THE BASICS OF ONCOLOGY PEDIATRIC NURSING By: Jessica Coates SENIOR PROJECT MR.COPELAND May 2015 Coates 1 Jessica Coates Mr.Copeland Senior Project May 2015 Throughout history helping one another has been a major part of the society. One of the newer fields of nursing is oncology. These nurses not only work as caregivers, but are the child and their family’s support system. Oncology pediatric nursing can be very rewarding, but also presents interesting challenges. It is still a young career field with very little history, but statistics are showing new results every day. To best appreciate nursing today one most learn about its history. All throughout history many citizens have come together to help anyone in need. Knowledge and technology advances every day in the medical field. Prior to the need of oncology nursing, there was nursing. Because no formal education in the care of the sick was available, the earliest nurses learned through traditions passed generation to generation and observations of others with the process of trial and error. In many societies woman were given the role of a caregiver because women normally provided nurturance to the family (www.jblearnihttp://ng.com). The oldest description of cancer was discovered in Egypt and dates back to around 3000 BC. An ancient Egyptian textbook on trauma surgery was called the Edwin Smith Papyrus. It reports 8 tumors or ulcers, the writing states “There is no treatment.” Some of the earliest evidence of cancer is found among fossilized bone tumors, human mummies in ancient Egypt, and manuscripts. Growths suggestive of the bone cancer called osteosarcoma Coates 2 have been seen in Mummies. Bony skull destruction as seen in cancer of the head and neck has been found (www.cancer.org). Oncology pediatric nursing is a young career field. The Oncology Nursing Society was officially incorporated on July 17, 1975 in Illinois and was accepted into the National Federation of Specialty Nursing Organizations. (www.ons.org/about/history). Because people didn’t have all the technology and knowledge back then that America has now, people made up theories to try and explain the unexplained. Throughout history many theories have evolved, some were proven true and some false. In 1838 a German pathologist, Johannes Muller demonstrated that cancer is made up of cells not lymph this theory was called the “Blastema Theory.” His student a famous German pathologist determined that cells are derived from other cells. Another theory was called the “Chronic Irritation Theory”, Virchow suggested that chronic irritation was the cause of cancer. Virchow thought incorrectly that they spread like liquid. German surgeon, Karl Thiersch in the 1860’s discovered that cancer was formed through the spread of malignant cells not through an unidentified liquid (http://www.cancer.org). Since cancer is so complicated it is important to get a proper education in medicine to learn what theories are correct and how to better treat the patient. Oncology nursing is a nursing professional whose practice involves caring for patients recovering or undergoing cancer treatments. The patients must be 18 years old or younger (education-portal.com). A gratifying feeling is to wake up and know that as a nurse they will be able to help many lives throughout the day. Any ones day that can be made by a smile or smirk, which can also have the ability to ignore a crying child to put an IV in or perform a painful procedure has the patience and potential to become a pediatric nurse. A certified speaking Coates 3 professional whose name is, Donna Cardillo travels around the world inspiring many nurses once said, “When I think about all the patients and their loved ones that I have worked with over the years, I know most of them don’t remember me nor I them. But I do know that I gave a little piece of myself to each of them and they to me, and those threads make up the beautiful tapestry in my mind that is my career in nursing.” (http://donnacardillo.com/) Oncology pediatric nurses are impacting little lives in positive ways, which not only helps the patient but helps themselves grow as better human beings and become more experienced. To become a pediatric oncology nurse one has to obtain a licensure as a RN; registered nurse, BSN; bachelors of Science in nursing, MSN; Master of Science in nursing. Depending on what program a student attends, it may take up to three to four years to complete (http://education-portal.com). Frequently, oncology nurses focus on an area of specialization such as, cancer genetic counseling, chemotherapy, gynecological oncology, palliative care, surgical oncology, bone marrow transplant, breast oncology, prevention and early detection of cancer and radiation oncology (nursingschoolprograms.net). Typical work places are the hospital, physician’s office or an outpatient care facility. Most nurses have personality traits such as being compassionate, having the ability to adapt to technology, be patient and optimistic. The primary goal is to cure cancer or to considerably prolong life. Improving the patient’s outlook on life is also an important goal (www.who.int). Nurses must be able to provide knowledge and the emotional support families and the patient need (www.citytowninfo.com). It is said to be very rewarding. The most delicate part of their job is they have to be good with children. Most personality traits these nurses have are compassionate, technical aptitude, patient and optimistic. Most are drawn to this job because they love working with kids and it feels like their making a difference for the patients and their family in a time of need. A child and Coates 4 family brings in something different that helps nurses learn, whether its figuring out a better way to take care of patients or life lessons they pass on to the nurse. Being a nurse isn’t all about administering medication and doing what they are asked to, most nurses put their heart and soul into this job. It is important to engage in their job when nurses are working with others, especially when they are kids. Always, with rewards come challenges. Working with kids is very difficult. Nurses have to come up with different methods when trying to explain and administer medications. Also when telling them their diagnosis. These nurses have to monitor patients constantly. Be able to act calmly and effectively in an emergency situation. They have to feed, bathe, and clean after them. This job