ROCHADLE LOCAL OFFER 2014 Children’s Occupational Therapy Service This information relates specifically to the service provided from: Rochdale Metropolitan Borough Council 1. How does an Occupational Therapist make a difference for a child? What does a children’s Occupational Therapist do? We provide information, advice, and access to specialist equipment and recommend ways to adapt the home and or short break setting and school for disabled children. We also use strategies and activities to develop skills directly with the child, and to promote independence and safe management by the parents / carers. This can include: moving and handling, all activities of daily living, and by provision of safety adaptations, and access to basic facilities such as the bedroom, bathroom and toilet. Which children do we work with? Occupational therapists work with children from age 0 –19 currently, with a range of needs from children with severe physical and / or learning disabilities to those with complex health care difficulties, including children with sensory difficulties. Our aim is to enable each child to achieve just how much they can do for themselves, and to enable parents / carers to manage them safely within their home, short break, or educational setting. For example, a child with cerebral palsy may be able to use a computer if he can be supported correctly in his chair, and then learn to use a head switch to communicate. We can also provide practical solutions for children with specific physical problems. We aim to increase children’s independence, confidence and provide opportunities for them to achieve their potential. “Occupational Therapists work with people of all ages, helping them to carry out the activities that they need or want to do in order to lead healthy and fulfilling lives” College of Occupational Therapists, 2005. Occupational Therapists differ from other health care professionals. Our focus is not so much on the problem itself but on how it affects a child’s ability to do normal every day activities. For children this could mean helping them to be independent when they are getting dressed, feeding themselves, using the bath and toilet and carrying out practical activities at school. For parents / carers this could mean helping their child to be independent, enabling their development and supporting them to care for their child at home, including sleeping, sitting and getting around. How do we work with children? We aim to build up a good relationship with the child and family. We liaise with and gather information from relevant people who are involved with the child. ROCHADLE LOCAL OFFER 2014 During assessment, we clarify what the child and family want to be able to do, and what is a priority and of highest need / risk to them, in their daily activities. We use different methods to identify what the child’s skills and difficulties are. This can take place in a variety of settings such as home, short break settings, school, or nursery. We work with the child and family to problem solve and make a plan of action. The plan of action may involve; - providing advice and information to children, parents and schools - developing the child’s skills individually, or on occasions in groups - using equipment to enable independence; and - making the child’s environments more accessible How to refer to children’s Occupation Therapy We operate an open referral system, so accept referrals form professionals such as schools, physiotherapists and allied health care professionals, nurses, Consultants and parents. We also liaise with the NHS OT service, which is generally involved with pre-school children at home and then in the education setting when they reach school age. We accept transfers of care from this service when children commence school to consider their home needs. Case study Jack Jack is the second child of three children. From early on his parents noticed that he had trouble with tripping and falling frequently, toileting himself independently, dressing and eating. When Jack started school, his teacher also noticed that he was finding it difficult to mobilize especially on stairs, and toilet himself independently, organise himself and was having problems with writing. As time went on, Jack became more reluctant to go to school and was often tearful and upset at home. Jack’s parents talked to their GP about this and Jack was subsequently diagnosed with Cerebral Palsy, which affected the muscle strength and co-ordination in his legs and lower back. Jack was referred by his GP to a children’s Occupational Therapist. After assessing Jack’s ability to carry out these activities both at home and at school, and following discussions with Jack, his parents and classroom teacher, Occupational Therapy sessions were planned and carried out and recommendations made. The Occupational Therapist developed a toileting strategy which included the fitting of grab rails to support him to be independent, and a handrail to the steps both at his home and school to increase his stability when mobilizing. The Occupational Therapist showed Jack’s teachers some suitable activities for him to do at school and discussed strategies that would help Jack to organise himself. Jack also attended a handwriting group with other children who were experiencing similar difficulties. A year later, Jack is much more independent. He is able to toilet himself independently, is falling much less frequently when mobilising, is able to dress himself after PE and is beginning to write more clearly. His confidence is returning and he joins in playground ROCHADLE LOCAL OFFER 2014 games with his friends. Jack seems happier with what he is able to achieve both at home and school. Children’s Occupational Therapy Service This information relates specifically to the service provided from: Rochdale Metropolitan Borough Council 2. Your first appointment: What will happen in your child’s first appointment with an Occupational Therapist? 