Hope for children and families Background and Scope of Work for Morehead-Cain Scholar 2013 Placement with Keep a Child Alive and Alive Medical Services in Kampala, Uganda Background on Keep a Child Alive Our Mission Keep a Child Alive believes that every person has the right to health care and deserves a future. We support innovative, community-led responses that increase access to life-saving, and life-changing, HIV care and treatment, nutritious food, and loving support for children and families living with and affected by HIV in Kenya, Rwanda, South Africa, Uganda, and India. With Alicia Keys as Global Ambassador, Keep a Child Alive uses its voice to raise awareness, mobilize people to take action, and rally resources in the global response to HIV. Our Beginnings Keep a Child Alive (KCA) was founded in 2003 by long-time AIDS activist Leigh Blake and co-founded by 12-time Grammy Award winner Alicia Keys. KCA began as an emergency response to the HIV epidemic, raising global awareness about the urgent and unmet need for HIV treatment for children in subSaharan Africa, and granting funds to community-based organizations to provide free, life-saving treatment to keep people living with HIV from needlessly dying. Ten years later, our core mission is unchanged and our work has expanded and grown to include the care components that support successful HIV treatment: comprehensive clinical care, psychosocial support, and food and nutritional support. Our founder’s passion and commitment continue today through the work of 7 KCA-supported grassroots organizations in 5 countries: Kenya, Rwanda, South Africa, Uganda, and India. Over the past decade, KCA and its partners have directly impacted the lives of over 300,000 people and currently support over 9,000 children and adults on HIV treatment. Raising our Voices for Increased Access to HIV Care and Treatment HIV treatment, or antiretroviral therapy (ART), has transformed the lives of people living with HIV, returning them from sickness to health, ensuring that an HIV diagnosis is no longer considered a death sentence but rather a chronic disease to be managed, and helping to prevent new HIV infections. Despite increased access to treatment worldwide, 46% of adults who need HIV treatment still can’t get it. Among children, access to HIV treatment remains shockingly low - only 28% of children living with HIV who need treatment are on it. We are committed to continue the fight to ensure access to HIV treatment and care for each and every child and adult in need. The statistics are devastating: More than 230,000 children died unnecessarily from AIDS-related causes in 2011, and 330,000 were unnecessarily infected with HIV because their mothers lacked access to information and treatment to prevent transmission of the virus to their babies. Every day, 2,500 young people between ages 10-24 are newly infected with HIV. Worldwide, 16.6 million children have lost their parents to AIDS, 15 million of whom live in sub-Saharan Africa (UNAIDS 2012). 45 Main Street, Suite 617, Brooklyn, NY 11201 phone. 718-965-1111 fax. 718-965-1158 www.keepachildalive.org 1 Hope for children and families Our Focus Areas Keep a Child Alive is committed to upholding the human right to health care by delivering compassionate, quality care that provides our clients dignity and a chance to live healthy, productive lives. To fulfill this commitment, KCA programs prioritize increasing access to: 1. Comprehensive HIV Care and Treatment Services: KCA’s local partners provide free, comprehensive and compassionate HIV care, treatment, and support services. Our integrated approach to HIV care provides children, young people, women, and men with the services and support they need to stay well, keep their families healthy, and prevent new HIV infections. 2. Nutritional Support: Knowing that poverty and lack of food and safe drinking water are major challenges for the clients and families we serve, KCA programs provide food and access to safe water as part of comprehensive HIV care. Having enough nutritious food to eat and access to clean water helps retain clients in care and improve adherence, prevents illnesses, strengthens the immune system, and can enhance the effect of HIV treatment. 3. Care for Orphans and Vulnerable Children: Many of KCA’s community-based partners help ensure that the comprehensive needs of children orphaned by AIDS or who are otherwise vulnerable are met, including critically important psychosocial support services, education, and health care. We strengthen community and family support systems so that orphaned and vulnerable children can stay in their communities, where they often have the best chance of attaining a healthy future. 4. Support for a Future: KCA’s commitment to the individuals, families, and communities we serve goes beyond medical care. We integrate social welfare assistance and legal support for the most vulnerable children, young people, and adults, income generating activities, skills building, and vocational training. For more information on Keep a Child Alive, please visit our website: http://keepachildalive.org/ And follow us on social media: http://www.facebook.com/keepachildalive http://www.twitter.com/keepachildalive 45 Main Street, Suite 617, Brooklyn, NY 11201 phone. 718-965-1111 fax. 718-965-1158 www.keepachildalive.org 2 Hope for children and families Background on Alive Medical Services Nearly a Decade of Inspiration and Growth Keep a Child Alive began supporting Alive Medical Services (AMS) in 2004. At this time, Dr. Pasquine Ogunsanya and her husband, Dr. Adebiyi Ogunsanya, were operating a small clinic in response to the dire need for dignified HIV-related health services and support that they saw in their community. What started as a small, one-room clinic has since grown and expanded in ways that we never dreamed of, thanks to Drs. Pasquine and Adebiyi’s tireless dedication, service, and commitment to health care as a human right. Now, in 2013, AMS, with support from KCA, provides comprehensive HIV treatment, care, and loving support to more than 10,500 people living with HIV, including 5,000 people on life-saving and lifechanging ART and 1,000 children. AMS provides services to approximately 130 new clients every month and, despite limited clinic space and staffing, sees on average 4,000 clients per month. AMS operates 24 hours per day, 7 days each week in Namuwongo, a large, poor, and underserved informal settlement in Kampala, Uganda. Namuwongo is situated near a railroad track and its residents have very limited access to clean water and sanitation. AMS offers a variety of services to the residents of Namuwongo including: High quality in-patient and out-patient services for adults and children Comprehensive HIV treatment and care Treatment and prevention of opportunistic infections Nutritional support, including food distribution Safe water education and PUR demonstration and distribution (supported by Proctor and Gambles safe water program) Psychosocial support, including individual counseling and support groups Antenatal care and maternity services, including prevention of mother-to-child transmission (PMTCT) Family planning Childhood immunizations and well-baby visits Laboratory services Voluntary counseling and testing (VCT) for HIV Youth-friendly HIV and related services Community outreach and education, home-based care, and follow-up Mobile clinics Ambulance transportation In addition, AMS acts as a service site for medical students from Makerere University College of Health Sciences, a training internship site for students studying HIV counseling, and an attachment site for nonmedical students from the Uganda Christian University, as well as Makerere University’s faculty of social sciences. The Nutrition and PUR Safe Drinking Water Program at Alive Medical Services 45 Main Street, Suite 617, Brooklyn, NY 11201 phone. 