gets tricky when nurses are working twelve hour shifts, due to fatigue (www.nursepractitionerschools.com). Nurses have to be able to handle and deal with the emotional state within themselves. One of the hardest parts about this job is that some children are dying. Nurses have to deal with their “inner critic”. Such as them asking their selves; “What could I have done better?” “Was this my fault?” They have to suffer the daily challenges that most humans don’t. Most children handle things differently for many reasons. When children have cancer it is very hard to explain what it is and how it will affect them. When an infant, the baby’s siblings and older family will most likely feel separation and anxiety. The nurse has to help them cope with their loss. When in their early childhood stage they know the word ‘death’ or ‘dead’. The reaction depends on the parents. Its best to let the family cope and child express their feelings. During their middle childhood they will understand the meaning of death. Some may have fears of their parents dying, nurse will allow patients and family to communicate if they feel like it. In the course of their late childhood the family and Patient starts including religious beliefs about death. They will explore views of an “after life” Coates 5 and will continue to face reality. At this stage the nurse should allow the patient to discuss feelings and how they feel about procedures. When an adolescence they have a grown perspective and understand what is going on. Nurses should help them maintain and support their self-esteem (Pediatric Nursing made Easy, Lippincott Williams and Wilkins). Cancer is very deadly and there is a lot to learn research is showing new statistics every day. Each year in the United States 13,500 children and adolescents 18 and under are diagnosed with cancer every year (www.thetruth365.org). An average of 46 children are diagnosed every day (www.nursing101). Approximately 20 percent of children with cancer will die from their disease whether it is from a secondary cancer or complications from treatment. The average age of death for a child with cancer is eight years old. Causing a childhood cancer victim to lose up to 69 years of expected life years. It’s a remarkable loss of productivity to the society. About one in 500 in young adults is a childhood cancer survivor nearly two out of three of the survivor’s experience significant and chronic medical complications or develop secondary cancers as adults that result from the treatment of their regular cancer. Incidence of invasive cancer has went up 29 percent in the last twenty years. Among woman five of the most common cancers are, breast, cervix, lung, colorectum and stomach. Male’s most common cancers are, lung, prostate, colorectum, liver and stomach. To learn more about nursing one most know about the roles. There are many different roles in nursing. The oncology nurse’s role as a coordinator of care discuss the best plain for the patient with team members to provide the required best care possible. Advanced nursing practice in oncology as a direct caregiver demands mastery of this field. They have the ability to provide, guide, and evaluate the practice given to patients and their families. In the role of a consultant nurses provide their prowess about oncology to their Coates 6 colleagues, allied health personnel and healthcare consumers while as an educator. They also design and perform patient activities. As a researcher the nurse identifies and investigates researchable problems, evaluates and applies research findings that could affect cancer care or nursing. As an administrator or manager it is their duty to create a clean, respectful environmentally friendly facility. It is their job to make sure everything is handled in a professional manner and all precautions are taken with nurses and the patients (www.nursesource.org). The medical field is changing everyday due to research. Nurses have to be able to handle new crises. The US cancer care delivery system is in crisis and changes all across the board are urgently needed to improve the quality of cancer care. The IOM report presents six components of high quality care that need to be addressed. These are in order of priority level. Engaged patients and family should be provided comprehensible information about matters of cancer prognosis, treatment benefits and harms, and palliative care. The workforce must include enough clinicians with essential core knowledge for treating patients with cancer. The cancer care team should work with primary care, geriatrics and specialist teams to preform patient care plans and deliver comprehensive, efficient patient care. Clinical research should gather evidence of the benefits and harms of many treatment options and the impact of the treatments such as, quality of life, and the patients overall experience. Care in cancer requires an IT system. It can be learned by enabling real-time analysis of the patient’s data. It will improve knowledge and help preform medical decisions. Nurses should be given tools to help them incorporate new medical knowledge into their routine quickly. HHS should try and develop a national strategy. One that influences the nation to provide accessible and most importantly affordable cancer care. If Coates 7 specific payment models were publicized and demonstrated increased quality and affordability payers will most likely adapt quickly (oncologynurseadvisor.com). The medical field is a very demanding job. Nurses are taking lives into their own hands. First it started with theories, as time developed and technology advanced there have been many new tools and discoveries. Oncology pediatric nursing is delicate due to the fact their dealing with kids that have cancer, but it is a very rewarding job to save lives. These nurses have to be able to multi task smoothly and have appropriate education to do their job. This includes being able to work with children and converse with their guardians. Nurses are the “backbone”, the family and child’s support system. It is important for the nurses to be able to handle fatigue, and their own emotions. Everyone handles things differently. Nurses have to handle it in a professional manner. Throughout time research has developed as technology has and statistics are showing new results every day. Organizations are always raising money and awareness to everyone. The medical field is constantly changing throughout time.