD, LICSW, is an Associate Professor at National Catholic School of Social Service of The Catholic University of America in Washington, DC. Correspondence regarding this article should be addressed to Dr. Bennett at NCSSS-CUA, 100 Shahan Hall, 620 Michigan Avenue, NE, Washington, DC, 20064; email: bennetts@cua.edu. CONFIDENTIALITY IN CLINICAL WRITING 2 Abstract This article summarizes perceptions of experienced social work clinicians and journal editors regarding the ethical dilemmas of publishing confidential case material in writing about clinical practice. Based on a qualitative study of 8 professionals, participants explore the benefits and limitations of clinical writing, informed consent and disguise of case information, and personal and editorial policies regarding publishing confidential material. While embracing ethical obligations, participants express confusion and ambivalence about preferred means of protecting client privacy. This article reviews literature on the ethics of clinical writing and makes recommendations for social work educators and practitioners who publish their work. Keywords: ethical dilemmas, clinical writing, confidentiality, informed consent CONFIDENTIALITY IN CLINICAL WRITING 3 Confidentiality in Clinical Writing: Ethical Dilemmas in Publishing Case Material from Clinical Social Work Practice Although many social work journals publish empirical studies about clinical practice, others give context to practice through illustrations of clinical cases. This difference in focus mirrors the discourse within the profession regarding empirically based versus theoretically based practice (Gambrill, 1999, 2006; Goldstein, 2007; McNeill, 2004; Simpson, Williams, & Segall, 2007; Rosen, 2003; Thyer, 2007). Despite contrasting approaches, all authors face the same challenge of describing empirical methods or clinical interventions in an ethical manner. As Gambrill (2006) has emphasized in her review of the current landscape of evidence-based practice, social workers must first follow “ethical obligations described in professional codes of ethics: beneficence, avoiding harm, informed consent, and maximizing autonomy and self-determination” (p. 339). Application of a code, however, does not erase the confusion that exists about the ethics of writing and presenting examples of clinical practice. The latest National Association of Social Work Code of Ethics (2008) does not address specific guidelines for the use of confidential case material in published clinical writing. Although the NASW code mandates that professionals obtain informed consent from research participants, it does not equate clinical case writing with empirical CONFIDENTIALITY IN CLINICAL WRITING 4 research. Nevertheless, some scholars say that clinical cases could be considered single case design studies (Cooper, 2006), and Weston (2002) has proposed that “cases are every bit as empirical as experiments – that is, they involve observation of events in the world, which is what empirical means – and they can yield a great deal of insight” (p. 882). The American Psychological Association (2010) is more explicit than NASW in its ethical guidelines for the “Use of Confidential Information for Didactic or Other Purposes” (No. 4.07). It specifically instructs psychologists to disguise confidential material and obtain informed consent from any client being discussed in written or oral presentations. With these mandates in mind, questions emerge about the ethics that undergird case presentations in social work journals and academic texts on clinical practice. Were informed consents obtained from the clients under discussion, and were the details of their lives well disguised? Or, were the case presentations fictionalized to illustrate a particular point about social work practice? Such ethical questions regarding the use of confidential material are particularly relevant for journals that publish clinical case content, but with few exceptions, there has been little discussion about these questions among social work educators or clinical authors. In order to explore these questions and address the paucity of research about them, a qualitative study of clinical writers and journal editors was conducted to examine the ethical issues regarding the publication of confidential clinical case material. This study was designed to investigate the practice of clinical writing among social workers and explore the ethical dilemmas thought to exist. The following is a brief review of the literature on this topic, an overview of the methodology of the study, and a discussion of the qualitative findings that emerged from the narratives. CONFIDENTIALITY IN CLINICAL WRITING 5 Literature Review Ethics in Social Work Practice and Research Historically, attention to ethical issues has been central to social work and is considered “the lifeblood of the profession” (Reamer, 1998, p. 497). According to Reamer (1998), guidelines for ethical practice have evolved as the social work profession has developed, with a current emphasis on ethical standards and risk management. Reamer (2005) further notes, “Difficult ethical choices in social work, or ethical dilemmas, emerge when social workers encounter competing values, duties, and obligations,” and these dilemmas “occur in every social work domain” (p. 165). Managing confidentiality in clinical writing can lead to such dilemmas. In general, confidentiality has been defined as the legal and ethical regulations that protect either the research participant or the client in terms of their rights to privacy (Millstein, 2000). Ethical dilemmas center on conflicts between the rights of the individual to privacy versus the rights of the larger community to have access to the client’s private information. In direct practice, such conflicts are evident in the dilemmas about writing and protecting case records, in sharing confidential information for purposes of referral or consultation, in following mandates regarding duty-to-warn or duty-to-protect, and when there is court involvement such as in child welfare cases and adoption (Millstein, 2000; Palmer & Kaufman, 2003; Reamer & Siegel, 2007; Saxon, Jacinto, & Dziegielewski, 2006). Yet Millstein’s (2000) study of 372 direct practice MSWs suggested “there is a gap” (p. 278) between what clinicians understand to be their ethical obligations and what they actually do in practice, particularly regarding confidentiality. Over half the respondents in Millstein’s study reported they did not have clients sign consent forms prior to the release of confidential clinical information to other professionals. CONFIDENTIALITY IN CLINICAL WRITING 6 In research, the concept of confidentiality holds a different meaning. Empirical studies are