Alison Davenport
Andrew Blaine
Barrie Towse
Bill Swann
Caroline
O’Brien
Charlotte Peters-Rock
Chris Campbell-Kelly
Chris Godfrey
Cyril Towse
David Jary
Diane Walton
Dominic Anderson
Eileen Talbot
Gill Barber
Helen Davies
Helen Whitworth
Jacquie Grinham
Jo Hawkins
John Adams
Jo Rose
Ken Singer
Linda Gill
Mabel Taylor
Matthew Cunningham
Marcus Tarrant
Patrick Heywood
Rebecca Patel
Trevor Lerman
Tony Firth
Yvonne Singer
In attendance
Victoria Bell
Friday 13 th December 2013, 10.00-12.00
The Meeting Room, Congleton Library, Market Square, Congleton CW12 1ET
Name
Roger Farbrother - Chair RF Carer ’s Reference Group
Present:

AD Cheshire Centre for Independent Living
AB Kenmore PPG
BT Macclesfield Resident
BS Carer ’s Reference Group
CO
CPR Cheshire Area for Cheshire Action
CC Practice Manager Park Lane Surgery
CG Toft Road Surgery Patient Participation Group
CT Macclesfield Resident
DJ Toft Road PPG Knutsford
DW VISYON
DA Policy & Development Manager, Age UK
ET Senior Voice for Macclesfield
GB Senior Voice for Macclesfield
HD Cheshire East Parent Carer Forum StGp member
HW
JG Citizens Advice Bureau (CAB)
JHa The Alzheimer’s Society Support Service Manager
JA Action for Sick Children
JR Annandale PPG
KS 38 o
LG Deafness Support Network
MT Knutsford Resident
MC NHS Eastern Cheshire Clinical Commissioning
MT Group
PH Toft Road PPG Chair
RP NHS Eastern Cheshire CCG
TL Handforth Health Centre Patient Panel Chair
TF Holmes Chapel Patient Panel Chair
YS Bollington Medical Centre PPG




Apologies
Apologies
Apologies

Apologies


Apologies





Apologies

Apologies



VB NHS Eastern Cheshire CCG

Brook Howells
Karen Burton
Anita Mottershead
BH AQuA
KB NHS Eastern Cheshire CCG
AM NHS Eastern Cheshire CCG
Dawn Wayne (note taker) DaW
Paul Bowen
NHS Eastern Cheshire CCG a NHS Eastern Cheshire CCG
Jerry Hawker JH NHS Eastern Cheshire CG




Apologies
Apologies
Page 1 of 5
Eastern Cheshire HealthVoice Minutes December 2013

Item
Apologies were received as noted above.
Welcome and Introductions
The Chair welcomed everyone to the meeting.
.
Minutes of the previous meeting
The minutes of the previous meeting on Wednesday 6 th November 2013 were discussed and accepted as an accurate reflection of the meeting with the following amendments:
Attendees
Cyril Towse is an independent attendee and not affiliated to Healthwatch
Cheshire East .
Actions and matters arising
Future of Health Voice
– Patient Participation Groups (PPGs)
Comments were made by CPR that the chairs of the PPGs should not withhold their contact details as they hold a public role within the practice. The group debated this again and the majority agreed with the original decision that it would be left to individual chairs to decide how much personal information to divulge.
TL advised that he had not received any reply from the practice previously highlighted as being unresponsive to patients enquiring about the patient participation group. The group agreed that this was unacceptable and should be escalated.
Action: TL to contact the Chair of the CCG on behalf of HealthVoice and request urgent action be taken to rectify the communication difficulties.
Caring Together Animation
Following constructive comments from the group relating to reference to funding in the cartoon, MC advised that the current animation could not be amended without incurring extra cost, but future references to funding in subsequent promotional initiatives would be less ambiguous.
It was noted that the executive summary of the McKinsey Report had not been circulated to the group yet, this would be actioned as soon as it was available.
Action: MC to follow up and send round group
Comments were received from one PPG where the animation had been shown.
The animation was not well received and it was reported that the audience felt patronised and irritated. Overall this particular PPG were very disappointed at the level at which it was pitched. MC thanked the PPG chair for the feedback which would be noted and balanced against the more positive comments received. It was suggested that if the PPG have any ideas for improving communications they would be welcomed.
Carers
It was noted that circulatio n of the ‘Our Commitment to Carers’ summary was still outstanding.
Actions
MC
TL/PB
Page 2 of 5
Eastern Cheshire HealthVoice Minutes December 2013

Action: MC to follow up and send round group
ITN Healthcare News
As a result of NHS England endorsing the work of ECCCG around HealthVoice and its impact on the Caring Together programme, ITN Healthcare made a short film incorporating footage shot at the last HealthVoice meeting and interviews with key personnel involved in Caring Together. The film was shown to the group and can be found at: https://www.easterncheshireccg.nhs.uk/About-Us/integration.htm
MC
Shared Decision Making
Karen Burton, Clinical Project Manager for ECCCG, introduced the Shared
Decision Making (SDM) item built around the ‘No decision about me without me’ initiative.
Shared Decision Making is a partnership between healthcare professional’s patients and families. A partnership that supports patients in building knowledge skills and confidence to lead active lives.
Patients are encouraged to participate in selecting the treatment that is right for them.
Self-Management Support incorporates the tasks people undertake to live well with one or more long term condition. Tasks include gaining the necessary knowledge, skills and confidence to take care of their illness, carry out every day activities and manage the emotional changes brought about by living with a long term condition.
Eastern Cheshire CCG believes that Shared Decision Making and Self
Management Support go hand in hand and if we get this partnership right it will lead to:

Better consultations
 Focus on what’s important

Clearer communication

Effective use of time

More appropriate decisions
Facilitated workshops for people with long term conditions were organized with very encouraging output including some really low cost interventions, ideas for mentoring, support for families etc.
A toolkit and list of self management resources (including a self care questionnaire) have been developed; the toolkit is available to be used during consultation with the healthcare professionals and will enable the CCG to understand the impact of the intervention, the quality of life changes and health service usage.
Moving into 2013, ECCCG have tasked providers, through the Caring together
CQUIN (contract incentive) to begin to embed self management support and shared decision making into their organisations. Patients are asked to complete the self care evaluation questionnaire before and after interventions.
The CCG were successful in a bid to work with the Advancing Quality Alliance
(AQuA) to roll out the Shared Decision Making and Self-Management Support
Programme using their tools and resources one of which includes the Ask 3
Page 3 of 5
Eastern Cheshire HealthVoice Minutes December 2013

Questions leaflets:
What are my options?
What are the pro’s and cons of each option?
How do I get support to help me make a decision that is right for me?
Leaflets have been included in Outpatient letters and are available in GP practices. HealthVoice members were asked to share these with family and friends and let Karen have any feedback/comments. ( karenburton1@nhs.net
)
Brook Howells, Programme Facilitator for AQuA, showed the group a video high lighting one patient’s experience where shared decision making could be put into practice.
The Shared Decision Making programme is to be regarded as a patient prompt to be used before and during a consultation.
General information about AQuA: http://www.advancingqualityalliance.nhs.uk/sdm/
Case studies from teams last year: http://www.advancingqualityalliance.nhs.uk/sdm/resources-2/case-studies/
Videos – including the one shown at the meeting: http://www.advancingqualityalliance.nhs.uk/sdm/resources-2/sdm-in-action/
A question was asked regarding availability of the toolkit multilingually. It was stated that currently the toolkit was expected to be used by health professionals during consultation with the patient/carer and current translation methods would be used if required. The group suggested that publication in different languages and formats to make it fully accessible would be desirable.
Commissioning Intentions
Jacki Wilkes, Head of Clinical Development and Health Outcomes ECCCG, introduced the Commissioning Intentions initiative for 2014-15 which has been developed from the existing 2013-14 plan plus feedback from workshops and programmes. It will be informed by national policy/guidance for best practice and the nationally mandated planning framework for commissioning. The matrix was tabled to small groups of attendees who were asked to evaluate the options listed. JW also asked the group for interested volunteers to attend a commissioning intentions workshop at the CCG offices in the New Year to work on the final document. Anyone interested in joining this session should contact jackiwilkes@nhs.net
or matthew.cunningham@nhs.net
It was suggested that, in future, the matrix should be circulated beforehand to ensure members are informed beforehand of the contents, and that more time be allocated during the meeting for the exercise.
Action: JW to send out invitations to all those interested in attending commissioning intentions session in January.
Winter Planning
Urgent Care Board
John Adams advised that he had been invited to become a patient representative on the Urgent Care Board at the CCG. The board, consisting of members from key stakeholders throughout the health economy including East
Cheshire Trust, Cheshire & Wirral Partnership Trust, Cheshire East Council,
North West Ambulance Service and the CCG, has been set up following a
Page 4 of 5
Eastern Cheshire HealthVoice Minutes December 2013
JWi

national initiative from the Department of Health and will address 3 key areas:
1. Preventing attendance at A&E
2. Patient Flow in hospital
3. Discharge and community care
Predictor
– Snow White
Anita Mottershead demonstrated the new Winter Planning spreadsheet known as ‘Snow White’. This dashboard enables healthcare professionals to obtain current status information covering a wide range of urgent care facilities to highlight where pressures are likely to occur. The dashboard is updated twice a day and will be used as a historical data store as well as a predictive tool.
Any Other Business
Roger Farbrother advised that an article he had written about his wife and their experiences coping with her dementia had recently been posted on the Caring
Together website to help raise awareness of the condition and the challenges carers and their loved ones face.
DW wished to raise three items:
1. Care concerns at Chapel Brook House nursing home in Congleton.
Would the commissioners be happy to have their relative cared for there and would they be happy to be resident in there themselves?
2. Concern regarding disability discrimination at Readesmoor practice in
Congleton, apparent lack of knowledge of whereabouts of hearing loop in reception and poor staff communication.
3. Has the CCG got a proper decontamination policy within surgeries in view of the move towards minor surgery being undertaken in practices?
CCK advised that there was no issue with decontamination within surgeries as all equipment was disposable.
A further question was raised regarding the recent publicity around stroke services at Macclesfield District General Hospital. The group advised that they were disappointed not to be advised in advance of the issues which appeared in the local press. Matthew Cunningham noted the groups concerns and stated that the timeframe the CCG was given prior to publication was very narrow but lessons had been learned from this for the future.
The Chair thanked all the contributors and attendees and closed the meeting.
Date and time of next meeting:
Wednesday 22 nd January 2014, 13:00 to 15:00 at Marthall Hall, Sandlebridge
Lane, Marthall, Knutsford WA16 7SB
Page 5 of 5
Eastern Cheshire HealthVoice Minutes December 2013