INSTITUT SUR SANTE, POLITIQUES ET SOCIETE EN AFRIC INSTITUTE ON HEALTH, POLITICS AND SOCIETY IN AFRK CODESRIA SESSION 2009-2010 Le VIH/SIDA et le discours sur«I'autre » en Afrique HIV/AIDS and the Discours of the "Outsider" in Africa Propositions de recherche / Research Proposals Directeur/Director Prof. Cheikh Ibrahima Niang Dakar/Senegal, 07 - 25 fevrier / February 2011 SOMMAIRE / CONTENTS /. Yetunde Dehinsilu Aluko Marn'ed Men's Extramarital Sex and HIV Risk among Women in Ibadan, Nigeria. 3-38 2. Sokhna Boye [.'experience des personnes vivant avec un traitement anti-retroviral et attentes de lipodystrophies au Senegal .................................................................................................................. 39-52 3. EdmondVIJMballaElanga Le SIDA a la "troisieme personne". line analyse des dynamiques de transmission du VIH a travers la prise de risque par confiance et le paradigme de l'«autre» ..................................................... 53 -67 4. Lucy Wambui Kangara An Assessment of Factors influencing Stigma and Discrimination on Adherence (A Case Study of Patients Attending Comprehensive Care Clinic CCC-Jomo Kenyatta University of Agriculture and Technology -(JKUAT) 68-82 5. Edinam Kola Migration Internationale feminine, mondialisation du commerce de sexe et risques de diffusion du VIH/SIDA en Afrique de I'Ouest: L'exemple de Lome ........................................................... 83-93 6 94-113 Salfo LinganiL'autre a I'echelle locale, VIH/SIDA et exclusion sociale 7. Appolme Flore Manguengo Vulnerable et stigmatisation face au VIH/SIDA: une analyse des tendances et des facteurs explicatifs a partir des donnees de f'enquete demographique et sante (EDS) au Congo Brazzaville.... 114-135 8. Pius Tangwa Tanga Rural-urban Migration and HIV and AIDS in the Textile and Garment Industry in Lesotho ...................... 9. MashetiBWangoyi Vulnerability of Men to HIV and AIDS in Kakamega: The Influence of Social Networks of Men, 10. Solomon Chiemene Mandubuike Culture of HIV/AIDS: Understanding User's Perceptions of Ngborogwu as a Treatment Remedy for HIV/AIDS within the IGBO Community ............................................................................. 136-158 159-192 193-203 //. Elisabeth Yaoudam SIDA, stereotypes et images feminines dans les chants populates au Nord-Cameroun 204-21412 Billy Kakelengwa Mbilizi L'« autre»comme objet de representations sociales, A pnopos des relations entre le corps soignant et les maladesdu SIDA dans funivers hospitalier de Kisangani ............................................................ 215-231 13 Nyandiba Carren Nyang'anyi Modem HIV Counselling and Testing (HCT) or Traditional Healers? 232-239 14 Juiienne Louise Ngo Likeng Representation sociale des orphelins du SIDA en milieux scolaire et familial au Cameroun: le regard de I'autre .................................................................................................................... 240-249 15. Mame Pauline Diop Genre et VIH/SIDA en Mauritanie; Aspects socioculturels de la vulnerable des femmes a ('infection au VIH/SIDA... 250-xx Document 10 Culture of HIV/AIDS : Understanding User's Perceptions of Ngborogwu as a Treatment Remdy for HIV/AIDS within the IGBO Community Solomon Chiemene Madubuike Culture and HIV/AIDS : Understanding User's Perceptions ofNgborogwu as a Treatment Remedy fo HIS/AIDS 1.0 INTRODUCTION This interim report presents the findings from the phase 1, Pilot study: test running of Instruments of the study: Identification of the key-informants, trado-medical practitioners' ngborogwu producers and HIV/AIDS patients in the study areas. 1.1 BACKGROUND AND RATIONALE OF THE STUDY HIV/AIDS is the greatest disease the world faces today. Efforts to prevent its spread and cure are sure to bring overall benefits to the nations and people living with it. But unless the efforts being made to prevent its spread are accompanied by complementary alternative treatment like culturally defined ngborogwu medicinal herbs and roots, the present orthodox treatment remedies are unlikely to prevent the spread of HIV/AIDS pandemic, especially in the third world nations like Nigeria. For instance, Igbo people of South Eastern Nigeria are known to be using herbal medicine for HIV/AIDS treatment, because they see health as a sub-culture within the culture. This explains why the people both rich and poor in the area consult the traditional medicine practitioners for various health conditions. The impact of the HIV/AIDS pandemic is felt on individuals living with the disease, their family and friends. Majority of the people living with HIV/AIDS in Igboland