designed to gather and disseminate data in a manner that protects the participant’s anonymity or right to privacy, but data collected is not considered confidential because aggregate findings are released. Although all research must be approved through Institutional Review Boards to assure the protection of human research subjects (U.S. Health and Human Services, 2009), that process does not remove the ethical dilemmas about protecting anonymity. According to Delva (2007), the process of “protecting the rights and welfare of human research subjects recruited to participate in research activities is fraught with complexities and dilemmas” (p. 101). For example, assuring that a participant’s consent is truly “informed” can be challenging (Palmer & Kaufman, 2003). Social work journals generally do not require authors to present evidence of signed consent forms prior to the publication of research studies. Likewise, journals do not require evidence that authors have protected clients discussed in clinical articles that include confidential case information. In fact, clinical information does not fall under the same HHS guidelines as research data unless the interventions that produced the information were deemed part of a single case design study. Ethical Dilemmas in Clinical Writing Though little has been written in social work, a growing body of commentary and research regarding confidentiality and the ethical issues in clinical writing can be found in the psychoanalytic literature (Aron, 2000; Gabbard, 2000; Galatzer-Levy, 2003; Goldberg, 2004; Kantrowitz, 2002, 2006; Levine & Stagno, 2001; Wharton, 2005).1 Historically, psychiatrists and psychoanalysts have included detailed case summaries in their professional literature as a means of developing theory and illustrating new technique. This form of writing is considered to be a scientific and valued avenue for professional pedagogy (Levine & Stagno, 2001). However, with the advent of computer 1 For expanded reviews of this literature, see Kantrowitz (2006) and Levin, Furlong, & O’Neill (2003) CONFIDENTIALITY IN CLINICAL WRITING 7 technology and ready access to the content of professional journals, some patients reportedly have discovered their private stories published without consent and without sufficient disguise (Levin, Furlong, & O’Neill, 2003). Such breaches in trust, combined with a professional shift toward more relational collaboration, triggered an increased debate about clinical writing. One of the ethical dilemmas to emerge was how to publish new scientific ideas in practice and theory development without damaging the therapeutic relationship or violating patient privacy. Among the analysts who have voiced opinions, two have summarized these complex issues with clarity and conviction. Aron (2000) and Gabbard (2000) both argue that informed consent from the patient and heavy disguise of the patient’s identity should be essential requirements for publishing any clinical work. In addition, they both suggest that consent and disguise do not alone preclude the emergence of ethical, clinical, and even legal dilemmas. Gabbard notes that the patient’s capacity to give honest consent may be skewed by transference, and “we can never know in advance…how that patient will react” (p. 1080). Aron agrees and points out that transferences are continually changing. Over time, the patient could exact legal charges against the analyst for seeking consent at a time the patient was most vulnerable. Both Aron and Gabbard recognize the potential risks and benefits for the therapeutic relationship when analysts collaborate with patients regarding clinical writing. They also believe that ethical dilemmas exist due to conflicts of interest between the analyst, who may wish to publish, and the patient, who generally wants privacy maintained. Over the course of several years, Kantrowitz (2002, 2006) conducted extensive qualitative research focusing on these issues. A psychoanalyst and clinical professor of psychology at Harvard’s Medical School, she interviewed 141 of her colleagues regarding the ethics and complexities of clinical writing. Her sample included a wide range of American and European psychoanalysts who published in three different journals, and she explored their experiences with clinical writing and their views about the impact of this on their patients, who sometimes were interviewed. In her CONFIDENTIALITY IN CLINICAL WRITING 8 book summarizing this body of work, she states: “There are no easy answers about how to write, when to write, or who and what to write about. Simple rules will not work” (2006, p. 308). Despite this rich discussion in allied professions about the ethical challenges of clinical writing, only three studies or commentaries have emerged from the social work literature on this topic (Bennett, 2006; Bridges, 2007; Naiburg, 2003). In a qualitative study of 12 social work journal editors, Naiburg (2003) examined the peer review process of reviewing clinical manuscripts for journal publication. Though confidentiality was not the specific focus of her study, she reported, “many of the editors identified it as one of the biggest challenges for clinical writing” (p. 102). One editor told her he looks for “finely discriminated details” when determining clinical manuscripts suitable for publishing; but as Naiburg noted, such “vivid, thick description often requires more details than the limits of confidentiality allow” (p. 101). Bridges’ (2007) study directly addressed the focus of ethical dilemmas in publishing confidential case material. She described her experience of seeking the consent of 16 clients for publishing their confidential clinical vignettes in a book she authored on social work practice (Bridges, 2005). In the consent-seeking process, she encountered a wide range of emotions from her clients, some positive and others not, but she found she was able to use their reactions as “valuable therapeutic material and movement” (2007, p. 40) in the therapeutic process. Bridges (2007) cautioned: “the process of seeking consent forever changes the therapeutic endeavor in ways that may enhance or derail exploration and patients’ development” (p. 39). In her role as a clinician, the investigator of this study also collaborated with a client on a published writing project about their therapeutic relationship (Bennett, 2006). Since only one client was involved in this process, in contrast to 16 clients in Bridge’s work, the conclusions were limited in scope. However, both client and clinician found the writing process changed the therapy trajectory, and they agreed that their collaboration was not harmful to the client; instead, it CONFIDENTIALITY IN CLINICAL WRITING 9 facilitated the client’s emotional