Updating the Pregnancy and Parenting Education Service Consultation Document May 2013 Contents 1. Introduction 3 2. Key Themes from Service Reviews 4 2.1 Access to Services 4 2.2 Acceptability of Services 4 2.3 Quality of Services 5 3. Proposed Changes 6 3.1 Service Definition 7 3.2 Service Objectives 8 3.3 Service Users 8 3.4 Access to Services 9 3.5 Service Components 10 3.6 Service Linkages 12 3.7 Quality and Reporting Requirements 13 3.8 Service Planning 14 4. Consultation Process 15 2 1. Introduction Pregnancy and Parenting Information and Education (the Service) is an essential and valued component of maternity services delivered to pregnant women, expectant fathers/partners and whānau. The Service is intended to reflect and build on the information, support and advice received through Lead Maternity Carers (LMCs), Secondary and Tertiary Maternity services, primary health care and other formal and informal support accessed throughout pregnancy. The objective of the Service is to give expectant women, fathers/partners and whānau the opportunity to acknowledge their own experience, to increase their knowledge and skills, to empower them to trust themselves and gain the confidence to access additional information and support when they need it1. Education courses in most district health boards (DHBs) are currently delivered through a mix of DHB-funded providers, non-government organisation (NGO)/private providers and providers funded from other agencies. The minimum requirements for DHB-funded services are specified in the national service specification published on the National Service Framework Library. The current national service specification was last reviewed in July 2002. Since then the accessibility and quality of services has been assessed as part of two service reviews2,3 and information collected through the Maternity Consumer Satisfaction Surveys4,5. There have also been changes to national health policies that need to be reflected in the content of services and service linkages. The Ministry of Health is reviewing the DHB-funded Service and associated national service specification and seeks stakeholder feedback on the proposed changes. This consultation document sets out the proposed changes to the Service, rationale for changes and supporting evidence. 1 Ministry of Health, 2002. Pregnancy and Parenting Education National Service Specification. Families Commission Research Fund - Childbirth education: Antenatal Education and Transitions of Maternity Care in New Zealand (Dwyer, 2009). 3 Ministry of Health - Review of Pregnancy and Parenting Education Services (Litmus, 2012). 4 Ministry of Health (2012). Maternity Consumer Surveys 2011. Wellington: Ministry of Health 5 Health Services Consumer Research for the Ministry of Health. 2008. Maternity Services Consumer Satisfaction Survey 2007. Wellington: Ministry of Health. 2 3 2. Key themes from Service Reviews The service reviews recommended a range of changes to improve access to services, acceptability of services and quality of service content and delivery. 2.1 Access to Services Almost three quarters of first-time expectant parents access pregnancy and parenting education courses (both DHB-funded and private courses)6. Research shows that services are more likely to be accessed by New Zealand Europeans who are tertiary educated and from middle to high income households 7. Barriers to access for other groups of prospective parents include: - - inadequate booking systems and follow up, confusion over which course to select, late presentation to primary care and/or LMC and therefore late referral, insufficient or inaccessible (free) courses in some areas, timing or format of services isn’t suitable for families circumstances or preferences, concern about whether other parents attending will be in similar situations, especially for groups like teen parents, single women, parents where language is a barrier etc, and education courses may be less of a priority for parents with other challenges in their daily lives. The recommendations relating to access included clarifying the target population for the Service, improving the registration process and management of waiting lists and improving the fit between the needs and preferences of the target population and the timing, format and style of services. 2.2 Acceptability of Services The acceptability to different groups of consumers impacts on both their initial and ongoing engagement. Factors that were seen by consumers and providers to improve the acceptability of services included: - considering the specific information and support needs of fathers/partners and other support people, tailoring education format, timing and content to meet the needs of individual groups of consumers rather than delivering set education classes, scheduling education for parents at similar stages of pregnancy and where possible with similar life circumstances e.g. young parents, single parents, different ethnic groups etc, and 6 Ministry of Health (2012). Maternity Consumer Surveys 2011. Wellington: Ministry of Health Families Commission Research Fund - Childbirth education: Antenatal Education and Transitions of Maternity Care in New Zealand (Dwyer, 2009). 