718-965-1111 fax. 718-965-1158 www.keepachildalive.org 3 Hope for children and families KCA and AMS believe that in order to provide truly comprehensive HIV care and support that we must address the overall socio-economic status and wellbeing of the clients we serve and their family members. As many of AMS’ clients live at or below the poverty line, lack access to safe water supplies, and struggle with food insecurity, the provision of nutritious food and safe water are an integral part of the model of comprehensive HIV care. AMS organizes two nutrition days each month, where food parcels are distributed to more than 600 clients (benefitting as many as 1,400 clients and their extended families each month). This time is also used to educate clients about the importance of good nutrition and safe water and to demonstrate and distribute PUR packets and supplies (clean buckets, filter cloths, stirring sticks). As of December 2012, AMS provided safe water education and PUR supplies to 5,500 clients each month. Each of these 5,500 clients has, on average, eight to nine family members in their homes. Therefore, the benefits of PUR have been extended to an estimated 45,000 people in the community. Hundreds of clients arrive as early as possible on nutrition days to collect their parcels and PUR supplies. An added benefit is that many clients network and support one another when they come together during the nutrition days. This informal peer support helps clients feel accepted and supported, reduces stigma, and contributes to a sense of dignity. While we know that offering “wrap around” services, such as nutritional support and safe water education and supplies, benefit AMS clients and their family members, KCA and AMS would like to more systematically document the AMS comprehensive model of HIV care and assess and document the specific ways that nutrition and safe water services and support contribute to and impact, for example: Disease prevention (such as prevention of diarrhea and other water-borne illnesses among clients and their family members) Retention in HIV care and treatment Adherence to medications, including ART Economic and social development of beneficiaries and their family members School enrollment and attendance among children (child clients or children of AMS clients) For more information on AMS, including a video narrated by one of our clients, please visit: http://keepachildalive.org/our-work/alive-medical-services/ Morehead-Cain Scholar Draft Scope of Work Keep a Child Alive and Alive Medical Services are seeking a dynamic Morehead-Cain Scholar to spend 810 weeks during the summer of 2013. The scholar will work directly with Alive Medical Services staff, volunteers, local student fellows, and beneficiaries in Kampala. The placement will offer a hands-on experience working directly with a community-based HIV treatment, care, and support program, serving some of the most vulnerable children, adults, and families living with and affected by HIV. Specifically, we would like the Scholar to assess and document AMS’ nutrition and safe water programs, the potential benefits to clients and families of offering these “wrap around” services as a part of comprehensive, clinic-based HIV treatment and care, and any implementation challenges and solutions. 45 Main Street, Suite 617, Brooklyn, NY 11201 phone. 718-965-1111 fax. 718-965-1158 www.keepachildalive.org 4 Hope for children and families Depending on the skills and areas of interest of the Scholar, placement tasks may include the following (to be agreed upon with Morehead-Cain Scholar, KCA, and AMS in advance): Work with AMS staff (counselors, nurses, community health workers, etc.) to prepare for nutrition and safe water education and distribution sessions; observe sessions (which are usually conducted in the local language). Participate in AMS nutrition and safe water days, including assisting with food and PUR distribution and tracking. Working together with a Ugandan university student intern/fellow and AMS staff, assess and document Alive Medical Service’s nutrition and safe water drinking programs. o Assist in the development of data collection tools and the collection and reporting of key information/data for the AMS nutrition and safe water programs (e.g. number of clients benefitting, number of food parcels distributed, number of PUR packets and supplies distributed, etc.) o Conduct focus group discussions and in-depth interviews with clients benefitting from AMS’ nutrition and safe water programs to gain insight into the impact these programs are having on clients and their families, challenges, and successes (including developing qualitative data collection tools, conducting focus groups and interviews, analyzing findings, and writing up results). o Conduct a small household survey in the AMS catchment area, sampling 100 female-headed households, to ask about, document, and analyze food security, as well as their water collection, storage, and treatment practices (selecting, adapting, and reporting on indicators from the WHO Monitoring and Evaluation Guidelines for Household Water Treatment). o Work with the AMS quality improvement team to review and analyze a sample of AMS client records to assess to impact of nutrition and safe water services on clients retention in care, adherence to medicines, and health outcomes (e.g. incidence of diarrheal disease and infections, weight gain, CD4 counts). Develop low-literacy nutrition and safe water take-away materials for clients and community members. Provide general programmatic and documentation support to AMS, as needed. On-site, day-to-day supervisor in Kampala: Dr. Pasquine Ogunsanya, Director, Alive Medical Services Keep a Child Alive supervisors in New York: Tayla Colton, Sr. Director of Programs Alana Hairston, Sr. Program Officer 45 Main Street, Suite 617, Brooklyn, NY 11201 phone. 718-965-1111 fax. 718-965-1158 www.keepachildalive.org 5