development and interpersonal functioning. Moreover, the ethical and therapeutic ramifications of this clinical experience enriched the clinician’s awareness of the opportunities and complexities of clinical writing. In addition to this particular collaboration, this investigator has had a variety of experiences publishing clinical work and has used a range of approaches to disguise confidential clinical material. In her role as a social work educator, the investigator is interested in the ethical dilemmas that emerge when the client’s right to privacy and the clinician’s responsibility to respect that right compete with the societal good of educating other professionals about the process of social work practice. These ethical issues served as the impetus and foundation for the following qualitative research. Methodology This qualitative study was designed as an exploration of the experiences and opinions of veteran social work practitioners who publish clinical case material in social work journals. Based on a realist epistemology, the study’s goal was to examine potential ethical dilemmas evoked by clinical writing. Areas of inquiry for the interviews were developed after reviewing literature from other disciplines regarding clinical writing, particularly the initial qualitative study conducted by Kantrowitz (2002). Through open-ended questions, the investigator examined the participants’ education and training, experiences with clinical writing, ethical and therapeutic challenges evoked by undertaking such writing, and recommendations for the social work profession regarding publishing clinical case material. Sample The investigator selected a purposeful sample of senior-level social workers who were well published and had written clinical articles including case material. Two previous editors of social work journals that publish summaries and discussions of clinical intervention recommended names CONFIDENTIALITY IN CLINICAL WRITING 10 of potential participants. Of the persons suggested by these editors and contacted by the investigator, eight persons agreed to participate in the study. All participants were clinical social workers, and seven of the eight were either full or part-time clinicians in social work private practice. Three had published professional and academic books on social work practice. All had taught in graduate level social work programs either as adjunct instructors (n=3) or full-time professors (n=5). At the time of these interviews, four were Editors-in-Chief of social work journals that published articles with clinical case material. In terms of education and training, all participants had MSWs and four had PhDs in social work. All were trained in psychodynamic theory and practice, but their approaches varied from practice based on ego psychology to contemporary relational models of practice. All participants were white; four were women, and four were men. Data Collection Audio taped interviews were conducted by telephone (n=7) and in-person (n=1), and length of interviews ranged from 1-2 hours. Interviews were transcribed verbatim and then reviewed by the participants. To more closely reflect his views, one participant edited his interview. Prior to submission for publication, the manuscript was given to all participants to read and confirm that the quotations of each participant were presented accurately. Data Analysis In analyzing the data, the investigator used a grounded theory approach of “constant comparative analysis” (Charmaz, 2006; Corbin & Strauss, 2008). The investigator first deconstructed the data into conceptual categories of the phenomenon discussed in the narratives (open coding), and then collapsed and reformulated these categories into larger categories (axial coding). Through the method of constantly comparing the data with the open and axial codes, as well as reviewing field notes and code memos, themes began to emerge from the data to address the focus of this study. In line with a grounded theory approach, particular attention was given to CONFIDENTIALITY IN CLINICAL WRITING 11 the context of the phenomenon, the processes under discussion, and the action-interaction strategies explored by the participants. Analysis of the data was reviewed and discussed with a professional colleague to increase trustworthiness. Atlas.ti qualitative data analysis software was used to facilitate the coding process. Study Findings The following summary of findings is organized according to the primary areas of inquiry. First, participants were asked about their familiarity with the historical context, the literature, and the professional debates regarding ethical and clinical dilemmas inherent in clinical writing. Second, they were asked to discuss their perceptions of the benefits and limitations of clinical writing. Third, participants were asked to explore their thoughts about ethical dilemmas in clinical writing and to share dilemmas they have experienced in writing about their clinical work. Finally, participants were asked to describe their personal policies about managing ethical dilemmas in clinical writing, and in the case of journal editors, to describe the professional policies of their journals at the time of the interview. The following discussion summarizes responses from these four areas of investigation. Familiarity with Historical Context These eight participants were unequally familiar with the debates regarding the ethical and clinical dilemmas inherent in clinical writing. At the time of their interviews, three of the four editors were not aware of this topic being discussed “very much” among social work journal editors or educators. However, one editor and two non-editors were knowledgeable regarding the broader discourse and gave historical context to these concerns. They noted that discussions about clinical writing and debates about client involvement in that process began to emerge in the 1990s in the psychoanalytic community. The discussion became of special concern when “non-psychiatric folks would find their way to psychiatric literature” and would discover their own stories in journal CONFIDENTIALITY IN CLINICAL WRITING 12 articles or books written by their therapists. Prior to that time, one participant said, “There was a kind of doctor-knows-best mentality. We didn’t think of including our patients” in the decisions about publishing clinical work because it was common to use clinical case material to illustrate theoretical or professional views. Instead, she said, in her presentations and published writings, “I disguised. I used fictionalized composites...and I think I couldn’t bear the exposure of what I had actually said to people or had done.” Both this participant and two others noted that a cultural