7 4 - delivering services from community settings that are accessed by and comfortable for consumers including youth hubs, social service hubs, marae, churches, community clinics or halls etc. 2.3 Quality of Services Both service reviews considered the quality of services. Overall, the content of the current services was generally well endorsed. Recommendations for improving the content included: - more time spent on early parenting and postnatal adjustment, more practical content on the first weeks with a baby, introducing content on different aspects of pregnancy and parenting at appropriate stages of pregnancy and/or postnatally, ensuring all resources remain up to date both in terms of content and technologically, and ensuring messages are consistent with the advice being given by other health professionals. The majority of feedback and recommendations received on service quality were in relation to the skills and competence of the facilitator/educator. A high-quality course facilitator is seen as more important than any other factor in ensuring successful education, as well as access to and acceptability of services. The ‘ideal educator’ uses adult education principles and a collaborative parentcentred approach. Key characteristics include approachability, friendly and positive attitude, inclusive, knowledgeable, non-judgemental, flexible to encourage balanced discussion, up to date with information, resources and technology, empowering and understanding of community needs. Recommendations for improving the quality and consistency of educators included: - developing competencies or standards of practice for course facilitators, introducing a quality improvement process into the service specification, and improving access to professional development for educators/facilitators. 5 3. Proposed Changes The Ministry is proposing shifting away from the single service delivery model of formal education classes, which appear to have variable access criteria, capacity and reach across DHBs. The Ministry proposes a layered Service that provides various information, education and support depending on the needs of the Service Users. The Service will also be a key reference point for other health, education and social services that require evidence-based and consistent information on pregnancy and parenting to provide to their clients. The key components of the proposed Service are: Information Component - National Information – The Ministry of Health will publish and maintain a list of endorsed resources and web links for Service providers to encourage Service Users to access and other health, education and social service providers to refer their clients to. - DHB/Regional Information - Regional or DHB-level information on pregnancy and parenting related services in their area. At the discretion of each DHB/Region, this may include web information, telephone and electronic/text message services, information available through community hubs, family centres etc. Education Component - Group Education - Delivery of group-based education sessions on pregnancy, childbirth and early parenting for Service Users with high or complex support needs. - Individual Education - As considered necessary, delivery of individual and/or drop-in education sessions for Service Users with high or complex support needs who would otherwise not access the group-based sessions. Any changes to DHB-funded Services must be affordable within current DHB funding for these services. The proposed changes aim to introduce improvements by altering the structure and targeting within the Education Component to prioritise high needs Service Users, who are most likely to benefit from the Service. The Information Component aims to enhance coverage and access to information and advice for all pregnant women, expectant fathers/partners, parents and their whānau. The main focus for the proposed Education Component is Service Users who have high and/or complex support needs or are experiencing multiple disadvantages. It is important, however, that this change in focus does not result in a shift towards a deficit model for service delivery. The shift in focus is not about identifying and 6 responding to risk. It is about acknowledging that these groups have the most to benefit from accessing the Service. The Ministry acknowledges that there is not a single service delivery model that will meet the varied and diverse needs of these groups of parents. The proposed changes attempt to strike a balance between ensuring national consistency in access and quality of services, while providing DHBs and their contracted providers with flexibility to structure services in a way that responds to the needs of their local population groups. The DHB/Regional Information Service described above does not attempt to prescribe the way in which this information should be delivered or made accessible to populations. There are a number of excellent local initiatives already underway aimed at improving coordination and integration across maternity, primary care and child health services. The intention is not to create a separate service or hub for information, but that DHBs or Regions consider the best place within existing community services and/or web-based information for parents and providers to have access to DHB or Regional information on pregnancy, childbirth and parenting related services. 3.1 Service Definition The current service definition is that “Pregnancy and Parenting Education is a course on pregnancy, childbirth and early parenting provided to a group of pregnant women and their whānau/families.” This definition restricts funders and service providers to only provide Services in the form of courses or classes. Feedback suggests this is not the most inviting way to frame the Service to encourage access and participation by high need Service Users. This definition also lacks specific mention of fathers/partners who are a target population for the Service. Consumers reported in service reviews that they valued the support, empowering and confidence-building aspects of the current service and a greater emphasis on this in a service definition is required. Best-practice for delivery of education services is via group settings to enable parents to share the experience and journey of pregnancy, childbirth and parenting. This concept has been retained in the proposed Service definition. The proposed Service definition also highlights that this Service is part of wider maternity and other parenting services available to Service Users and the need for consistency with these other services. The proposed changes attempt to address these issues along with providing a high level outline of the new service structure and the targeting of priority groups within the Education Component of the Service. 