NHMRC Public Consultation: Offline Submission Form Public Consultation on the Draft Ethical guidelines for organ transplantation from deceased donors Please complete this form and include it with your mail or fax submission. Submissions that do not have this form attached will not be accepted. Does this submission reflect the views of the organisation or an individual? An individual An organisation Contact Details Name: Organisation: Background: Address: Phone: Email: **Please only include the name of the organisation here if your views reflect those of the organisation. Page 1 Permission to publish on the NHMRC website Yes, NHMRC may publish my submission on the NHMRC website No, I do not consent to my submission being published on the NHMRC website My submission contains some information which I do not want published on the NHMRC website. I have clearly marked the information I’d like redacted before NHMRC may publish my submission. *Note: Any submission made to the NHMRC may be subject to the requirements of the Commonwealth Freedom of Information Act 1982. NHMRC retains the right to determine which submissions it will publish. All personal information should be removed from your submission if permission to publish has been granted.\. Submissions may not be made public if personal information is included in the submission Agreement I am aware that if I agree to have my submission published on the NHMRC website, it will be widely available, e.g. it may be placed on the NHMRC website and made available in hard copy. I am also aware that the information may be further referenced in later publications. If I have named an organisation, I agree that my comments are representing the views of the organisation. Any direct contact details, e.g. phone numbers and addresses, will be redacted from the submission. Such information will not be used or disclosed for any other purpose, without prior written consent. Submissions may not be made public if personal information, including health information, about the submitter or a third party is included in the submission. Please note material submitted to the NHMRC will not be returned. We recommend that you keep a copy of all submitted materials for your personal records. Name (please print): Signature: Date: Note: It is acceptable to type your name in the signature box of this form as your electronic signature. Page 2 Submission 1. Do you have comments or concerns on particular sections of the document? If so, please identify the section you wish to comment on: GLOSSARY INTRODUCTION 1 CURRENT SYSTEM FOR ORGAN TRANSPLANTATION IN AUSTRALIA 1.1 Who is eligible for transplantation? 1.2 Are all organs suitable for transplantation? 1.3 How are organs allocated? 1.4 How is the process monitored? 2 FOUNDATIONS 2.1 Human rights, ethical principles and values 2.2 Application of ethical principles and values to organ transplantation 3 ETHICAL PRACTICE 3.1 Discussing transplantation 3.2 Ethical decision-making in the context of transplantation 3.2.1 Eligibility for transplantation 3.2.2 Organ allocation 3.3 Ethical decision-making in innovative transplantation practice and research APPENDICES A Terms of reference and membership of the Expert Advisory Group B Further sources of information ACRONYMS AND ABBREVIATIONS REFERENCES 2. Do you have general comments regarding the document? If so, please provide details. Page 3