1. After making a referral you will have received information about whether you will need to wait for an appointment. You will also have been advised about how we share information and given us consent to do so. 2. When an appointment is available, an Occupational Therapist will contact you. If your child needs to be seen in the home initially (which is usually the case), your Occupational Therapist will contact you to arrange a convenient time and you will have an appointment confirmed either by telephone or letter. 3. The initial visit and assessment will be approximately 1 – 1.5 hours long and it will be necessary for your child to be present. 4. You will need to stay with your child throughout the assessment. 5. During your first appointment your Occupational Therapist will need to find out information about you and your child. This may involve questions regarding your child’s developmental progress, how they carry out daily activities and how they are managing at school. It would be useful for your Occupational Therapist to see any recent reports at the first appointment (e.g. School, Physiotherapy and Educational Psychology reports). 6. Your Occupational Therapist may explore your child’s abilities and level of independence and safety in a range of activities. (See later in this leaflet for the areas addressed by Occupational Therapists.) It would be helpful if your child is dressed in loose comfortable clothing if possible and any existing equipment used at home to be available. 7. At the end of the assessment your Occupational Therapist will agree an action plan with you and your child. This action plan may involve: Further specific assessment, e.g. Moving and Handling or seating Ongoing therapy individually to e.g. to develop strategies with activities of daily living Further home visits ROCHADLE LOCAL OFFER 2014 A School visit No further action 8. The outcome of the assessment will be written down and sent to you with the agreed action plan. Copies will be sent to the referrer if requested, and others involved with your child, with your permission. Examples of areas addressed by Occupational Therapists Posture Your occupational therapist can assess a child’s posture and whether or not specialist seating or other equipment might be required. A specialist chair can provide and maintain good sitting balance. In turn this helps to prevent physical problems as well as maximising concentration to a task, e.g. feeding, and the development of fine motor skills. Fine Motor Skills Your child may be finding it difficult to hold and control a pencil for writing, to cut with scissors, manage eating with standard cutlery or to manage buttons or zips. The Occupational Therapist can provide adaptive equipment or recommend activities designed to improve the child’s ability. Gross Motor Skills Your child may find it difficult to walk, hop, skip, jump or throw/catch a ball. Coordinating movements to get dressed independently might be difficult and the Occupational Therapist can recommend strategies to help. Your Occupational Therapist can also make recommendations for adaptations which may increase independence, provide access and maximise safety especially within the home. Activities of daily living Your child might have difficulty using the toilet or bath safely and independently. A young person may need to be more independent in the kitchen. Equipment and adaptations to the environment could help. There may be ways your Occupational Therapist can help you to teach your child to carry out these activities more independently. Caring for your child You may need help to care for your child at home. Your Occupational Therapist may provide advice and strategies or equipment to help you carry out tasks, or to increase safety in the case of behavioural / learning difficulties. These might include going in and out of your home or car, moving from the bed to the toilet, moving and handling, helping your child have a bath or the use of Assistive Technology to enable you to supervise your child within the home. Children’s Occupational Therapy Service ROCHADLE LOCAL OFFER 2014 This information relates specifically to the service provided from: Rochdale Metropolitan Borough Council 3. Adaptations at home and school for children with disabilities: What is an adaptation? An adaptation is a permanent change to a child’s home and / or school. Many are minor changes such as grab rails or small steps; some may be major changes such as the fitting of a stair lift or converting a bathroom, which require careful planning. Minor adaptations Occupational Therapists will make recommendations on minor adaptations. These will require the agreement of whoever owns the property. Major adaptations These are normally only considered after all other options have been looked at with the Occupational Therapist, such as using equipment or changing the use of the space in the home or school. This is because a major adaptation is a big decision, which can involve disruptions and may take time to complete. Who can have an adaptation? There is a range of legislation that requires local authorities to provide adaptations for children with disabilities. Your child needs to be assessed by an Occupational Therapist from Children’s Services to ensure they are