7 3.2 Service Objectives Service Objectives are split into General and Maori Health Objectives. General Objectives The current General Objective is “…to give expectant women and their whānau the opportunity to acknowledge their own experience, knowledge and skills, empowering them to trust themselves and to know how to seek additional maternity information and support when they need it.” Knowledge and empowerment were the two common benefits that consumers described as having come from attending a pregnancy and parenting education course. The current Service objectives provide most of these key messages. However, the programme logic for current services is not immediately clear from the way it is presently written. The proposed changes outline knowledge, support and empowerment as the intended outputs of the Service. The intended outcomes that these outputs contribute to are listed; access to support and services, making informed choices, developing parenting skills and building confidence. Reducing inequalities through layering the intensity of the Service and targeting high need populations is also listed as a key objective. These changes to the objectives will make it easier to review Services and assess effectiveness in the future. Māori Health The current objective for Māori Health captures the concept of cultural sensitivity in delivery of services but doesn’t acknowledge the need to make specific considerations to ensure services meet the health, cultural and support needs of Maori and participation of Maori in planning and delivery of services. The Maternity Services – DHB Funded tier one service specification captures these concepts well. The Ministry proposes including specific considerations Service providers must make for Maori in designing the course content and facilitation. 3.3 Service Users The current specification defines Service Users as “one pregnant woman (or prospective adoptive mother), and, where relevant, her partner or support person or whānau.” Participants from the service reviews commented that pregnancy and parenting education services are the one service that was available during pregnancy for both parents, whereas other maternity services were more focussed on responding to the needs of the pregnant women. However, the use of the term “where relevant” in the 8 definition of Service Users appeared for many to be dismissive of the involvement of fathers/partners. The proposed changes include fathers/partners as a key Service User group. Current DHB-funded Services also appear to have variable capacity to deliver services to their populations. The definition of Service Users does not clarify the target groups who Services should be prioritised. This appears to have led to DHBfunded Services being filled by those who register early enough in their pregnancy or are proactive in accessing services, with many of the highest need Service Users missing out on Services as they tend to register later or are less likely to follow up after making initial contact. The proposed changes include defining a high need target population groups for the Education Component. 3.4 Access to Services Entry, registration and exit criteria The current entry and exit criteria are that “each eligible pregnant woman is entitled to receive one Pregnancy and Parenting Education programme during the duration of each pregnancy.” The Service Reviews have highlighted that no DHB is funding sufficient places to meet this requirement and that there are different local expectations relating to who is eligible or included in the target population for Services. The current registration process in many areas of a “first-in-first-served” answerphone service was also highlighted by consumers and other health providers as a barrier for many high need families enrolling in and receiving services. The proposed entry criteria have been purposefully left flexible around who is eligible or not for the Education Component of the Services. It is intended that the DHB and Service provider will clarify this on the basis of a local area needs assessment in the Service Plan. The Ministry’s expectations on the types of Service Users who should be considered in the high need population are detailed under the Service Users clause. Specific mention is now made to the need for a registration process and for the responsibility to follow up referrals and enrol people in Services to be on the Service provider, rather than the Service User. Under the new Service structure and high need Service User criteria, the Service provider will also be required to provide Service Users with details of how to access the Information Component and other pregnancy and parenting education services in the area to those who do not meet the high need Service User criteria. The exit criteria section notes that Services will be delivered until around six weeks after birth. However, the section also allows for providers to deliver postnatal 9 Services beyond this if this is considered necessary and appropriate by the funder and provider when planning the Service. Time Feedback from the service reviews suggested that the timing considerations from the current service specification remain appropriate. However, some additional information about the new Components of the Service is proposed. The new clause includes details about when the Information Component of the Service should be available and when the registration process for the Education Component should be available. The proposed changes include specifying that weekends and nights may be the most appropriate time for delivery of the Education Component. However, the exact nature of the days, times and timing throughout pregnancy/postnatally for the Education Component will remain flexible for Service providers and funders to agree based on the needs assessment and Service Plan. 3.5 Service Components Programme The current specification outlines the range of topics to be covered during pregnancy and parenting education in the areas of access to maternity services, pregnancy