have serious reservations about the efficacy and safety of synthetic medicines for HIV/AIDS treatment at the orthodox hospitals in Nigeria. They felt that the orthodox treatment is not better than ngborogwu treatment for HIV/AIDS prevention and treatment - only because HIV/AIDS was not defined within the context of socio-cultural illness. They simply perceive it as a foreign disease that befalls on them as a curse which requires traditional medicine for its prevention and treatment. For instance, in 1976 WHO passed a resolution calling on its member nations to give recognition to traditional medicine in their policies and programs on primary health care delivery services. Moreover, since people living with HIV/AIDS are being treated with ngborogwu and they are well, the promotion of ngborog\vu for HIV/AIDS treatment is crucial and will require specific action to address HIV/AIDS pandemic spread. It will also reduce HIV/AIDS social stigma in the society once it's culturally defined. Blame and other manifestations of stigma which serve to compound the psychological impacts of people living with HIV/AIDS, and their family and friends discrimination will be eliminated (UNAIDS 2004). Some of the reasons for 194 Culture and HIV/AIDS: Understanding User's Perceptions ofNgborogwu as a Treatment Remedy fo HIS/AIDS the increased growth rate are preference of patients for natural therapies which are cheap, affordable and accessible, concern regarding undesirable side effects of modern medicines and belief that herbal drugs are free from side effects (Adeyemi 2009). 1.2 RESEARCH METHODOLOGY The study was conducted in Imo State, one of the Igbo speaking states in Nigeria. The choice of Imo State is ideal for the study because the state is tagged the 'heart' of the Igbo ethnic group. In addition the state features the highest number of trado-medical homes due to the people's preference for trado-medicine for health care delivery. Ten communities were selected in the State. These were Aboh and Lorji representing Aboh-Mbaise Local Government Area, while Owerri and Nkede represented Owerri-municipal LGA, Ehime and Okigwe represented Okigwe LGAJkeduru and Ideato represented Ideato-South LGA, Owerri-nkworji and Oru represented Nkwerre LGA. In each of the selected communities one trdo-medical home was selected for the study. Level of economic and social activities, and health facilities in the communities were also considered as relative denominators in the selection of the study communities. Imo State consists of 27 Local Government Areas (LGAs), out of which five LGAs, were selected for the study. These include; 1. Aboh-Mbaise Local Government Area, 2 most popular trado-medical homes were selected 2. Owerri-municipal Local Government Area, 2 most popular trado-medical homes were selected. 3. Okigwe Local Government Area, 2 most popular trado-medical homes were selected. 4. Ideato-South Local Government Area, 2 most popular trado-medical homes were selected. 5. Nkwerre Local Government Area, 2 most popular trado-medical homes were selected. In all ten most popular trado-medical homes were selected for the study, out of which 20 HIV/AIDS patients undergoing treatment, 10 trado-medical practitioners and 10 producers of ngborogwu was purposively sampled. Selection of the respondents for key informants interview, in-depth interview and focus group discussions was based on the patients observed health 195 Culture and HIV/AIDS : Understanding User's Perceptions ofNgborogwu as a Treatment Remedy fo HIS/AIDS conditions and trado-medical practitioners' home level of patronage by HIV/AIDS patients. The selection also featured urban/rural representation. The main method of data collection was in-depth interview of key-informants. In the process ten trado-medical homes, ten ngborogwu producers and twenty HIV/AIDS patients undergoing treatment and ten producers of ngborogwu were interviewed at different locations and on different occasions in the areas; Aboh-Mbuse, Owerri-Municipal, Okigwe and Ideato-South. These categories of key-informants were purposively selected because of their knowledge, practice and perceptions of ngborogwu as a treatment remedy for HIV/AIDS. Moreover, the informants were selected randomly from different communities in order to widen the scope of information received on the subject matter. We took into consideration the issue of gender equality as equal number of males and females in each case was equally represented: 12 male and 8 female HIV/AIDS patients, 6 male and 4 female trado-medical practitioners, 5 male and 5 female producers of ngborogwu. The study lasted for 18 days, between December 24 2010 and 10th January 2011. Descriptive analysis was employed due to the nature of the data (qualitative). Thus, the data were treated as single quantity information which allowed configuration of common patterns and differences recorded and this was done on daily basis when interviews took place. The key questions asked during the interviews were: 1. What is your perception of ngboro gwu as a treatment remedy for HIV/AIDS in the community? 