shift toward a “consumer-rights approach,” plus the advent of the Internet, jump-started the sophistication and interest of clients. One participant thought that social work clients might “Google” their clinicians, and he assumed that “private patients, particularly analytic patients, do so with some regularity, especially when transference issues are intense.” He recognized that clients sometimes find citations for manuscripts published by the therapist and then discover that the client’s own therapeutic session had been discussed without permission. He observed: In the old, old days when a client became curious about a therapist, s/he might look up the therapist in the telephone directory or look for information by asking people in the community. Now, when clients or patients become curious, they go to the Internet. Voila! And there the therapist is, along with references to much, if not all, of what s/he has written. Another historical influence that increased sensitivity regarding clinical writing was attention to compliance with the U.S. Health and Human Services (1996) Insurance Portability and Accountability Act (HIPAA) regarding confidentiality and case records. One person said, “With the advent of HIPAA, I’m a lot more gun-shy about using patient’s material.” Another participant stated emphatically, “If a therapist is going to write up a case report that attempts to describe a patient’s life experience and treatment, both the life and the treatment are the patient’s property.” He believed HIPAA applies to more than case records and should include clinical writing in the CONFIDENTIALITY IN CLINICAL WRITING 13 professional literature. To that end, “People should say, first, if they want their lives presented in the professional literature, and, second, in what form they want it presented.” Benefits and Limitations of Clinical Writing Though the debates about clinical writing and client involvement were new to some participants, all had opinions about the benefits and limitations of the undertaking. Everyone agreed it is “helpful to people to hear what other clinicians have actually said and done,” and they were convinced of the educational value of “explicating a clinical moment” for social work students and seasoned clinicians alike. One editor stated, “The main point of publishing treatment process is that it has value in informing other clinicians,” because “readers have opportunities to see clinical process unfold with particular patients.” Three of the participants saw therapeutic benefits to having clients informed and, possibly, involved in the writing process. One editor pointed out that clinicians who ask permission of clients to publish learn from the process, and it may facilitate the treatment. “I can imagine some pay-off in that I can be educated by clients about how it affects them, so it’s another opportunity to have clients teach me about themselves and about treatment.” Another clinician agreed and added, “The overwhelming pro in asking permission is that it may make it possible for the presentation of important clinical material, the absence of which would be a real loss to the profession.” In other words, publishing clinical material may be indirectly beneficial to the client in the sense that all therapists are then better educated and prepared. Although some participants saw advantages of client involvement in clinical writing, all noted limitations and were mixed about how to undertake the process of writing about clinical practice. One editor proposed that clinical writing has value but could not “be really accurate in a scientific sense. It’s just not possible.” She realized “there are going to be distortions in any case material that you publish…there’s no way to remove the distortion. It’s simply there, and there’s CONFIDENTIALITY IN CLINICAL WRITING 14 nothing you can do about it.” For this reason, she and several other participants published composite clinical work as “illustration, rather than fact.” Another participant echoed her views but did not support the use of composites. He said: “To a limited degree, all case write-ups are, in some sense, fictional because they reflect the therapist’s perception of the patient’s narrative; i.e., the patient as seen through the therapist’s eyes.” He believed composites are too distorting, and he preferred disguising his patient’s clinical material, rather than “mixing and matching patients.” With fictionalized composites, “you seriously distort the treatment process and the uniqueness of the relationship between patient and therapist.” In contrast, the previous participant made the following argument for composite clinical writing: Some people could say, “Well, why do it if it’s not real, how can it be used?” And the issue becomes for me, “How can you judge what is a good illustration?” I think that people who are good clinicians notice details, notice possibilities, and so they are included within the case material. Even if in fact this is not exactly the literal case from that material, you do get from that case material a real sense of what it is the person is talking about and what that might look like in practice. CONFIDENTIALITY IN CLINICAL WRITING 15 Ethical Dilemmas in Clinical Writing Whether case material is the disguise of one case or a composite of several, and whether a client’s permission has been granted or the clinician has published without asking, ethical dilemmas still exist. All participants were clear about that fact. Several shared the view of one who said, “What is good in a general sense for society,” such as benefiting the professional community, “is not necessarily the best thing for an individual.” Three ethical concerns relevant to this comment emerged from the data: (a) concerns about writing’s influence on the treatment process; (b) concerns about the risks to and protection of the client; and (c) concerns about the ramifications of the clinician’s self-disclosure. Writing’s influence on treatment. The first ethical challenge emerges when the client learns that the clinician writes for publication. “It shapes the treatment,” said one, because such information may trigger feelings within the client that could affect the work. In explaining this point, another participant observed, “many patients have fantasies about wanting therapists to write about them. It’s part of wanting to be important to your therapist.” However, one person thought that clients who want to feel special may begin to wonder, “All right, is this exchange going to appear in the next article?” Yet another participant said that one of his own clients “knows that I write a lot of clinical stuff…. She’s intrigued with the prospect of being written about, but it’s also disturbing her.” This