care, labour and birth care and care following the birth. Given the overarching changes to the structure of the Service that are being proposed, this section has been split into an overview of the Service (Key Components), the Key Messages for all Components, the Information Service Component and the Education Service Component. Through the service reviews consumers commented that they wanted more detail on early parenting and postnatal adjustment, more practical content on the first weeks with a baby and for information to be delivered at appropriate stages of their pregnancy. The content also needed to be updated to reflect changes in various health policies and guidelines. The proposed Key Messages section expands on the existing topics with the inclusion of more detail to guide Service providers in designing the Education Component. The proposed specification also notes that while the Key Messages are the minimum content to be covered, timing and emphasis will be guided by the needs of individuals or groups of Service Users. This is in response to feedback from consumers and current evidence that the acceptability of the Service will be improved when consumers are treated as partners in planning the Service rather than solely as service recipients. 10 The proposed Information Component section outlines the roles and responsibilities of the Ministry, DHBs/regions and the Education Component Service provider in relation to the Information Component. The specification is left open regarding how the Information Component will be delivered to allow DHBs/regions to determine the best way to reach their population within existing or new service structures. The proposed Education Component outlines the key points for consideration when designing the Service, being; coordination of groups, format and timing, Key Messages, delivery style and aims, and individual services. Accepted best practice for adult education is to deliver services over a number of sessions rather than in intensive blocks. This is also a requirement for the proposed Education Component. The proposed specification is not prescriptive about how the Education Component is set up. The Ministry acknowledges that in order to reach the highest need groups of Service Users, the Services will need to be adapted to meet their access, information and support needs. There is no “one-size-fits-all” model for how the Education Component should be designed. This can only be specified at a local area in response to a needs assessment and consultation with Service Users. The specification is designed to ensure there are consistent messages being delivered and consistent quality is achieved across all areas, whilst allowing funders and Education Component Service providers the flexibility needed to decide how best to deliver Services to high needs Service Users. Setting Evidence and feedback from consumers and providers indicated that using an appropriate venue for education services will improve access to and acceptability of services. The current specification defines settings for services as “community rooms, marae, hospitals, private homes, practice rooms or other appropriate places. Venues may vary according to the needs of the women attending. Settings should be safe and accessible.” The proposed new setting clause builds on this with further considerations that should guide selecting suitable venues, being: - accessibility, familiarity and comfort for Service Users colocation or linkages with other related services to both attract referrals and improve the Service Users navigation of other services, and consultation with Service Users during service planning. The feedback from consumers in the service reviews supports these changes as ways of improving the acceptability of and likelihood to access services. High need Service Users who are navigating a number of service providers alongside chaotic or 11 stressful lifestyles may not see the need to prioritise this Service. Access therefore needs to be made as easy as possible to support enrolment and participation. Equipment/resources Currently, the specification requires Service providers to develop resources, reference lists and provide printed material for service users to take home. It also requires resources to be available in a range of formats and up to date. Consumers reported in the service reviews that they generally appreciated the resources received through the Service. However, where these resources offered conflicting advice to that of other professionals or were seen to be out-of-date, this significantly reduced the consumer’s confidence in the whole of the Service. The new roles and responsibilities relating to the Information Component propose establishing a hub of information for consumers and health, education and social service providers on pregnancy and parenting. Where other resources are used, the specification requires the Education Component Service providers to review the authenticity and appropriateness of these resources. Educators/facilitators The current specification requires that each programme is coordinated by one person and provides a list of qualifications and professions that programme coordinators will preferably hold or be. The majority of feedback received through the service reviews was in relation to different education or facilitation styles encountered by consumers and a lack of standards or professional development framework for educators/facilitators. The effectiveness of the educators/facilitators is seen by consumers, providers and funders as a fundamental requirement for the success of services. The proposed changes to the specification move away from specifying the qualifications of the individual who can deliver education to specifying the competencies that must be met and maintained by educators/facilitators. The list of competencies has been adapted from the Australian National Association of Childbirth Educators (NACE) Competency Standards for Childbirth and Early Parenting Educators – Australia (2011). The specification also proposes requirements for quality improvement including the training, peer review and professional development required to continue to meet the competencies. 