2. How well do you think ngborogwu is working at present in HIV/AIDS patients? 3. In what way(s) do you think ngborogwu has cured or prevented HIV/AIDS in recent years in the community? 4. What do you think is responsible for the people's preference (choice) for ngborogwu as a treatment remedy for HIV/AIDS? 5. Are there any implications and side effects of ngborogwu's use as a treatment remedy for HIV/AIDS? 6. How do you identify HIV/AIDS patients? 7. How do you categorize ngborogwu herbs and roots for HIV/AIDS treatment? 8. How do you measure quantity of ngborogwu to be taken by HIV/AIDS patients? 196 Culture and HIV/AIDS : Understanding User's Perceptions ofNgborogwu as a Treatment Remedy fo HIS/AIDS 9. What is the duration period of treatment? 10. How do you preserve ngborogwu medicine? And does it expire? 11. Can you tell us what difference is between ngborogwu medicine and orthodox medicine and why? 12. What are the economic values of ngborogwu in recent times? 13. Can ngborogwu be developed into orthodox medicine as a vaccine for HIV/AIDS? 14. Has ngborogwu medicine been recognized or approved by the government? The interviews were unstructured so as to allow interviewees to express their perceptions of ngborogwu medicinal efficacy and safety. Interviewees were drawn from Trado-medical practitioners, producers of ngborogwu and HIV/AIDS patients for the key-informants interview, in-depth interview and Focus group discussions. The interviews and FGDs were conducted at the trado-medical homes. 1.3 FINDINGS Origin, meaning and uses of ngborogwu Our informants argued that ngborogwu is one of the unique products of nature that provides treatment remedy for ill-health and disease for human and even animals. The informants believed that ngborogwu is culturally defined as an effective and safety treatment and cure for HIV/AIDS and other ill-health and diseases. This fact was substantiated by Chief B, aged 72 years, trado-medical practitioner, Aboh-Mbaise community. He asserts that ngborogwu is God in nature who at all times provides for mankind in times of needs like good health (personal communication 24th December, 2010). Informants revealed that the term ngborogwu is a culture-bound expression for traditional medicine for treating different forms of illness in the community. The prefix ngboro mean (nature) while gwu means [medicine] for all forms of illness treatment remedy. Ngborogwu, to Chief Mrs. Y, aged 85 years, ngborogwu producers, Owerri-municipal, is sourced from herbs and roots. To her, there is an agreement in functions between herbs and roots when ngborogwu medicine is being prepared for use (personal communication 26th December 2010) 197 Culture and HIV/AIDS : Understanding User's Perceptions ofNgborogwu as a Treatment Remedy fo HIS/AIDS User's Perceptions The study identified a number of models that might help to develop ngborogwu as an alternative treatment remedy for HIV/AIDS. Although, it is an ongoing research, the models include a high demand for ngborogwu among the rich and the poor in the community. The number of people, young and old, illiterate and literate persons undergoing training in the production and marketing of ngborogwu products is quite high. The study revealed a high tendency to prefer ngborogwu as a treatment remedy for illness among the people. Among the Igbos, HIV/AIDS as a disease came into the body through spiritual-virus (umu-nmmo) which is not visible to ordinary eyes. The discussions undertaken during the Focus Group Discussions revealed that participants' perceptions of ngborogwu as a treatment remedy for HIV/AIDS were positive and encouraging. Criticisms that were leveled against ngborogwu potency, efficacy, safety, qualitative and quantitative measurements, mode of production and preservation were discussed. The discussants showed consensus agreement on its scientific-cultural procedure. 1.4 NEXT STAGE OF THE RESEARCH The next stage of the research will be conducted to confirm the issues raised by the respondents during this pilot study. This stage will involve qualitative triangulation interviews with the respondents. This stage of the fieldwork will be carried out after this workshop. 