TOURETTE SYNDROME ASSOCIATION OF LONG ISLAND, INC.
P.O. BOX 615, JERICHO, NEW YORK 11753
E-MAIL: longisland.tsa@gmail.com
www.li-tsa.org
EXECUTIVE MEMBERS:
Lisa Filippi, Ph.D., Co-Chair
Jane Zwilling, Psy.D., Co-Chair/Chair,
Education/Advocacy
Rachel Gibbons, Esq., Treasurer,
Government Liaison
Kate Callan, 1st Vice Chair
nd
Jen Argenzio, 2 Vice Chair,
Communications/E-blasts
Florentina Lazaroaie, 3rd Vice Chair,
On Saturday June 13, 2015, Tourette Syndrome Association of Long Island (LI-TSA) is hosting our 2015
Family Fun Day, which will take place at the Willets Road School, 455 I U Willets Road, Roslyn
Heights, NY 11577. Family Fun Day is an event where families and children will come out, have fun and
enjoy the day, while LI-TSA has an opportunity to raise awareness, acceptance, and sensitivity for the
individuals we serve. The funds generated from this event will be used to support vital chapter activities,
such as support group meetings, advocacy and social events, throughout the year.
Tourette Syndrome (TS) is a lifelong neurobiological disorder, which is often misunderstood and
misdiagnosed. TS is characterized by involuntary movements and vocalizations called tics, which become
evident in early childhood or adolescence between the ages of 2 and 15. Currently there is no cure for TS.
Tourette Syndrome Association, Inc. is the only national voluntary non-profit membership organization in
this field. Its mission is to identify the cause of, find a cure for, and control the effects of this disorder.
Today, TSA has grown into a major national health-related organization with approximately 50 U.S.
chapters and 300 support groups, as well as international contacts around the world.
Tourette Syndrome Association of Long Island, Inc., a chapter of National Tourette Syndrome Association,
is run by volunteers from Long Island. Our mission is to provide help at the community level to families
affected by Tourette Syndrome by providing a variety of services to its members in Nassau and Suffolk
counties. In every school district on Long Island there are children with a diagnosis of Tourette Syndrome
who need support, understanding and assistance in living with this disorder while researchers continue their
efforts to find the causes and a cure.
FFD Coordinator
Amy Fuhrman, Secretary,
Recording and Corresponding
Demetria Marino, Secretary,
Membership Management
Shelly Bloch, Secretary,
Speaker Appearances/Activities
Rachel Brenner-Bliss, Secretary,
Family Activities/Socials
Julia Vinsky, MHA, Information Line
Jennifer Zwilling, Honorary Board Member,
Director of Youth Ambassadors
Tourette Syndrome Association of Long Island is excited to announce that, as part of the NY State
consortium, North Shore-LIJ Health System has been designated as a Center of Excellence for the
treatment of Tourette Syndrome!
For people coping with Tourette Syndrome or other Tic Disorders today, there are inconsistencies in the
level of care and outcome that they experience. The national Tourette Syndrome Association Center of
Excellence (CofE) designation and funding will help to facilitate the development of higher-quality,
interdisciplinary and multidisciplinary care approaches for the field. Designated Centers will also seek to
advance research, improve understanding and build awareness and understanding of Tourette Syndrome and
related conditions among community physicians, allied health professionals, patients, families and the
general public.
In view of this thrilling new development, Tourette Syndrome Association of Long Island has designated a
separate sponsorship opportunity specifically for the Long Island Center of Excellence.
Please consider supporting all those on Long Island diagnosed with TS. Your contribution or
sponsorship will go a long way toward impacting the lives of those living with Tourette
Syndrome.
Thank you,
Jane Zwilling, Psy.D., Co-Chair, LI-TSA
Lisa Filippi, Ph.D., Co-Chair, LI-TSA
The Tourette Syndrome Association of Long Island (LI-TSA)
is a 501(c)(3) organization, qualified to receive charitable contributions in
accordance with IRS regulations