participant was quite clear that he would never write about a client who was currently in treatment because “it feels like it’s introducing a parameter that I would prefer to avoid.” If the clinician wishes to publish clinical writing with the inclusion of a client’s confidential case material, simply asking the client’s permission does not lessen the ethical dilemmas. This is particularly the case if consent is requested at intake or in the midst of the clinical work. “Even to be asked to consent may be very off-putting,” one person said. Some clients may feel “that in order CONFIDENTIALITY IN CLINICAL WRITING 16 to be seen, they would have to agree” with the clinician’s request to write about them. “I don’t know if there are people who say it is okay but really didn’t wish it and thought they didn’t have a choice.” In other words, the power dynamics in clinical relationships, combined with transference issues, may complicate and thereby limit the freedom of clients to know what they feel and decide what they want in terms of granting consent. Client risks and protection. Despite concerns that arise when asking a client for consent to publish material, there was general agreement that, “from an ethical perspective, therapists should consult with and discuss case reports with patients while they are writing them.” The participants realized that “potential harm” could be done to a client if he or she discovered a clinician had published details of the client’s life without permission. To minimize that risk, one person thought it could be useful for the treatment process if the writing actually took take place “during the course of treatment, as well as at the end.” However, there are potential risks with that as well, depending on the type of treatment and the personality characteristics of the client. One participant, who is herself an ethicist, thought that “the ultimate question” should be whether “the protection of the client would outweigh the risk or the danger” to the client. She suggested that asking patients for their permission to publish, or having them involved in the writing process itself, “might expose certain clients to a kind of danger.” Clinicians should “make some good clinical judgments about who can handle” involvement in the writing process and “which clients might be basically too vulnerable or too paranoid or too just non-resilient.” For example, if a clinician asks permission to write about the life of a person with a borderline or narcissistic pathology, “the danger is that we’re complicating their pathology” by having this type of involvement. If such clients are involved in the actual writing process, this participant feared that such involvement could further set-back the treatment and wound the client’s sense of self if the article were refused by reviewers or had to be revised. CONFIDENTIALITY IN CLINICAL WRITING 17 Due to such concerns, seven of the eight participants had never asked clients for permission to write about them. Instead, they either wrote case composites or they heavily disguised the case material and hoped the client would never read it. It was pointed out that many social work clients may not be privileged enough to know how to access the Internet for publications written by their clinicians. Yet, that phenomenon in itself presents an ethical dilemma. The ethicist again asked: “Do we not have an obligation, an ethical obligation, if not a legal one, to give such clients just as much protection as we would the more sophisticated client?” This participant thought that “if writing is attempting to illustrate a process,” then it “probably is stereotypical to think that even the simplest client, who would not read a journal, wouldn’t be capable of understanding the contribution they could be making.” She believed informed consent should be asked of such clients, but she noted, “Very often, the poorest clients have also been so disadvantaged by systems that they have no good reason to trust the system.” In other words, as another participant summarized, asking clients for consent or involving them in the writing process, is “enormously complicated.” She based this statement on her view that “there is intrusiveness about this, no matter how benign we think it is. It is something of our doing, rather than their doing.” At least two others agreed with her and, as a result, expressed strong personal ambivalence about collaboration with clients, though they could see some value. One person, who is a journal editor, said: I can understand why one would decide to do that with a patient or wish to do that. You know, one wants to be fair, and one wants to not do something harmful to somebody, and one wants to respect the person’s rights, and I think all of those motives can be there, but— and again, I think some of this is a personal preference—it’s not something I feel comfortable doing. At least, not as yet. CONFIDENTIALITY IN CLINICAL WRITING 18 Another participant, also a journal editor, shared similar sentiments about informing or involving clients in the writing process. He said: “That’s something I feel intensely conflicted about. The conflict arises because I think doing so is a good idea, at least ethically and theoretically. I simply have not, yet, been able to bring myself to do so.” Clinician’s self-disclosure risks. In addition to concerns about risks to clients, clinicians who write often consider professional risks due to their self-disclosure. Three of these participants discussed the vulnerability they face when they write about their clinical work, thereby exposing themselves to the wider professional community. One person said: “For me, there’s a fair amount of anxiety involved in sharing the written work, both the wish that it be useful, that others might like it, and a worry about my own vulnerability and the exposure.” One possibility is that others will look at the work and interpret meanings not necessarily intended. Clarifying this point, one person said, “I do believe there is a dynamic unconscious. I believe there are things that patients tell us that they are not consciously aware of.” He further added, “I think there are things therapists experience that they (we) are not consciously aware of.” In other words, there is the risk that clinicians who write about their work are disclosing their own unconscious processes to a wider professional community. In reaction, there is the possibility that the writer’s self-disclosure may evoke criticism, contempt, or perhaps envy from his or her professional colleagues. Or, as one participant stated, some may think the clinician has “exhibitionistic needs,” rather than a priority on “what’s really in the interest of the patient.” There also remains the risk of