198 edyfo HIS/AIDS ANNEX 1: LOGICAL FRAME Expected Narrative Summary Outcomes To Improve health condition Goal of people living with HIV/AIDS through use ofngborogwu medicinal herbs and roots. Cogni/ant of the increasing reah/ation medicine in the primary health care delivery system. Project Purpose 1. To examine various aspects of traditional medicines in I mo state, Nigeria lor HIV/AIDS treatment and develop interactive partnership model in line with WHO code of Alternative Medicines program on health care delivery 2. To analyze traditional medicine practices for Objectively verifiable Indicators Means of Verification Assumptions/Risks 1. Improved contribution of Nigeria traditional medicines to socioeconomic growth and global trade. 2. Acceptable and integrated traditional medicines for HIV/AIDS treatment 3. Certified complementary and Alternative Medicine in Nigeria and WHO 1. Data bank on Nigerian alternative medicine for HIV/AIDS created. 2. International and local acceptance of alternative medicine for HIV/AIDS treatment 1. HIV/AIDS Patients 2. Laboratory/Clinical tests. 3. Monitoring, Evaluation and Appraisal Reports. 1. Political will and Legislation backup for positive change in the health sector. 2. Stakeholders motivated to report progress and respond to questionnaire 3. Vehicular support for extensive monitoring 1. General acceptance of new code of complementary and alternative herbal medicine for primary health care, delivery system. 2. Environmental, economic and cultural values of herbal medicine (ngborogwu) sustained 3. Improved Social and 199 1.Cooperation of stakeholders secured 2. Stakeholders receptive to environmental resources (Plants, herbs and roots) and sustainable harvesting plans. Culture and HIV/AIDS: Understanding User's Perceptions ofNgborogwu as a Treatment Remedy fo HIS/AIDS HIV/AIDS treatment in Imo State, Nigeria and associated health impacts. Expected 1. Herbal Medicine output dependent family welfare, livelihood securely and commercial interest assessed 2. Traditional medicine practitioners' report cards on HIV/AIDS treatment and herbal medicine ingredients production collected and evaluated. 3. Administration of herbal medicine on HIV/AIDS patients' access to and use of herbs evaluated. Activities 1. Stakeholders; traditional medicines practitioners producer of herbal & roots ingredients and HIV/AIDS patients, identification survey and quantification impacts through random sampling 2. Observational appraisal, 1. Competent and properly motivated work force 2. Two journal articles on multi stakeholder approach to alternative traditional medicine for HIV/AIDS treatment completed by the 8th quarter of project life. 3. One workshop proceeding on comprehensive treatment for HIV/AIDS with reference to WHO model code completed by 6th quarter of project life. 1. Development, production and administration of structured questionnaire to traditional medicine practitioners, herbs and roots (ngborogwu) ingredients producers; HIV/AIDS patients users economic contributions of herbs and roots (ngborogwu) ___________ 1. Health for all; herbal medicine (ngborogwu) sustained for future generations. 2. Herbal medicine practice incorporated into primary health care delivery system. 3. Capacity-building strategies recommended. 4. New policy initiatives in Imo State, Nigeria to promote traditional medicines for PHC 1. Generated data bank 2. Monitoring reports. 3. Field records 4. Response to questionnaires and Desk study 5. State NGOs Federal and WHO Reports on alternative medicines on 200 1. cooperation of respondents 2. Reliability of information provided by stakeholders 3. Reliability of information gathered for users' perception valuation and appraisal NMPI administration. 1. Cooperation of respondents 2. Reliability of information provided by stakeholders 3. Reliability of information gather from users perception valuation and appraisal of administration Culture and HIV/AIDS: Understanding User's Perceptions ofNgborogwu as a Treatment Remedy fo HIS/AIDS analysis and monitoring using multi-stakeholder approach to gather and analyze data. 3. Evaluate (ngborogwii) herbs and roots ingredients in the context of preparation and storage, packing and quantity. 4. Determine how ngborogwu medicine ingredients are administered on HIV/AIDS patients. 5. Identify types of herbs and roots. 6. Estimate ngborogwu availability, Demand and supply ________________ perception at 1st quarter of project life. 2. Stakeholders on traditional medicine, producers of NMPI and HIV/AIDS patients identified in the study areas. primary health care delivery system in Nigeria 6. 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