eligible for an adaptation, and that any recommendations are “necessary and appropriate” for your child. This assessment is likely to be with an Occupational Therapist. The assessment will define what your child needs at home or school and what the adaptation should achieve for your child, family or school. How do I know if my child is eligible for an adaptation? For any adaptations your main permanent place of residence for your child’s school must be within Rochdale Metropolitan Borough Council and your child must be disabled. Disability can be defined by various legislation, including the Disability Discrimination Act 1995 and the Children’s Act 2000. If you and your Occupational Therapist have agreed that a major adaptation may be a solution at home, then the Occupational Therapist will advise the housing department (Rochdale Home Improvement Agency – RHIA) if the adaptation is “necessary and appropriate” for your child’s needs. The housing department (RHIA) will then decide if the proposal is “reasonable and practicable” both for the property and in terms of cost and if you are eligible for a Disabled Facilities Grant (DFG). ROCHADLE LOCAL OFFER 2014 How are adaptations paid for? If your child is eligible, minor adaptations are provided by children’s services – (Children with Disabilities Services). There are different ways to fund major adaptations. Your Occupational Therapist will advise you and begin the processes with you. At home A Disabled Persons Facilities Grant (DFG) will usually be required for major adaptations at home. The DFG is administered by the housing department (Rochdale Home Improvement Agency – RHIA. Rochdale Metropolitan Borough Council’s RHIA, following advice from your occupational Therapist is available to help you with DFG applications. Other financial help may be available through your Occupational Therapist from Children’s Services through alternative funding; this may apply for example if you foster a child with disabilities. The Family Fund Trust may also be able to assist. At school With your Occupational Therapist makes any recommendations for your child within their school, the school may then be able to seek financial assistance from the local authority. How will an adaptation happen? Minor adaptations at home can be carried out for you via our building technicians in the RHIA Your Occupational Therapist will keep you informed about the progress of your individual case. If a major adaptation is agreed for your home, the RHIA can manage the adaptation for you with your agreement. This is then funded by Rochdale Metropolitan Borough Council. If your Occupational Therapist has agreed with you that a major adaptation at school may be a solution, they will liaise with the local authority to support you and the school in enabling these changes to happen. For all adaptations but especially major work, it is helpful to have as much notice as possible. Therefore we would encourage both you and your child’s school to work with us to plan ahead to meet your needs if we can. The majority of major adaptations in homes should be completed within one year; however your Occupational Therapist and the RHIA will keep you informed of progress, as unforeseen works can occur. Disabled Facilities Grant Process Below is a basic outline of the DFG process, (this may however vary slightly depending on the adaptation requirements): 1. Client / parent enquiry to local authority Children’s Social Care Services or Housing (RHIA) department, leading to referral to Occupational Therapy service. 2. Assessment of need of the disabled child by an Occupational Therapist. ROCHADLE LOCAL OFFER 2014 3. Agreed statement of need presented to RHIA detailing recommendations as “necessary and appropriate”. 4. Confirmation of eligibility and prioritisation according to risks 5. Financial issues considered. 6. Initial drawing of technical plans and schedule of works drafted. 7. Obtaining building quotations via the RHIA RMBC tendering process. 8. Obtaining planning permission (if required) and building regulations permission. 9. Grant application made. 10. Grant approval awarded. 11. Building works commence, dependent on identified builder availability. 12. Payment of contractors via RHIA, and evaluation by RHIA & the Occupational Therapist to ensure that the disabled child’s needs are met. Further information about legislation: Delivering Housing Adaptations for Disabled People: A Good Practice Guide ODPM Publications, PO Box 236, Wetherby LS23 7NB Tel 0870 1226 236 www.communities.gov.uk/ - search for “delivering housing adaptations for disabled people” Children’s Occupational Therapy Service This information relates specifically to the service provided from: Rochdale Metropolitan Borough Council 4. Equipment & aids for children with learning & physical disabilities “Occupational Therapists work with people of all ages, helping them to carry out the activities that they need or want to do in order to lead healthy and fulfilling lives.” (College of Occupational Therapists, 2005) One of the ways a children’s Occupational Therapist can help a child carry out their daily occupations is by recommending the use of specialist equipment. For some children, having the right equipment can enhance their ability to be more independent in their daily activities. Caring for a disabled child can also be made easier with the use of certain equipment, aids and / or adaptations to the home. There is a wide range of equipment available and some of it is very expensive. This leaflet provides information about how equipment is provided for children with learning difficulties