disclosing the clinician’s unconscious processes to the actual client. If the clinician involves the client in the writing process—either by asking for permission to publish the work or by actually co-constructing the case for publication—the client is likely to see the clinician in a new way. One participant, who reportedly practices from a more traditional psychodynamic framework, expressed concern that the client would become aware of “the CONFIDENTIALITY IN CLINICAL WRITING 19 therapist’s self-serving motivations,” and he thought this could disrupt “the patient’s illusion that the therapist is only interested in ‘serving,’ in treating him/her.” He proposed: “Disrupting that illusion significantly changes the patient’s transference; current, retrospective, and prospective. It probably also changes the therapist’s countertransference.” Participants who practiced from a relational or constructivist framework took a different stance on the issue of therapist self-disclosure. One author, who intentionally involved her clients in the writing process, found that her “collaborative approach” to writing was similar to the “more mutual, open approach” she takes as a therapist. However, she discovered that when she collaborated with clients about writing, this sharing “was very mixed and very painful” for some of them. She admitted that part of her “anguish” as a therapist has been the “guilt and shame” she has felt for stirring up “toxic” feelings in her clients when they read her writing about their therapy. She said she worried about using her clients for her own purposes “and harming them.” Other participants also expressed concern about having clients read the clinician’s selfdisclosure regarding the clinical work. One person acknowledged he has “ambivalence about relational concepts,” particularly about self-disclosure. He said, “Even in writing up material about therapy that has ended, I imagine it would be very disconcerting to patients to hear more than what I’ve said in actual therapeutic conversations, to hear my hypotheses about what’s going on in their unconscious minds.” Along similar lines, a different participant discussed an experience that seemed to validate this view. He described how a former client returned to see him and then abruptly quit treatment and “fell off the face of the earth. Nothing unusual happened in our meeting, so I had this eerie feeling that perhaps he had found this article that I had in fact written about him” regarding their earlier work. “I ended up picking over words and phrases and wondered if he could have reacted to that. And so now I feel much more hesitant about writing about patients.” CONFIDENTIALITY IN CLINICAL WRITING 20 Personal and Professional Policies Personal policies. Professional experiences, as well as cultural, legal, and theoretical paradigm shifts, have influenced these participants in terms of their current personal policies on clinical writing. A couple of persons said that over their years of experience, they have become more open to client involvement in the writing process and would never again write without asking for a client’s signed consent. Several participants believed it was ethical to request both client permission and involvement, but they remained personally uncomfortable engaging in that process. Consequently, they have stopped including clinical case material in their writing, albeit disguised, and they only use fictionalized composites to illustrate their practice ideas. Two of the participants have stopped writing articles with case illustrations altogether. In other words, there was no consensus about the best way to address the ethical and therapeutic questions about clinical writing for publication. Three personal policies and approaches were proposed. Participants who did not ask permission, but still published actual clinical work, took a great deal of care to disguise all identifying information so that the client’s privacy could be maintained. One person said that as a beginning professional in the 1950s, he was taught that all writers of case material should “go through a series of steps to make it difficult, even for readers who know the client fairly well, to recognize who the client is.” That process included changing the client’s name, age, profession/occupation, and the location and description of the agency, as well as the dates of treatment and service. In other words, he changed all details that were not important to the case discussion, including those about family structure. However, this participant said he now feels that those “standards probably were adequate for the times they were designed in and for. They are, I think, not adequate for today.” Due to her awareness of the changes in today’s standards regarding confidentiality, one participant had developed a personal policy to both disguise and request consent from her clients. CONFIDENTIALITY IN CLINICAL WRITING 21 This approach included exploring with clients their range of feelings about publishing confidential clinical information and examining with them the risks and benefits for the client and the clinical process. For clients who have terminated treatment, she has invited them to return for free sessions to discuss possible writing. In all cases, she has had clients sign informed consents and does not publish case material if the client prefers privacy for any reason. Finally, many of the participants preferred to write a fictionalized composite as a practice illustration. One person described this process as taking “a kernel of something that actually happened with a patient that I think is important,” and then changing “a whole bunch of things.” She feels “that’s enough of a reworking so that I don’t have to share that with that patient.” Another participant said she would write “a story based on reality, a story based on clinical experience, but not necessarily the literal story of what happened with this particular client.” She was concerned that “there would be lots of people who would be horrified with what I’m saying,” but she felt that composite writing was the most ethical and legally sound way to write a case illustration. Journal policies. When each of the four editors were asked if there were formal written policies for their social work journals regarding clinical writing and client confidentiality, they all admitted no policies existed at the time of these interviews. The first editor interviewed stated that her journal “doesn’t have policies about that that I’m aware of. Essentially, as editor there was not need for it – not because it’s not an important topic – but the author takes responsibility for that and the journal doesn’t or would not.” She added: “Most journals would not.” However, she