3.6 Service Linkages The Service is seen to be a key source of information for Service Users on the other services available to them throughout pregnancy and once their baby is born. 12 The current specification requires service providers to establish and maintain linkages with organisations and providers that may refer women to the Service. Maintaining relationships with these services is an important service linkage for providers to improve access to the Service. With the proposed changes to the Service structure, it is especially important that referring services are made aware of the entry criteria for the Education Component and how to access support their clients to utilise the Information Component. Ensuring consistency of messages with other service providers and providing information on other pregnancy and parenting services available to parents are two of the key quality requirements of the Service. Therefore, it is important that Service providers also establish and maintain linkages with other services that Service Users are accessing or that the Service provider may refer Service Users onto. The new Service Linkages section of the specification proposes the various providers, services and organisations that Service providers will be required to have formal protocols and/or relationships with. 3.7 Quality and Reporting Requirements The Quality Requirements in the current specification cover the key areas that should be addressed by the Service. However, the Service Reviews have highlighted that despite these requirements, there is variable Service quality across different providers/areas and many areas are not achieving these requirements. The new Quality Requirements section of the specification attempts to capture the recommendations from the Service Reviews in relation to improving service access and acceptability for high need Service Users. More detail is proposed for each requirement to ensure funders and providers are clear on the expectations for Service quality and the target population for Services. The educator/facilitator quality requirements proposed reflect the measures required to meet and maintain the new competencies. The competencies and quality requirements cover the key aspects that are considered important to ensuring a consistently high standard of delivery for the Education Component across DHBs. The importance of undertaking and using consumer surveys across to inform service delivery models was highlighted in the Service Reviews. The new specification proposes to formalise this requirement across all quality measures. Changes are also proposed to the unit level data that is reported to the Ministry of Health to make this data more useable in analysis and future policy development. The main change proposed is the removal of prescriptive reporting against the specific quality measures. The service reviews revealed that in some areas providers had been providing the same, unchanged report every quarter against the specification requirement. This indicates that the previous requirements were not 13 providing useful information for Service providers and DHBs in reviewing and planning Services. The proposed specification is more flexible on the types of service delivery model that may be delivered and therefore the reporting requirements must reflect this. The specification proposes a single narrative report on risks, trends and issues. DHBs are also able to specify further requirements at a local level to reflect the delivery models agreed between the Service provider and funder and other information that will be useful to both in reviewing and planning Service improvements. The specification proposes the introduction of two purchase units, one to count the Information Component (block), and one to count the Education Component, per service user. The Ministry proposes setting up mandatory reporting of the Education Component purchase unit to the National Non-admitted Patient Collection (by Service User NHI Number). The detail of this will be confirmed following this consultation and in discussion with DHBs. 3.8 Service Planning With the changes to the Service structure, targeting and flexibility of delivery models, the Service Planning section of the specification has become increasingly important. The proposed Service relies on funders and Service providers working together to identify the target groups within their populations that will benefit from Services, and the Service formats, timing, setting and delivery models that will best meet the needs of these Service Users. The revised Service Planning section of the specification requires Service providers to undertake a local area needs assessment annually to inform the plan for delivering Services. The key considerations that Service providers must make when planning Services are proposed. These considerations reflect the key recommendations from the service reviews in relation to access, acceptability and educators/facilitators. 14 4. Consultation Process The Ministry of Health is inviting stakeholder feedback on the proposed Service and associated specification. The closing date for feedback on the revised Service and specification is 28 June 2013. Feedback may be emailed (maternity@moh.govt.nz) or posted to: Karen Davis Child and Family Programmes, SCI Ministry of Health PO Box 5013 Wellington 6145 A template for feedback has been provided. To assist us in analysing the feedback received, it would be useful if you are able to organise your feedback using this template. PPIE feedback template.docx Feedback will be analysed and a summary of feedback produced. This feedback, along with the input of key DHB content advisors will be used to amend the specification prior to submission to the Service Specification Programme Executive for their consideration. Thank you for your time. 15