and disabilities who live in Rochdale Metropolitan Borough Council. Who provides what? If your child has a disability that is temporary or mild then the Occupational Therapist on Duty can provide on specialist suppliers and other services that may be able to help. They can also provide advice on charities that may be able to help to buy equipment that statutory services do not provide such as for leisure activities. ROCHADLE LOCAL OFFER 2014 If your child requires equipment to facilitate a hospital discharge, for a temporary impairment, e.g. following a broken leg, then the Health Occupational Therapy Service will make recommendations and identify and provide the equipment necessary for this. The Occupational Therapist on Duty can provide their contact details, however most local hospital are already aware of these local arrangements and will in most cases refer to them directly in the first instance, this also applies for nursing equipment and wheelchairs. If your child has a permanent and substantial disability that is impacting on their ability to carry out their daily activities at home or at school, they may be eligible for an assessment from a Children’s Occupational therapist. (See leaflet – How does an occupational therapist make a difference to a child?) The action plan that is made with the child and family might include a recommendation to use certain specialist equipment. This might include specialist chairs, hoists, bathing, toileting or feeding equipment. Physiotherapists also work closely with Occupational Therapists and can provide mobility, standing and sleeping aids. We can support and provide access to advice and the provision of a range of other equipment such as IT, car seat providers, trikes and bikes and toys. What happens after the assessment by the Occupational Therapist? The Occupational Therapist will work with the child and family to identify their needs and possible solutions. The Occupational Therapist can then make arrangements to try the equipment out in the environment it will be used in, for example at home or school. When the Occupational Therapist, child and family have agreed on the best option, the Occupational Therapist will request funding from Children’s Services with a written report; urgent needs can be addressed within 24-48 hours. Once the needs and provision have been approved, the Occupational Therapist will place the order through the children with disabilities equipment service. The children with disabilities equipment service (which is currently delivered via Rosscare, will deliver the equipment within the specified timeframe recommended by the Occupational Therapist if it is standard stock, but it may take longer if it is ordered specially. If the equipment cannot be provided, Children’s Services will ensure the family are given the reasons why and alternatives to explore. The equipment service or Occupational Therapist will ensure the equipment is delivered and set up correctly for the child and provide advice and instruction on its use and care. Is there a charge? Equipment for children is loaned free of charge for as long as it is needed. The appropriateness and fit of the equipment will be reviewed by the Occupational Therapy Service on a regular basis, the frequency of this recommended by your child’s Occupational Therapist. Any essential maintenance or checks of electrical or lifting equipment, and most repairs are carried out by the local authorities’ designated providers and you will be notified of these arrangements if necessary. All we ask is that the items are kept in good working order and in a clean condition. If there is a problem ROCHADLE LOCAL OFFER 2014 with an item then simply contact the community equipment service (see contact information on the stickers placed on the equipment) and they will deal with it as quickly as possible. Contact information Children's Occupational Therapy Service Services for Children & Young People with Disabilities Floor 4, Number One Riverside, Smith Street, Rochdale. OL16 1XU. Tel: 01706 925900 Fax: 08451904240 Children’s Occupational Therapy Service This information relates specifically to the service provided from: Rochdale Metropolitan Borough Council 5. Professional standards and outcomes for disabled children: Enjoying and achieving Children’s Occupational Therapists: provide support for children, young people and their carers in developing independence in personal care, leisure and school skills, thereby enabling their enjoyment and ability to achieve in life provide advice, information and training for early years settings to promote the development of early skills for independence in daily activities provide advice about equipment and adapting environments to enable children with disabilities to access a range of educational and recreational activities enable a disabled child to join in with able bodied children by adapting environments, teaching alternative activity techniques or providing adapted equipment Making a positive contribution Children’s Occupational Therapists: encourage children and young people to be independent and value their own strengths and abilities support children, families and schools to enable access to the full curriculum provide a range of interventions to support children and young people with learning difficulties and disabilities to develop school and work skills ROCHADLE LOCAL OFFER 2014 The ‘specialist section for children, young people and their families’ can be found using the COT website College of Occupational Therapists 106-114 Borough High Street Southwark, London SE1 1LB Tel: 020 7357 6480 www.cot.org.uk