said the journal had no disclaimer, in the event a client should ever decide to take legal action against the author or the journal. The other three editors appeared to assume a more personal role for issues regarding client confidentiality, in contrast to saying it was totally the author’s responsibility. One said, “I have not formally articulated a policy that I inform the writer about, although I have standards that I use CONFIDENTIALITY IN CLINICAL WRITING 22 myself and apply to manuscripts that are submitted.” Another said, “There are certain assumptions I make that the venues are not described in detail, and the agency name is never published. We would catch something like that.” He added, “There’s a level of detail with which I’m not comfortable because I read all these things on numerous occasions before I commit them to publication, and then my inclination is simply not to include it.” Finally, the third editor noted that his publisher has a statement that requires the author to receive “any necessary permission to quote from another source.” Although he acknowledged this statement actually was referencing plagiarism, he thought it could apply to case writing. He admitted, however, that his journal’s unwritten policy is “very informal. It’s a taken-on-faith kind of thing. I certainly don’t do any checking-back with the person” who wrote the clinical case material. These editors concurred that there might be some value in having policies regarding written and oral clinical presentations specifically stated in the NASW Code of Ethics. They realized that these issues are not addressed directly in the NASW Code, while The American Psychological Association Code of Conduct “gives much more emphasis on the importance of disguising.” One person recalled that when he published in an APA journal, he had to “procure informed consent or I had to reassure them, basically, that the informed consent was therapeutically inadvisable or not possible.” In closing, these participants noted that informed consent is required for qualitative research studies, and they could see the argument for requiring informed consent for scholarly clinical writing as well. One said that clinical writing published in a journal is like reporting on a single case design study. Another agreed that he too sees clinical writing “as a form of qualitative research.” But, he said, “That’s not all it is. It’s the story of someone’s life…That’s part of what makes this issue so complicated.” CONFIDENTIALITY IN CLINICAL WRITING 23 Discussion The findings from this study suggested there are similarities in the perspectives of these social workers compared to other allied professionals who have explored the ethics of clinical writing. Like non-MSW psychoanalysts, these social work clinicians and editors shared strong commitments to their clients’ rights to privacy and expressed concern about how best to maintain confidentiality. The participants recognized the inevitable influences writing can have on the treatment process, varying from positive growth to potential harm for the client. In general, they shared the views of Aron (2000) and Gabbard (2000) that using heavy disguise and informed consent is the best path to follow if authors wish to use detailed case material of actual clients in writing about practice. Yet, like others, they expressed ambivalence about seeking informed consent from their own clients, though they agreed it is the ethical action to take. Another similarity between these social workers and the psychoanalysts studied by Kantrowitz (2006) is that their theoretical leanings seemed to influence their opinions about how to deal with the challenges presented by clinical writing. As with the analysts, the social workers who embraced a more relational form of practice – valuing mutuality and co-construction in the treatment process – expressed the most comfort with the concept of asking clients to sign consent forms and offering clients the opportunity to read the writing. The social workers that practiced from a traditional psychodynamic frame and used less self-disclosure were more ambivalent about informing or involving clients in the writing process. It is interesting to note that the social worker that seemed most oriented toward a constructivist postmodern frame was the strongest proponent of using case composites or fictionalized illustrations in clinical writing. This author seemed convinced that whatever form writing takes – be it case summery, composite, or pure fiction – it remains subjective, shaped by the clinician’s construction of the clinical process, rather than some objective reality. CONFIDENTIALITY IN CLINICAL WRITING 24 In contrast to Kantrowitz’ cohort of psychoanalysts, this group of social workers generally highlighted values that are central to the ethical perspectives and focus of the social work profession. Unlike the psychoanalysts interviewed by Kantrowitz – primarily psychiatrists and psychologists – these participants embraced social work’s commitment to working with diverse, oppressed, and marginalized populations. Their views supported Naiburg’s (2003) observation that social workers have a unique vantage point in terms of a bio-psychosocial perspective, the diversity of the populations served, and the values that underpin the profession. Like Naiburg, they agreed that workers are adept at capturing the context of clinical work. Consequently, social work writers potentially could influence allied professionals by enhancing their sensitivities to the diverse lives of social work clients. In closing, clinicians who are authors have ethical obligations to all clients and not just the ones who may read the clinician’s writings by searching the Internet. Though the economic or educational levels of many social work clients might lessen the likelihood they will scour the Internet, these clients are no less deserving of ethical treatment. Yet questions remain: Is it more ethical, and thus preferable, to present detailed examples of practice by way of fictionalized case composites? Or is it ultimately most useful and ethical to write disguised case discussions of real clients who have permitted clinicians to write in detail about their lives? Clearly, there are no simple answers to these questions. Generalizations cannot be made from such a small qualitative study, and additional research with a larger, diverse sample would be needed to explore these issues in more depth. Nevertheless, these findings suggest that ethical and therapeutic dilemmas exist when clinicians chose to include confidential case material in their writings. The findings further point out the need for educators to critically examine these issues in their classes and for journal and book editors to consider guidelines for assuring confidentiality in their publications. Most importantly, the findings underscore the need for clinicians who write – CONFIDENTIALITY IN CLINICAL WRITING 25 and who present at conferences and in educational settings – to consider the dilemmas inherent in this undertaking and to remember their ethical obligations. The solution to these dilemmas is not to dismiss clinical writing as unscientific or to suggest that “best” practices can only be validated through empirical research. In reality, a majority of social work practitioners and students are clinicians who likely prefer reading practice process in clinical writings, rather than practice outcomes in empirical research. They are hungry for good examples of the actual art of social work practice. In addition, more seasoned clinicians are interested in sharing what they have come to understand. As one senior clinician has written: “There comes a time in the life of every clinician when writing about therapeutic work is a natural next step in professional development” (Shechter, 2003, p. 65). The challenge for clinicians taking this next step is to remain true to the values and ethics of social work, while capturing the intimacies of the therapeutic process and the complexities of the human condition. CONFIDENTIALITY IN CLINICAL WRITING 26 References American Psychological Association (2010). Ethical principles of psychologists and code of conduct, 2010 Amendments. Washington, DC: Author. Retrieved from http://www.apa.org/ethics/code/index.aspx Aron, L. (2000). Ethical considerations in the writing of psychoanalytic case histories. Psychoanalytic Dialogues, 10(2), 231-245. Bennett, S. (2006). Clinical writing of a therapy in progress: Ethical questions and therapeutic challenges. Clinical Social Work Journal, 34(2), 215-226. Bridges, N. (2007). Writing about patients: Negotiating the impact on patients and their treatment. Psychoanalytic Social Work, 14(1), 23-44. Bridges, N. (2005). Moving beyond the comfort zone in psychotherapy. Lanham, MD: Jason Aaronson. Charmaz, K. (2006). Constructing grounded theory: A practical guide through qualitative analysis. London: Sage Publication. Cooper, M. (2006). Integrating single-system design research into clinical practice class. Journal of Teaching in Social Work, 26(3/4), 91-102. CONFIDENTIALITY IN CLINICAL WRITING 27 Corbin, J., & Strauss, A. (2008). The basics of qualitative research: Grounded theory procedures and techniques (3rd ed.). Newbury Park, CA: Sage Publication. Delva, J. (2007). The human subjects protections process: A subjective view. Social Work, 52(2), 101-102. Gabbard, G. O. (2000). Disguise or consent? Problems and recommendations concerning the publication and presentation of clinical material. International Journal of Psychoanalysis, 81, 1071-1086. Galatzer-Levy, R. (2003). Psychoanalytic research and confidentiality. In C. Levin, A. Furlong, & M. K. O’Neill (Eds.), Confidentiality: Ethical perspectives and clinical dilemmas (pp. 85-106). Hillsdale, NJ: Analytic Press. Gambrill, E. (1999). Evidence-based practice: An alternative to authority-based practice. Families in Society, 80, 341-350. Gambrill, E. (2006). Evidence-based practice and policy: Choices ahead. Research on Social Work Practice, 16(3), 338-357. Goldberg, A. (2004). Who owns the countertransference? Psychoanalytic Quarterly, 73(2), 517-523. Goldstein, E. (2007). Social work education: Yesterday, today, and tomorrow. Clinical Social Work Journal, 35, 15-23. Kantrowitz, J. (2006). Writing about patients: Responsibilities, risks, and ramifications. New York: Other Press. Kantrowitz, J. (2002). Writing about patients: I. Ways of protecting confidentiality and analysts’ conflicts over choice of method. JAPA, 52(1), 69-99. CONFIDENTIALITY IN CLINICAL WRITING 28 Levine, S., & Stagno, S. (2001). Informed consent for case reports: The ethical dilemma of right to privacy versus pedagogical freedom. Journal of Psychotherapy Practice Research, 10(3), 193201. Levin, C., Furlong, A., & O’Neil, M. K. (Eds.). (2003). Confidentiality: Ethical perspectives and clinical dilemmas. Hillsdale, NJ: The Analytic Press. McNeill, T. (2004). Evidence-based practice in an age of relativism: Toward a model for practice. Social Work, 51(2), 147-156. Millstein, K. (2000). Confidentiality in direct social-work practice: Inevitable challenges and ethical dilemmas. Families in Society, 81(3), 270-282. Naiburg, S. (2003). Mentors at the gate: Editors talk about clinical writing for journal publication. Clinical Social Work Journal, 31(3), 295-313. National Association of Social Workers (2008). Code of Ethics of the National Association of Social Workers. Washington, DC: Author. Retrieved from http://www.socialworkers.org/pubs/code/code.asp Palmer, N., & Kaufman, M. (2003). The ethics of informed consent: Implications for multicultural practice. Journal of Ethnic and Cultural Diversity in Social Work, 12(1), 1-26. Reamer, F. (2005). Ethical and legal standards in social work: Consistency and conflict. Families in Society, 86(2), 163-169. Reamer, F. (1998). The evolution of social work ethics. Social Work, 43(6), 488-500. Reamer, F., & Siegel, D. (2007). Ethical issues in open adoption: Implications for practice. Families in Society, 88(1), 11-18. CONFIDENTIALITY IN CLINICAL WRITING 29 Rosen, A. (2003). Evidence-based social work practice: Challenges and promise. Social Work Research, 27(4), 197-208. Saxon, C., Jacinto, G., & Dziegielewski, S. (2006). Self-determination and confidentiality: The ambiguous nature of decision-making in social work practice. Journal of Human Behavior in the Social Environment, 13(4), 55-72. Shechter, R. (2003). The struggle with self-disclosure in clinical writing. Psychoanalytic Social Work, 10(2), 65-70. Simpson, G., Williams, J., & Segall, A. (2007). Social work education and clinical learning. Clinical Social Work Journal, 35, 3-14. Thyer, B. (2007). Social work education: Towards evidence based practice? Clinical Social Work Journal, 35, 25-32. United States Department of Health and Human Services (1996). Health information privacy: Summary of the HIPAA Privacy Rule. Washington, DC. Retrieved from http://www.hhs.gov/ocr/privacy/hipaa/understanding/summary/index.html United States Department of Health and Human Services (2009). Office for Human Research Protections: Protection of human subjects. Washington, DC: Author. Retrieved from http://www.hhs.gov/ohrp/humansubjects/guidance/45cfr46.htm Wharton, B. (2005). Ethical issues in the publication of clinical material. Journal of Analytical Psychology, 50, 83-89. Weston, D. (2002). The language of psychoanalytic discourse. Psychoanalytic Dialogues, 12(6), 857898. CONFIDENTIALITY IN CLINICAL WRITING 30